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List of works by Phyllis Butow

"As Long as You Ask": A Qualitative Study of Biobanking Consent-Oncology Patients' and Health Care Professionals' Attitudes, Motivations, and Experiences-the B-PPAE Study

article

"I might not have cancer if you didn't mention it": a qualitative study on information needed by culturally diverse cancer survivors

scientific article published on 21 June 2015

'What does it mean?' Uncertainty, trust and communication following treatment for pre-cancerous cervical abnormalities

scientific article published on June 2007

A Decision Aid for Women Considering Neoadjuvant Systemic Therapy for Operable Invasive Breast Cancer: Development and Protocol of a Phase II Evaluation Study (ANZ1301 DOMINO).

scientific article published on 20 May 2016

A Randomized Controlled Trial of a Nurse-Led Supportive Care Package (SurvivorCare) for Survivors of Colorectal Cancer

scientific article published on 15 June 2016

A celebration of the achievements of Professor Jill Cockburn

A comparison of data quality and practicality of online versus postal questionnaires in a sample of testicular cancer survivors ⬇️

scientific article published on September 26, 2011

A critical review of the effects of medical Qigong on quality of life, immune function, and survival in cancer patients

scientific article published on 28 June 2011

A model of professional development for practicing genetic counselors: adaptation of communication skills training in oncology

scientific article

A psychological intervention (ConquerFear ) for treating fear of cancer recurrence: Views of study therapists regarding sustainability

scientific article published on 15 January 2019

A research agenda for fear of cancer recurrence: A Delphi study conducted in Australia

scientific article published on 18 March 2019

A systematic literature review of health consumer attitudes towards secondary use and sharing of health administrative and clinical trial data: a focus on privacy, trust, and transparency

scientific article published on 09 October 2020

A systematic literature review of researchers' and healthcare professionals' attitudes towards the secondary use and sharing of health administrative and clinical trial data

scientific article published on 12 October 2020

A systematic review of decision aids for patients making a decision about treatment for early breast cancer

scientific article published on 08 January 2016

A systematic review on communicating with patients about evidence

scientific article published in February 2006

Advanced cancer patient preferences for receiving molecular profiling results

scientific article published on 16 June 2020

Advancing the evidence base in cancer: psychosocial multicenter trials ⬇️

scientific article published on September 19, 2012

After cancer: the unmet supportive care needs of survivors and their partners

scientific article published in January 2007

An exploration of the prevalence and predictors of work-related well-being among psychosocial oncology professionals: An application of the job demands-resources model

scientific article published on 14 December 2015

Anxiety in the context of cancer: A systematic review and development of an integrated model

scientific article

Are audio-recordings the answer? - A pilot study of a communication intervention for non-English speaking cancer patients

scientific article published on 12 June 2016

Assessing and managing breast cancer risk: clinicians' current practice and future needs

scientific article published on 4 July 2014

Assessing health-related quality of life in gynecologic oncology: a systematic review of questionnaires and their ability to detect clinically important differences and change

scientific article published on May 2010

Assessment of Unmet Needs Among Survivors of Breast Cancer

Assessment of spiritual suffering in the cancer context: A systematic literature review

scientific article

Associations between neighbourhood support and financial burden with unmet needs of head and neck cancer survivors

scientific article published on 28 December 2016

Attentional biases in cancer survivors: directions for future research

scientific article

Audio recordings of consultations with doctors for parents of critically sick babies

scientific article

Australian breast cancer specialists' involvement in multidisciplinary treatment planning meetings.

scientific article published in May 2008

Barriers and facilitators to the implementation of audio-recordings and question prompt lists in cancer care consultations: A qualitative study

scientific article published on 16 January 2017

Beyond scientific rigour: funding cancer research of public value

scientific article published on 15 June 2007

Burden and happiness in head and neck cancer carers: the role of supportive care needs

scientific article published on 16 May 2016

Burnout among psychosocial oncologists: an application and extension of the effort-reward imbalance model

scientific article published on 04 August 2015

Cancer and Aboriginal people in Australia: A review of the literature

article

Caring for women with ovarian cancer in the last year of life: a longitudinal study of caregiver quality of life, distress and unmet needs

scientific article published on 11 January 2014

Changes in supportive care needs after first-line treatment for ovarian cancer: identifying care priorities and risk factors for future unmet needs

scientific article published on 31 August 2012

Clinical Trials of Palliative Chemotherapy in Platinum-Resistant or -Refractory Ovarian Cancer: Time to Think Differently? ⬇️

scientific article published on May 13, 2013

Clinical pathway for the screening, assessment and management of anxiety and depression in adult cancer patients: Australian guidelines

scientific article published on 13 August 2015

Clinicians' attitudes and approaches to evaluating the potential living kidney donor-recipient relationship: an interview study

scientific article published on 13 February 2018

Communicating Evidence to Patients

article

Communicating with patients from minority backgrounds: Individual challenges experienced by oncology health professionals

scientific article published on 24 December 2016

Communication about standard treatment options and clinical trials: can we teach doctors new skills to improve patient outcomes?

