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List of works by Richard R Sharp

"They're Not Going to Do Nothing for Me": Research Participants' Attitudes towards Elective Genetic Counseling

scientific article published on 24 September 2020

'Someone should oversee it': patient perspectives on the ethical issues arising with the regulation of probiotics

scientific article

A Belmont Reboot: Building a Normative Foundation for Human Research in the 21st Century.

scientific article

A systematic review of activities at a high-volume ethics consultation service

scientific article published on January 1, 2011

AJOB 2.0: Taking bioethics to a new level

scientific article published in January 2014

Additional thoughts on rethinking research ethics

scientific article published in January 2005

An analysis of online messages about probiotics ⬇️

scientific article published on January 11, 2013

Assessing optimism and pessimism about genomic medicine: Development of a genomic orientation scale

scientific article published on 03 April 2019

Assessing the stability of biobank donor preferences regarding sample use: evidence supporting the value of dynamic consent

scientific article published on 23 April 2020

Beyond race: towards a whole-genome perspective on human populations and genetic variation

scientific article

Bioethics consultation and patient advocacy organizations: expanding the dialogue about professional conflicts of interest.

scientific article published in January 2007

Building a Central Repository for Research Ethics Consultation Data: A Proposal for a Standard Data Collection Tool

scientific article

Can Parents Refuse a Potentially Lifesaving Transplant for Severe Combined Immunodeficiency?

scientific article published on 15 June 2016

Challenges in returning results in a genomic medicine implementation study: the Return of Actionable Variants Empirical (RAVE) study

scientific article published on 04 May 2020

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

scientific article

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

article

Clinical Utility and Full Disclosure of Genetic Results to Research Participants

journal article; published in The American Journal of Bioethics in 2006

Community involvement in the ethical review of genetic research: lessons from American Indian and Alaska Native populations

scientific article

Community-Engaged Research Ethics Review: Exploring Flexibility in Federal Regulations

scientific article published on May 2016

Conflicts of Interest in Bioethics: A Response to Our Critics

journal article; published in The American Journal of Bioethics in 2008

Consensus and controversy in clinical research ethics

scientific article published in The Journal of the American Medical Association

Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience

scientific article published on June 2017

Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small

scholarly article by Richard R Sharp published March 2011 in Genetics in Medicine

Ethical Aspects of Organ Donation After Circulatory Death

scientific article published in October 2015

Ethical Considerations Related to Return of Results from Genomic Medicine Projects: The eMERGE Network (Phase III) Experience

scientific article

Ethical Discourse about the Modification of Food for Therapeutic Purposes: How Patients with Gastrointestinal Diseases View the Good, the Bad, and the Healthy ⬇️

scientific article published on June 19, 2012

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

scientific article

Ethical considerations in testing workers for the -Glu69 marker of genetic susceptibility to chronic beryllium disease

scientific article

Ethical issues in environmental health research ⬇️

scientific article published on November 1, 2003

Ethical issues in medical-sequencing research: implications of genotype-phenotype studies for individuals and populations

scientific article

Evaluating the utility of personal genomic information

scientific article published in August 2009

Examining the potential for exploitation by local intermediaries

scientific article

Experiences of patients with chronic gastrointestinal conditions: in their own words

scientific article

Genetic Fingerprints and National Security

journal article; published in The American Journal of Bioethics in 2017

Genomic medicine and incidental findings: balancing actionability and patient autonomy

article

Helping patients make informed choices about probiotics: a need for research

scientific article

How disease advocacy organizations participate in clinical research: a survey of genetic organizations

scientific article published in February 2012

How patients view probiotics: findings from a multicenter study of patients with inflammatory bowel disease and irritable bowel syndrome

scientific article

Implementation of preemptive DNA sequence–based pharmacogenomics testing across a large academic medical center: The Mayo-Baylor RIGHT 10K Study

scientific article published in 2022

Informed trust and the financing of biomedical research

scientific article published on 01 January 2006

Ingestible Drug Adherence Monitors: Trending Toward a Surveillance Society?

