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List of works by Amy L McGuire

"Snake-oil," "quack medicine," and "industrially cultured organisms:" biovalue and the commercialization of human microbiome research

scientific article

'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeq Project

scientific article

1000 Genomes on the Road to Personalized Medicine

scientific article

A one-page summary report of genome sequencing for the healthy adult

scientific article

A typology of shared decision making, informed consent, and simple consent

scientific article

Adult genetic risk screening

scientific article

An open access pilot freely sharing cancer genomic data from participants in Texas

scientific article

An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons

scientific article published on December 2008

Barriers to clinical adoption of next-generation sequencing: a policy Delphi panel's solutions.

scientific article published on 23 June 2017

Beneficent persuasion: techniques and ethical guidelines to improve patients' decisions

scientific article

Beyond Our Borders? Public Resistance to Global Genomic Data Sharing

scientific article

Beyond breaking bad news: the roles of hope and hopefulness

scientific article

CORRIGENDUM: ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

scientific article published in May 2017

Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings

scientific article

Citizen science, public policy

scientific article published in Science

Clinical integration of next generation sequencing: a policy analysis

scientific article published on January 2014

Communication challenges for nongeneticist physicians relaying clinical genomic results

scientific article published in September 2016

Community crystal gazing

scientific article

Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider

scientific article published in July 2008

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

scientific article

Consent: informed, simple, implied and presumed

article by Laurence B. McCullough et al published December 2007 in American Journal of Bioethics

Constraints on gene patent protection fuel secrecy concerns: a qualitative study.

scientific article published on 16 November 2017

Continued access to investigational brain implants

scientific article published on 24 April 2018

Creating a data resource: what will it take to build a medical information commons?

scientific article published on 22 September 2017

Currents in contemporary bioethics. Identifying consanguinity through routine genomic analysis: reporting requirements

scientific article

Currents in contemporary ethics. Direct-to-consumer genetic testing: is it the practice of medicine?

scientific article published on January 2009

DNA data sharing: research participants' perspectives

scientific article

Developing a tissue resource to characterize the genome of pancreatic cancer

scientific article

Developing context-specific next-generation sequencing policy

scientific article

Development of the clinical next-generation sequencing industry in a shifting policy climate

scientific article published on October 2014

Diagnostic Yield of Clinical Tumor and Germline Whole-Exome Sequencing for Children With Solid Tumors

scientific article published on 28 January 2016

Direct-to-Consumer Genetic Testing: Perceptions, Problems, and Policy Responses ⬇️

scientific article published on January 1, 2012

Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility

scientific article published on 6 January 2012

Do privacy and security regulations need a status update? Perspectives from an intergenerational survey

scientific article published on 19 September 2017

Don't throw the baby out with the bathwater: enabling a bottom-up approach in genome-wide association studies

scientific article

Erratum: Community crystal gazing

scholarly article published in Nature Biotechnology

Ethical and Legal Challenges Associated with Public Molecular Autopsies

scientific article

Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

scientific article (publication date: July 2011)

Ethical, legal, and social considerations in conducting the Human Microbiome Project

scientific article (publication date: December 2008)

Experiences and attitudes of genome investigators regarding return of individual genetic test results

scientific article

Exploring concordance and discordance for return of incidental findings from clinical sequencing

scientific article published on 15 March 2012

Exploring the ELSI universe: critical issues in the evolution of human genomic research ⬇️

scientific article published on June 21, 2011

GINA, genetic discrimination, and genomic medicine

scientific article published in January 2015

Genetics. No longer de-identified

scientific article

Health System Implications of Direct-to-Consumer Personal Genome Testing ⬇️

scientific article published on November 13, 2010

How Primary Care Providers Talk to Patients about Genome Sequencing Results: Risk, Rationale, and Recommendation

scientific article published on 26 January 2018

How behavioral economics can help to avoid 'The last mile problem' in whole genome sequencing

scientific article

Identifiability of DNA data: the need for consistent federal policy

scientific article

Incidental copy-number variants identified by routine genome testing in a clinical population

scientific article published on 09 August 2012

Informed consent in genomics and genetic research

scientific article published on January 2010

Informed consent in research to improve the number and quality of deceased donor organs

scientific article published on February 2011

Is Whole-Exome Sequencing an Ethically Disruptive Technology? Perspectives of Pediatric Oncologists and Parents of Pediatric Patients With Solid Tumors

scientific article

It depends whose data are being shared: considerations for genomic data sharing policies

scientific article

Medicine. The future of personal genomics

scientific article published on September 2007

Missed expectations? Physicians' views of patients' participation in medical decision-making

scientific article published in May 2005

Moving beyond Bermuda: sharing data to build a medical information commons

scientific article

Myriad take two: Can genomic databases remain secret?

