List of works - Linda Kwakkenbos

A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members

scientific article published on 28 January 2023

Addressing overestimation of the prevalence of depression based on self-report screening questionnaires

scientific article published in January 2018

Addressing patient health care demands in systemic sclerosis: pre-post assessment of a psycho-educational group programme.

scientific article published in March 2011

An assessment of the measurement equivalence of English and French versions of the Center for Epidemiologic Studies Depression (CES-D) Scale in systemic sclerosis.

scientific article

Assessment of English-French differential item functioning of the Satisfaction with Appearance Scale (SWAP) in systemic sclerosis

scientific article

Can the Cancer-related Fatigue Case-definition Criteria Be Applied to Chronic Medical Illness? A Comparison between Breast Cancer and Systemic Sclerosis.

scientific article published on June 2015

Cognitive-behavioural therapy targeting fear of progression in an interdisciplinary care program: a case study in systemic sclerosis

scientific article published on December 2014

Comparison of Self-Efficacy for Managing Chronic Disease between patients with systemic sclerosis and other chronic conditions: a systematic review.

scientific article published on 19 November 2016

Cross-language measurement equivalence of the Center for Epidemiologic Studies Depression (CES-D) scale in systemic sclerosis: a comparison of Canadian and Dutch patients.

scientific article

Development and Validation of the Body Concealment Scale for Scleroderma

scientific article

Disease-related and psychosocial factors associated with depressive symptoms in patients with systemic sclerosis, including fear of progression and appearance self-esteem.

scientific article

Don't forget about the "R" in cmRCT: reply to Groenwold and van Smeden

scientific article published on 23 August 2018

Effectiveness of Nonpharmacologic Interventions in Systemic Sclerosis: A Systematic Review.

scientific article published on April 2015

Examination of the association of sex and race/ethnicity with appearance concerns: a Scleroderma Patient-centered Intervention Network (SPIN) Cohort study

scientific article published on August 2016

Exercise habits and factors associated with exercise in systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

scientific article published on 8 May 2017

Exploring Sources of Emotional Distress among People Living with Scleroderma: A Focus Group Study

scientific article

Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating 'not applicable' responses as missing data: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

scientific article

Feasibility and potential effectiveness of a non-pharmacological multidisciplinary care programme for persons with generalised osteoarthritis: a randomised, multiple-baseline single-case study ⬇️

scientific article published on July 19, 2012

Frequency and impact of disease symptoms experienced by patients with systemic sclerosis from five European countries.

scientific article published on 3 November 2014

Major depression diagnoses among patients with systemic sclerosis: baseline and one-month followup.

scientific article published in March 2015

Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study

scientific article published on 18 April 2017

Physical or Occupational Therapy Use in Systemic Sclerosis: A Scleroderma Patient-centered Intervention Network Cohort Study

scientific article published on 01 May 2019

Prevalence of posttraumatic stress disorder (PTSD) in women with breast cancer

scientific article published on 06 April 2014

Protocol for a scoping review to support development of a CONSORT extension for randomised controlled trials using cohorts and routinely collected health data

scientific article published on 05 August 2018

Psychological health and well-being in systemic sclerosis: State of the science and consensus research agenda.

scientific article published on August 2010

Psychosocial Aspects of Scleroderma

scientific article published on 27 May 2015

Re-validation and screening capacity of the 6-item version of the Cancer Worry Scale

scientific article published on 14 June 2018

Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross-sectional Study.

scientific article published on 19 February 2017

Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey

scientific article

Reassessing the clinical utility of the Patient Health Questionnaire (PHQ)-9 for depression screening in prenatal women: a commentary on Sidebottom et al.

scientific article published on 5 April 2013

Spirituality and Negative Emotions in Individuals With Coronary Heart Disease

scientific article

Structural validation of the Self-Compassion Scale with a German general population sample

scientific article

The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts

scientific article published on 01 September 2018

The Scleroderma Patient-Centered Intervention Network Self-Management Program: Protocol for a Randomized Feasibility Trial

scientific article published on 24 April 2020

The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context.

scientific article

The association of sociodemographic and objectively-assessed disease variables with fatigue in systemic sclerosis: an analysis of 785 Canadian Scleroderma Research Group Registry patients.

scientific article published on 10 December 2016

The comparability of English, French and Dutch scores on the Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-F): an assessment of differential item functioning in patients with systemic sclerosis

scientific article

Three-year trajectories of disability and fatigue in systemic sclerosis: a cohort study

scientific article published on 8 March 2017

Trial registration in rheumatology: the next step

scientific article published on 01 October 2014

Understanding coping strategies among people living with scleroderma: a focus group study.

scientific article

Using Marital Status and Continuous Marital Satisfaction Ratings to Predict Depressive Symptoms in Married and Unmarried Women With Systemic Sclerosis: A Canadian Scleroderma Research Group Study.

scientific article published on 25 November 2015

Using Optimal Test Assembly Methods for Shortening Patient-Reported Outcome Measures: Development and Validation of the Cochin Hand Function Scale-6: A Scleroderma Patient-Centered Intervention Network Cohort Study.

