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List of works by Faith Gibson

"We Sometimes Hold on to Ours" - Professionals' Views on Factors that both Delay and Facilitate Transition to Adult Care.

scientific article

"Your Place or Mine?" Priorities for a Specialist Teenage and Young Adult (TYA) Cancer Unit: Disparity Between TYA and Professional Perceptions

scientific article published on September 2011

'Just an unfortunate coincidence': children's understanding of haemophilia genetics and inheritance.

scientific article published on 21 February 2011

'What is the story telling us': using patient experiences to improve practice

scientific article published in September 2003

A concept analysis of health-related quality of life in young people with chronic illness

scientific article published on July 2008

A critical review of the health-related quality of life of children and adolescents after liver transplantation

scientific article

A critical review of the use of technology to provide psychosocial support for children and young people with long-term conditions

scientific article

A phenomenologic study of fatigue in adolescents receiving treatment for cancer

scientific article published on 10 May 2005

A prospective observational study of machine translation software to overcome the challenge of including ethnic diversity in healthcare research

scientific article published on 29 January 2015

A reaudit of current febrile neutropenia practice in UK paediatric oncology centres prior to implementation of NICE guidance

scientific article published on 6 March 2013

A relational understanding of sibling experiences of children with rare life-limiting conditions: findings from a qualitative study

scientific article published on 10 June 2013

A review of long-term follow-up for survivors of childhood cancer

scientific article published on 31 May 2007

A scoping exercise of favourable characteristics of professionals working in teenage and young adult cancer care: 'thinking outside of the box'.

scientific article published on 17 January 2012

A survey of current practice with regard to oral care for children being treated for cancer.

scientific article published in May 2004

A systematic review of models of care for the follow-up of childhood cancer survivors

scientific article published on 27 July 2012

A systematic review of oral assessment instruments: what can we recommend to practitioners in children's and young people's cancer care?

scientific article

A systematic review of treatments for constipation in children and young adults undergoing cancer treatment.

scientific article

Advanced cancer in children: how parents decide on final place of care for their dying child

scientific article published on 01 June 2005

Advancing Nursing Practice—Nurse Practitioners: The Door to the Future in Pediatric Oncology

scientific article published on 01 September 2005

Advancing clinical practice roles within nursing

An action research study to explore the nature of the nurse consultant role in the care of children and young people.

scientific article published on 27 July 2012

Antiemetic medication for prevention and treatment of chemotherapy induced nausea and vomiting in childhood

scientific article

Antiemetic medication for prevention and treatment of chemotherapy induced nausea and vomiting in childhood

scientific article (published 2009-04-15)

Antiemetic medication for prevention and treatment of chemotherapy-induced nausea and vomiting in childhood

scientific article

Assent for children's participation in research: why it matters and making it meaningful.

scientific article published on 2 May 2016

Assessment and management of nutritional challenges in children's cancer care: a survey of current practice in the United Kingdom.

scientific article published on 23 May 2010

Association of Self-reported Presenting Symptoms With Timeliness of Help-Seeking Among Adolescents and Young Adults With Cancer in the BRIGHTLIGHT Study

scientific article published on 01 September 2020

Audit to monitor the uptake of national mouth care guidelines for children and young people being treated for cancer

scientific article published on 31 July 2010

BRIGHTLIGHT researchers as 'dramaturgs': creating There is a Light from complex research data

scientific article published on 10 August 2020

Be my guest! Challenges and practical solutions of undertaking interviews with children in the home setting

scientific article published on 08 May 2014

Being on the juvenile dermatomyositis rollercoaster: a qualitative study

scientific article published on 18 June 2019

Best practice in oral care for children and young people being treated for cancer: can we achieve consensus?

scientific article published on 01 May 2004

Building a Culture of Participation: Young People's Involvement in Research

article

Building the Evidence for Nursing Practice: Learning from a Structured Review of SIOP Abstracts, 2003-2012.

