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List of works by Johan Bilsen

"HIV Changed My Life Forever": An Illustrative Case of a Sub-Saharan African Migrant Woman Living with HIV in Belgium

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"It's my secret": fear of disclosure among sub-Saharan African migrant women living with HIV/AIDS in Belgium

scientific article

A Reflection on Using Observational Measures for the Assessment and/or Monitoring of Level of Consciousness in Palliatively Sedated Patients

scientific article published on 01 April 2020

A post-mortem survey on end-of-life decisions using a representative sample of death certificates in Flanders, Belgium: research protocol

scientific article

Acting Independently While Living Alone: The Strategies and Struggles of Cancer Patients.

scientific article

Advance care planning and dying in nursing homes in Flanders, Belgium: a nationwide survey

scientific article published on 20 August 2012

Advance care planning in Belgium and The Netherlands: a nationwide retrospective study via sentinel networks of general practitioners

scientific article

Advance directives and physicians' orders in nursing home residents with dementia in Flanders, Belgium: prevalence and associated outcomes

scientific article published on 27 February 2012

Age-based disparities in end-of-life decisions in Belgium: a population-based death certificate survey

scientific article

An Auto-Ethnographic Study of the Disembodied Experience of a Novice Researcher Doing Qualitative Cancer Research

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Assisted death without consent?

scientific article

Association between feeling threatened by a terrorist attack and subjective health: a web survey a week after the attacks of 22 March 2016 in Belgium

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Attending school after treatment for a brain tumor: Experiences of children and key figures.

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Attitudes and experiences of Belgian physicians regarding euthanasia practice and the euthanasia law.

scientific article published on 8 December 2010

Attitudes and practices of physicians regarding physician-assisted dying in minors

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Attitudes of Professional Caregivers and Family Members Regarding the Use of Monitoring Devices to Improve Assessments of Pain and Discomfort During Continuous Sedation Until Death

scientific article published on 24 February 2020

Attitudes of adolescent cancer survivors toward end-of-life decisions for minors

scientific article published in December 2009

Attitudes of nurses towards euthanasia and towards their role in euthanasia: a nationwide study in Flanders, Belgium

scientific article published on 26 March 2009

Attitudes of nursing staff towards involvement in medical end-of-life decisions: a national survey study

scientific article published on 05 October 2013

Bridging the gap between continuous sedation until death and physician-assisted death: a focus group study in nursing homes in Flanders, Belgium

scientific article published on 26 March 2014

Challenges in delivering bad news in a multi-ethnic intensive care unit: An ethnographic study

scientific article published on 28 June 2019

Changes in medical end-of-life practices during the legalization process of euthanasia in Belgium

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Characteristics of referral to a multidisciplinary palliative home care team

scientific article published in January 2008

Comfort in palliative sedation (Compas): a transdisciplinary mixed method study protocol for linking objective assessments to subjective experiences.

scientific article

Conflicts between healthcare professionals and families of a multi-ethnic patient population during critical care: an ethnographic study.

scientific article

Consultation of parents in actual end-of-life decision-making in neonates and infants

Consulting a Trained Physician When Considering a Request for Euthanasia: An Evaluation of the Process in Flanders and The Netherlands

Continuous deep sedation at the end of life of children in Flanders, Belgium

scientific article published on 10 December 2010

Continuous deep sedation until death in Belgium: a survey among nurses

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Continuous sedation until death with or without the intention to hasten death--a nationwide study in nursing homes in Flanders, Belgium

scientific article

Continuous sedation until death: moral justifications of physicians and nurses--a content analysis of opinion pieces.

scientific article published in August 2013

Cultural differences affecting euthanasia practice in Belgium: one law but different attitudes and practices in Flanders and Wallonia

scientific article published on 17 May 2012

Dealing with cultural diversity in palliative care

scientific article published on 21 August 2020

Dealing with requests for euthanasia: interview study among general practitioners in Belgium

scientific article published on 12 March 2011

Determinants of the place of death in the Brussels metropolitan region

scientific article published on 5 April 2009

Development of palliative care and legalisation of euthanasia: antagonism or synergy?

scientific article published on April 2008

Differences in Performance of Euthanasia and Continuous Deep Sedation by French- and Dutch-Speaking Physicians in Brussels, Belgium

article

Do-not-resuscitate policy on acute geriatric wards in Flanders, Belgium.

scientific article published in December 2005

Drugs used to alleviate symptoms with life shortening as a possible side effect: end-of-life care in six European countries

scientific article published on February 2006

Dying at home in Belgium: a descriptive GP interview study

scientific article

Dying at home or in an institution using death certificates to explore the factors associated with place of death

scientific article published on 15 December 2005

End-of-Life Care and Circumstances of Death in Patients Dying As a Result of Cancer in Belgium and the Netherlands: A Retrospective Comparative Study

