List of works - Crispin Jenkinson

A Review: carers, MND and service provision

scientific article published on September 2006

A patient-based questionnaire to assess outcomes of foot surgery: validation in the context of surgery for hallux valgus

scientific article published on 25 September 2006

A scoring system for the foot and ankle that is acceptable, reliable, valid and responsive ⬇️

scientific article published on March 17, 2012

A systematic review of generic multidimensional patient-reported outcome measures for children, part I: descriptive characteristics

scientific article published in March 2015

Adhering to best practice guidelines in outcomes measurement

scientific article published on 04 August 2018

Ambulatory blood pressure after therapeutic and subtherapeutic nasal continuous positive airway pressure for obstructive sleep apnoea: a randomised parallel trial

scientific article published in January 2002

An electronic version of the PDQ-39: acceptability to respondents and assessment of alternative response formats

scientific article published in January 2014

An exploration of social and economic outcome and associated health-related quality of life after critical illness in general intensive care unit survivors: a 12-month follow-up study

scientific article published on 28 May 2013

Aspects of methodology relevant to patient-reported outcome measures (PROMs)

Association between spousal emotional abuse and reproductive outcomes of women in India: findings from cross-sectional analysis of the 2005-2006 National Family Health Survey

scientific article published on 9 March 2018

Can pain and function be distinguished in the Oxford Knee Score in a meaningful way? An exploratory and confirmatory factor analysis

scientific article published on 23 March 2013

Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions

scientific article published on 25 June 2013

Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures

scientific article

Comparing alternative Rasch-based methods vs raw scores in measuring change in health

scientific article published in January 2004

Comparing health inequalities among men aged 18-65 years in Australia and England using the SF-36.

scientific article

Comparing results from long and short form versions of the Parkinson's disease questionnaire in a longitudinal study

scientific article published on 3 September 2015

Correction to: multiple imputation for patient reported outcome measures in randomised controlled trials: advantages and disadvantages of imputing at the item, subscale or composite score level

scientific article published on 16 October 2018

Cost-utility analysis of deep brain stimulation surgery plus best medical therapy versus best medical therapy in patients with Parkinson's: Economic evaluation alongside the PD SURG trial

scientific article

Cross-cultural evaluation of the Parkinson's Disease Questionnaire: tests of data quality, score reliability, response rate, and scaling assumptions in the United States, Canada, Japan, Italy, and Spain ⬇️

scientific article published on September 1, 2003

Cross-cultural evaluation of the short form 8-item Parkinson's Disease Questionnaire (PDQ-8): results from America, Canada, Japan, Italy and Spain

scientific article published on 22 August 2006

Data quality, floor and ceiling effects, and test-retest reliability of the Mild Cognitive Impairment Questionnaire

scientific article published on 15 January 2018

Deep brain stimulation plus best medical therapy versus best medical therapy alone for advanced Parkinson's disease (PD SURG trial): a randomised, open-label trial

scientific article

Developing symptom-based predictive models of endometriosis as a clinical screening tool: results from a multicenter study ⬇️

scientific article published on May 30, 2012

Development of the Motor Neuron Disease Carer Questionnaire

scientific article

Development of the Oxford Participation and Activities Questionnaire: constructing an item pool

scientific article published on 21 May 2015

Development of the Short Form Endometriosis Health Profile Questionnaire: the EHP-5.

scientific article published in April 2004

Distribution-based criteria for change in health-related quality of life in Parkinson's disease.

scientific article

Do South Asian women with PCOS have poorer health-related quality of life than Caucasian women with PCOS? A comparative cross-sectional study

scientific article

Does self-reported well-being of patients with Parkinson's disease influence caregiver strain and quality of life?

scientific article published on 26 February 2011

Does stimulus predict the best candidates for deep brain stimulation for PD?

scientific article published on 29 November 2013

European patients' views on the responsiveness of health systems and healthcare providers

article

Evaluating the psychometric properties of an e-based version of the 39-item Parkinson's Disease Questionnaire

scientific article

Evaluating the responsiveness of the Endometriosis Health Profile Questionnaire: the EHP-30.

scientific article published in April 2004

Evaluation of the American version of the 30-item Endometriosis Health Profile (EHP-30).

scientific article published on 10 October 2008

Evaluation of the Dutch version of the Parkinson's Disease Questionnaire 39.

