List of works - Lori Wiener

A Phase II Trial of Vandetanib in Children and Adults with Succinate Dehydrogenase-Deficient Gastrointestinal Stromal Tumor

scientific article published on 22 August 2019

A Summary of Pediatric Palliative Care Team Structure and Services as Reported by Centers Caring for Children with Cancer.

scientific article published on 27 November 2017

A worldview of the professional experiences and training needs of pediatric psycho-oncologists.

scientific article

Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps

scientific article

Allowing adolescents and young adults to plan their end-of-life care

scientific article

An exploration of the prevalence and predictors of work-related well-being among psychosocial oncology professionals: An application of the job demands-resources model

scientific article published on 14 December 2015

Andrea Farkas Patenaude, PhD: 1946-2018

article

Assent in research: the voices of adolescents

scientific article

Assessing the Feasibility of an Electronic Patient-Reported Outcome (ePRO) Collection System in Caregivers of Cancer Patients.

scientific article

Benefit finding in fathers of childhood cancer survivors: a retrospective pilot study

scientific article published on May 2013

Bereavement Follow-Up After the Death of a Child as a Standard of Care in Pediatric Oncology

scientific article

Bereavement Risk Screening: A Pathway to Psychosocial Oncology Care

scientific article published on 25 August 2020

Brief report: fathering a child living with HIV/AIDS: psychosocial adjustment and parenting stress.

scientific article published on September 2001

Burnout among psychosocial oncologists: an application and extension of the effort-reward imbalance model

scientific article published on 04 August 2015

Can mindfulness‐based interventions help adolescents with cancer? ⬇️

scientific article published on February 18, 2013

Caring for a child with cancer: The experience of the "lone" parent, and why it matters

Child and parent perspectives of the chronic graft-versus-host disease (cGVHD) symptom experience: a concept elicitation study.

scientific article published on February 2014

Commentary: Treating the Pediatric Cancer Patient: Insights That Have Stood the Test of Time

scientific article published on 01 August 2019

Communication About Dying, Death, and Bereavement: A Systematic Review of Children's Literature.

scientific article published on 27 March 2017

Comparing Parent and Child Self-report Measures of the State-Trait Anxiety Inventory in Children and Adolescents with a Chronic Health Condition

scientific article published on 01 March 2020

Cultural and religious considerations in pediatric palliative care

scientific article

Delivery of care consistent with the psychosocial standards in pediatric cancer: Current practices in the United States.

scientific article published on 28 October 2017

Disclosure of an HIV diagnosis to children: history, current research, and future directions

scientific article published on April 2007

Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review

scientific article

Ethics, Emotions, and the Skills of Talking About Progressing Disease With Terminally Ill Adolescents: A Review.

scientific article

Factors influencing loneliness in cancer caregivers: A longitudinal study

scientific article published on 16 July 2020

Family-centred advanced care planning with adolescents living with HIV is perceived as important, helpful and meaningful.

scientific article published on 13 June 2017

Framework for Planning the Delivery of Psychosocial Oncology Services: An American Psychosocial Oncology Society Task Force Report

scientific article published on 10 May 2020

Gastrointestinal stromal tumor: psychosocial characteristics and considerations.

scientific article published on 17 March 2012

Grandparents of children with cancer: a controlled comparison of perceived family functioning

scientific article published on 18 September 2018

Health-Related Quality of Life among Pediatric Hematopoietic Stem Cell Donors

scientific article published on 10 August 2016

Healthcare Professionals' Preferences and Perceived Barriers for Routine Assessment of Patient-Reported Outcomes in Pediatric Oncology Practice: Moving Toward International Processes of Change.

scientific article

Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents

scientific article published on 08 October 2019

Hematopoietic stem cell donation in children: a review of the sibling donor experience.

scientific article published on January 2007

How I wish to be remembered: the use of an advance care planning document in adolescent and young adult populations

scientific article published on December 2008

Human immunodeficiency virus infection in children

scientific article published on 01 January 1989

Identifying Symptoms of Distress in Youth Living with Neurofibromatosis Type 1 (NF1).

