Advanced search

Authors whose works are in public domain in at least one jurisdiction

List of works by Amy L McGuire

1-50 of 111 results

Whole-genome sequencing in a patient with Charcot-Marie-Tooth neuropathy

scientific article

An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons

scientific article published on December 2008

Social networkers' attitudes toward direct-to-consumer personal genome testing

scientific article published on January 2009

Research ethics recommendations for whole-genome research: consensus statement

scientific article

The Human Microbiome Project: a community resource for the healthy human microbiome

scientific article

Research ethics and the challenge of whole-genome sequencing

scientific article

A typology of shared decision making, informed consent, and simple consent

scientific article

Exploring concordance and discordance for return of incidental findings from clinical sequencing

scientific article published on 15 March 2012

Diagnostic Yield of Clinical Tumor and Germline Whole-Exome Sequencing for Children With Solid Tumors

scientific article published on 28 January 2016

Point-counterpoint. Ethics and genomic incidental findings

scientific article published on 16 May 2013

Genetics. No longer de-identified

scientific article

The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine

scientific article published on March 20, 2014

The legal risks of returning results of genomics research

scientific article published on 09 February 2012

Informed consent in genomics and genetic research

scientific article published on January 2010

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

scientific article (publication date: April 2012)

Personalized genomic information: preparing for the future of genetic medicine

scientific article

DNA data sharing: research participants' perspectives

scientific article

Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility

scientific article published on 6 January 2012

Personal genome research : what should the participant be told?

scientific article

The Impact of Whole-Genome Sequencing on the Primary Care and Outcomes of Healthy Adult Patients: A Pilot Randomized Trial

scientific article

To share or not to share: a randomized trial of consent for data sharing in genome research

scientific article (publication date: November 2011)

Direct-to-Consumer Genetic Testing: Perceptions, Problems, and Policy Responses

scientific article published on January 1, 2012

GINA, Genetic Discrimination, and Genomic Medicine

scientific article published on January 29, 2015

Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

scientific article (publication date: July 2011)

Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients

scientific article

Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider

scientific article published in July 2008

Beneficent persuasion: techniques and ethical guidelines to improve patients' decisions

scientific article

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

scientific article

Newborn Sequencing in Genomic Medicine and Public Health

scientific article

Medicine. The future of personal genomics

scientific article published on September 2007

Secondary findings and carrier test frequencies in a large multiethnic sample

scientific article published on 13 June 2015

Ethical, legal, and social considerations in conducting the Human Microbiome Project

scientific article (publication date: December 2008)

Principal investigator views of the IRB system

scientific article published on 2 April 2008

Return of research results from genomic biobanks: cost matters

scientific article published on 30 August 2012

Experiences and attitudes of genome investigators regarding return of individual genetic test results

scientific article

The Indispensable Role of Professional Judgment in Genomic Medicine

scientific article published on April 10, 2013

A One-Page Summary Report of Genome Sequencing for the Healthy Adult

scientific article published on January 21, 2015

The ethical use of existing samples for genome research

scientific article published on October 2009

Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group

scientific article

Missed expectations? Physicians' views of patients' participation in medical decision-making

scientific article published in May 2005

Personalized genomic disease risk of volunteers

scientific article published on September 30, 2013

Don't throw the baby out with the bathwater: enabling a bottom-up approach in genome-wide association studies

scientific article

Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing

scientific article published on 28 February 2016

Overcoming the Reimbursement Barriers for Clinical Sequencing

scientific article published on November 12, 2014

Participants' Recall and Understanding of Genomic Research and Large-Scale Data Sharing

scientific article published on October 1, 2013

Pediatric Data Sharing in Genomic Research: Attitudes and Preferences of Parents

scientific article published on March 10, 2014

Development of the clinical next-generation sequencing industry in a shifting policy climate

scientific article published on October 1, 2014

Health System Implications of Direct-to-Consumer Personal Genome Testing

scientific article published on November 13, 2010

Incidental copy-number variants identified by routine genome testing in a clinical population

scientific article published on 09 August 2012

Creating a data resource: what will it take to build a medical information commons?

scientific article published on 22 September 2017