List of works - Siobhan Carr

A comparison of the prevalence of urinary incontinence in girls with cystic fibrosis, asthma, and healthy controls.

scientific article published in November 2006

Airway function in infants newly diagnosed with cystic fibrosis

scientific article published on 01 December 2001

An evaluation of two aerosol delivery systems for rhDNase.

scientific article

An observational study of the lung clearance index throughout childhood in cystic fibrosis: Early years matter

scientific article published on 22 May 2020

Children and Adults Tai Chi Study (CF-CATS2): a randomised controlled feasibility study comparing internet-delivered with face-to-face Tai Chi lessons in cystic fibrosis

scientific article published on 01 October 2018

Data Resource Profile: The UK Cystic Fibrosis Registry.

scientific article published on 3 October 2017

Diagnosis of cystic fibrosis in London and South East England before and after the introduction of newborn screening

scientific article

Early detection of cystic fibrosis lung disease: multiple-breath washout versus raised volume tests

scientific article

Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in Europe

scientific article published in 2021

Fair selection of participants in clinical trials: The challenge to push the envelope further

scientific article published on 09 August 2019

Growth and lung function in Asian patients with cystic fibrosis

scientific article

Hypersensitivity reactions to intravenous antibiotics in cystic fibrosis

scientific article published on 05 April 2018

Identifying exceptional cystic fibrosis care services: combining statistical process control with focus groups

scholarly article published 22 February 2019

Impact of cystic fibrosis on birthweight: a population based study of children in Denmark and Wales

scientific article published on 19 July 2018

Investigating the effects of long-term dornase alfa use on lung function using registry data

scientific article published on 29 August 2018

Lung Clearance Index and HRCT are complementary markers of lung abnormalities in young children with CF

scientific article published on 21 March 2011

Lung function is abnormal in 3-month-old infants with cystic fibrosis diagnosed by newborn screening

scientific article published on 29 June 2012

Non-cystic fibrosis bronchiectasis: its diagnosis and management.

scientific article published on June 2010

Non-invasive ventilation and clinical outcomes in cystic fibrosis: Findings from the UK CF registry

scientific article published on 28 November 2018

Paranasal sinus pathogens in children with cystic fibrosis: do they relate to lower respiratory tract pathogens and is eradication successful?

scientific article published on 06 April 2014

Primary Ciliary Dyskinesia Due to Microtubular Defects is Associated with Worse Lung Clearance Index

scientific article published on 24 January 2018

Pulmonary exacerbations in patients with primary ciliary dyskinesia: an expert consensus definition for use in clinical trials

scientific article published on 01 February 2019

Pulmonary function deficits in newborn screened infants with cystic fibrosis managed with standard UK care are mild and transient.

scientific article published on 9 November 2017

Quantifying fluctuation in glucose levels to identify early changes in glucose homeostasis in cystic fibrosis.

scientific article

Recovery of baseline lung function after pulmonary exacerbation in children with primary ciliary dyskinesia

scientific article published on 8 June 2016

Registries and collaborative studies for primary ciliary dyskinesia in Europe

scientific article published on 01 April 2020

Reproductive health in males with cystic fibrosis: knowledge, attitudes, and experience of patients and parents

scientific article published on 01 April 1999

Seasonal fluctuation of lung function in cystic fibrosis: A national register-based study in two northern European populations

scientific article published on 19 October 2018

The disease-specific clinical trial network for Primary Ciliary Dyskinesia (PCD-CTN)

scientific article published on 09 June 2022

The impact of switching to the new global lung function initiative equations on spirometry results in the UK CF registry

scientific article published on 12 December 2013

The prevalence, clinical status and genotype of cystic fibrosis patients living in Cuba using national registry data

scientific article published on 23 October 2018

Time trends in diagnostic testing for primary ciliary dyskinesia in Europe

scientific article published on 24 October 2019

Topological data analysis reveals genotype–phenotype relationships in primary ciliary dyskinesia

scientific article published on 21 January 2021

Use of a rare disease patient registry in long-term post-authorisation drug studies: a model for collaboration with industry

scientific article published on 04 May 2018

List of works by Siobhan Carr

A comparison of the prevalence of urinary incontinence in girls with cystic fibrosis, asthma, and healthy controls.

Airway function in infants newly diagnosed with cystic fibrosis

An evaluation of two aerosol delivery systems for rhDNase.

An observational study of the lung clearance index throughout childhood in cystic fibrosis: Early years matter

Children and Adults Tai Chi Study (CF-CATS2): a randomised controlled feasibility study comparing internet-delivered with face-to-face Tai Chi lessons in cystic fibrosis

Data Resource Profile: The UK Cystic Fibrosis Registry.

Diagnosis of cystic fibrosis in London and South East England before and after the introduction of newborn screening

Early detection of cystic fibrosis lung disease: multiple-breath washout versus raised volume tests

Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in Europe

Fair selection of participants in clinical trials: The challenge to push the envelope further

Growth and lung function in Asian patients with cystic fibrosis

Hypersensitivity reactions to intravenous antibiotics in cystic fibrosis

Identifying exceptional cystic fibrosis care services: combining statistical process control with focus groups

Impact of cystic fibrosis on birthweight: a population based study of children in Denmark and Wales

Investigating the effects of long-term dornase alfa use on lung function using registry data

Lung Clearance Index and HRCT are complementary markers of lung abnormalities in young children with CF

Lung function is abnormal in 3-month-old infants with cystic fibrosis diagnosed by newborn screening

Non-cystic fibrosis bronchiectasis: its diagnosis and management.

Non-invasive ventilation and clinical outcomes in cystic fibrosis: Findings from the UK CF registry

Paranasal sinus pathogens in children with cystic fibrosis: do they relate to lower respiratory tract pathogens and is eradication successful?

Primary Ciliary Dyskinesia Due to Microtubular Defects is Associated with Worse Lung Clearance Index

Pulmonary exacerbations in patients with primary ciliary dyskinesia: an expert consensus definition for use in clinical trials

Pulmonary function deficits in newborn screened infants with cystic fibrosis managed with standard UK care are mild and transient.

Quantifying fluctuation in glucose levels to identify early changes in glucose homeostasis in cystic fibrosis.

Recovery of baseline lung function after pulmonary exacerbation in children with primary ciliary dyskinesia

Registries and collaborative studies for primary ciliary dyskinesia in Europe

Reproductive health in males with cystic fibrosis: knowledge, attitudes, and experience of patients and parents

Seasonal fluctuation of lung function in cystic fibrosis: A national register-based study in two northern European populations

The disease-specific clinical trial network for Primary Ciliary Dyskinesia (PCD-CTN)

The impact of switching to the new global lung function initiative equations on spirometry results in the UK CF registry

The prevalence, clinical status and genotype of cystic fibrosis patients living in Cuba using national registry data

Time trends in diagnostic testing for primary ciliary dyskinesia in Europe

Topological data analysis reveals genotype–phenotype relationships in primary ciliary dyskinesia

Use of a rare disease patient registry in long-term post-authorisation drug studies: a model for collaboration with industry