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End-of-life decision making in neonates and infants: comparison of the Netherlands and Belgium (Flanders)

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End-of-life decision-making and terminal sedation among very old patients.

scientific article published on 9 October 2008

End-of-life decision-making in Belgium, Denmark, Sweden and Switzerland: does place of death make a difference?

scientific article published on December 2007

End-of-life decisions among cancer patients compared with noncancer patients in Flanders, Belgium

scientific article

End-of-life decisions of physicians in the city of Hasselt (Flanders, Belgium)

scientific article published in July 2000

Establishing specialized health services for professional consultation in euthanasia: experiences in the Netherlands and Belgium

scientific article

European public acceptance of euthanasia: socio-demographic and cultural factors associated with the acceptance of euthanasia in 33 European countries

scientific article published on 14 March 2006

Euthanasia and other end of life decisions and care provided in final three months of life: nationwide retrospective study in Belgium

scientific article published on 30 July 2009

Euthanasia and other end-of-life decisions: a mortality follow-back study in Belgium

scientific article

Euthanasia in patients dying at home in Belgium: interview study on adherence to legal safeguards

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Factors related to the involvement of nurses in medical end-of-life decisions in Belgium: A death certificate study

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Forgoing artificial nutrition or hydration in patients nearing death in six European countries

scientific article published on 2 July 2007

Forgoing treatment at the end of life in 6 European countries

scientific article published on 01 February 2005

GPs' awareness of patients' preference for place of death

scientific article published on September 2009

Hospitalisations at the end of life: using a sentinel surveillance network to study hospital use and associated patient, disease and healthcare factors

scientific article

Implementation of a service for physicians' consultation and information in euthanasia requests in Belgium

scientific article published on 5 January 2012

Influence of the metropolitan environment on end-of-life decisions: A population-based study of end-of-life decision-making in the Brussels metropolitan region and non-metropolitan Flanders

scientific article published on 14 April 2010

Informal support needs of cancer patients who are living alone: a qualitative insight.

scientific article

Intercultural mediators in Belgian hospitals: Demographic and professional characteristics and work experiences

scientific article published on 19 July 2019

Is individual educational level related to end-of-life care use? Results from a nationwide retrospective cohort study in Belgium

scientific article published on 4 August 2011

Justifying continuous sedation until death: a focus group study in nursing homes in Flanders, Belgium

scientific article published on 28 December 2012

Legal euthanasia in Belgium: characteristics of all reported euthanasia cases

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Living Alone During Cancer Treatment: An Exploration of Patients' Experiences

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Medical End-of-Life Practices under the Euthanasia Law in Belgium

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Medical end-of-life decisions in children in Flanders, Belgium: a population-based postmortem survey

scientific article published in June 2010

Medical end-of-life decisions in neonates and infants in Flanders

scientific article published in The Lancet

Medical end-of-life decisions: experiences and attitudes of Belgian pediatric intensive care nurses.

scientific article

Mental well-being of patients from ethnic minority groups during critical care: a qualitative ethnographic study.

scientific article published on 27 September 2017

Nationwide monitoring of end-of-life care via the Sentinel Network of General Practitioners in Belgium: the research protocol of the SENTI-MELC study

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Nationwide survey to evaluate the decision-making process in euthanasia requests in Belgium: do specifically trained 2nd physicians improve quality of consultation?

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Neurophysiological Assessments During Continuous Sedation Until Death Put Validity of Observational Assessments Into Question: A Prospective Observational Study

scientific article published on 05 November 2020

Nurses' involvement in 'do not resuscitate' decisions on acute elder care wards

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Nursing home policies regarding advance care planning in Flanders, Belgium

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Nursing staff and euthanasia in the Netherlands. A nation-wide survey on attitudes and involvement in decision making and the performance of euthanasia

scientific article published on 21 November 2015

Older people dying with dementia: a nationwide study

scientific article

PERCEPTIONS OF STIGMA AND DISCRIMINATION IN HEALTH CARE SETTINGS TOWARDS SUB-SAHARAN AFRICAN MIGRANT WOMEN LIVING WITH HIV/AIDS IN BELGIUM: A QUALITATIVE STUDY.

scientific article

Palliative sedation: why we should be more concerned about the risks that patients experience an uncomfortable death

scientific article published on 26 April 2013

Physician reports of medication use with explicit intention of hastening the end of life in the absence of explicit patient request in general practice in Belgium

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Physician-assisted death: attitudes and practices of community pharmacists in East Flanders, Belgium