scientific article published on 25 August 2011

Communication challenges experienced by migrants with cancer: A comparison of migrant and English-speaking Australian-born cancer patients

scientific article published on 5 March 2017

Communication differences when patients and caregivers are seen separately or together

scientific article

Comparison of implementation strategies to influence adherence to the clinical pathway for screening, assessment and management of anxiety and depression in adult cancer patients (ADAPT CP): study protocol of a cluster randomised controlled trial

scientific article published on 7 November 2018

Conceptual analysis of suffering in cancer: a systematic review

scientific article published on 9 March 2015

Content comparison of unmet needs self-report measures used in patients with head and neck cancer: A systematic review

scientific article published on 06 November 2019

Contralateral prophylactic mastectomy (CPM): A systematic review of patient reported factors and psychological predictors influencing choice and satisfaction

scientific article

Coping with newly diagnosed upper gastrointestinal cancer: a longitudinal qualitative study of family caregivers' role perception and supportive care needs

scientific article published on 30 August 2012

Cost-effectiveness of an intervention to reduce fear of cancer recurrence: The ConquerFear randomized controlled trial

scientific article published on 02 April 2019

Creating a safe space: A qualitative inquiry into the way doctors discuss spirituality

scientific article published on 3 November 2015

Culturally and linguistically diverse oncology patients' perspectives of consultation audio-recordings and question prompt lists

scientific article published on 12 July 2018

Current directions in research and treatment of fear of cancer recurrence

scientific article

Decisions about neoadjuvant systemic therapy for breast cancer: a survey of Australian and New Zealand specialists

scientific article

Developing a quality criteria framework for patient decision aids: online international Delphi consensus process

scientific article

Development and feasibility assessment of telephone-delivered supportive care to improve outcomes for patients with colorectal cancer: pilot study of the CONNECT intervention

scientific article published on 22 July 2009

Development and usability evaluation of an online self-management intervention for fear of cancer recurrence (iConquerFear)

scientific article published on 10 September 2019

Development of the measure of ovarian symptoms and treatment concerns: aiming for optimal measurement of patient-reported symptom benefit with chemotherapy for symptomatic ovarian cancer

scientific article published in June 2014

Distress in long-term head and neck cancer carers: a qualitative study of carers' perspectives

scientific article published on 10 May 2016

Do patients want doctors to talk about spirituality? A systematic literature review

scientific article published on 19 May 2015

Do personal stories make patient decision aids more effective? A critical review of theory and evidence ⬇️

scientific article

Doctors discussing religion and spirituality: A systematic literature review

scientific article published on 12 August 2015

Does routine psychological screening of newly diagnosed rural cancer patients lead to better patient outcomes? Results of a pilot study

scientific article published on December 2009

Does stress increase risk of breast cancer? A 15-year prospective study

scientific article published on 04 May 2018

Donor and Recipient Views on Their Relationship in Living Kidney Donation: Thematic Synthesis of Qualitative Studies

scientific article published on 23 November 2016

Effect of a Patient-Centered Communication Intervention on Oncologist-Patient Communication, Quality of Life, and Health Care Utilization in Advanced Cancer: The VOICE Randomized Clinical Trial

scientific article published on 09 September 2016

Effects of life event stress and social support on the odds of a >or= 2 cm breast cancer

scientific article published on 8 November 2008

Enhancing decision making about participation in cancer clinical trials: development of a question prompt list

scientific article published on July 2010

Enhancing the capacity of oncology nurses to provide supportive care for parents with advanced cancer: evaluation of an educational intervention

scientific article published on 28 March 2009

Erratum to: Psychological distress, quality of life, symptoms and unmet needs of colorectal cancer survivors near the end of treatment

scientific article published on 01 September 2015

Evaluating a nurse-led survivorship care package (SurvivorCare) for bowel cancer survivors: study protocol for a randomized controlled trial

scientific article published on 19 August 2013

Exploring head and neck cancer patients' experiences with radiation therapy immobilisation masks: A qualitative study

scientific article published on 28 December 2019

Exploring the Potential Emotional and Behavioural Impact of Providing Personalised Genomic Risk Information to the Public: A Focus Group Study

scientific article published on 22 September 2015

Facilitating collaborative and effective family involvement in the cancer setting: Guidelines for clinicians (TRIO Guidelines-1).

