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List of works by Amy Epstein

A framework for understanding quality of life domains in individuals with the CDKL5 deficiency disorder

scientific article published on 18 December 2018

Autonomic breathing abnormalities in Rett syndrome: caregiver perspectives in an international database study.

scientific article

Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods

scientific article published on 21 December 2015

Content validation of the Quality of Life Inventory-Disability

scientific article published on 21 June 2019

Determinants of sleep disturbances in Rett syndrome: Novel findings in relation to genotype.

scientific article

Exploring quality of life of children with cerebral palsy and intellectual disability: What are the important domains of life?

scientific article

Functioning, participation, and quality of life in children with intellectual disability: an observational study

scientific article published on 30 August 2020

Impacts of caring for a child with the CDKL5 disorder on parental wellbeing and family quality of life

scientific article published on 19 January 2017

Parent-observed thematic data on quality of life in children with autism spectrum disorder.

scientific article published in October 2017

Prevalence and onset of comorbidities in the CDKL5 disorder differ from Rett syndrome

scientific article

Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure

scientific article published on 20 November 2018

Qualitative Analysis of Parental Observations on Quality of Life in Australian Children with Down Syndrome.

scientific article published on 12 January 2017

The prevalence of mental health disorders and symptoms in children and adolescents with cerebral palsy: a systematic review and meta-analysis

scientific article

Using directed-content analysis to identify a framework for understanding quality of life in adults with Rett syndrome

scientific article published on 10 May 2019

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