List of works - Laura Mari Beskow

A survey of practices for the use of electronic health records to support research recruitment

article

Am I a control?: Genotype-driven research recruitment and self-understandings of study participants

scientific article published on 30 August 2012

Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families

scientific article

Certificates of confidentiality and informed consent: perspectives of IRB chairs and institutional legal counsel

scientific article

Certificates of confidentiality: legal counsels' experiences with and perspectives on legal demands for research data

scientific article

Challenges in enrollment of minority, pediatric, and geriatric patients in emergency and acute care clinical research

Changing perspectives on the benefits of newborn screening

scientific article published on January 2006

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

scientific article

Considering the nature of individual research results

scientific article

Developing a simplified consent form for biobanking

scientific article

Developing informed consent materials for non-English-speaking participants: An analysis of four professional firm translations from English to Spanish

article

Developing model biobanking consent language: what matters to prospective participants?

scientific article published on 15 May 2020

Epilepsy patient-participants and genetic research results as "answers".

scientific article

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

scientific article

Ethical challenges in genotype-driven research recruitment

scientific article

Ethical issues in identifying and recruiting participants for familial genetic research

scientific article published in November 2004

Ethical, legal, and social implications of biobanks for genetics research

scientific article

Genotype-Driven Recruitment and the Disclosure of Individual Research Results

journal article; published in The American Journal of Bioethics in 2017

IRB chairs' perspectives on genotype-driven research recruitment

scientific article

Improving biobank consent comprehension: a national randomized survey to assess the effect of a simplified form and review/retest intervention

scientific article

Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance

scholarly article by Wylie Burke et al published March 2018 in Journal of Law, Medicine, and Ethics

Informed consent for biobanking: consensus-based guidelines for adequate comprehension

scientific article

Informed consent for biorepositories: assessing prospective participants' understanding and opinions

scientific article published on June 2008

Informed consent in genomics and genetic research

scientific article published on January 2010

Institutional Review Boards’ Use and Understanding of Certificates of Confidentiality ⬇️

scientific article published on September 4, 2012

Lessons from HeLa Cells: The Ethics and Policy of Biospecimens

scientific article published on 03 March 2016

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

scientific article

Offering aggregate results to participants in genomic research: opportunities and challenges

scientific article (publication date: April 2012)

Offering individual genetic research results: context matters

scientific article

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment

scientific article

Patient perspectives on use of electronic health records for research recruitment

article

Patients' Views Concerning Research on Medical Practices: Implications for Consent

scientific article

Pharmacogenetic testing in the face of unclear clinical efficacy: Lessons from cytochrome P450 2D6 for tamoxifen ⬇️

scientific article published on July 24, 2013

Points to consider: The research ethics consultation service and the IRB

scientific article (publication date: 2009)

Proposed regulations for research with biospecimens: responses from stakeholders at CTSA consortium institutions.

scientific article

Prospective biorepository participants' perspectives on access to research results

scientific article

Recommendations for ethical approaches to genotype-driven research recruitment

scientific article

Research Participants' Understanding of and Reactions to Certificates of Confidentiality

scientific article

Research ethics. Certificates of confidentiality and compelled disclosure of data

scientific article

Research participants' perspectives on genotype-driven research recruitment

scientific article

Research recruitment through US central cancer registries: balancing privacy and scientific issues

scientific article published on 29 March 2006

Research use of electronic health records: patients' perspectives on contact by researchers

article

Restoring balance: a consensus statement on the protection of vulnerable research participants.

scientific article published on 18 October 2012

Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles

scientific article

Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations

scientific article

Simplifying informed consent for biorepositories: stakeholder perspectives

scientific article published on September 2010

The effect of physician permission versus notification on research recruitment through cancer registries (United States).

scientific article

The meaning of genetic research results: reflections from individuals with and without a known genetic disorder

scientific article

Thought leader perspectives on benefits and harms in precision medicine research

scientific article published in PLoS ONE

Towards a more comprehensive understanding of cancer burden in North Carolina: priorities for intervention

scientific article published on July 2008

Use of altered informed consent in pragmatic clinical research

scientific article

List of works by Laura Mari Beskow

A survey of practices for the use of electronic health records to support research recruitment

Am I a control?: Genotype-driven research recruitment and self-understandings of study participants

Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families

Certificates of confidentiality and informed consent: perspectives of IRB chairs and institutional legal counsel

Certificates of confidentiality: legal counsels' experiences with and perspectives on legal demands for research data

Challenges in enrollment of minority, pediatric, and geriatric patients in emergency and acute care clinical research

Changing perspectives on the benefits of newborn screening

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

Considering the nature of individual research results

Developing a simplified consent form for biobanking

Developing informed consent materials for non-English-speaking participants: An analysis of four professional firm translations from English to Spanish

Developing model biobanking consent language: what matters to prospective participants?

Epilepsy patient-participants and genetic research results as "answers".

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

Ethical challenges in genotype-driven research recruitment

Ethical issues in identifying and recruiting participants for familial genetic research

Ethical, legal, and social implications of biobanks for genetics research

Genotype-Driven Recruitment and the Disclosure of Individual Research Results

IRB chairs' perspectives on genotype-driven research recruitment

Improving biobank consent comprehension: a national randomized survey to assess the effect of a simplified form and review/retest intervention

Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance

Informed consent for biobanking: consensus-based guidelines for adequate comprehension

Informed consent for biorepositories: assessing prospective participants' understanding and opinions

Informed consent in genomics and genetic research

Institutional Review Boards’ Use and Understanding of Certificates of Confidentiality ⬇️

Lessons from HeLa Cells: The Ethics and Policy of Biospecimens

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

Offering aggregate results to participants in genomic research: opportunities and challenges

Offering individual genetic research results: context matters

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment

Patient perspectives on use of electronic health records for research recruitment

Patients' Views Concerning Research on Medical Practices: Implications for Consent

Pharmacogenetic testing in the face of unclear clinical efficacy: Lessons from cytochrome P450 2D6 for tamoxifen ⬇️

Points to consider: The research ethics consultation service and the IRB

Proposed regulations for research with biospecimens: responses from stakeholders at CTSA consortium institutions.

Prospective biorepository participants' perspectives on access to research results

Recommendations for ethical approaches to genotype-driven research recruitment

Research Participants' Understanding of and Reactions to Certificates of Confidentiality

Research ethics. Certificates of confidentiality and compelled disclosure of data

Research participants' perspectives on genotype-driven research recruitment

Research recruitment through US central cancer registries: balancing privacy and scientific issues

Research use of electronic health records: patients' perspectives on contact by researchers

Restoring balance: a consensus statement on the protection of vulnerable research participants.

Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles

Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations

Simplifying informed consent for biorepositories: stakeholder perspectives

The effect of physician permission versus notification on research recruitment through cancer registries (United States).

The meaning of genetic research results: reflections from individuals with and without a known genetic disorder

Thought leader perspectives on benefits and harms in precision medicine research

Towards a more comprehensive understanding of cancer burden in North Carolina: priorities for intervention

Use of altered informed consent in pragmatic clinical research