scientific article

Impact of Caregiving for a Child With Cancer on Parental Health Behaviors, Relationship Quality, and Spiritual Faith: Do Lone Parents Fare Worse?

scientific article published on 14 December 2015

Implementing the psychosocial standards in pediatric cancer: Current staffing and services available.

scientific article published on 19 May 2017

Interdisciplinary Collaboration in Standards of Psychosocial Care.

scientific article published on December 2015

International adaptation: psychosocial and parenting experiences of caregivers who travel to the United States to obtain acute medical care for their seriously ill child

scientific article published on January 2013

Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?

scientific article published on June 2015

National Institutes of Health Hematopoietic Cell Transplantation Late Effects Initiative: The Patient-Centered Outcomes Working Group Report.

scientific article published on 19 September 2016

Opening end-of-life discussions: how to introduce Voicing My CHOiCES™, an advance care planning guide for adolescents and young adults

scientific article published on 13 March 2014

Palliative Care as a Standard of Care in Pediatric Oncology

scientific article published on December 2015

Parent versus child donor perceptions of the bone marrow donation experience.

scientific article

Participation in Online Research Examining End-of-Life Experiences: Is It Beneficial, Burdensome, or Both for Parents Bereaved by Childhood Cancer?

scientific article published on 01 May 2019

Pediatric Psychosocial Standards of Care in Action: Research that Bridges the Gap from Need to Implementation

scientific article published on 03 August 2020

Pediatric oncologists' practices of prescribing selective serotonin reuptake inhibitors (SSRIs) for children and adolescents with cancer: a multi-site study.

scientific article published on 31 January 2011

Pediatric psycho-oncology care: standards, guidelines, and consensus reports

scientific article

Preparing youth with cancer for amputation: A systematic review.

scientific article published on 20 March 2017

Prognostic Disclosures to Children: A Historical Perspective

scientific article published on 25 August 2016

Psychosocial care for children receiving chimeric antigen receptor (CAR) T-cell therapy

scientific article published on 11 March 2020

Psychosocial standards of care for children with cancer and their families: A national survey of pediatric oncology social workers

scientific article published on 01 April 2018

Psychotropic medication use in pediatric patients with cancer.

scientific article published on August 2006

Regret and unfinished business in parents bereaved by cancer: A mixed methods study

scientific article published on 05 February 2020

Reproductive health decision-making in perinatally HIV-infected adolescents and young adults

scientific article published on July 2013

ShopTalk: a pilot study of the feasibility and utility of a therapeutic board game for youth living with cancer.

scientific article published on 31 March 2011

Sibling stem cell donor experiences at a single institution.

scientific article published on March 2008

Single parents of children with chronic illness: an understudied phenomenon.

scientific article published on 29 September 2007

Socio-Environmental Factors Associated With Lone Parenting Chronically Ill Children

Standards for the Psychosocial Care of Children With Cancer and Their Families: An Introduction to the Special Issue

scientific article published on 23 September 2015

Taking burnout off the backburner

scientific article published on 30 May 2020

Taking care of care providers: a wellness program for pediatric nurses.

scientific article published on September 2012

Telephone support groups for HIV-positive mothers whose children have died of AIDS.

scientific article published in May 1998

The HIV experience: youth identified barriers for transitioning from pediatric to adult care.

scientific article

The feasibility and value of parent input when evaluating the mental health of young adults with and without cancer

scientific article published on 05 February 2020

The multidisciplinary pediatric psycho-oncology workforce: A national report on supervision for staff and training opportunities

The perceived influence of childhood cancer on the parents' relationship.

scientific article published on 15 November 2016

The relationship between single-parent status and parenting capacities in mothers of youth with chronic health conditions: the mediating role of income.

