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List of works by Rebecca D. Pentz

A Web-Based Platform for Educating Researchers About Bioethics and Biobanking

scientific article

ASCO core values

scientific article published in December 2006

Academic oncology clinicians’ understanding of biosimilars and information needed before prescribing

Accelerating anticancer drug development - opportunities and trade-offs

scientific article published on 01 December 2018

Access to Children's Oncology Group and Pediatric Brain Tumor Consortium phase 1 clinical trials: Racial/ethnic dissimilarities in participation

scientific article published on 12 July 2016

Allocating Scarce Healthcare Resources during Pandemics: Making the Case for Patients with Advanced and Metastatic Cancer

scientific article published on 03 August 2020

Another look at the informed consent process: The document and the conversation

scientific article published on 27 October 2015

Balancing ethical goals in challenging individual participant scenarios occurring in a trial conducted with exception from informed consent

scientific article

Bioethical considerations of monoclonal B-cell lymphocytosis: donor transfer after haematopoietic stem cell transplantation

scientific article

Bioethics Training in Uganda: Report on Research and Clinical Ethics Workshops ⬇️

scientific article published on March 1, 2011

Bioethics reformation style.

scientific article published in March 1994

Broad Consent for Research With Biological Samples: Workshop Conclusions

scientific article

Broad Consent for Research on Biospecimens: The Views of Actual Donors at Four U.S. Medical Centers

scientific article published in January 2018

Cancer Research Ethics and COVID-19

scientific article published on 30 March 2020

Cancer donor preferences for disposition of their biospecimens after biobank closure.

scientific article published on 26 July 2017

Caring for Colleagues and Loved Ones With Cancer

scientific article published on 01 May 2018

Child and Parent Access to Transplant Information and Involvement in Treatment Decision Making

scientific article published on 12 April 2018

Code status discussion: Just have one ⬇️

scientific article published on April 5, 2013

Communicating About Phase I Trials: Objective Disclosures Are Only A First Step ⬇️

scientific article published on April 4, 2012

Communication of randomization in childhood leukemia trials

scientific article published on January 2004

Community consultation for prehospital research: experiences of study coordinators and principal investigators

scientific article

Consulting communities when patients cannot consent: a multicenter study of community consultation for research in emergency settings

scientific article published on February 2014

Description of the types and content of phase 1 clinical trial consent conversations in practice

scientific article

Designing an ethical policy for bone marrow donation by minors and others lacking capacity

scientific article published on 01 January 2004

Determinants of Patient and Surrogate Experiences With Acute Care Research Consent: A Key Informant Interview Study

scientific article published on 08 November 2019

Development and testing of a tool to assess patient preferences for phase I clinical trial participation

scientific article published on 19 December 2014

Discussing molecular testing in oncology care: Comparing patient and physician information preferences

scientific article published on 31 January 2017

Discussion of the do-not-resuscitate order: a pilot study of perceptions of patients with refractory cancer

scientific article published on 15 August 2002

Does experience matter? Implications for community consultation for research in emergency settings

scientific article

Duty and altruism: alternative analyses of the ethics of sibling bone marrow donation

scientific article published on 01 January 2006

Emergency Consent: Patients' and Surrogates' Perspectives on Consent for Clinical Trials in Acute Stroke and Myocardial Infarction

Emergency Research: Using Exception from Informed Consent, Evaluation of Community Consultations ⬇️

scientific article published on January 1, 2013

Enrolling subjects by exception from consent versus proxy consent in trauma care research

scientific article published on 15 October 2007

Enrollment in research under exception from informed consent: the Patients' Experiences in Emergency Research (PEER) study

scientific article published on 16 April 2013

Enrollment of Racial Minorities in Clinical Trials: Old Problem Assumes New Urgency in the Age of Immunotherapy

scientific article published on 01 January 2019

Ethical considerations of using a single minor donor for three bone marrow harvests for three HLA-matched siblings with primary immunodeficiency

scientific article published on 04 January 2019

Ethical issues in identifying and recruiting participants for familial genetic research

scientific article published in November 2004

Ethics guidelines for research with the recently dead

scientific article

Ethics in Eye Banking: Understanding Professional Attitudes Toward Industry Changes

scientific article published on 25 February 2020

Evaluation of a decision aid for families considering p53 genetic counseling and testing

scientific article

Family Strategies to Support Siblings of Pediatric Hematopoietic Stem Cell Transplant Patients

scientific article published on 24 January 2017

From Protocols to Publications: A Study in Selective Reporting of Outcomes in Randomized Trials in Oncology

scientific article (publication date: November 2015)

HGG-09. DECISION MAKING IN THE FACE OF INCURABLE HIGH GRADE GLIOMAS: A QUALITATIVE ANALYSIS.

scientific article published on 22 June 2018

Hereditary nonpolyposis colorectal cancer family members' perceptions about the duty to inform and health professionals' role in disseminating genetic information

scientific article

How does the collection of genetic test results affect research participants?