scientific article published in November 2015

Investments in cancer genomics: who benefits and who decides

scientific article published on 3 October 2006

Knowing who you want to be when you grow up: implications for pediatric assent

scientific article published in January 2003

Making pretest genomic counseling optional: lessons from the RAVE study

scientific article published in February 2018

Meaningful Fissures: The Value of Divergent Agendas in Patient Advocacy

scientific article published on 01 May 2020

Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.

scientific article published in July 2017

Moral attitudes and beliefs among couples pursuing PGD for sex selection ⬇️

scientific article published on September 26, 2010

Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing ⬇️

scientific article published on January 12, 2012

Neutral, Negative, or Negligible? Changes in Patient Perceptions of Disease Risk Following Receipt of a Negative Genomic Screening Result

scientific article published on 17 April 2020

Offering aggregate results to participants in genomic research: opportunities and challenges

scientific article (publication date: April 2012)

Out of sequence: how consumer genomics could displace clinical genetics

scientific article published in June 2008

Owning Medical Professionalism

scientific article

Patient reactions to receiving negative genomic screening results by mail

scientific article published on 16 July 2020

Patients' views on identifiability of samples and informed consent for genetic research

scientific article published on October 2008

Practical guidance for charting ethics consultations

scientific article

Prepublication review of medical ethics research: cause for concern

scientific article published on April 2009

Protecting third parties in human subjects research

scientific article published on July 2006

Prudentia Populo: Involving the Community in Biobank Governance

scientific article published on 01 January 2015

Public trust and research a decade later: what have we learned since Jesse Gelsinger's death?

scientific article published on 20 February 2009

Relationships hold the key to trustworthy and productive translational science: recommendations for expanding community engagement in biomedical research

scientific article

Research ethics consultation: ethical and professional practice challenges and recommendations

scientific article

Research on environmental health interventions: ethical problems and solutions

scientific article published on April 2005

Restoring and preserving trust in biomedical research

scientific article

Return of genomic results to research participants: the floor, the ceiling, and the choices in between

scientific article

Return of results in the genomic medicine projects of the eMERGE network

scientific article

Returning Results in the Genomic Era: Initial Experiences of the eMERGE Network

scientific article published on 27 April 2020

Ruffling a Few Feathers

journal article; published in The American Journal of Bioethics in 2015

Share and share alike: deciding how to distribute the scientific and social benefits of genomic data

scientific article

Should pretest genetic counselling be required for patients pursuing genomic sequencing? Results from a survey of participants in a large genomic implementation study

scientific article published on 22 December 2018

Teaching old dogs new tricks: continuing education in research ethics

scientific article published in January 2002

Testing Children for Adult-Onset Genetic Diseases ⬇️

scientific article published on December 5, 2011

The Environmental Genome Project and Bioethics

scientific article published on June 1, 1999

The Establishment of Research Ethics Consultation Services (RECS): An Emerging Research Resource ⬇️

scientific article (publication date: February 2013)

The OHRP and SUPPORT

scientific article

The Sangre Por Salud Biobank: Facilitating Genetic Research in an Underrepresented Latino Community

scientific article published on 5 July 2016

The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations

scientific article

The ethical hazards and programmatic challenges of genomic newborn screening

scientific article

The translational potential of research on the ethical, legal, and social implications of genomics

scientific article

Toward competency-based certification of clinical ethics consultants: a four-step process.

scientific article published in January 2010

Transforming the culture of biomedical research from compliance to trustworthiness: insights from nonmedical sectors

scientific article published on April 2009

Understanding the Return of Genomic Sequencing Results Process: Content Review of Participant Summary Letters in the eMERGE Research Network

scientific article published on 13 May 2020

Views regarding the training of ethics consultants: a survey of physicians caring for patients in ICU

scientific article published on June 2007

What To Do With the Could-Be-Knowns of Genomic Medicine ⬇️

scientific article published on January 1, 2013

When Moral Intuitions and Empirical Findings Collide: A Case for Revisiting Protectionist Tendencies in Bioethics

scientific article published on 01 January 2020

When to Avoid Giving Advice on the Ethical Conduct of Research

journal article; published in The American Journal of Bioethics in 2018

Who Is Buying Bioethics Research?

journal article; published in The American Journal of Bioethics in 2008

Will investments in large-scale prospective cohorts and biobanks limit our ability to discover weaker, less common genetic and environmental contributors to complex diseases?

scientific article

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