scientific article

Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium

scientific article published on 31 August 2017

Newborn Sequencing in Genomic Medicine and Public Health

scientific article

Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients

scientific article

Open access data sharing in genomic research

scientific article

Overcoming the reimbursement barriers for clinical sequencing

scientific article

Parental interest in genomic sequencing of newborns: enrollment experience from the BabySeq Project

scientific article published on 13 September 2018

Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing

scientific article published on 28 February 2016

Participants' recall and understanding of genomic research and large-scale data sharing

scientific article

Patient understanding of, satisfaction with, and perceived utility of whole-genome sequencing: findings from the MedSeq Project

scientific article published on 4 January 2018

Paving the Way to Personalized Genomic Medicine: Steps to Successful Implementation

scientific article

Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject

scientific article

Pediatric data sharing in genomic research: attitudes and preferences of parents

scientific article

Persistent confusion and controversy surrounding gene patents

scientific article published on February 2016

Personal genome research : what should the participant be told?

scientific article

Personalized genomic disease risk of volunteers

scientific article published on 30 September 2013

Personalized genomic information: preparing for the future of genetic medicine

scientific article

Perspectives on human microbiome research ethics

scientific article

Please don't call my mom: pediatric consent and confidentiality

Point-counterpoint. Ethics and genomic incidental findings

scientific article published on 16 May 2013

Policy Uncertainty, Sequencing, and Cell Lines ⬇️

scientific article published on 07 August 2013

Potential Psychosocial Risks of Sequencing Newborns

scientific article published on January 2016

Pregnant patients' risk perception of prenatal test results with uncertain fetal clinical significance: ultrasound versus advanced genetic testing

scientific article published on 19 August 2015

Principal investigator views of the IRB system

scientific article published on 2 April 2008

Reconciling newborn screening and a novel splice variant in associated with partial biotinidase deficiency: a BabySeq Project case report

article by Jaclyn B Murry et al published August 2018 in Cold Spring Harbor molecular case studies

Research Results: Preserving Newborn Blood Samples ⬇️

scientific article published on November 7, 2012

Research ethics and the challenge of whole-genome sequencing

scientific article

Research ethics recommendations for whole-genome research: consensus statement

scientific article

Respect as an organizing normative category for research ethics

scientific article published in January 2005

Return of individual genomic research results: what do consent forms tell participants?

scientific article published on 22 June 2016

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

scientific article (publication date: April 2012)

Return of research results from genomic biobanks: cost matters

scientific article published on 30 August 2012

Returning genetic research results: study type matters

scientific article published on January 2013

Secondary findings and carrier test frequencies in a large multiethnic sample

scientific article published on 13 June 2015

Shaping Patients' Decisions ⬇️

scientific article published on February 1, 2011

Sharing data under the 21st Century Cures Act.

scientific article

Should we be concerned about preserving agency and personal identity in patients with Adaptive Deep Brain Stimulation systems?

scientific article published on 16 June 2017

Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group

scientific article

Social networkers' attitudes toward direct-to-consumer personal genome testing

scientific article published on January 2009

Taking DNA from the dead

scientific article

The BabySeq project: implementing genomic sequencing in newborns

article by Ingrid A Holm et al published 9 July 2018 in BMC Pediatrics

The Human Microbiome Project: a community resource for the healthy human microbiome

scientific article

The Impact of Whole-Genome Sequencing on the Primary Care and Outcomes of Healthy Adult Patients: A Pilot Randomized Trial

scientific article

The Indispensable Role of Professional Judgment in Genomic Medicine ⬇️

scientific article published on April 10, 2013

The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine

scientific article

The ethical use of existing samples for genome research

scientific article published on October 2009

The ethics of conducting molecular autopsies in cases of sudden death in the young

scientific article published on 13 July 2016

The ethics of lawyer-ethicists

scientific article published on 01 January 2005

The futility of genomic counseling: essential role of electronic health records

scientific article (publication date: 8 May 2009)

The legal risks of returning results of genomics research

scientific article published on 09 February 2012

The need for medical education reform: genomics and the changing nature of health information

scientific article

To share or not to share: a randomized trial of consent for data sharing in genome research

scientific article (publication date: November 2011)

Two cheers for GINA?

scientific article published on 20 January 2009

Whole-genome sequencing in a patient with Charcot-Marie-Tooth neuropathy

scientific article

Why information alone is not enough: behavioral economics and the future of genomic medicine

scientific article

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