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List of works by Jane Goodwin

"She'll be able to live independently… as long as I'm around": The "lived" experience of parenting a child with 22q11.2 deletion syndrome in the transition to adulthood

scientific article published on 09 January 2020

"You don't know until you get there": The positive and negative "lived" experience of parenting an adult child with 22q11.2 deletion syndrome

scientific article published on 22 September 2016

'At the end of the day, it is more important that he stays happy': an interpretative phenomenological analysis of people who have a sibling with 22q11.2 deletion syndrome

scientific article

'We've made the best of it. But we do not have a normal life': families' experiences of tuberous sclerosis complex and seizure management

scientific article published on 18 February 2019

A tale worth telling: the impact of the diagnosis experience on disclosure of genetic disorders.

scientific article

Qualitative research in childhood neurodisability

scientific article published on 06 June 2019

Understanding frames: A UK survey of parents and professionals regarding the use of standing frames for children with cerebral palsy

scientific article published on 15 August 2017

Understanding frames: A qualitative exploration of standing frame use for young people with cerebral palsy in educational settings

scientific article published on 01 May 2019

Understanding frames: A qualitative study of young people's experiences of using standing frames as part of postural management for cerebral palsy

scientific article published on 23 November 2017

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