List of works - Holly Peay - Paulina

List of works by Holly Peay

Early Check: translational science at the intersection of public health and newborn screening

scientific article published on 17 July 2019

Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol.

scientific article

Fragile X syndrome clinical trials: exploring parental decision-making

scientific article published on 12 February 2019

Genomic sequencing for psychiatric disorders: promise and challenge ⬇️

scientific article published on April 10, 2013

Priorities when deciding on participation in early-phase gene therapy trials for Duchenne muscular dystrophy: a best-worst scaling experiment in caregivers and adult patients

scientific article published on 09 May 2019

The RAND/PPMD Patient-Centeredness Method: a novel online approach to engaging patients and their representatives in guideline development

scientific article

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