scientific article published on 3 September 2010

To Friend or Not to Friend: The Use of Social Media in Clinical Oncology ⬇️

scientific article published on December 27, 2011

Tools to guide the identification and implementation of care consistent with the psychosocial Standards of care

scientific article published on 18 July 2020

Transition From Pediatric to Adult Care by Young Adults With Chronic Granulomatous Disease: The Patient's Viewpoint.

scientific article published on 22 September 2017

Treatment late effects in long-term survivors of pediatric sarcoma.

scientific article

Validity, specificity, feasibility and acceptability of a brief pediatric distress thermometer in outpatient clinics

scientific article published on 30 November 2015

Views of Adolescents and Parents on Pediatric Research Without the Potential for Clinical Benefit ⬇️

scientific article published on September 10, 2012

What do parents want to know when considering autopsy for their child with cancer?

scientific article

When Children Tell Their Friends They Have AIDS: Possible Consequences for Psychological Well-Being and Disease Progression

article

When silence is not golden: Engaging adolescents and young adults in discussions around end‐of‐life care choices ⬇️

scientific article published on March 11, 2013

Who is responsible for delivering palliative care to children with cancer?

scientific article

List of works by Lori Wiener

A Phase II Trial of Vandetanib in Children and Adults with Succinate Dehydrogenase-Deficient Gastrointestinal Stromal Tumor

A Summary of Pediatric Palliative Care Team Structure and Services as Reported by Centers Caring for Children with Cancer.

A worldview of the professional experiences and training needs of pediatric psycho-oncologists.

Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps

Allowing adolescents and young adults to plan their end-of-life care

An exploration of the prevalence and predictors of work-related well-being among psychosocial oncology professionals: An application of the job demands-resources model

Andrea Farkas Patenaude, PhD: 1946-2018

Assent in research: the voices of adolescents

Assessing the Feasibility of an Electronic Patient-Reported Outcome (ePRO) Collection System in Caregivers of Cancer Patients.

Benefit finding in fathers of childhood cancer survivors: a retrospective pilot study

Bereavement Follow-Up After the Death of a Child as a Standard of Care in Pediatric Oncology

Bereavement Risk Screening: A Pathway to Psychosocial Oncology Care

Brief report: fathering a child living with HIV/AIDS: psychosocial adjustment and parenting stress.

Burnout among psychosocial oncologists: an application and extension of the effort-reward imbalance model

Can mindfulness‐based interventions help adolescents with cancer? ⬇️

Caring for a child with cancer: The experience of the "lone" parent, and why it matters

Child and parent perspectives of the chronic graft-versus-host disease (cGVHD) symptom experience: a concept elicitation study.

Commentary: Treating the Pediatric Cancer Patient: Insights That Have Stood the Test of Time

Communication About Dying, Death, and Bereavement: A Systematic Review of Children's Literature.

Comparing Parent and Child Self-report Measures of the State-Trait Anxiety Inventory in Children and Adolescents with a Chronic Health Condition

Cultural and religious considerations in pediatric palliative care

Delivery of care consistent with the psychosocial standards in pediatric cancer: Current practices in the United States.

Disclosure of an HIV diagnosis to children: history, current research, and future directions

Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review

Ethics, Emotions, and the Skills of Talking About Progressing Disease With Terminally Ill Adolescents: A Review.

Factors influencing loneliness in cancer caregivers: A longitudinal study

Family-centred advanced care planning with adolescents living with HIV is perceived as important, helpful and meaningful.

Framework for Planning the Delivery of Psychosocial Oncology Services: An American Psychosocial Oncology Society Task Force Report

Gastrointestinal stromal tumor: psychosocial characteristics and considerations.

Grandparents of children with cancer: a controlled comparison of perceived family functioning

Health-Related Quality of Life among Pediatric Hematopoietic Stem Cell Donors

Healthcare Professionals' Preferences and Perceived Barriers for Routine Assessment of Patient-Reported Outcomes in Pediatric Oncology Practice: Moving Toward International Processes of Change.

Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents

Hematopoietic stem cell donation in children: a review of the sibling donor experience.

How I wish to be remembered: the use of an advance care planning document in adolescent and young adult populations

Human immunodeficiency virus infection in children

Identifying Symptoms of Distress in Youth Living with Neurofibromatosis Type 1 (NF1).

Impact of Caregiving for a Child With Cancer on Parental Health Behaviors, Relationship Quality, and Spiritual Faith: Do Lone Parents Fare Worse?

Implementing the psychosocial standards in pediatric cancer: Current staffing and services available.

Interdisciplinary Collaboration in Standards of Psychosocial Care.

International adaptation: psychosocial and parenting experiences of caregivers who travel to the United States to obtain acute medical care for their seriously ill child

Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?

National Institutes of Health Hematopoietic Cell Transplantation Late Effects Initiative: The Patient-Centered Outcomes Working Group Report.

Opening end-of-life discussions: how to introduce Voicing My CHOiCES™, an advance care planning guide for adolescents and young adults

Palliative Care as a Standard of Care in Pediatric Oncology

Parent versus child donor perceptions of the bone marrow donation experience.

Participation in Online Research Examining End-of-Life Experiences: Is It Beneficial, Burdensome, or Both for Parents Bereaved by Childhood Cancer?

Pediatric Psychosocial Standards of Care in Action: Research that Bridges the Gap from Need to Implementation

Pediatric oncologists' practices of prescribing selective serotonin reuptake inhibitors (SSRIs) for children and adolescents with cancer: a multi-site study.

Pediatric psycho-oncology care: standards, guidelines, and consensus reports

Preparing youth with cancer for amputation: A systematic review.

Prognostic Disclosures to Children: A Historical Perspective

Psychosocial care for children receiving chimeric antigen receptor (CAR) T-cell therapy

Psychosocial standards of care for children with cancer and their families: A national survey of pediatric oncology social workers

Psychotropic medication use in pediatric patients with cancer.

Regret and unfinished business in parents bereaved by cancer: A mixed methods study

Reproductive health decision-making in perinatally HIV-infected adolescents and young adults

ShopTalk: a pilot study of the feasibility and utility of a therapeutic board game for youth living with cancer.

Sibling stem cell donor experiences at a single institution.

Single parents of children with chronic illness: an understudied phenomenon.

Socio-Environmental Factors Associated With Lone Parenting Chronically Ill Children

Standards for the Psychosocial Care of Children With Cancer and Their Families: An Introduction to the Special Issue

Taking burnout off the backburner

Taking care of care providers: a wellness program for pediatric nurses.

Telephone support groups for HIV-positive mothers whose children have died of AIDS.

The HIV experience: youth identified barriers for transitioning from pediatric to adult care.

The feasibility and value of parent input when evaluating the mental health of young adults with and without cancer

The multidisciplinary pediatric psycho-oncology workforce: A national report on supervision for staff and training opportunities

The perceived influence of childhood cancer on the parents' relationship.

The relationship between single-parent status and parenting capacities in mothers of youth with chronic health conditions: the mediating role of income.

To Friend or Not to Friend: The Use of Social Media in Clinical Oncology ⬇️

Tools to guide the identification and implementation of care consistent with the psychosocial Standards of care

Transition From Pediatric to Adult Care by Young Adults With Chronic Granulomatous Disease: The Patient's Viewpoint.

Treatment late effects in long-term survivors of pediatric sarcoma.

Validity, specificity, feasibility and acceptability of a brief pediatric distress thermometer in outpatient clinics

Views of Adolescents and Parents on Pediatric Research Without the Potential for Clinical Benefit ⬇️

What do parents want to know when considering autopsy for their child with cancer?

When Children Tell Their Friends They Have AIDS: Possible Consequences for Psychological Well-Being and Disease Progression

When silence is not golden: Engaging adolescents and young adults in discussions around end‐of‐life care choices ⬇️