scientific article published on 14 July 2015

Cancer-Related Fatigue in Adolescents and Young Adults After Cancer Treatment: Persistent and Poorly Managed

scientific article published on 17 July 2017

Cancer-Related Pain and Pain Management: Sources, Prevalence, and the Experiences of Children and Parents.

scientific article

Cancer-related fatigue in children and young people: Survey of healthcare professionals’ knowledge and attitudes

article

Challenges of mucositis assessment in children: Expert opinion

scientific article published on 07 October 2008

Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families

scientific article published on 12 January 2011

Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families

scientific article published on 24 May 2012

Children and young people's experiences of cancer care: a qualitative research study using participatory methods.

scientific article published on 28 April 2010

Children's nursing education: towards a consensus

scientific article published on 01 March 2002

Children's nursing education: what is the consensus?

scientific article published on 01 March 2004

Children's participation in research

scientific article published on May 2007

Children's participation in shared decision-making: children, adolescents, parents and healthcare professionals' perspectives and experiences

scientific article

Children's understanding of cancer and views on health-related behaviour: a 'draw and write' study.

scientific article published on 13 August 2010

Classifying general and specialist children's nursing competencies

scientific article published in December 2003

Collaboration between doctors and nurses in children's cancer care: insights from a European project.

scientific article published on 23 February 2013

Collaboration: Working together or cooperating with the enemy?

scientific article published on 26 February 2007

Common reasons why an academic paper is rejected: views from the editors

scientific article published on 07 May 2019

Conceptualizing age-appropriate care for teenagers and young adults with cancer: a qualitative mixed-methods study.

scientific article published on 24 October 2018

Conducting focus groups with children and young people: strategies for success

Consult, Negotiate, and Involve: Evaluation of an Advanced Communication Skills Program for Health Care Professionals ⬇️

article

Contemporary issues relating to assessment of pre-registration nursing students in practice

scientific article published on 24 October 2009

Defining a framework for advancing clinical practice in paediatric oncology nursing

Description of the BRIGHTLIGHT cohort: the evaluation of teenage and young adult cancer services in England

article

Designing an oral mucositis assessment instrument for use in children: generating items using a nominal group technique

scientific article published on 4 November 2008

Determining the political influence of nurses who work in the field of hepatitis C: a Delphi survey

scientific article published in July 2007

Developing a conceptual model of teenage and young adult experiences of cancer through meta-synthesis

scientific article published on 05 October 2012

Developing a national 'low risk' febrile neutropenia framework for use in children and young people's cancer care.

scientific article published on 20 December 2012

Developing an Integrated Approach to the Care of Adolescents and Young Adults with Cancer

Development and validation of the BRIGHTLIGHT Survey, a patient-reported experience measure for young people with cancer ⬇️

scientific article published on 28 July 2015

Diagnostic timeliness in adolescents and young adults with cancer: a cross-sectional analysis of the BRIGHTLIGHT cohort

scientific article published on 01 March 2018

Editorial: Getting it right for children and young people’s health care services

article

Enhanced quality and productivity of long-term aftercare of cancer in young people

scientific article published on 21 August 2013

Equal access to hospital care for children with learning disabilities and their families: a mixed-methods study

scientific article published in 2022

Establishing content validity of the oral assessment guide in children and young people

scientific article published on 26 July 2006

Establishing nursing research priorities on a paediatric haematology, oncology, immunology and infectious diseases unit: involving doctors and parents

scientific article published on June 2003

Evidence in action: fostering growth of research-based practice in children's cancer nursing

scientific article published in March 2005

Experience of fatigue in adolescents living with cancer

scientific article published in July 2006

Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis

scientific article

Exploring the work of nurses who administer chemotherapy to children and young people

scientific article published on 28 March 2012

Fatigue in adolescents with and following a cancer diagnosis: developing an evidence base for practice.

