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List of works by Alexandra L Quittner

"I honestly believe god keeps me healthy so i can take care of my child": parental use of faith related to treatment adherence

scientific article

A Prospective Longitudinal Study of U.S. Children Unable to Achieve Open-Set Speech Recognition 5 Years After Cochlear Implantation.

scientific article

A multi-method assessment of treatment adherence for children with cystic fibrosis

scientific article published on 05 May 2006

A quality-of-life measure for adults with primary ciliary dyskinesia: QOL-PCD

scientific article

A randomised, double-blind, placebo-controlled trial of repeated nebulisation of non-viral cystic fibrosis transmembrane conductance regulator (CFTR) gene therapy in patients with cystic fibrosis

scientific article

Adherence Determinants in Cystic Fibrosis: Cluster Analysis of Parental Psychosocial, Religious, and/or Spiritual Factors

scientific article

Adherence with tobramycin inhaled solution and health care utilization ⬇️

scientific article published on January 20, 2011

Age-dependent cost-utility of pediatric cochlear implantation

scientific article

Amikacin liposome inhalation suspension for chronic Pseudomonas aeruginosa infection in cystic fibrosis

scientific article published on 23 August 2019

An 18‐month study of the safety and efficacy of repeated courses of inhaled aztreonam lysine in cystic fibrosis ⬇️

scientific article published on November 1, 2010

An international registry for primary ciliary dyskinesia

scientific article published on 8 December 2015

Anxiety and depression in cystic fibrosis

scientific article published on 16 September 2009

Anxiety, depression, and life satisfaction in parents caring for children with cystic fibrosis ⬇️

scientific article published on March 7, 2011

Assessing disease disclosure in adults with cystic fibrosis: the Adult Data for Understanding Lifestyle and Transitions (ADULT) survey Disclosure of disease in adults with cystic fibrosis.

scientific article

Assessing effects of inhaled antibiotics in adults with non-cystic fibrosis bronchiectasis--experiences from recent clinical trials

scientific article published on 03 August 2018

Assessing health-related quality of life in disorders of sex development: phase I - item generation

scientific article published in January 2011

Assessing joint attention and symbolic play in children with cochlear implants and multiple disabilities: two case studies

scientific article published in February 2008

Assessment of health-related quality of life 6 years after childhood cochlear implantation

scientific article published on 23 August 2013

Association of observed family relationship quality and problem-solving skills with treatment adherence in older children and adolescents with cystic fibrosis

scientific article published in July 2004

Azithromycin in patients with cystic fibrosis chronically infected with Pseudomonas aeruginosa: a randomized controlled trial

scientific article published in October 2003

Aztreonam for inhalation solution in patients with non-cystic fibrosis bronchiectasis (AIR-BX1 and AIR-BX2): two randomised double-blind, placebo-controlled phase 3 trials

scientific article published on 18 August 2014

Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way?

scientific article published on 09 January 2006

Behavioral inhibition, self-regulation of motivation, and working memory in children with attention deficit hyperactivity disorder

scientific article

Cell phone intervention to improve adherence: cystic fibrosis care team, patient, and parent perspectives

scientific article

Challenges of disorders of sex development: diverse perceptions across stakeholders

scientific article

Changes in pediatric health-related quality of life in cystic fibrosis after IV antibiotic treatment for pulmonary exacerbations

scientific article

Childhood Development after Cochlear Implantation (CDaCI) study: Design and baseline characteristics

scientific article published in 2007

Childhood Development after Cochlear Implantation (CDaCI) study: design and baseline characteristics

scientific article published in June 2007

Children with disorders of sex development: A qualitative study of early parental experience

scientific article published on 12 October 2011

Clustered randomized controlled trial of a clinic-based problem-solving intervention to improve adherence in adolescents with cystic fibrosis

scientific article published on 15 May 2019

Coach to cope: feasibility of a life coaching program for young adults with cystic fibrosis

scientific article published on 21 September 2017

Cochrane corner: psychological interventions for individuals with cystic fibrosis and their families.

