List of works - Shayna Egan - Paulina

List of works by Shayna Egan

Caregiver-reported clinical characteristics and the burden associated with Kabuki syndrome

scientific article published on 04 April 2020

Development of the pyruvate kinase deficiency diary and pyruvate kinase deficiency impact assessment: Disease-specific assessments

scientific article published on 27 December 2019

The burden of disease in pyruvate kinase deficiency: Patients' perception of the impact on health-related quality of life

scientific article published on 28 September 2018

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