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List of works by Mark W Skinner

Achieving the unimaginable: Health equity in haemophilia

scientific article published on 13 November 2019

Assessments of outcome in haemophilia - a patient perspective

scientific article

Building our global family--achieving treatment for all.

scientific article published in July 2010

Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical company

scientific article published on 23 October 2020

Core outcome set for gene therapy in haemophilia: Results of the coreHEM multistakeholder project

scientific article published on 20 May 2018

Establishing the appropriate primary endpoint in haemophilia gene therapy pivotal studies.

scientific article published on 17 August 2017

Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study

scientific article published on 12 March 2019

Gene Therapy for Hemophilia: Addressing the Coming Challenges of Affordability and Accessibility ⬇️

scientific article published on January 1, 2013

Genotypes, phenotypes and whole genome sequence: Approaches from the My Life Our Future haemophilia project

scientific article published on 01 May 2018

Haemophilia care – past, present and future from a patient perspective ⬇️

scientific article published on July 1, 2012

Haemophilia: provision of factors and novel therapies: World Federation of Hemophilia goals and achievements.

scientific article published on 28 June 2011

Improving comprehensive care in the haemophilia community: building on the HERO Study.

scientific article

NHF-McMaster Guideline on Care Models for Haemophilia Management.

scientific article

Non-severe haemophilia: Is it benign? - Insights from the PROBE study

scientific article published on 01 September 2020

Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains

scientific article published on 06 December 2018

The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia.

scientific article published on 27 February 2018

The World Federation of Hemophilia Annual Global Survey 1999-2018

scientific article published on 04 June 2020

World Federation of Hemophilia: 50 years of advancing treatment for all.

scientific article

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