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List of works by Sara Chandros Hull

A Clinical Service to Support the Return of Secondary Genomic Findings in Human Research

scientific article

Access to health insurance: experiences and attitudes of those with genetic versus non-genetic medical conditions.

scientific article published in April 2007

Alaska Native genomic research: perspectives from Alaska Native leaders, federal staff, and biomedical researchers

scientific article published on 25 August 2020

Ambivalence toward undergoing invasive prenatal testing: an exploration of its origins

scientific article

Beyond Belmont: Ensuring Respect for AI/AN Communities Through Tribal IRBs, Laws, and Policies

journal article; published in The American Journal of Bioethics in 2017

Broad Consent for Research With Biological Samples: Workshop Conclusions

scientific article

Carrier screening panels for Ashkenazi Jews: is more better?

scientific article published in March 2005

Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field

scientific article published on 01 January 2019

Consent forms and the therapeutic misconception: the example of gene transfer research

article

Constructing identities: the implications of DTC ancestry testing for tribal communities

scientific article published on 21 January 2019

Developing cellular therapies for retinal degenerative diseases

scientific article

Direct-to-consumer sales of genetic services on the Internet

scientific article published on July 2003

Disclosure and management of research findings in stem cell research and banking: policy statement.

scientific article published in May 2012

Disclosure of Incidental Findings From Next-Generation Sequencing in Pediatric Genomic Research ⬇️

scientific article published on February 11, 2013

Disclosure, confidentiality, and families: Experiences and attitudes of those with genetic versus nongenetic medical conditions ⬇️

scientific article published on May 15, 2003

Genetic research involving human biological materials: a need to tailor current consent forms

scientific article published on 01 May 2004

Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants’ Relatives ⬇️

scientific article published on January 1, 2012

Genomics really gets personal: How exome and whole genome sequencing challenge the ethical framework of human genetics research ⬇️

scientific article published on October 28, 2011

Grappling with genomic incidental findings in the clinical realm

scientific article published on February 2014

Harms of Deception in FMR1 Premutation Genotype-Driven Recruitment

scientific article published in April 2017

Identifiability and privacy in pluripotent stem cell research

scientific article

Implementing the Single Institutional Review Board Model: Lessons from the Undiagnosed Diseases Network

scientific article

Institutional review board perspectives on obligations to disclose genetic incidental findings to research participants.

scientific article published on 19 November 2015

Limitations of direct-to-consumer advertising for clinical genetic testing

scientific article

Medical privacy and the disclosure of personal medical information: the beliefs and experiences of those with genetic and other clinical conditions.

scientific article

Noninvasive Prenatal Whole Genome Sequencing: Pregnant Women's Views and Preferences

scientific article published on 01 March 2019

Patient attitudes about the clinical use of placebo: qualitative perspectives from a telephone survey

scientific article published on 4 April 2016

Patients' attitudes about the use of placebo treatments: telephone survey

scientific article published on 02 July 2013

Patients' views on identifiability of samples and informed consent for genetic research

scientific article published on October 2008

Pediatric biobanks: approaching informed consent for continuing research after children grow up.

scientific article published on October 2009

Physicians' responses to resource constraints

scientific article published in March 2005

Prenatal whole genome sequencing: just because we can, should we?

scientific article

Recontacting participants for expanded uses of existing samples and data: a case study.

scientific article

Recruitment approaches for family studies: attitudes of index patients and their relatives.

scientific article published on July 2004

Response to Open Peer Commentaries on “Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants’ Relatives” ⬇️

scientific article published on January 1, 2012

Scrutinizing the Right Not to Know

scientific article published in January 2015

Single IRBs Are Responsible to Ensure Consent Language Effectively Conveys the Local Context

scientific article published on 01 April 2019

Specimen Collection for Induced Pluripotent Stem Cell Research: Harmonizing the Approach to Informed Consent ⬇️

scientific article published on May 8, 2012

Surrogate receptivity to participation in critical illness genetic research: aligning research oversight and stakeholder concerns

scientific article

The "right not to know" in the genomic era: time to break from tradition?

scientific article

The DISCUSS Project: Revised Points to Consider for the Derivation of Induced Pluripotent Stem Cell Lines From Previously Collected Research Specimens

scientific article

The DISCUSS Project: induced pluripotent stem cell lines from previously collected research biospecimens and informed consent: points to consider

scientific article

The Ethics of Repurposing Previously Collected Research Biospecimens in an Infectious Disease Pandemic

scientific article published on 23 February 2021

The Meaning of Informed Consent: Genome Editing Clinical Trials for Sickle Cell Disease

scientific article published on 12 October 2020

The ethics of early evidence--preparing for a possible breakthrough in Alzheimer's disease

scientific article

The invisible hand in clinical research: the study coordinator's critical role in human subjects protection

scientific article published on January 2002

The limits of disclosure: what research subjects want to know about investigator financial interests

scientific article published in January 2006

The unintended implications of blurring the line between research and clinical care in a genomic age.

scientific article

The use of medical records in research: what do patients want?

scientific article published on January 2003

Towards a more representative morphology: clinical and ethical considerations for including diverse populations in diagnostic genetic atlases

scientific article

Views of American OB/GYNs on the ethics of prenatal whole-genome sequencing

scientific article

What does it mean to be identifiable?

scientific article

What does the duty to warn require?

scientific article published on January 2013

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