List of works - Irene Tuffrey-Wijne

A new model for breaking bad news to people with intellectual disabilities

article

Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis

scientific article published on 8 September 2009

Communicating about death and dying with adults with intellectual disabilities who are terminally ill or bereaved: A UK-wide survey of intellectual disability support staff

scientific article published on 18 February 2020

Communicating about death and dying: Developing training for staff working in services for people with intellectual disabilities

scientific article

Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care

scientific article published on 7 September 2015

Developing guidelines for disclosure or non-disclosure of bad news around life-limiting illness and death to people with intellectual disabilities.

scientific article

Disclosure and understanding of cancer diagnosis and prognosis for people with intellectual disabilities: findings from an ethnographic study.

scientific article

Do you provide equal healthcare to people with learning disabilities?

scientific article published in August 2010

End-of-life decisions for people with intellectual disabilities, an interview study with patient representatives.

scientific article published on 7 January 2013

End-of-life decisions: an important theme in the care for people with intellectual disabilities.

scientific article published on 26 March 2010

Equal access to hospital care for children with learning disabilities and their families: a mixed-methods study

scientific article published in 2022

Euthanasia and assisted suicide for people with an intellectual disability and/or autism spectrum disorder: an examination of nine relevant euthanasia cases in the Netherlands (2012-2016).

scientific article published on 5 March 2018

Identifying the factors affecting the implementation of strategies to promote a safer environment for patients with learning disabilities in NHS hospitals: a mixed-methods study

scientific article

Improving hospital care for patients with intellectual disabilities

scientific article published in June 2014

Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey

scientific article published on 12 May 2020

Palliative care and learning disabilities

scientific article published on August 30, 1997

Palliative care for people with intellectual disabilities.

scientific article

Palliative care provision for people with intellectual disabilities: interviews with specialist palliative care professionals in London.

scientific article published in September 2007

Pay More Attention: a national mixed methods study to identify the barriers and facilitators to ensuring equal access to high-quality hospital care and services for children and young people with and without learning disabilities and their families.

scientific article published on 09 December 2016

People with intellectual disabilities and their need for cancer information.

scientific article published on 6 October 2005

People with intellectual disabilities who are affected by a relative or friend with cancer: A qualitative study exploring experiences and support needs

scientific article published on 25 February 2012

People with learning disabilities who have cancer: an ethnographic study.

scientific article published on July 2009

Practical approaches toward improving end-of-life care for people with intellectual disabilities: effectiveness and sustainability.

scientific article published on 21 February 2012

Preventing 'deaths by indifference': identification of reasonable adjustments is key.

scientific article published in August 2014

Supporting patients who have intellectual disabilities: a survey investigating staff training needs.

scientific article published in April 2005

The barriers to and enablers of providing reasonably adjusted health services to people with intellectual disabilities in acute hospitals: evidence from a mixed-methods study

scientific article published on 16 April 2014

The challenges in monitoring and preventing patient safety incidents for people with intellectual disabilities in NHS acute hospitals: evidence from a mixed-methods study

scientific article

The factors affecting end‐of‐life decision‐making by physicians of patients with intellectual disabilities in the Netherlands: a qualitative study ⬇️

scientific article published on March 28, 2012

The palliative care needs of people with intellectual disabilities: a case study.

scientific article published on May 2002

To flag or not to flag: Identification of children and young people with learning disabilities in English hospitals

scientific article published on 16 May 2019

Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provision

scientific article published on 01 April 2007

List of works by Irene Tuffrey-Wijne

A new model for breaking bad news to people with intellectual disabilities

Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis

Communicating about death and dying with adults with intellectual disabilities who are terminally ill or bereaved: A UK-wide survey of intellectual disability support staff

Communicating about death and dying: Developing training for staff working in services for people with intellectual disabilities

Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care

Developing guidelines for disclosure or non-disclosure of bad news around life-limiting illness and death to people with intellectual disabilities.

Disclosure and understanding of cancer diagnosis and prognosis for people with intellectual disabilities: findings from an ethnographic study.

Do you provide equal healthcare to people with learning disabilities?

End-of-life decisions for people with intellectual disabilities, an interview study with patient representatives.

End-of-life decisions: an important theme in the care for people with intellectual disabilities.

Equal access to hospital care for children with learning disabilities and their families: a mixed-methods study

Euthanasia and assisted suicide for people with an intellectual disability and/or autism spectrum disorder: an examination of nine relevant euthanasia cases in the Netherlands (2012-2016).

Identifying the factors affecting the implementation of strategies to promote a safer environment for patients with learning disabilities in NHS hospitals: a mixed-methods study

Improving hospital care for patients with intellectual disabilities

Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey

Palliative care and learning disabilities

Palliative care for people with intellectual disabilities.

Palliative care provision for people with intellectual disabilities: interviews with specialist palliative care professionals in London.

Pay More Attention: a national mixed methods study to identify the barriers and facilitators to ensuring equal access to high-quality hospital care and services for children and young people with and without learning disabilities and their families.

People with intellectual disabilities and their need for cancer information.

People with intellectual disabilities who are affected by a relative or friend with cancer: A qualitative study exploring experiences and support needs

People with learning disabilities who have cancer: an ethnographic study.

Practical approaches toward improving end-of-life care for people with intellectual disabilities: effectiveness and sustainability.

Preventing 'deaths by indifference': identification of reasonable adjustments is key.

Supporting patients who have intellectual disabilities: a survey investigating staff training needs.

The barriers to and enablers of providing reasonably adjusted health services to people with intellectual disabilities in acute hospitals: evidence from a mixed-methods study

The challenges in monitoring and preventing patient safety incidents for people with intellectual disabilities in NHS acute hospitals: evidence from a mixed-methods study

The factors affecting end‐of‐life decision‐making by physicians of patients with intellectual disabilities in the Netherlands: a qualitative study ⬇️

The palliative care needs of people with intellectual disabilities: a case study.

To flag or not to flag: Identification of children and young people with learning disabilities in English hospitals

Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provision