scientific article published in August 2007

Impact of individual clinical outcomes on trial participants' perspectives on enrollment in emergency research without consent

scientific article published on 15 November 2016

Involving children with cancer in decision-making about research participation

scientific article published on December 2006

Issues, both ethical and practical, in the development and conduct of chemoprevention trials

scientific article published in July 2004

Learning from experience: a systematic review of community consultation acceptance data

scientific article

Partnering With Patients to Bridge Gaps in Consent for Acute Care Research

scientific article published on 01 June 2020

Patient and Surrogate Postenrollment Perspectives on Research Using the Exception From Informed Consent: An Integrated Survey

scientific article published on 20 May 2020

Patient and Surrogate Views of Community Consultation for Emergency Research

scientific article

Patient perspectives on compensation for biospecimen donation.

scientific article published on 3 April 2018

Patient, caregiver and physician perspectives on participating in a thoracic rapid tissue donation program.

scientific article published on 28 November 2017

Patients' perceptions of complementary and alternative medicine in head and neck cancer: a qualitative, pilot study with clinical implications

scientific article published on 24 October 2013

Patients' perspectives of enrollment in research without consent: the patients' experiences in emergency research-progesterone for the treatment of traumatic brain injury study

scientific article published on March 2015

Phase I participants' views of quality of life and trial participation burdens

scientific article published in July 2007

Potential Benefits to Families, Children, and Adolescents Enrolled in Longitudinal Qualitative Research

scientific article published on 01 July 2018

Provider Recommendations for Phase I Clinical Trials Within a Shared Decision-Making Model in Phase I Cancer Clinical Trial Discussions

scientific article published on 19 May 2020

Psychological functioning in persons considering genetic counseling and testing for Li-Fraumeni syndrome.

scientific article

Racial/ethnic diversity in children's oncology clinical trials: ten years later

scientific article published in August 2009

Real-world effectiveness of systemic agents approved for advanced non-small cell lung cancer: a SEER-Medicare analysis.

scientific article published on May 2013

Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology Group

scientific article (publication date: 20 December 2012)

Referral Patterns and Clinical Outcomes for Transplant-Eligible Lymphoma and Myeloma Patients Evaluated at an Urban County Hospital

scientific article published on 19 February 2016

Reframing Consent for Clinical Research: A Function-Based Approach

scientific article published in December 2017

Reply to Helping patients to understand terrifying news: Addressing the inner lives of physicians and extending beyond what we know

scientific article published on 19 February 2020

Research biopsies in phase I studies: views and perspectives of participants and investigators ⬇️

scientific article published on March 1, 2012

Research on stored biological samples: views of African American and White American cancer patients

scientific article

Response to Open Peer Commentaries on "Partnering with Patients to Bridge Gaps in Consent for Acute Care Research"

scientific article published on 01 August 2020

Revisiting ethical guidelines for research with terminal wean and brain-dead participants.

scientific article published in January 2003

Shared decision-making in pediatric allogeneic blood and marrow transplantation: what if there is no decision to make?

scientific article

Smoking and Ethics: What Are the Duties of Oncologists? ⬇️

scientific article published on August 24, 2010

Spreading it around: money for researcher and research participants.

scientific article published in September 2004

Stakeholder perceptions of thoracic rapid tissue donation: An exploratory study.

scientific article published on 06 September 2013

Steps toward mapping the human vasculature by phage display.

scientific article

Study of the media's potential influence on prospective research participants' understanding of and motivations for participation in a high-profile phase I trial

scientific article published in September 2002

The Impact of Genetic Counseling Educational Tools on Patients' Knowledge of Molecular Testing Terminology

scientific article published on 07 May 2019

The ethical justification for minor sibling bone marrow donation: a case study

scientific article published in February 2008

The future of institutional review boards

scientific article published on May 2004

The newly and nearly dead

scientific article published in January 2003

The poster child for the need for central review of research protocols: the Children's Oncology Group.

scientific article

The vagaries of informed consent: experiences in oncologic care

scientific article published on 01 January 1995

Themes reported by families as important when proceeding with pediatric hematopoietic stem cell transplantation

scientific article published on 05 May 2014

Therapeutic misconception, misestimation, and optimism in participants enrolled in phase 1 trials.

scientific article

Unmet needs of siblings of pediatric stem cell transplant recipients

scientific article

Using Metaphors to Explain Molecular Testing to Cancer Patients

scientific article published on 20 February 2017

Vascular ligand-receptor mapping by direct combinatorial selection in cancer patients

scientific article

Videos improve patient understanding of misunderstood chemotherapy terminology

scientific article published on 16 August 2019

Who should go first in trials with scarce agents? The views of potential participants

scientific article published in July 2007

Why many oncologists fail to share accurate prognoses: They care deeply for their patients

scientific article published on 27 November 2019

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