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List of works by Justin N Baker

"Being a good patient" during times of illness as defined by adolescent patients with cancer.

scientific article published on 03 May 2016

"Occult" post-contrast signal enhancement in pediatric diffuse intrinsic pontine glioma is the MRI marker of angiogenesis?

scientific article

"Please, I want to go home": ethical issues raised when considering choice of place of care in palliative care

scientific article published on October 2007

"Trying to be a good parent" as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children

scientific article published on 05 October 2009

A pediatric brain tumor consortium phase II trial of capecitabine rapidly disintegrating tablets with concomitant radiation therapy in children with newly diagnosed diffuse intrinsic pontine gliomas

scientific article published in November 2017

A process to facilitate decision making in pediatric stem cell transplantation: the individualized care planning and coordination model

scientific article published on 01 March 2007

Adolescent perspectives on phase I cancer research

scientific article

An unusual case of Ogilvie syndrome in a pediatric oncology patient receiving palliative care after failed treatment with neostigmine

scientific article published on 01 September 2012

Availability of palliative care services for children with cancer in economically diverse regions of the world.

scientific article

Changes in medical care at a pediatric oncology referral center after placement of a do-not-resuscitate order.

scientific article

Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review.

scientific article published on 6 September 2017

Children with minimal chance for cure: parent proxy of the child's health-related quality of life and the effect on parental physical and mental health during treatment

scientific article published on 25 June 2016

Clinically Significant? Depends on Whom You Ask

journal article; published in The American Journal of Bioethics in 2012

Cognitive Interview-Based Validation of the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events in Adolescents with Cancer

scientific article

Creating a palliative and end-of-life program in a cure-oriented pediatric setting: the zig-zag method.

scientific article published on September 2007

Decision making by parents of children with incurable cancer who opt for enrollment on a phase I trial compared with choosing a do not resuscitate/terminal care option

scientific article

Decision-making by adolescents and parents of children with cancer regarding health research participation.

scientific article published on 10 August 2009

Development of depression in survivors of childhood and adolescent cancer: a multi-level life course conceptual framework.

scientific article

Does phase 1 trial enrollment preclude quality end-of-life care? Phase 1 trial enrollment and end-of-life care characteristics in children with cancer

scientific article

Early Integration of Palliative Care for Children with High-Risk Cancer and Their Families

scientific article

Eliciting the child's voice in adverse event reporting in oncology trials: Cognitive interview findings from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events initiative

scientific article published on 21 September 2016

Empowering Bereaved Parents Through the Development of a Comprehensive Bereavement Program

scientific article published on 29 December 2016

End-of-life care for hospitalized children.

scientific article published on August 2014

Ethical considerations surrounding germline next-generation sequencing of children with cancer

scientific article published on 12 April 2017

Ethical decision making about end-of-life care issues by pediatric oncologists in economically diverse settings

scientific article published in May 2015

Ethics consultation in pediatrics: long-term experience from a pediatric oncology center

scientific article

Evaluation of Physician and Nurse Dyad Training Procedures to Deliver a Palliative and End-of-Life Communication Intervention to Parents of Children with a Brain Tumor

scientific article published on 26 January 2015

Going straight to the source: A pilot study of bereaved parent-facilitated communication training for pediatric subspecialty fellows.

scientific article

Helping parents live with the hole in their heart: The role of health care providers and institutions in the bereaved parents' grief journeys.

scientific article published on 31 May 2016

Illness and end-of-life experiences of children with cancer who receive palliative care

scientific article published on 8 December 2017

Implementation and evaluation of an automated patient death notification policy at a tertiary pediatric oncology referral center

scientific article

Importance ratings on patient-reported outcome items for survivorship care: comparison between pediatric cancer survivors, parents, and clinicians

scientific article published on 18 April 2018

Integrating Palliative Care in Pediatric Oncology: Evidence for an Evolving Paradigm for Comprehensive Cancer Care

scientific article published on June 2016

Integrating next-generation sequencing into pediatric oncology practice: An assessment of physician confidence and understanding of clinical genomics.

scientific article

Integration of palliative care practices into the ongoing care of children with cancer: individualized care planning and coordination

scientific article (publication date: February 2008)

Methylnaltrexone for Opioid-Induced Constipation in Children and Adolescents and Young Adults with Progressive Incurable Cancer at the End of Life

scientific article published on 30 April 2015

NCCN Guidelines Insights: Palliative Care, Version 2.2017.