scientific article published on 31 January 2018

Family information needs at childhood cancer treatment completion

scientific article

Family perspectives on deceased organ donation: thematic synthesis of qualitative studies.

scientific article published on 10 March 2014

Fear of Cancer Recurrence: A Practical Guide for Clinicians

scientific article published on 15 January 2018

Fear of cancer recurrence: a theoretical review and novel cognitive processing formulation

scientific article

Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors

Fidelity is fundamental: intervention predictors in advance care plans in terminal cancer

scientific article published on 19 September 2019

From inclusion to independence--training consumers to review research

scientific article published on 9 March 2008

Grappling with cultural differences; communication between oncologists and immigrant cancer patients with and without interpreters

scientific article published on 8 March 2011

Health literacy and cancer care coordination in Chinese migrant patients and their carers: A cross-sectional survey

scientific article published on 18 March 2019

Health-related quality of life, psychosocial functioning, and unmet health needs in patients with sarcoma: A systematic review

scientific article published on 12 February 2019

How do Australian palliative care nurses address existential and spiritual concerns? Facilitators, barriers and strategies

scientific article published on 23 February 2014

Identifying patient information needs about cancer clinical trials using a Question Prompt List ⬇️

scientific article published on August 2, 2010

Identifying research priorities and research needs among health and research professionals in psycho‐oncology ⬇️

scientific article published on September 1, 2010

Identifying the key characteristics of clinical fear of cancer recurrence: An international Delphi study

scientific article published on 25 November 2019

Impact of fear of cancer recurrence on survival among lymphoma patients

scientific article published on 06 January 2020

Implementing Web-Based Therapy in Routine Mental Health Care: Systematic Review of Health Professionals' Perspectives

scientific article published on 23 July 2020

Improving informed consent in clinical trials: successful piloting of a decision aid

article

Improving patient emotional functioning and psychological morbidity: evaluation of a consultation skills training program for oncologists

scientific article

Increasing oncologists' skills in eliciting and responding to emotional cues: evaluation of a communication skills training program

scientific article published in March 2008

Information needs of the Chinese community affected by cancer: A systematic review

scientific article published on 14 December 2016

Interventions before consultations for helping patients address their information needs

scientific article

Interventions before consultations to help patients address their information needs by encouraging question asking: systematic review

scientific article published on 16 July 2008

Is it worth the risk? A systematic review of instruments that measure risk propensity for use in the health setting

scientific article

Lack of congruence between patients' and health professionals' perspectives of adherence to imatinib therapy in treatment of chronic myeloid leukemia: A qualitative study

article

Levels of unmet needs and distress amongst adolescents and young adults (AYAs) impacted by familial cancer.

scientific article published on 14 March 2017

Living kidney donor and recipient perspectives on their relationship: longitudinal semi-structured interviews

Long-term survival from gynecologic cancer: psychosocial outcomes, supportive care needs and positive outcomes

scientific article published on 5 October 2006

Long-term workforce participation patterns following head and neck cancer

scientific article published on 25 July 2014

Managing challenging interactions with family caregivers in the cancer setting: Guidelines for clinicians (TRIO Guidelines-2).

scientific article published on 2 February 2018

Measuring patient preference and surgeon choice

scientific article published on May 2008

Measuring recall of medical information in non-English-speaking people with cancer: A methodology.

scientific article published on 22 September 2017

Measuring the impact of nurse cue-response behaviour on cancer patients' emotional cues

scientific article published on 28 April 2010

Meeting the decision-making preferences of patients with breast cancer in oncology consultations: impact on decision-related outcomes

scientific article published on 6 February 2012

Migrant health in cancer: outcome disparities and the determinant role of migrant-specific variables

scientific article published on 23 March 2015

Mobile Health Intervention to Increase Oral Cancer Therapy Adherence in Patients With Chronic Myeloid Leukemia (The REMIND System): Clinical Feasibility and Acceptability Assessment.

scientific article published on 6 December 2017

One size fits all? The discursive framing of cultural difference in health professional accounts of providing cancer care to Aboriginal people

scientific article published on 8 January 2013

Online group-based cognitive-behavioural therapy for adolescents and young adults after cancer treatment: a multicenter randomised controlled trial of Recapture Life-AYA.

