List of works - Susan Kirk

"I'm not what I used to be": A qualitative study exploring how young people experience being diagnosed with a chronic illness

scientific article published on 27 January 2019

'Doing the "right" thing': how parents experience and manage decision-making for children's 'normalising' surgeries

scientific article published on 21 January 2012

A narrative review of fathers' involvement during labour and birth and their influence on decision making

scientific article published on 14 June 2015

A qualitative study of the pre-operative preparation of children, young people and their parents' for planned continence surgery: experiences and expectations.

scientific article published on 4 April 2012

An exploration of how young people and parents use online support in the context of living with cystic fibrosis ⬇️

scientific article published on 17 February 2015

An exploration of parents' and young people's perspectives of hospice support.

scientific article published on 28 March 2011

Caring for children with specialized health care needs in the community: the challenges for primary care

scientific article published on 01 September 1999

Comparison of the costs of care during acute illness by two community children's nursing teams.

scientific article

Connecting local support: A qualitative study exploring the role of voluntary organisations in long-term condition management.

scientific article published on 7 September 2014

Developing biographies: the experiences of children, young people and their parents of living with a long-term condition.

scientific article published in July 2013

Enhancing parents' confidence to care in acute childhood illness: triangulation of findings from a mixed methods study of Community Children's Nursing.

scientific article

Established users and the making of telecare work in long term condition management: Implications for health policy

article

Families' and healthcare professionals' perceptions of healthcare services for children and young people with medically unexplained symptoms: a narrative review of the literature.

scientific article

Hidden caring, hidden carers? Exploring the experience of carers for people with long-term conditions

scientific article published on 23 February 2015

Hospice support and the transition to adult services and adulthood for young people with life-limiting conditions and their families: a qualitative study.

scientific article

How children and young people construct and negotiate living with medical technology ⬇️

scientific article published on September 15, 2010

Integrating telecare for chronic disease management in the community: what needs to be done?

scientific article

Integration of devices into long-term condition management: a synthesis of qualitative studies.

scientific article published on June 2008

Liminality and transfer to adult services: a qualitative investigation involving young people with cystic fibrosis.

scientific article

Living with a powered wheelchair: exploring children's and young people's experiences.

scientific article published on 20 December 2013

Negotiating lay and professional roles in the care of children with complex health care needs.

scientific article published in June 2001

Paediatric multiple sclerosis: a qualitative study of families' diagnosis experiences.

scientific article published on 31 December 2014

Parent or nurse? The experience of being the parent of a technology-dependent child.

scientific article published in September 2005

Parents' Perspectives of Cleft Lip and/or Palate Services: A Qualitative Interview.

scientific article published on 31 August 2012

Parents' emotional and social experiences of caring for a child through cleft treatment

scientific article

Parents' experiences of caring for a child with a cleft lip and/or palate: a review of the literature

scientific article published on 30 May 2011

Participation in voluntary and community organisations in the United Kingdom and the influences on the self-management of long-term conditions

scientific article

Perceptions of effective self-care support for children and young people with long-term conditions

scientific article

Readmission in children's emergency care: an analysis of hospital episode statistics.

scientific article

Self-care support for children and adolescents with long-term conditions: the REfOCUS evidence synthesis

article by Penny Bee et al published 30 January 2018 in Health Services and Delivery Research

Social networks, social capital and chronic illness self-management: a realist review.

scientific article published on 04 October 2010

Social networks, the 'work' and work force of chronic illness self-management: a survey analysis of personal communities.

scientific article

Social networks, work and network-based resources for the management of long-term conditions: a framework and study protocol for developing self-care support

scientific article

Substituting community children's nursing services for inpatient care: a case study of costs and effects.

scientific article published on 28 June 2013

Supporting 'expert' parents--professional support and families caring for a child with complex health care needs in the community

scientific article published on 01 August 2002

Supporting children and young people to assume responsibility from their parents for the self-management of their long-term condition: An integrative review

scientific article published on 20 February 2019

Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions.