scientific article published on December 2003

Feeling sick is horrible, and being sick is very frightening…say Jasper and Polly ()

scientific article published on 01 March 2005

Follow up after childhood cancer: A typology of young people’s health care need

article

From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research

scientific article

GPs and paediatric oncology palliative care: a Q methodological study

scientific article published on 21 April 2017

Gathering expert opinion to inform benchmarks to support transitional care

scientific article published on 18 June 2018

Guidance on clinical research involving infants, children and young people: an update for researchers and research ethics committees.

scientific article published on 9 June 2014

Guidance on seeking agreement to participate in research from young children

Guideline for the management of fever and neutropenia in children with cancer and/or undergoing hematopoietic stem-cell transplantation

scientific article published on 17 September 2012

Health professional perceptions of communicating with adolescents and young adults about bone cancer clinical trial participation

scientific article published on 05 July 2018

Heavy to carry: a survey of parents' and healthcare professionals' perceptions of cancer-related fatigue in children and young people.

scientific article published on January 2005

Hospitalized children with intellectual disability: Parents as partners in their care

scientific article published on 19 February 2020

How Far Do Research Priority Setting Exercises Influence What Research Is Undertaken: A Little, a Lot, or Not at All?

scientific article published on 01 March 2019

How do young people find out about their parent's cancer diagnosis: a phenomenological study

scientific article published on 26 July 2009

How should health service researchers respect children's personal data under GDPR?

scientific article published on 01 October 2018

How young people describe the impact of living with and beyond a cancer diagnosis: feasibility of using social media as a research method. ⬇️

scientific article published on 8 January 2016

Individualizing hospital care for children and young people with learning disabilities: it's the little things that make the difference

scientific article published on 23 October 2014

Information-sharing between healthcare professionals, parents and children with cancer: more than a matter of information exchange

scientific article published on 4 November 2015

Initial evaluation of an electronic symptom diary for adolescents with cancer

scientific article published on 11 December 2012

Insights from parents of a child with leukaemia and healthcare professionals about sharing illness and treatment information: A qualitative research study

article

International collaboration: Working with and through professional groups to inform the science that underpins the care of children and young people

scientific article published on 01 November 2013

Interventions for promoting participation in shared decision-making for children with cancer

scientific article (publication date: 6 June 2013)

Interventions for promoting participation in shared decision-making for children with cancer

scientific article

Interventions for promoting participation in shared decision-making for children with cancer.

scientific article

Introduction

Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: insights from 10 years of user involvement

scientific article published on 27 December 2018

Learning disability nurse provision in children's hospitals: hospital staff perceptions of whether it makes a difference.

scientific article published on 11 June 2019

Letter to the Editor

Liver transplantation in children: part 1--peri-operative issues

scientific article

Liver transplantation in children: part 2--long-term issues

scientific article

Long term survivors of childhood cancer: cure and care. The Erice statement.

scientific article

Longitudinal cohort study of the impact of specialist cancer services for teenagers and young adults on quality of life: outcomes from the BRIGHTLIGHT study

scientific article published on 26 November 2020

Management of fatigue in children and adolescents with cancer and in paediatric recipients of haemopoietic stem-cell transplants: a clinical practice guideline

scientific article published on 07 March 2018

Mapping Adolescent Cancer Services: How Do Young People, Their Families, and Staff Describe Specialized Cancer Care in England?

scientific article published on 28 October 2015

Mapping staff perspectives towards the delivery of hospital care for children and young people with and without learning disabilities in England: a mixed methods national study.

scientific article

Measurement properties of instruments to assess pain in children and adolescents with cancer: a systematic review protocol

scientific article published on 28 January 2019

Measuring quality of life in children and young people after transplantation: methodological considerations

scientific article published on 19 March 2010

Meeting the needs of young people with cancer: a lesson in change.