scientific article published on 16 August 2007

Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health

scientific article

Experiences of Using Web-Based and Mobile Technologies to Support Self-Management of Type 2 Diabetes: Qualitative Study

scientific article published on 11 May 2018

Exploring the experiences of people with mild cognitive impairment and their caregivers with particular reference to healthcare - a qualitative study

scientific article published on 28 November 2013

Fabry International Prognostic Index: a predictive severity score for Anderson-Fabry disease ⬇️

scientific article published on February 7, 2012

Factors associated with patient satisfaction with foot and ankle surgery in a large prospective study ⬇️

scientific article published on June 6, 2012

Factors relating to patients' reports about hospital care for coronary heart disease in England

scientific article published in April 2003

Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time

scientific article published in June 2003

Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time

article

Furthering our understanding of the needs of adolescent children of parents with Parkinson's disease

scientific article published on 29 July 2013

Health Care Professionals' Perceptions of the Arthroplasty Patient Experience: Planning Phase in the Development of a Patient-Reported Outcome Measure

scientific article published on 15 October 2018

Health selection in the Whitehall II study, UK.

scientific article published in May 2003

Health-related quality of life measurement in women with common benign gynecologic conditions: a systematic review

scientific article

Health-status of adult survivors of childhood cancer: a large-scale population-based study from the British Childhood Cancer Survivor Study

scientific article published in August 2007

Impact of endometriosis on quality of life and work productivity: a multicenter study across ten countries

scientific article published on 30 June 2011

Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy

scientific article published in December 2004

Living with breathlessness in chronic heart failure: a qualitative study

scientific article

Long-term effectiveness of dopamine agonists and monoamine oxidase B inhibitors compared with levodopa as initial treatment for Parkinson's disease (PD MED): a large, open-label, pragmatic randomised trial

scientific article published on 11 June 2014

Management of respiration in MND/ALS patients: an evidence based review

scientific article

Mapping from the Parkinson's Disease Questionnaire PDQ-39 to the Generic EuroQol EQ-5D-3L: The Value of Mixture Models

scientific article published on 29 April 2015

Measuring outcomes for neurological disorders: a review of disease-specific health status instruments for three degenerative neurological conditions

scientific article published on June 2005

Measuring patients' experiences and outcomes

scientific article

Measuring quality of life in women with endometriosis: tests of data quality, score reliability, response rate and scaling assumptions of the Endometriosis Health Profile Questionnaire

scientific article

Measuring the effects of online health information for patients: item generation for an e-health impact questionnaire

scientific article published on 15 April 2013

Measuring the effects of online health information: Scale validation for the e-Health Impact Questionnaire

scientific article published on 22 June 2015

Medical education leaders' perceptions of postgraduate medical education reform

scientific article published in July 2014

Minimally important change was estimated for the Manchester-Oxford Foot Questionnaire after foot/ankle surgery

scientific article

Multiple imputation for patient reported outcome measures in randomised controlled trials: advantages and disadvantages of imputing at the item, subscale or composite score level

Nutritional management in MND/ALS patients: an evidence based review

scientific article published on June 2004

Outcome measurement in neurodegenerative disease: attributes, applications & interpretation

scientific article published on 21 August 2015

Outcome measures used in forensic mental health research: a structured review

scientific article published on January 2009

Outcome selection and role of patient reported outcomes in contemporary cardiovascular trials: systematic review

scientific article

Patient attitudes to clinical trials: development of a questionnaire and results from asthma and cancer patients

scientific article published on September 2005

Patient reported outcomes

scientific article published on 17 December 2015

Patient reports of the outcomes of treatment: a structured review of approaches

scientific article published on 14 January 2014

People with limiting long-term conditions report poorer experiences and more problems with hospital care

scientific article published on 23 January 2014

Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study ⬇️

scientific article published on 19 May 2015

Predictors of activity and participation across neurodegenerative conditions: a comparison of people with motor neurone disease, multiple sclerosis and Parkinson's disease

scientific article published on 17 February 2018

Proceedings of Patient Reported Outcome Measure's (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research : Oxford, UK. 8th June 2017

Properties of the Picker Patient Experience questionnaire in a randomized controlled trial of long versus short form survey instruments

scientific article published in September 2003

Psychometric validation of a multi-dimensional capability instrument for outcome measurement in mental health research (OxCAP-MH).

scientific article published on 28 December 2017

Quality in the provision of headache care. 1: systematic review of the literature and commentary ⬇️

scientific article published on June 27, 2012

Quality in the provision of headache care. 2: defining quality and its indicators

scientific article

Quality of life in amyotrophic lateral sclerosis/motor neuron disease: a structured review

scientific article published on February 2009

Quality of life in coeliac disease: item reduction, scale development and psychometric evaluation of the Coeliac Disease Assessment Questionnaire (CDAQ)

article

Quality of life in coeliac disease: qualitative interviews to develop candidate items for the Coeliac Disease Assessment Questionnaire.

scientific article published on 4 July 2018

Quality of life in patients with Parkinson's disease: Translation and psychometric evaluation of the Iranian version of PDQ-39 ⬇️

scientific article published on March 1, 2010

Rasch scoring of outcomes of total hip replacement.