scientific article published on 4 July 2014

Teachers' perspectives of supporting pupils with long-term health conditions in mainstream schools: a narrative review of the literature.

scientific article published on 25 March 2014

The effectiveness of self-care support interventions for children and young people with long-term conditions: a systematic review

scientific article published on 08 June 2012

Transitions in the lives of young people with complex healthcare needs.

scientific article published in September 2008

What we know (and do not know) about raising children with complex continuing care needs

scientific article published on 01 March 2008

List of works by Susan Kirk

"I'm not what I used to be": A qualitative study exploring how young people experience being diagnosed with a chronic illness

'Doing the "right" thing': how parents experience and manage decision-making for children's 'normalising' surgeries

A narrative review of fathers' involvement during labour and birth and their influence on decision making

A qualitative study of the pre-operative preparation of children, young people and their parents' for planned continence surgery: experiences and expectations.

An exploration of how young people and parents use online support in the context of living with cystic fibrosis ⬇️

An exploration of parents' and young people's perspectives of hospice support.

Caring for children with specialized health care needs in the community: the challenges for primary care

Comparison of the costs of care during acute illness by two community children's nursing teams.

Connecting local support: A qualitative study exploring the role of voluntary organisations in long-term condition management.

Developing biographies: the experiences of children, young people and their parents of living with a long-term condition.

Enhancing parents' confidence to care in acute childhood illness: triangulation of findings from a mixed methods study of Community Children's Nursing.

Established users and the making of telecare work in long term condition management: Implications for health policy

Families' and healthcare professionals' perceptions of healthcare services for children and young people with medically unexplained symptoms: a narrative review of the literature.

Hidden caring, hidden carers? Exploring the experience of carers for people with long-term conditions

Hospice support and the transition to adult services and adulthood for young people with life-limiting conditions and their families: a qualitative study.

How children and young people construct and negotiate living with medical technology ⬇️

Integrating telecare for chronic disease management in the community: what needs to be done?

Integration of devices into long-term condition management: a synthesis of qualitative studies.

Liminality and transfer to adult services: a qualitative investigation involving young people with cystic fibrosis.

Living with a powered wheelchair: exploring children's and young people's experiences.

Negotiating lay and professional roles in the care of children with complex health care needs.

Paediatric multiple sclerosis: a qualitative study of families' diagnosis experiences.

Parent or nurse? The experience of being the parent of a technology-dependent child.

Parents' Perspectives of Cleft Lip and/or Palate Services: A Qualitative Interview.

Parents' emotional and social experiences of caring for a child through cleft treatment

Parents' experiences of caring for a child with a cleft lip and/or palate: a review of the literature

Participation in voluntary and community organisations in the United Kingdom and the influences on the self-management of long-term conditions

Perceptions of effective self-care support for children and young people with long-term conditions

Readmission in children's emergency care: an analysis of hospital episode statistics.

Self-care support for children and adolescents with long-term conditions: the REfOCUS evidence synthesis

Social networks, social capital and chronic illness self-management: a realist review.

Social networks, the 'work' and work force of chronic illness self-management: a survey analysis of personal communities.

Social networks, work and network-based resources for the management of long-term conditions: a framework and study protocol for developing self-care support

Substituting community children's nursing services for inpatient care: a case study of costs and effects.

Supporting 'expert' parents--professional support and families caring for a child with complex health care needs in the community

Supporting children and young people to assume responsibility from their parents for the self-management of their long-term condition: An integrative review

Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions.

Teachers' perspectives of supporting pupils with long-term health conditions in mainstream schools: a narrative review of the literature.

The effectiveness of self-care support interventions for children and young people with long-term conditions: a systematic review

Transitions in the lives of young people with complex healthcare needs.

What we know (and do not know) about raising children with complex continuing care needs