scientific article published on 19 June 2015

Comparisons of IQ in Children With and Without Cochlear Implants: Longitudinal Findings and Associations With Language

scientific article published on 01 November 2018

Comparisons of Longitudinal Trajectories of Social Competence: Parent Ratings of Children With Cochlear Implants Versus Hearing Peers

scientific article

Comparisons of social competence in young children with and without hearing loss: a dynamic systems framework

scientific article published on 10 December 2014

Comparisons of visual attention in school-age children with cochlear implants versus hearing peers and normative data

scientific article published on 9 January 2018

Controlled evaluation of the STARBRIGHT CD-ROM program for children and adolescents with Cystic Fibrosis

scientific article published on 01 June 2004

Cystic fibrosis

scientific article published on 14 May 2015

Cystic fibrosis research in allied health and nursing professions ⬇️

scientific article published on April 17, 2012

Daily pain in adolescents with CF: Effects on adherence, psychological symptoms, and health-related quality of life

scientific article published on 3 September 2014

Decreased survival in cystic fibrosis patients with a positive screen for depression

scientific article published on 12 August 2020

Depression and anxiety in adolescents and adults with cystic fibrosis in the UK: a cross-sectional study

scientific article published on 15 March 2014

Depression and anxiety symptoms in bronchiectasis: associations with health-related quality of life ⬇️

scientific article published on April 29, 2012

Depressive symptoms in children with cystic fibrosis and parents and its effects on adherence to airway clearance

scientific article published in August 2010

Development and Validation of a Parenting Stress Module for Parents of Children Using Cochlear Implants

scientific article published in 2022

Development and electronic validation of the revised Cystic Fibrosis Questionnaire (CFQ-R Teen/Adult): New tool for monitoring psychosocial health in CF.

scientific article published on 17 November 2017

Development and validation of The Cystic Fibrosis Questionnaire in the United States: a health-related quality-of-life measure for cystic fibrosis

scientific article published in October 2005

Development of Health-Related Quality of Life Instruments for Young Children With Disorders of Sex Development (DSD) and Their Parents

scientific article

Development of joint engagement in young deaf and hearing children: effects of chronological age and language skills

scientific article published on October 2014

Effect of ivacaftor treatment in patients with cystic fibrosis and the G551D-CFTR mutation: patient-reported outcomes in the STRIVE randomized, controlled trial

scientific article

Effects of Maternal Sensitivity and Cognitive and Linguistic Stimulation on Cochlear Implant Users' Language Development over Four Years ⬇️

scientific article published on September 14, 2012

Effects of tobramycin solution for inhalation on global ratings of quality of life in patients with cystic fibrosis and Pseudomonas aeruginosa infection

scientific article published on April 2002

Efficacy and safety of azithromycin maintenance therapy in primary ciliary dyskinesia (BESTCILIA): a multicentre, double-blind, randomised, placebo-controlled phase 3 trial

scientific article published on 01 May 2020

Electronic applications for the CFQ-R scoring

scientific article published on 30 May 2017

Erratum to: Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national, US sample

scientific article published on 13 January 2012

Evidence-based assessment of adherence to medical treatments in pediatric psychology

scientific article published on 10 September 2007

Evidence-based assessment of health-related quality of life and functional impairment in pediatric psychology

scientific article published on 22 April 2008

Examining the Stability of the Hospital Anxiety and Depression Scale Factor Structure in Adolescents and Young Adults With Cystic Fibrosis: A Confirmatory Factor Analysis

scientific article published on 3 January 2018

Examining the construct validity of the Eating Disorder Inventory

scientific article published on March 2003

Health-Related Quality of Life Instruments for Children With Cochlear Implants: Development of Child and Parent-Proxy Measures

scientific article published on 01 May 2019

IGNITE network: Response of patients to genomic medicine interventions

scientific article published on 20 March 2019

Identification of effective strategies to promote language in deaf children with cochlear implants ⬇️

scientific article published on September 24, 2012

Identifying Factors that Facilitate Treatment Adherence in Cystic Fibrosis: Qualitative Analyses of Interviews with Parents and Adolescents

scientific article published on 01 December 2019

Impact of bronchiectasis and trapped air on quality of life and exacerbations in cystic fibrosis ⬇️

scientific article published on January 11, 2013

Impact of socioeconomic status, race, and ethnicity on quality of life in patients with cystic fibrosis in the United States

scientific article

Improvements in visual attention in deaf infants and toddlers after cochlear implantation

scientific article published in 2007

Influence of implantation age on school-age language performance in pediatric cochlear implant users

scientific article published on 28 February 2013

Inhaled Aztreonam Lysine for Chronic Airway Pseudomonas aeruginosa in Cystic Fibrosis

scientific article

Initial evaluation of the Parent Cystic Fibrosis Questionnaire--Revised (CFQ-R) in infants and young children.