scientific article published in January 2003

Social and psychological factors affecting the impact of painful chronic illness upon mental health ⬇️

doctoral thesis by Crispin Jenkinson

The Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40): evidence for a method of imputing missing data

scientific article

The Long-Term Conditions Questionnaire: conceptual framework and item development ⬇️

scientific article

The Outcomes and Experiences Questionnaire: development and validation

scientific article published on 16 July 2015

The Oxford Participation and Activities Questionnaire: study protocol

scientific article published on 11 December 2013

The Parkinson's Disease Questionnaire (PDQ-39): evidence for a method of imputing missing data

scientific article

The Picker Patient Experience Questionnaire: development and validation using data from in-patient surveys in five countries

scientific article

The Stroke Impact Scale: validation in a UK setting and development of a SIS short form and SIS index

scientific article published on 18 July 2013

The current practice of handling and reporting missing outcome data in eight widely used PROMs in RCT publications: a review of the current literature

scientific article

The development and validation of a patient-reported quality of life measure for people with mild cognitive impairment

scientific article published on 5 December 2013

The development and validation of a quality of life measure for the carers of people with Parkinson's disease (the PDQ-Carer).

scientific article

The impact of endometriosis upon quality of life: a qualitative analysis.

scientific article published in June 2004

The impact of perceived lack of support provided by health and social care services to caregivers of people with motor neuron disease ⬇️

scientific article published on February 1, 2012

The routine use of patient reported outcome measures in healthcare settings.

scientific article published on 18 January 2010

The use of the SF-36 questionnaire in adult survivors of childhood cancer: evaluation of data quality, score reliability, and scaling assumptions

scientific article

Towards a shared vision for measureable and meaningful health outcomes for children and young people with neurodisability: qualitative research, Delphi survey, systematic review, and stakeholder prioritisation

scientific article published on 29 May 2015

Use of the short form health survey (SF-36) in patients with amyotrophic lateral sclerosis: tests of data quality, score reliability, response rate and scaling assumptions

scientific article

Validation of the Oxford Participation and Activities Questionnaire

scientific article published on 15 June 2016

Web-Based and mHealth Technologies to Support Self-Management in People Living With Type 2 Diabetes: Validation of the Diabetes Self-Management and Technology Questionnaire (DSMT-Q)

scientific article published on 09 July 2020

Withdrawing gluten-free food from prescriptions in England: a mixed-methods study to examine the impact of policy changes on quality of life

scientific article published on 26 December 2019

List of works by Crispin Jenkinson

A Review: carers, MND and service provision

A patient-based questionnaire to assess outcomes of foot surgery: validation in the context of surgery for hallux valgus

A scoring system for the foot and ankle that is acceptable, reliable, valid and responsive ⬇️

A systematic review of generic multidimensional patient-reported outcome measures for children, part I: descriptive characteristics

Adhering to best practice guidelines in outcomes measurement

Ambulatory blood pressure after therapeutic and subtherapeutic nasal continuous positive airway pressure for obstructive sleep apnoea: a randomised parallel trial

An electronic version of the PDQ-39: acceptability to respondents and assessment of alternative response formats

An exploration of social and economic outcome and associated health-related quality of life after critical illness in general intensive care unit survivors: a 12-month follow-up study

Aspects of methodology relevant to patient-reported outcome measures (PROMs)

Association between spousal emotional abuse and reproductive outcomes of women in India: findings from cross-sectional analysis of the 2005-2006 National Family Health Survey

Can pain and function be distinguished in the Oxford Knee Score in a meaningful way? An exploratory and confirmatory factor analysis

Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions

Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures

Comparing alternative Rasch-based methods vs raw scores in measuring change in health

Comparing health inequalities among men aged 18-65 years in Australia and England using the SF-36.

Comparing results from long and short form versions of the Parkinson's disease questionnaire in a longitudinal study

Correction to: multiple imputation for patient reported outcome measures in randomised controlled trials: advantages and disadvantages of imputing at the item, subscale or composite score level

Cost-utility analysis of deep brain stimulation surgery plus best medical therapy versus best medical therapy in patients with Parkinson's: Economic evaluation alongside the PD SURG trial

Cross-cultural evaluation of the Parkinson's Disease Questionnaire: tests of data quality, score reliability, response rate, and scaling assumptions in the United States, Canada, Japan, Italy, and Spain ⬇️

Cross-cultural evaluation of the short form 8-item Parkinson's Disease Questionnaire (PDQ-8): results from America, Canada, Japan, Italy and Spain

Data quality, floor and ceiling effects, and test-retest reliability of the Mild Cognitive Impairment Questionnaire

Deep brain stimulation plus best medical therapy versus best medical therapy alone for advanced Parkinson's disease (PD SURG trial): a randomised, open-label trial

Developing symptom-based predictive models of endometriosis as a clinical screening tool: results from a multicenter study ⬇️

Development of the Motor Neuron Disease Carer Questionnaire

Development of the Oxford Participation and Activities Questionnaire: constructing an item pool

Development of the Short Form Endometriosis Health Profile Questionnaire: the EHP-5.