scientific article

National survey of pediatric residency program directors and residents regarding education in palliative medicine and end-of-life care.

scientific article published in April 2007

Navigating Nondisclosure Requests in Pediatrics: Honesty and Sensitivity Are Transcultural Practices

scientific article published on 5 September 2017

Outcome Measurement for Children and Young People

scientific article published on 10 January 2017

Pain still lords over children.

scientific article published in January 2008

Palliative Care Involvement Is Associated with Less Intensive End-of-Life Care in Adolescent and Young Adult Oncology Patients.

scientific article published on 18 January 2017

Palliative Care Version 1.2016

scientific article published on 01 January 2016

Palliative Sedation With Propofol for an Adolescent With a DNR Order

scientific article published on 5 July 2017

Parent-clinician communication intervention during end-of-life decision making for children with incurable cancer.

scientific article

Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey.

scientific article published on 17 May 2016

Parental Perspectives of Communication at the End of Life at a Pediatric Oncology Institution.

scientific article published on 10 February 2016

Patient involvement in informed consent for pediatric phase I cancer research.

scientific article

Patient-controlled analgesia at the end of life at a pediatric oncology institution

scientific article published on 27 March 2015

Patient-reported outcomes in paediatric cancer survivorship: a qualitative study to elicit the content from cancer survivors and caregivers

scientific article published on 17 May 2020

Patients' and Parents' Needs, Attitudes, and Perceptions About Early Palliative Care Integration in Pediatric Oncology

scientific article published on 9 March 2017

Patterns of End-of-Life Care in Children With Advanced Solid Tumor Malignancies Enrolled on a Palliative Care Service

scientific article

Pediatric Oncology: Managing Pain at the End of Life.

scientific article published on 7 March 2016

Pediatric Palliative Oncology: A New Training Model for an Emerging Field

scientific article published on 23 November 2015

Pediatric Palliative Oncology: Bridging Silos of Care Through an Embedded Model

scientific article published on 12 July 2017

Pediatric Palliative Sedation Therapy with Propofol: Recommendations Based on Experience in Children with Terminal Cancer ⬇️

scientific article published on June 25, 2012

Pediatric palliative care in the community

scientific article published on 07 May 2015

Pediatric palliative oncology: the state of the science and art of caring for children with cancer.

scientific article

Phase I study of vandetanib during and after radiotherapy in children with diffuse intrinsic pontine glioma

scientific article

Practical communication guidance to improve phase 1 informed consent conversations and decision-making in pediatric oncology

scientific article published on 14 April 2015

Predictors of Late Palliative Care Referral in Children with Cancer.

scientific article published on 7 February 2018

Productivity in Pediatric Palliative Care: Measuring and Monitoring an Elusive Metric

scientific article published on 3 January 2017

Prospective collection of tissue samples at autopsy in children with diffuse intrinsic pontine glioma

scientific article

Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer

scientific article published on 21 January 2009

Provision of Palliative and Hospice Care to Children in the Community: A Population Study of Hospice Nurses

scientific article published on 01 November 2018

Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center.

scientific article

Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology Group

scientific article (publication date: 20 December 2012)

Reported availability and gaps of pediatric palliative care in low- and middle-income countries: a systematic review of published data

scientific article

Research Priorities in Pediatric Palliative Care.

scientific article published on 28 May 2015

Strange Bedfellows No More: How Integrated Stem-Cell Transplantation and Palliative Care Programs Can Together Improve End-of-Life Care.

scientific article published in September 2017

Suggestions from adolescents, young adults, and parents for improving informed consent in phase 1 pediatric oncology trials.

scientific article published on 4 September 2013

The bereavement experience of adolescents and early young adults with cancer: Peer and parental loss due to death is associated with increased risk of adverse psychological outcomes.

scientific article published on 23 August 2017

The first step to integrating the child's voice in adverse event reporting in oncology trials: a content validation study among pediatric oncology clinicians

scientific article published on 17 January 2013

The role of the pediatric anesthesiologist in relieving suffering at the end of life: when is palliative sedation appropriate in pediatrics?

scientific article published on 01 April 2017

Treatment intensity and symptom burden in hospitalized adolescent and young adult hematopoietic cell transplant recipients at the end of life.

scientific article published on 13 November 2017

Use of epidural and peripheral nerve blocks at the end of life in children and young adults with cancer: the collaboration between a pain service and a palliative care service

scientific article

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