scientific article published on 28 November 2014

Integration of Mental Health Screening and Treatment into Cystic Fibrosis Clinics: Evaluation of Initial Implementation in 84 Programs Across the United States

scientific article published on 10 July 2020

International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depression and anxiety

scientific article

Introduction to Cystic Fibrosis for Mental Health Care Coordinators and Providers: Collaborating to Promote Wellness

scientific article published on 08 May 2020

Language and Behavioral Outcomes in Children With Developmental Disabilities Using Cochlear Implants ⬇️

scientific article published on July 1, 2012

Language development after cochlear implantation: an epigenetic model

scientific article

Lessons learned from a randomized trial of airway secretion clearance techniques in cystic fibrosis

scientific article

Letter to the editor: authors' response

scientific article

Linguistic validation of cystic fibrosis quality of life questionnaires.

scientific article published in March 2006

Long-term effects of pregnancy and motherhood on disease outcomes of women with cystic fibrosis

scientific article

Longitudinal assessment of health-related quality of life in an observational cohort of patients with cystic fibrosis

scientific article published on 16 September 2010

Lung transplantation for cystic fibrosis

scientific article (publication date: December 2009)

Maintaining mental health and function for the long run in cystic fibrosis

scientific article published on October 2016

Mealtime problems predict outcome in clinical trial to improve nutrition in children with CF.

scientific article

Measuring and improving respiratory outcomes in cystic fibrosis lung disease: opportunities and challenges to therapy

scientific article

Misunderstandings, misperceptions, and missed opportunities: Perspectives on adherence barriers from people with CF, caregivers, and CF team members

scientific article published on 19 February 2020

Nationwide trends in the medical care costs of privately insured patients with cystic fibrosis (CF), 2001-2007.

scientific article published on 4 April 2011

Outcomes and benefits of pediatric cochlear implantation in children with additional disabilities: a review and report of family influences on outcomes

scientific article published on 19 May 2015

Parent knowledge of disease management in cystic fibrosis: Assessing behavioral treatment management.

scientific article published on 29 November 2017

Parental Depression and Pancreatic Enzymes Adherence in Children With Cystic Fibrosis

scientific article published on 5 January 2016

Parenting Stress among Parents of Deaf and Hearing Children: Associations with Language Delays and Behavior Problems

scientific article

Parenting Stress, Self-Efficacy, and Involvement: Effects on Spoken Language Ability Three Years After Cochlear Implantation

scientific article published in 2021

Patient-Centered Research Priorities for Pulmonary Nontuberculous Mycobacteria (NTM) Infection. An NTM Research Consortium Workshop Report

scientific article published on September 2016

Patient-reported outcomes in cystic fibrosis

scientific article published on August 2007

Patient-reported outcomes: instrument development and selection issues

scientific article published on 01 November 2007

Patient-reported symptoms and functioning as indicators of mortality in advanced cystic fibrosis: A new tool for referral and selection for lung transplantation

scientific article

Predicting behavior problems in deaf and hearing children: the influences of language, attention, and parent-child communication

scientific article published on January 2009

Preliminary validation of the NTM Module: a patient-reported outcome measure for patients with pulmonary nontuberculous mycobacterial disease

scientific article published on 16 January 2020

Prevalence and impact of depression in cystic fibrosis

scientific article

Prevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: results of The International Depression Epidemiological Study across nine countries

scientific article published on 21 September 2014

Prevalence of symptoms of anxiety and depression in German patients with cystic fibrosis

scientific article published on 14 May 2010

Primary Ciliary Dyskinesia: First Health-related Quality-of-Life Measures for Pediatric Patients

scientific article published on 27 July 2016

Prospective multicenter randomized patient recruitment and sample collection to enable future measurements of sputum biomarkers of inflammation in an observational study of cystic fibrosis

scholarly article by Theodore G Liou et al published 26 April 2019 in BMC Medical Research Methodology

Psychological interventions for individuals with cystic fibrosis and their families

scientific article

Psychological interventions for people with cystic fibrosis and their families

scientific article

Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national sample

scientific article

Pulmonary exacerbation in adults with bronchiectasis: a consensus definition for clinical research

scientific article published on 08 June 2017

Pulmonary exacerbations and parent-reported outcomes in children <6 years with cystic fibrosis.