Distribution-based criteria for change in health-related quality of life in Parkinson's disease.

Do South Asian women with PCOS have poorer health-related quality of life than Caucasian women with PCOS? A comparative cross-sectional study

Does self-reported well-being of patients with Parkinson's disease influence caregiver strain and quality of life?

Does stimulus predict the best candidates for deep brain stimulation for PD?

European patients' views on the responsiveness of health systems and healthcare providers

Evaluating the psychometric properties of an e-based version of the 39-item Parkinson's Disease Questionnaire

Evaluating the responsiveness of the Endometriosis Health Profile Questionnaire: the EHP-30.

Evaluation of the American version of the 30-item Endometriosis Health Profile (EHP-30).

Evaluation of the Dutch version of the Parkinson's Disease Questionnaire 39.

Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health

Experiences of Using Web-Based and Mobile Technologies to Support Self-Management of Type 2 Diabetes: Qualitative Study

Exploring the experiences of people with mild cognitive impairment and their caregivers with particular reference to healthcare - a qualitative study

Fabry International Prognostic Index: a predictive severity score for Anderson-Fabry disease ⬇️

Factors associated with patient satisfaction with foot and ankle surgery in a large prospective study ⬇️

Factors relating to patients' reports about hospital care for coronary heart disease in England

Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time

Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time

Furthering our understanding of the needs of adolescent children of parents with Parkinson's disease

Health Care Professionals' Perceptions of the Arthroplasty Patient Experience: Planning Phase in the Development of a Patient-Reported Outcome Measure

Health selection in the Whitehall II study, UK.

Health-related quality of life measurement in women with common benign gynecologic conditions: a systematic review

Health-status of adult survivors of childhood cancer: a large-scale population-based study from the British Childhood Cancer Survivor Study

Impact of endometriosis on quality of life and work productivity: a multicenter study across ten countries

Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy

Living with breathlessness in chronic heart failure: a qualitative study

Long-term effectiveness of dopamine agonists and monoamine oxidase B inhibitors compared with levodopa as initial treatment for Parkinson's disease (PD MED): a large, open-label, pragmatic randomised trial

Management of respiration in MND/ALS patients: an evidence based review

Mapping from the Parkinson's Disease Questionnaire PDQ-39 to the Generic EuroQol EQ-5D-3L: The Value of Mixture Models

Measuring outcomes for neurological disorders: a review of disease-specific health status instruments for three degenerative neurological conditions

Measuring patients' experiences and outcomes

Measuring quality of life in women with endometriosis: tests of data quality, score reliability, response rate and scaling assumptions of the Endometriosis Health Profile Questionnaire

Measuring the effects of online health information for patients: item generation for an e-health impact questionnaire

Measuring the effects of online health information: Scale validation for the e-Health Impact Questionnaire

Medical education leaders' perceptions of postgraduate medical education reform

Minimally important change was estimated for the Manchester-Oxford Foot Questionnaire after foot/ankle surgery

Multiple imputation for patient reported outcome measures in randomised controlled trials: advantages and disadvantages of imputing at the item, subscale or composite score level

Nutritional management in MND/ALS patients: an evidence based review

Outcome measurement in neurodegenerative disease: attributes, applications & interpretation

Outcome measures used in forensic mental health research: a structured review

Outcome selection and role of patient reported outcomes in contemporary cardiovascular trials: systematic review

Patient attitudes to clinical trials: development of a questionnaire and results from asthma and cancer patients

Patient reported outcomes

Patient reports of the outcomes of treatment: a structured review of approaches

People with limiting long-term conditions report poorer experiences and more problems with hospital care

Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study ⬇️

Predictors of activity and participation across neurodegenerative conditions: a comparison of people with motor neurone disease, multiple sclerosis and Parkinson's disease

Proceedings of Patient Reported Outcome Measure's (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research : Oxford, UK. 8th June 2017

Properties of the Picker Patient Experience questionnaire in a randomized controlled trial of long versus short form survey instruments

Psychometric validation of a multi-dimensional capability instrument for outcome measurement in mental health research (OxCAP-MH).

Quality in the provision of headache care. 1: systematic review of the literature and commentary ⬇️

Quality in the provision of headache care. 2: defining quality and its indicators

Quality of life in amyotrophic lateral sclerosis/motor neuron disease: a structured review

Quality of life in coeliac disease: item reduction, scale development and psychometric evaluation of the Coeliac Disease Assessment Questionnaire (CDAQ)