scientific article published on 3 July 2009

Methodological issues when using the draw and write technique with children aged 6 to 12 years

scientific article published in July 2008

Mind and body practices for fatigue reduction in patients with cancer and hematopoietic stem cell transplant recipients: A systematic review and meta-analysis

scientific article published on 20 November 2017

Mind the gap: research and practice in cancer care

scientific article published on 01 June 2003

Modified international e-Delphi survey to define healthcare professional competencies for working with teenagers and young adults with cancer ⬇️

scientific article published on 3 May 2016

Multi-Professional Perspectives on Adolescent and Young Adult Oncology Across Europe: An e-Delphi Survey ⬇️

scientific article published on 12 January 2017

Multimethodology research with boys with severe haemophilia

scientific article published on July 2013

Multiprofessional collaboration in children's cancer care: believed to be a good thing but how do we know when it works well?

scientific article published on 01 July 2009

Navigating the maze: parents' views and influence on a paediatric haematology and oncology day care service

scientific article published on December 2008

Neutropenic sepsis: prevention and management of neutropenic sepsis in cancer patients (NICE Clinical Guideline CG151).

scientific article published on April 2013

Novel participatory methods of involving patients in research: naming and branding a longitudinal cohort study, BRIGHTLIGHT.

scientific article

Nurse prescribing: children's nurses' views

scientific article published on 01 February 2003

Outcomes of planned home births in Washington State: 1989-1996.

scientific article published in January 2003

Parental assessment of adolescent quality of life: can it replace self-assessment?

scientific article published on 6 April 2011

Parents' Experiences of Caring for Their Child at the Time of Discharge After Cardiac Surgery and During the Postdischarge Period: Qualitative Study Using an Online Forum.

scientific article

Parents� Experiences of Caring for Their Child at the Time of Discharge After Cardiac Surgery and During the Postdischarge Period: Qualitative Study Using an Online Forum (Preprint)

Pay More Attention: a national mixed methods study to identify the barriers and facilitators to ensuring equal access to high-quality hospital care and services for children and young people with and without learning disabilities and their families.

scientific article published on 09 December 2016

Pediatric Oncology Nursing Research Goes Global

scientific article published on 01 September 2013

Pediatric Oncology Palliative Care: Experiences of General Practitioners and Bereaved Parents

scientific article published on March 2015

Physical activity reduces fatigue in patients with cancer and hematopoietic stem cell transplant recipients: A systematic review and meta-analysis of randomized trials

scientific article published on 16 December 2017

Practical approaches to seeking assent from children.

scientific article published in January 2012

Preventing work-related stress among staff working in children's cancer Principal Treatment Centres in the UK: a brief survey of staff support systems and practices

scientific article published on 4 July 2016

Protecting an adult identity: A grounded theory of supportive care for young adults recently diagnosed with cancer

scientific article published on 31 January 2018

Psychometric evaluation of the traditional Chinese version of the resilience Scale-14 and assessment of resilience in Hong Kong adolescents

scientific article published on 19 February 2020

Psychosocial Interventions for Adolescents and Young Adults Diagnosed with Cancer During Adolescence: A Critical Review

scientific article

Putting Both Patient Need and the Science of Nursing at the Heart of Our Research Agenda

scientific article published on 01 November 2009

Qualitative study to understand the barriers to recruiting young people with cancer to BRIGHTLIGHT: a national cohort study in England

scientific article

Reducing unintentional injuries in under fives: Development and testing of a mobile phone app

scientific article published on 11 December 2019

Refinement of the Children's International Mucositis Evaluation Scale (ChIMES): child and parent perspectives on understandability, content validity and acceptability

scientific article published in December 2009

Renegotiation of identity in young adults with cancer: A longitudinal narrative study

scientific article published on 07 November 2019

Research priorities for young people with cancer: a UK priority setting partnership with the James Lind Alliance

scientific article published on 05 August 2019

Research round up

Self-management and skills acquisition in boys with haemophilia

scientific article published on 27 May 2013

Specialist nurse key worker in children's cancer care: Professionals' perspectives on the core characteristics of the role.

scientific article published on 25 September 2016

Staying Connected: I Wonder, What Does Nurse Presence Look Like During This COVID-19 Pandemic?

