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List of works by Amy L McGuire

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Whole-genome sequencing in a patient with Charcot-Marie-Tooth neuropathy

scientific article
An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons

scientific article published on December 2008
Social networkers' attitudes toward direct-to-consumer personal genome testing

scientific article published on January 2009
Research ethics recommendations for whole-genome research: consensus statement

scientific article
The Human Microbiome Project: a community resource for the healthy human microbiome

scientific article
Research ethics and the challenge of whole-genome sequencing

scientific article
A typology of shared decision making, informed consent, and simple consent

scientific article
Exploring concordance and discordance for return of incidental findings from clinical sequencing

scientific article published on 15 March 2012
Diagnostic Yield of Clinical Tumor and Germline Whole-Exome Sequencing for Children With Solid Tumors

scientific article published on 28 January 2016
Point-counterpoint. Ethics and genomic incidental findings

scientific article published on 16 May 2013
Genetics. No longer de-identified

scientific article
The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine

scientific article published on March 20, 2014
The legal risks of returning results of genomics research

scientific article published on 09 February 2012
Informed consent in genomics and genetic research

scientific article published on January 2010
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

scientific article (publication date: April 2012)
Personalized genomic information: preparing for the future of genetic medicine

scientific article
DNA data sharing: research participants' perspectives

scientific article
Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility

scientific article published on 6 January 2012
Personal genome research : what should the participant be told?

scientific article
The Impact of Whole-Genome Sequencing on the Primary Care and Outcomes of Healthy Adult Patients: A Pilot Randomized Trial

scientific article
To share or not to share: a randomized trial of consent for data sharing in genome research

scientific article (publication date: November 2011)
Direct-to-Consumer Genetic Testing: Perceptions, Problems, and Policy Responses

scientific article published on January 1, 2012
GINA, Genetic Discrimination, and Genomic Medicine

scientific article published on January 29, 2015
Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

scientific article (publication date: July 2011)
Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients

scientific article
Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider

scientific article published in July 2008
Beneficent persuasion: techniques and ethical guidelines to improve patients' decisions

scientific article
Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

scientific article
Newborn Sequencing in Genomic Medicine and Public Health

scientific article
Medicine. The future of personal genomics

scientific article published on September 2007
Secondary findings and carrier test frequencies in a large multiethnic sample

scientific article published on 13 June 2015
Ethical, legal, and social considerations in conducting the Human Microbiome Project

scientific article (publication date: December 2008)
Principal investigator views of the IRB system

scientific article published on 2 April 2008
Return of research results from genomic biobanks: cost matters

scientific article published on 30 August 2012
Experiences and attitudes of genome investigators regarding return of individual genetic test results

scientific article
The Indispensable Role of Professional Judgment in Genomic Medicine

scientific article published on April 10, 2013
A One-Page Summary Report of Genome Sequencing for the Healthy Adult

scientific article published on January 21, 2015
The ethical use of existing samples for genome research

scientific article published on October 2009
Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group

scientific article
Missed expectations? Physicians' views of patients' participation in medical decision-making

scientific article published in May 2005
Personalized genomic disease risk of volunteers

scientific article published on September 30, 2013
Don't throw the baby out with the bathwater: enabling a bottom-up approach in genome-wide association studies

scientific article
Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing

scientific article published on 28 February 2016
Overcoming the Reimbursement Barriers for Clinical Sequencing

scientific article published on November 12, 2014
Participants' Recall and Understanding of Genomic Research and Large-Scale Data Sharing

scientific article published on October 1, 2013
Pediatric Data Sharing in Genomic Research: Attitudes and Preferences of Parents

scientific article published on March 10, 2014
Development of the clinical next-generation sequencing industry in a shifting policy climate

scientific article published on October 1, 2014
Health System Implications of Direct-to-Consumer Personal Genome Testing

scientific article published on November 13, 2010
Incidental copy-number variants identified by routine genome testing in a clinical population

scientific article published on 09 August 2012
Creating a data resource: what will it take to build a medical information commons?

scientific article published on 22 September 2017

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