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Physician-assisted deaths under the euthanasia law in Belgium: a population-based survey

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Place of death in metropolitan regions: metropolitan versus non-metropolitan variation in place of death in Belgium, The Netherlands and England

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Place of death of older persons with dementia. A study in five European countries

scientific article published in April 2010

Policies to improve end-of-life decisions in Flemish hospitals: communication, training of health care providers and use of quality assessments

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Prevalence of Patients With Do-Not-Resuscitate Status on Acute Geriatric Wards in Flanders, Belgium

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Preventing Conflicts Between Nurses and Families of a Multi-ethnic Patient Population During Critical Medical Situations in a Hospital

scientific article published on 01 July 2019

Process and outcomes of euthanasia requests under the belgian act on euthanasia: a nationwide survey

scientific article

Psychiatric Consultation and Referral of Persons Who Have Attempted Suicide

scientific article published on 23 February 2017

Psychotherapists' attitudes to intimate and informal behaviour towards clients

scientific article published on 18 March 2020

Questions and Emotions of Minors After Terrorist Attacks: A Qualitative Study Using Data from a Belgian Youth-Helpline

scientific article published on 30 September 2019

Reintegration Into School After Treatment for a Brain Tumor: The Child's Perspective

scientific article published on 02 July 2019

Reintegration into school of childhood brain tumor survivors: a qualitative study using the International Classification of Functioning, Disability and Health - Children and Youth framework

scientific article published on 07 January 2020

Reporting of euthanasia in medical practice in Flanders, Belgium: cross sectional analysis of reported and unreported cases

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Requests for euthanasia/physician-assisted suicide on the basis of mental suffering: vulnerable patients or vulnerable physicians?

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Response to Finucane

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Role and involvement of life end information forum physicians in euthanasia and other end-of-life care decisions in Flanders, Belgium

scientific article published on 24 September 2009

Short-term perspectives of parents and teachers on school reintegration of childhood brain tumour survivors

scientific article published on 17 July 2018

Should we include monitors to improve assessment of awareness and pain in unconscious palliatively sedated patients? A case report

scientific article published on 07 March 2019

Socioeconomic risk factors for hospital admittance due to a suicide attempt in Belgium: a population-based study using administrative data

scientific article published on 16 November 2017

Spirituality/Religiosity: A Cultural and Psychological Resource among Sub-Saharan African Migrant Women with HIV/AIDS in Belgium

scientific article published on 22 July 2016

Surveying End-of-Life Medical Decisions in France: Evaluation of an Innovative Mixed-Mode Data Collection Strategy

scientific article

The attitudes, role & knowledge of mental health nurses towards euthanasia because of unbearable mental suffering in Belgium: A pilot study

scientific article published on 02 July 2018

The first five years of euthanasia legislation in Belgium and the Netherlands: description and comparison of cases

scientific article published on 20 July 2011

The incidence and characteristics of end-of-life decisions by GPs in Belgium.

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The labelling and reporting of euthanasia by Belgian physicians: a study of hypothetical cases

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The medical practice of euthanasia in Belgium and The Netherlands: legal notification, control and evaluation procedures

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The moral difference or equivalence between continuous sedation until death and physician-assisted death: word games or war games?: a qualitative content analysis of opinion pieces in the indexed medical and nursing literature

scientific article published on 21 March 2012

The practice of continuous sedation until death in nursing homes in Flanders, Belgium: a nationwide study

scientific article published on October 2014

The role of nurses in physician-assisted deaths in Belgium

scientific article

The use of drugs with a life-shortening effect in end-of-life care in neonates and infants

scientific article published on 15 November 2005

The use of palliative care services associated with better dying circumstances. Results from an epidemiological population-based study in the brussels metropolitan region

scientific article

Transitions Between Care Settings at the End of Life in Belgium

scientific article published in The Journal of the American Medical Association

Trends in acceptance of euthanasia among the general public in 12 European countries (1981-1999).

scientific article published on 26 April 2006

Trends in medical end-of-life decision making in Flanders, Belgium 1998-2001-2007.

scientific article published on 29 December 2010

Use of palliative care services and general practitioner visits at the end of life in The Netherlands and Belgium

scientific article published on 15 September 2010

Using death certificate data to study place of death in 9 European countries: opportunities and weaknesses

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Using drugs to end life without an explicit request of the patient

scientific article published in March 2007

Which patients with cancer die at home? A study of six European countries using death certificate data

scientific article

Withholding/Withdrawing Life-Sustaining Treatment in a Multiethnic Critical Care Setting: An Ethnographic Study

scientific article published on 23 July 2020