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List of works by Sharon Terry

ABCC6 and Pseudoxanthoma Elasticum: The Face of a Rare Disease from Genetics to Advocacy

scientific article published on 11 July 2017

Correction: Data Sharing Goals for Nonprofit Funders of Clinical Trials

scientific article published in 2021

Don't Just Invite Us to the Table: Authentic Community Engagement ⬇️

article by Sharon F. Terry published June 2013 in Genetic Testing and Molecular Biomarkers

Informed Consent for Population-Based Research Involving Genetics ⬇️

scientific article published on November 14, 2001

International Centennial Meeting on Pseudoxanthoma Elasticum: Progress in PXE Research ⬇️

scientific article published on May 1, 1998

Learning Genetics ⬇️

scientific article published on September 1, 2003

Let's Try It: Me for You ⬇️

scientific article published on July 1, 2013

PhenX measures for phenotyping rare genetic conditions

scientific article

Reactions to the National Academies/Royal Society Report on Heritable Human Genome Editing

scientific article published on 01 October 2020

Researching the biology of PXE: Partnering in the process ⬇️

scientific article published on January 1, 2001

The Human Face of ABCC6

scientific article published on 19 November 2020

Toward better governance of human genomic data

scientific article published on 01 January 2021

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