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List of works by Nancy E Kass

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Public health ethics: mapping the terrain

scientific article
Clinical trials and medical care: defining the therapeutic misconception

scientific article
An ethics framework for a learning health care system: a departure from traditional research ethics and clinical ethics

scientific article
The research-treatment distinction: a problematic approach for determining which activities should have ethical oversight

scientific article
Informed Consent, Comparative Effectiveness, and Learning Health Care

scientific article published on February 20, 2014
Views of US researchers about informed consent in international collaborative research

scientific article
The structure and function of research ethics committees in Africa: a case study.

scientific article published in January 2007
Public health ethics: from foundations and frameworks to justice and global public health

scientific article
The informed consent process in a rural African setting: A case study of the kassena-nankana district of northern Ghana

scientific article
Motivations, understanding, and voluntariness in international randomized trials

scientific article
An intervention to improve cancer patients' understanding of early-phase clinical trials.

scientific article
Ethics, regulation, and comparative effectiveness research: time for a change

scientific article published in April 2014
The use of medical records in research: what do patients want?

scientific article published on January 2003
Purpose and benefits of early phase cancer trials: what do oncologists say? What do patients hear?

scientific article
The OHRP and SUPPORT

scientific article
Length and Complexity of US and International HIV Consent Forms from Federal HIV Network Trials

scientific article published on July 6, 2011
Outcome of a research ethics training workshop among clinicians and scientists in a Nigerian university

scientific article
Addressing Low-Risk Comparative Effectiveness Research in Proposed Changes to US Federal Regulations Governing Research

scientific article published on April 18, 2012
Human rights, politics, and reviews of research ethics

scientific article
What patients say about medical research

scientific article published in July 1998
Disclosure, confidentiality, and families: Experiences and attitudes of those with genetic versus nongenetic medical conditions

scientific article published on May 15, 2003
Post-consent assessment of dental subjects' understanding of informed consent in oral health research in Nigeria

scientific article
Nomenclature and definitions for emergency department human immunodeficiency virus (HIV) testing: report from the 2007 conference of the National Emergency Department HIV Testing Consortium

scientific article
Ethics and Informed Consent for Comparative Effectiveness Research With Prospective Electronic Clinical Data

scientific article published on August 1, 2013
Improving informed consent: the medium is not the message.

scientific article published in September 2003
Repeated Assessments of Informed Consent Comprehension among HIV-Infected Participants of a Three-Year Clinical Trial in Botswana

scientific article published on October 27, 2011
"You've Got to Understand Community": Community Perceptions on "Breaking the Disconnect" Between Researchers and Communities

scientific article published on January 1, 2007
A comparison of online versus on-site training in health research methodology: a randomized study

scientific article published on 17 June 2011
Patients' perceptions of research in emergency settings: a study of survivors of sudden cardiac death

scientific article
A case study of research ethics capacity development in Africa

scientific article published in July 2007
A pilot study of simple interventions to improve informed consent in clinical research: feasibility, approach, and results

scientific article
Medical privacy and the disclosure of personal medical information: the beliefs and experiences of those with genetic and other clinical conditions

scientific article
Conducting empirical research on informed consent: challenges and questions.

scientific article published on September 2003
Research ethics capacity building in Sub-Saharan Africa: a review of NIH Fogarty-funded programs 2000–2012.

scientific article published in April 2014
Faculty perspectives on community-based research: "I see this still as a journey".

scientific article
Human rights research and ethics review: protecting individuals or protecting the state?

scientific article
Why mothers choose to enrol their children in malaria clinical studies and the involvement of relatives in decision making: evidence from Malawi

scientific article published on June 2008
Ebola, Ethics, and Public Health: What Next?

scientific article published on November 18, 2014
Controversy and quality improvement: lingering questions about ethics, oversight, and patient safety research

scientific article published on 01 June 2008
Understanding the Supports of and Challenges to Community Engagement in the CTSAs

scientific article published on September 8, 2014
Research ethics capacity development in Africa: exploring a model for individual success

scientific article
Informed consent for comparative effectiveness trials

scientific article (publication date: 15 May 2014)
Ethics and severe pandemic influenza: maintaining essential functions through a fair and considered response

scientific article
How are PCORI-funded researchers engaging patients in research and what are the ethical implications?

scientific article published on 28 June 2016
Ethical oversight of research in developing countries

scientific article
The ethics of health systems research in low- and middle-income countries: a call to action

scientific article published on 7 August 2014
Community Engagement Strategies in the Original and Renewal Applications for CTSA Grant Funding

scientific article published on November 6, 2013
Learning Health Care Systems and Justice

scientific article published on July 1, 2011
Assessment of the ethical review process in Sudan

scientific article published on December 2007
Screening in the dark: ethical considerations of providing screening tests to individuals when evidence is insufficient to support screening populations

scientific article

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