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List of works by Debra Mathews

A comparative analysis of the governance and use of residual dried blood spots from state newborn screening programs and neonatal biobanks.

scientific article

Access to stem cells and data: persons, property rights, and scientific progress.

scientific article

Artificial Intelligence in Service of Human Needs: Pragmatic First Steps Toward an Ethics for Semi-Autonomous Agents

scientific article published on 01 April 2020

Beyond consent in research. Revisiting vulnerability in deep brain stimulation for psychiatric disorders

scientific article

CRISPR: A path through the thicket.

scientific article

Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease.

scientific article

Deep brain stimulation, personal identity and policy.

scientific article published on October 2011

Enhancing Autonomy in Biobank Decisions: Too Much of a Good Thing?

scientific article published in January 2018

Ethical Framework for Including Research Biopsies in Oncology Clinical Trials: American Society of Clinical Oncology Research Statement

scientific article published on 25 July 2019

Ethical, legal, and social issues in the Earth BioGenome Project

scientific article published on 18 January 2022

Ethics and Collateral Findings in Pragmatic Clinical Trials

scientific article published on 01 January 2020

Geneticists' views on science policy formation and public outreach.

scientific article published in August 2005

Genome Editing Technologies and Human Germline Genetic Modification: The Hinxton Group Consensus Statement.

scientific article published in December 2015

Language matters

scientific article published on 17 September 2013

Of mice and men: skin cells, stem cells and ethical uncertainties

scientific article published on 01 November 2009

Patents and misplaced angst: lessons for translational stem cell research from genomics

scientific article (publication date: 2 May 2013)

Patient Preferences for Use of Archived Biospecimens from Oncology Trials When Adequacy of Informed Consent Is Unclear

scientific article published on 06 September 2019

Patients' attitudes toward the donation of biological materials for the derivation of induced pluripotent stem cells

scientific article published on January 2014

Perspectives on Genetic Testing and Return of Results from the First Cohort of Presymptomatically Tested Individuals At Risk of Huntington Disease

scientific article published on 02 July 2018

Physicians' perspectives regarding pragmatic clinical trials

scientific article published on 15 July 2016

Promoting justice in stem cell intellectual property.

scientific article

Resisting the Tide of Professionalization: Valuing Diversity in Bioethics

journal article; published in The American Journal of Bioethics in 2005

Response to Open Peer Commentaries on "Ethics and Collateral Findings in Pragmatic Clinical Trials"

scientific article published on 01 January 2020

Revisiting respect for persons in genomic research

scientific article (publication date: 22 January 2014)

Secondary Use of Patient Tissue in Cancer Biobanks

scientific article published on 10 June 2019

Solidarity in the Age of CRISPR

scientific article published on 01 August 2018

Stem cell research ethics: consensus statement on emerging issues

scientific article published on October 2007

The Genetic Basis of Mendelian Phenotypes: Discoveries, Challenges, and Opportunities

scientific article

The Therapeutic "Mis"conception: An Examination of its Normative Assumptions and a Call for its Revision.

scientific article published in January 2018

The role of animal models in evaluating reasonable safety and efficacy for human trials of cell-based interventions for neurologic conditions

scientific article published on 27 August 2008

Unintended changes in cognition, mood, and behavior arising from cell-based interventions for neurological conditions: ethical challenges.

scientific article

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