scientific article

Operationalising a model framework for consumer and community participation in health and medical research

scientific article published on 26 June 2007

Palliative care specialists' beliefs about spiritual care

scientific article

Parental adjustment to the completion of their child's cancer treatment

scientific article published on 10 December 2010

Patient and physician preferences for surgical and adjuvant treatment options for rectal cancer

scientific article published in April 2008

Patient entry into randomized controlled trials of colorectal cancer treatment: factors influencing participation

scientific article published in June 2003

Patient perspectives on molecular tumor profiling: "Why wouldn't you?"

scientific article published on 31 July 2019

Patient-reported quality of life, unmet needs and care coordination outcomes: Moving toward targeted breast cancer survivorship care planning

scientific article published on 22 September 2014

Physical activity in women with ovarian cancer and its association with decreased distress and improved quality of life

scientific article

Pilot of a theoretically grounded psychologist-delivered intervention for fear of cancer recurrence (Conquer Fear).

scientific article published in March 2015

Prevalence and predictors of insomnia in women with invasive ovarian cancer: anxiety a major factor

scientific article published on 18 June 2009

Promoting End-of-Life Discussions in Advanced Cancer: Effects of Patient Coaching and Question Prompt Lists

scientific article published on 30 January 2017

Psychoeducational intervention for people at high risk of developing another melanoma: a pilot randomised controlled trial

scientific article

Psychological distress, quality of life, symptoms and unmet needs of colorectal cancer survivors near the end of treatment.

scientific article published on 9 January 2015

Psychological intervention targeting distress for cancer patients: a meta-analytic study investigating uptake and adherence

scientific article published on 18 February 2016

Psychological morbidity in women at increased risk of developing breast cancer: a controlled study

scientific article published in March 2005

Public preferences for communicating personal genomic risk information: a focus group study

scientific article

Pushing up daisies: implicit and explicit language in oncologist-patient communication about death

scientific article published on 13 September 2006

Quality of life in urban and rural settings: a study of head and neck cancer survivors

scientific article published on 14 April 2014

Quantity vs. quality: an exploration of the predictors of posttreatment sexual adjustment for women affected by early stage cervical and endometrial cancer

scientific article published on 30 July 2012

Randomised controlled trial of internet-delivered cognitive behaviour therapy for clinical depression and/or anxiety in cancer survivors (iCanADAPT Early)

scientific article published on 12 November 2019

Reduced quality of life in internet-panel controls

scientific article published in May 2013

Reducing disparity in outcomes for immigrants with cancer: a qualitative assessment of the feasibility and acceptability of a culturally targeted telephone-based supportive care intervention ⬇️

scientific article published on March 22, 2013

Responding to family requests for nondisclosure: the impact of oncologists' cultural background

scientific article published in January 2015

Return to work after a cancer diagnosis: a meta-review of reviews and a meta-synthesis of recent qualitative studies

scientific article published on 19 December 2019

Returning to School After Adolescent Cancer: A Qualitative Examination of Australian Survivors' and Their Families' Perspectives

scientific article published on June 2011

Review of adherence-related issues in adolescents and young adults with cancer

scientific article published on 08 March 2010

Sexual adjustment following early stage cervical and endometrial cancer: prospective controlled multi-centre study

scientific article published on 3 October 2011

Shared decision making coding systems: how do they compare in the oncology context?

scientific article published on 3 August 2009

Shared decision making in oncology: assessing oncologist behaviour in consultations in which adjuvant therapy is considered after primary surgical treatment

scientific article published on 23 June 2010

Single-Arm Longitudinal Study to Evaluate a Decision Aid for Women Offered Neoadjuvant Systemic Therapy for Operable Breast Cancer

scientific article published in April 2018

Spiritual support of cancer patients and the role of the doctor

scientific article

Support and training needs of cancer support group leaders: a review

scientific article

Survivorship care after breast cancer: follow-up practices of Australian health professionals and attitudes to a survivorship care plan

scientific article published on June 2010

Sustaining leaders of cancer support groups: the role, needs, and difficulties of leaders

scientific article published on January 2005

Symptom burden and outcomes of patients with platinum resistant/refractory recurrent ovarian cancer: a reality check: results of stage 1 of the gynecologic cancer intergroup symptom benefit study

scientific article published in June 2014

Symptom control in patients with recurrent ovarian cancer: measuring the benefit of palliative chemotherapy in women with platinum refractory/resistant ovarian cancer

scientific article published on December 2009

Testing the utility of a cancer clinical trial specific Question Prompt List (QPL-CT) during oncology consultations ⬇️

scientific article published on March 4, 2012

The Cancode interaction analysis system in the oncological setting: reliability and validity of video and audio tape coding

scientific article published in January 2005

The Concerns About Recurrence Questionnaire: validation of a brief measure of fear of cancer recurrence amongst Danish and Australian breast cancer survivors.

