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List of works by Joan K. Austin

"I don't want them to look at me and think of my illness, I just want them to look at me and see me": Child perspectives on the challenges associated with disclosing an epilepsy diagnosis to others

scientific article published on 29 October 2015

A career in nursing research: A personal journey

scientific article published on 12 April 2015

A model for internalized stigma in children and adolescents with epilepsy

scientific article

A prospective study of teachers' ratings of behavior problems in children with new-onset seizures

scientific article published on 01 February 2003

ADHD and epilepsy in childhood

scientific article published on 01 January 2003

Academic performance in children with new-onset seizures and asthma: a prospective study

scientific article published on 12 February 2007

Academic underachievement among children with epilepsy: proportion exceeding psychometric criteria for learning disability and associated risk factors

scientific article published on May 2008

Adaptive functioning in children with epilepsy and learning problems

scientific article published in October 2012

Are seizure variables related to cognitive and behavior problems?

scientific article published on 05 September 2009

Behavior and mental health problems in children with epilepsy and low IQ ⬇️

scientific article published on October 1, 2003

Behavioral and mental health problems in low-income children with special health care needs.

scientific article published in June 2004

Behavioral and psychiatric comorbidities in pediatric epilepsy: toward an integrative model

scientific article published on 12 June 2007

Behavioral issues involving children and adolescents with epilepsy and the impact of their families: recent research data

scientific article

Biomarkers as Common Data Elements for Symptom and Self-Management Science.

scientific article published on 25 March 2018

Caregiving in pediatric epilepsy: results of focus groups and implications for research and practice.

scientific article published on 25 March 2014

Children with new onset seizures: A prospective study of parent variables, child behavior problems, and seizure occurrence

scientific article

Common data elements in epilepsy research: development and implementation of the NINDS epilepsy CDE project

scientific article

Comparing bedside methods of determining placement of gastric tubes in children

scientific article

Comparing methods of determining insertion length for placing gastric tubes in children 1 month to 17 years of age.

scientific article published on 30 September 2011

Consensus statement: the evaluation and treatment of people with epilepsy and affective disorders

scientific article published on 23 May 2008

Content validity and satisfaction with a stroke caregiver intervention program

scientific article

Continuing psychosocial care needs in children with new-onset epilepsy and their parents

scientific article

Creating Avenues for Parent Partnership (CAPP): an intervention for parents of children with epilepsy and learning problems

scientific article

Developing a measure to assess attitudes toward epilepsy in the US population

scientific article published on 01 December 2004

Development and psychometric evaluation of the youth and parent versions of the Epilepsy Disclosure Scale (EDS).

scientific article published on 28 March 2018

Development and testing of a scale measuring parent satisfaction with staff interactions.

scientific article published in January 2005

Development of syndrome severity scores for pediatric epilepsy

scientific article published on June 2004

Development of the parent response to child illness (PRCI) scale

scientific article published on 24 September 2008

Differential diagnosis and treatment of psychiatric disorders in children and adolescents with epilepsy

scientific article published in October 2004

Does attitude toward epilepsy mediate the relationship between perceived stigma and mental health outcomes in children with epilepsy?

scientific article published on 24 May 2007

Economic impact of epilepsy in the United States

scientific article published on 8 June 2009

Epilepsy familiarity, knowledge, and perceptions of stigma: report from a survey of adolescents in the general population

scientific article published in August 2002

Erasing epilepsy stigma: eight key messages.

scientific article published on 24 March 2014

Ethical issues related to the increased emphasis on children participating in research.

scientific article published in September 2006

Exploring the relationship between parent-child communication about epilepsy and psychosocial well-being

scientific article published on 24 August 2019

Factors associated with academic achievement in children with recent-onset seizures

scientific article

Family Cohesion, Stigma, and Quality of Life in Dyads of Children With Epilepsy and Their Parents.

scientific article

Family rituals in pediatric epilepsy: Links to parental competence and adaptation

scientific article published on 01 March 2018

Identifying risk factors for maternal depression in families of adolescents with epilepsy

scientific article published on 01 April 2002

Impact of Training Program on School Nurses' Confidence Levels in Managing and Supporting Students With Epilepsy and Seizures ⬇️

scientific article published on September 22, 2010

Informant Agreement in Behavior Ratings for Children with Epilepsy ⬇️

scientific article published on 01 December 2000

Language and social functioning in children and adolescents with epilepsy

scientific article published on 14 January 2014

Living Well II: a review of progress since 2003.

scientific article published on November 2006

Magnetic resonance imaging (MRI) and electroencephalographic (EEG) findings in a cohort of normal children with newly diagnosed seizures.

scientific article

Magnetic resonance imaging findings in children with a first recognized seizure

scientific article published on December 2008

Maternal Depressive Symptoms When Caring for a Child with Mental Health Problems

scientific article published on October 2011

Maternal adaptation to a child's epilepsy

scientific article published on 01 August 2004

Measurement in pediatric epilepsy self-management: A critical review

scientific article published on 11 January 2018

Measuring stigma in children with epilepsy and their parents: instrument development and testing

scientific article published on 01 August 2004

Model testing: examining parent satisfaction.