scientific article published on 01 September 2020

Study of the factors affecting health-related quality of life in adolescents after liver transplantation

scientific article published in May 2009

Studying Children's Experiences in Interactions With Clinicians: Identifying Methods Fit for Purpose

article

Studying Children’s Experiences in Interactions With Clinicians: Identifying Methods Fit for Purpose

Supporting families of children with an undiagnosed genetic condition: using co-design to ensure the right person is in the right post doing the right job

scientific article published on 10 December 2020

Surveillance and follow-up in cancer care: meaning and purpose

scientific article published on 01 June 2004

Systematic review of basic oral care for the management of oral mucositis in cancer patients

scientific article published on 10 September 2013

Technology into practice: young people's, parents' and nurses' perceptions of WISECARE+

scientific article published on 01 December 2007

The BRIGHTLIGHT National Survey of the Impact of Specialist Teenage and Young Adult Cancer Care on Caregivers' Information and Support Needs

scientific article published on 28 December 2019

The EONS core curriculum revision project

scientific article published on 01 March 2001

The Northern Ireland Reminiscence Network: promoting social wellbeing by valuing memories

scientific article published in September 2004

The Northern Ireland life review/life storybook project for people with dementia

scientific article published on January 2006

The art of age-appropriate care: reflecting on a conceptual model of the cancer experience for teenagers and young adults

scientific article published in September 2013

The benefits of prophylaxis: views of adolescents with severe haemophilia

scientific article published on 12 September 2011

The cultural context of communicating complex information to parents of children with cancer—not just a linguistic obstacle

scientific article published on 01 February 2008

The culture of young people's cancer care: A narrative review and synthesis of the UK literature

scientific article published on 01 May 2019

The development of advancing clinical practice roles in the United Kingdom: Reflections following a study tour of the United States

article

The development of evidence-based guidelines on mouth care for children, teenagers and young adults treated for cancer

scientific article published on 11 March 2010

The ethical and legal considerations of young people and their parents using a hospital patient portal: Hospital Ethics Committee members perspectives

scientific article published on 21 April 2022

The experience of living with a chronic illness during adolescence: a critical review of the literature

scientific article published on December 2008

The perceptions of teenagers, young adults and professionals in the participation of bone cancer clinical trials

scientific article published on 03 March 2016

The stories of young people living with a liver transplant.

scientific article

To flag or not to flag: Identification of children and young people with learning disabilities in English hospitals

scientific article published on 16 May 2019

Transition From Child to Adult Care--'It's Not a One-Off Event': Development of Benchmarks to Improve the Experience

scientific article published on 21 July 2015

Transition of care for adolescents from paediatric services to adult health services

scientific article

Transitioning adolescent and young adult cancer care research out of its adolescence

scientific article published on 01 November 2018

Traveling through time to normal birth

scientific article

Understandability, content validity, and overall acceptability of the Children's International Mucositis Evaluation Scale (ChIMES): child and parent reporting

scientific article published in June 2009

Understanding care when cure is not likely for young adults who face cancer: a realist analysis of data from patients, families and healthcare professionals

article

Using action research in paediatric oncology to develop an oral care algorithm

scientific article published in September 2001

Utilization of the Medical Research Council evaluation framework in the development of technology for symptom management: the ASyMS-YG Study

scientific article published on September 2010

Value of interaction

scientific article published on 01 September 2012

Variation in policies for the management of febrile neutropenia in United Kingdom Children's Cancer Study Group centres

scientific article

What Is It Really Like to Be a Young Person, in Our Hospital, at This Moment?

scientific article published on 01 March 2014

What are the experiences of the child with a brain tumour and their parents?

scientific article

What is Important to Young Children Who Have Cancer While in Hospital?

What's it like when you find eating difficult: children's and parents' experiences of food intake.

scientific article published on July 2012

Why can't we improve the timeliness of cancer diagnosis in children, teenagers, and young adults? ⬇️

scientific article published on 29 October 2013

Young people describe their prediagnosis cancer experience.

scientific article published on 20 June 2013

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