scientific article published on 19 August 2014

The Melanoma care study: protocol of a randomised controlled trial of a psycho-educational intervention for melanoma survivors at high risk of developing new primary disease

scientific article published on 11 July 2015

The PiGeOn project: protocol for a longitudinal study examining psychosocial, behavioural and ethical issues and outcomes in cancer tumour genomic profiling

scientific article published on 5 April 2018

The PiGeOn project: protocol of a longitudinal study examining psychosocial and ethical issues and outcomes in germline genomic sequencing for cancer.

scientific article published on 23 April 2018

The Quality of Life Questionnaire Core 30 (QLQ-C30) and Functional Assessment of Cancer-General (FACT-G) differ in responsiveness, relative efficiency, and therefore required sample size

scientific article

The TRIO Framework: Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making

scientific article

The doctor's role in helping dying patients with cancer achieve peace: a qualitative study

scientific article published on 9 June 2014

The evaluation of a question prompt list for attention-deficit/hyperactivity disorder in pediatric care: A pilot study

scientific article published on 3 March 2016

The experiences and impact of being deemed ineligible for living kidney donation: Semi-structured interview study

scientific article published on 25 July 2019

The financial impact of head and neck cancer caregiving: a qualitative study

scientific article published on 26 January 2016

The gains and pains of being a cancer support group leader: a qualitative survey of rewards and challenges

scientific article

The gendered construction and experience of difficulties and rewards in cancer care

scientific article

The iPrevent Online Breast Cancer Risk Assessment and Risk Management Tool: Usability and Acceptability Testing

scientific article published on 07 November 2018

The iPrevent Online Breast Cancer Risk Assessment and Risk Management Tool: Usability and Acceptability Testing. (Preprint)

preprint

The impact of communication on adherence in pain management

scientific article published on 06 August 2013

The motherhood choice: a decision aid for women with multiple sclerosis

scientific article published on 21 December 2007

The pivotal position of 'liaison people': facilitating a research utilisation intervention in policy agencies

The unmet supportive care needs of long-term head and neck cancer caregivers in the extended survivorship period

scientific article

The use and perceived benefits resulting from the use of complementary and alternative medicine by cancer patients in Australia

scientific article published on 26 October 2010

Transitioning to routine breast cancer risk assessment and management in primary care: what can we learn from cardiovascular disease?

scientific article published on 24 February 2015

Treatment decision making experiences of migrant cancer patients and their families in Australia

scientific article published on 24 January 2015

Treatment decision-making in ductal carcinoma in situ: A mixed methods systematic review of women's experiences and information needs

scientific article

Treatment of holistic suffering in cancer: A systematic literature review

scientific article published on 20 April 2015

Values and options in cancer care (VOICE): study design and rationale for a patient-centered communication and decision-making intervention for physicians, patients with advanced cancer, and their caregivers

scientific article

What are the optimal measures to identify anxiety and depression in people diagnosed with head and neck cancer (HNC): a systematic review

scientific article published on 23 April 2020

What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer

scientific article published on 21 November 2005

What do patients want? Patient preferences and surrogate decision making in the treatment of colorectal cancer

scientific article

What factors are associated with posttraumatic growth in head and neck cancer carers?

scientific article

When the Risks Are High

Who helps the leaders? Difficulties experienced by cancer support group leaders

scientific article published on 18 October 2005

Who should access germline genome sequencing? A mixed methods study of patient views

scientific article published on 26 November 2019

Why do We Find It so Hard to Discuss Spirituality? A Qualitative Exploration of Attitudinal Barriers

scientific article published on September 2016

Women's preferences for contralateral prophylactic mastectomy following unilateral breast cancer: What risk-reduction makes it worthwhile?

scientific article

Women's preferences for contralateral prophylactic mastectomy: An investigation using protection motivation theory

scientific article published in May 2016

Women's preferences for selective estrogen reuptake modulators: an investigation using protection motivation theory

scientific article published on 28 April 2014

Women's preferences for selective estrogen reuptake modulators: an investigation using the time trade-off technique

scientific article published on 24 May 2014

Worry in Head and Neck Cancer Caregivers: The Role of Survivor Factors, Care-Related Stressors, and Loneliness in Predicting Fear of Recurrence

scientific article

iPrevent®: a tailored, web-based, decision support tool for breast cancer risk assessment and management

scientific article published on 24 February 2016

“I can’t do this, it’s too much”: building social inclusion in cancer diagnosis and treatment experiences of Aboriginal people, their carers and health workers ⬇️

scientific article published on April 21, 2013

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