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List of works by Marta De Santis

EUROPLAN: a project to support the development of national plans on rare diseases in Europe

scientific article published in January 2013

Exploring the usability of EUCERD core indicators for rare diseases.

scientific article published on October 2015

Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe.

scientific article published on 2 April 2016

Social/economic costs and quality of life in patients with haemophilia in Europe.

scientific article

Sustainable public health systems for rare diseases

scientific article

The Italian National Centre for Rare Diseases: where research and public health translate into action

scientific article

The social burden and quality of life of patients with haemophilia in Italy

scientific article

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