scientific article published on 25 March 2016

Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort

scientific article

Validation of the Brief Fear of Negative Evaluation Scale-II in patients with systemic sclerosis: A Scleroderma Patient-centered Intervention Network Cohort study

scientific article published on 6 February 2018

Validation of the Self-Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient-Centered Intervention Network Cohort Study

scientific article published on 30 November 2015

Validation of the Social Appearance Anxiety Scale in Patients with Systemic Sclerosis: A Scleroderma Patient-centered Intervention Network Cohort Study.

scientific article published on 17 January 2018

Validity of the Fear of Progression Questionnaire-Short Form in patients with systemic sclerosis.

scientific article published on 19 January 2012

List of works by Linda Kwakkenbos

A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members

Addressing overestimation of the prevalence of depression based on self-report screening questionnaires

Addressing patient health care demands in systemic sclerosis: pre-post assessment of a psycho-educational group programme.

An assessment of the measurement equivalence of English and French versions of the Center for Epidemiologic Studies Depression (CES-D) Scale in systemic sclerosis.

Assessment of English-French differential item functioning of the Satisfaction with Appearance Scale (SWAP) in systemic sclerosis

Can the Cancer-related Fatigue Case-definition Criteria Be Applied to Chronic Medical Illness? A Comparison between Breast Cancer and Systemic Sclerosis.

Cognitive-behavioural therapy targeting fear of progression in an interdisciplinary care program: a case study in systemic sclerosis

Comparison of Self-Efficacy for Managing Chronic Disease between patients with systemic sclerosis and other chronic conditions: a systematic review.

Cross-language measurement equivalence of the Center for Epidemiologic Studies Depression (CES-D) scale in systemic sclerosis: a comparison of Canadian and Dutch patients.

Development and Validation of the Body Concealment Scale for Scleroderma

Disease-related and psychosocial factors associated with depressive symptoms in patients with systemic sclerosis, including fear of progression and appearance self-esteem.

Don't forget about the "R" in cmRCT: reply to Groenwold and van Smeden

Effectiveness of Nonpharmacologic Interventions in Systemic Sclerosis: A Systematic Review.

Examination of the association of sex and race/ethnicity with appearance concerns: a Scleroderma Patient-centered Intervention Network (SPIN) Cohort study

Exercise habits and factors associated with exercise in systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

Exploring Sources of Emotional Distress among People Living with Scleroderma: A Focus Group Study

Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating 'not applicable' responses as missing data: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

Feasibility and potential effectiveness of a non-pharmacological multidisciplinary care programme for persons with generalised osteoarthritis: a randomised, multiple-baseline single-case study ⬇️

Frequency and impact of disease symptoms experienced by patients with systemic sclerosis from five European countries.

Major depression diagnoses among patients with systemic sclerosis: baseline and one-month followup.

Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study

Physical or Occupational Therapy Use in Systemic Sclerosis: A Scleroderma Patient-centered Intervention Network Cohort Study

Prevalence of posttraumatic stress disorder (PTSD) in women with breast cancer

Protocol for a scoping review to support development of a CONSORT extension for randomised controlled trials using cohorts and routinely collected health data

Psychological health and well-being in systemic sclerosis: State of the science and consensus research agenda.

Psychosocial Aspects of Scleroderma

Re-validation and screening capacity of the 6-item version of the Cancer Worry Scale

Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross-sectional Study.

Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey

Reassessing the clinical utility of the Patient Health Questionnaire (PHQ)-9 for depression screening in prenatal women: a commentary on Sidebottom et al.

Spirituality and Negative Emotions in Individuals With Coronary Heart Disease

Structural validation of the Self-Compassion Scale with a German general population sample

The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts

The Scleroderma Patient-Centered Intervention Network Self-Management Program: Protocol for a Randomized Feasibility Trial

The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context.

The association of sociodemographic and objectively-assessed disease variables with fatigue in systemic sclerosis: an analysis of 785 Canadian Scleroderma Research Group Registry patients.

The comparability of English, French and Dutch scores on the Functional Assessment of Chronic Illness Therapy-Fatigue (FACIT-F): an assessment of differential item functioning in patients with systemic sclerosis

Three-year trajectories of disability and fatigue in systemic sclerosis: a cohort study

Trial registration in rheumatology: the next step

Understanding coping strategies among people living with scleroderma: a focus group study.

Using Marital Status and Continuous Marital Satisfaction Ratings to Predict Depressive Symptoms in Married and Unmarried Women With Systemic Sclerosis: A Canadian Scleroderma Research Group Study.

Using Optimal Test Assembly Methods for Shortening Patient-Reported Outcome Measures: Development and Validation of the Cochin Hand Function Scale-6: A Scleroderma Patient-Centered Intervention Network Cohort Study.

Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort

Validation of the Brief Fear of Negative Evaluation Scale-II in patients with systemic sclerosis: A Scleroderma Patient-centered Intervention Network Cohort study

Validation of the Self-Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient-Centered Intervention Network Cohort Study

Validation of the Social Appearance Anxiety Scale in Patients with Systemic Sclerosis: A Scleroderma Patient-centered Intervention Network Cohort Study.

Validity of the Fear of Progression Questionnaire-Short Form in patients with systemic sclerosis.