scientific article

Pulmonary medication adherence and health-care use in cystic fibrosis

scientific article published in July 2014

Quality of Life Questionnaire-Bronchiectasis: a study of the psychometric properties of the Brazilian Portuguese version

scientific article published on 08 June 2020

Randomized clinical trial of behavioral intervention and nutrition education to improve caloric intake and weight in children with cystic fibrosis

scientific article

Rates of depression and anxiety in Italian patients with cystic fibrosis and parent caregivers: Implementation of the Mental Health Guidelines

scientific article published on 10 September 2020

Reliability and validity of the Cystic Fibrosis Questionnaire-Revised for children and parents in Turkey: cross-sectional study.

scientific article published on 11 April 2012

Repeated nebulisation of non-viral CFTR gene therapy in patients with cystic fibrosis: a randomised, double-blind, placebo-controlled, phase 2b trial.

scientific article

Risk factors associated with depressive symptoms in caregivers of children with type 1 diabetes or cystic fibrosis

scientific article

Role strain in couples with and without a child with a chronic illness: Associations with marital satisfaction, intimacy, and daily mood ⬇️

scientific article published on March 1, 1998

Speech recognition at 1-year follow-up in the childhood development after cochlear implantation study: Methods and preliminary findings

scientific article published on 12 May 2006

Spoken language development in children following cochlear implantation

scientific article

Study of a novel pancreatic enzyme replacement therapy in pancreatic insufficient subjects with cystic fibrosis

scientific article published on 01 November 2006

Study protocol, rationale and recruitment in a European multi-centre randomized controlled trial to determine the efficacy and safety of azithromycin maintenance therapy for 6 months in primary ciliary dyskinesia

scientific article

Symbolic Play and Novel Noun Learning in Deaf and Hearing Children: Longitudinal Effects of Access to Sound on Early Precursors of Language

scientific article

Systematic review of health-related quality of life measures for children with respiratory conditions

scientific article published on 26 July 2008

The effects of an intensive behavior and nutrition intervention compared to standard of care on weight outcomes in CF ⬇️

scientific article published on September 1, 2010

The impact of cochlear implants on young deaf children: new methods to assess cognitive and behavioral development

scientific article published in May 2004

The psychological burden of cystic fibrosis.

scientific article published on March 2016

Timing of Cochlear Implantation and Parents’ Global Ratings of Children’s Health and Development ⬇️

scientific article published on June 1, 2012

Tracking CF disease progression with CT and respiratory symptoms in a cohort of children aged 6-19 years

scientific article published on 12 February 2014

Tracking development of speech recognition: longitudinal data from hierarchical assessments in the Childhood Development after Cochlear Implantation Study

scientific article

Trajectories of adherence to airway clearance therapy for patients with cystic fibrosis

scientific article published on 18 March 2010

Treatment adherence and health outcomes in patients with bronchiectasis

scientific article

Treatment complexity in cystic fibrosis: trends over time and associations with site-specific outcomes.

scientific article

US Patient-Centered Research Priorities and Roadmap for Bronchiectasis

scientific article published on 05 July 2018

Understanding access to genomics in an ethnically diverse south Florida population: A comparison of demographics in odyssey and rapid whole genome sequencing programs

scientific article published on 11 April 2020

Use of the Daily Phone Diary to Study Religiosity and Mood: Convergent Validity

scientific article

Utilization of Patient-Reported Outcomes as a Step towards Collaborative Medicine ⬇️

scientific article published on May 27, 2013

Utilizing Community Health Needs Assessments (CHNAs) in Nonprofit Hospitals to Guide Population-Centered Outcomes Research for Pediatric Patients: New Recommendations for CHNA Reporting

article

Validating chest MRI to detect and monitor cystic fibrosis lung disease in a pediatric cohort

scientific article published on 5 October 2015

Validation of a Disease-Specific Measure of Health-Related Quality of Life for Children with Cystic Fibrosis ⬇️

scientific article published on December 1, 2003

Validation of a Quality of Life Questionnaire for Bronchiectasis: psychometric analyses of the Spanish QOL-B-V3.0.

scientific article

Validation of a health-related quality of life instrument for primary ciliary dyskinesia (QOL-PCD).

scientific article published on 28 February 2017

Validation of pediatric health-related quality of life instruments for primary ciliary dyskinesia (QOL-PCD)

scientific article published on 01 September 2019

Validation of the Dutch cystic fibrosis questionnaire (CFQ) in adolescents and adults

scientific article published on 01 March 2004

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