scientific article published in April 2006

Needs, concerns, strategies, and advice of stroke caregivers the first 6 months after discharge.

scientific article published in October 2002

Neuropsychological correlates of electroencephalograms in children with epilepsy.

scientific article published in March 2005

Neuropsychological predictors of academic underachievement in pediatric epilepsy: moderating roles of demographic, seizure, and psychosocial variables

scientific article published on October 2004

Parent perspectives of the challenging aspects of disclosing a child's epilepsy diagnosis to others: Why don't they tell?

scientific article published on 10 May 2016

Pediatric psychogenic nonepileptic seizures: a study of assessment tools

scientific article published on 30 November 2009

Peer difficulties in children with epilepsy: association with seizure, neuropsychological, academic, and behavioral variables

scientific article published in July 2009

Perspectives on seizure clusters: Gaps in lexicon, awareness, and treatment

scientific article published on 20 February 2016

Precision health: Advancing symptom and self-management science

scientific article published on 18 January 2019

Predicting outcomes among adolescents with disruptive disorders being treated in a system of care program

scientific article

Predicting the insertion length for gastric tube placement in neonates

scientific article

Prevalence of psychopathology in childhood epilepsy: categorical and dimensional measures

scientific article

Problem-solving intervention for caregivers of children with mental health problems

scientific article published on 15 April 2013

Progressive behavioral changes in children with epilepsy

scientific article

Psychiatric disorders in children and adolescents who have epilepsy

scientific article published on February 2008

Psychogenic nonepileptic seizures (pseudoseizures).

scientific article published on June 2011

Psychosocial care needs of children with recent-onset asthma

scientific article published on 01 January 2007

Psychosocial issues for children with epilepsy

scientific article published on 25 June 2011

Race, urban community stressors, and behavioral and emotional problems of children with special health care needs

scientific article

Recent changes in attitudes of US adults toward people with epilepsy - Results from the 2005 SummerStyles and 2013 FallStyles surveys

scientific article

Recommendations of Common Data Elements to Advance the Science of Self-Management of Chronic Conditions

scientific article

Recruitment strategies for caregivers of children with mental health problems

scientific article

Recurrent seizures and behavior problems in children with first recognized seizures: a prospective study

scientific article published in December 2002

Research implications of the Institute of Medicine Report, Epilepsy Across the Spectrum: Promoting Health and Understanding

scientific article published on 7 January 2013

Seizure recurrence risk following a first seizure in neurologically normal children

scientific article published on 01 November 2008

Self-esteem and symptoms of depression in children with seizures: relationships with neuropsychological functioning and family variables over time

scientific article published in October 2010

Self-management interventions in pediatric epilepsy: What is the level of evidence?

scientific article

Social stigma for adults and children with epilepsy

scientific article published on January 2007

Stigma in the lives of adolescents with epilepsy: a review of the literature

scientific article

Stressors of parents of children with epilepsy and intellectual disability.

scientific article published on June 2006

Stroke caregiver outcomes from the Telephone Assessment and Skill-Building Kit (TASK).

scientific article

Talking about epilepsy: Challenges parents face when communicating with their child about epilepsy and epilepsy-related issues

scientific article

Teacher assessment of behaviour in children with new-onset seizures

scientific article

Teachers' ratings of the academic performance of children with epilepsy

scientific article published on 26 February 2007

Telephone Assessment and Skill-Building Kit for Stroke Caregivers: A Randomized Controlled Clinical Trial

scientific article

Temperament, family environment, and behavior problems in children with new-onset seizures

scientific article published on 30 January 2007

Testimonies submitted for the Institute of Medicine report: epilepsy across the spectrum: promoting health and understanding

scientific article published on 14 November 2012

The 2007 Judith Hoyer lecture. Epilepsy comorbidities: Lennox and lessons learned

scientific article published on 6 December 2008

The National Institute of Nursing Research Graduate Partnerships Program (NINR-GPP): an opportunity for PhD students

scientific article

The Seizures and Epilepsy Education (SEE) program for families of children with epilepsy: a preliminary study.

scientific article published in January 2008

The association of MRI findings and neuropsychological functioning after the first recognized seizure

scientific article published on 18 April 2007

The effect of temperament and neuropsychological functioning on behavior problems in children with new-onset seizures

scientific article

The psychological costs of comparisons: Parents' social comparison moderates the links between family management of epilepsy and children's outcomes.

scientific article published on 18 August 2017

The relationship between sleep problems and neuropsychological functioning in children with first recognized seizures

scientific article published on 05 September 2008

The stigma experiences and perceptions of families living with epilepsy: Implications for epilepsy-related communication within and external to the family unit

scientific article published in July 2016

Time and difficulty of tasks provided by family caregivers of stroke survivors

scientific article published on 01 April 2004

Updated research priorities for neuroscience nursing

scientific article published on June 2011

Youth With Epilepsy: Development of a Model of Children's Attitudes Toward Their Condition

scientific article

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