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List of works by Miriam J Johnson

'Hospice inpatient deep vein thrombosis detection (HIDDen) in advanced non-malignant diseases': a longitudinal pilot study

scientific article published on 11 February 2020

A Mixed-Methods, Randomized, Controlled Feasibility Trial to Inform the Design of a Phase III Trial to Test the Effect of the Handheld Fan on Physical Activity and Carer Anxiety in Patients With Refractory Breathlessness.

scientific article

A catalyst for research in supportive and palliative care for patients with advanced heart failure. A meeting convened by the Science Committee of the APM and Hull-York Medical School

scientific article published on 01 April 2008

A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALIC

scientific article

A feasibility study to inform the design of a randomized controlled trial to identify the most clinically and cost effective anticoagulation length with low molecular weight heparin in the treatment of cancer associated thrombosis (ALICAT): study pr

scientific article published on 12 April 2014

A pragmatic, phase III, multisite, double-blind, placebo-controlled, parallel-arm, dose increment randomised trial of regular, low-dose extended-release morphine for chronic breathlessness: Breathlessness, Exertion And Morphine Sulfate (BEAMS) study

scientific article published on 17 July 2017

A randomised controlled trial of three or one breathing technique training sessions for breathlessness in people with malignant lung disease

scientific article

A systematic review and meta-analysis of studies comparing burden from lung cancer and chronic obstructive pulmonary disease

scientific article published on 28 July 2020

A systematic review of strategies used to increase recruitment of people with cancer or organ failure into clinical trials: implications for palliative care research

scientific article published on 27 December 2014

Abnormal coagulation and deep venous thrombosis in patients with advanced cancer

scientific article published on 01 February 1999

Activity as a Measure of Symptom Control ⬇️

scientific article published on September 24, 2012

Advance care planning: a 'hard' skill for cardiology clinicians?

scientific article published on 31 May 2019

Adverse respiratory effects of opioids for chronic breathlessness: to what extent can we learn lessons from chronic pain?

scientific article published on 19 July 2018

Agreement Between Breathlessness Severity and Unpleasantness in People With Chronic Breathlessness: A Longitudinal Clinical Study

scientific article published on 10 January 2019

Airflow relieves chronic breathlessness in people with advanced disease: An exploratory systematic review and meta-analyses

scientific article published on 08 March 2019

Alteration in endothelial permeability occurs in response to the activation of PAR2 by factor Xa but not directly by the TF-factor VIIa complex

scientific article published on 16 January 2019

Analysing data in palliative care trials

scientific article published on 10 July 2018

Artificial hydration in the terminally ill patient.

scientific article published on July 2013

Attitudes to morphine in chronic heart failure patients

scientific article published on 13 December 2011

Australia-modified Karnofsky Performance Scale and physical activity in COPD and lung cancer: an exploratory pooled data analysis

scientific article published on 11 July 2019

Barriers to the diagnosis and treatment of venous thromboembolism in advanced cancer patients: a qualitative study

scientific article

Battery operated fan and chronic breathlessness: does it help?

scientific article published on 08 May 2019

Bleeding, clotting and cancer ⬇️

scientific article published on January 1, 1997

Blinded Patient Preference for Morphine Compared to Placebo in the Setting of Chronic Refractory Breathlessness--An Exploratory Study.

scientific article published on 24 October 2015

Breathlessness Research Interest Group

Breathlessness and presentation to the emergency department: a survey and clinical record review.

scientific article

Breathlessness and sexual activity in older adults: the Australian Longitudinal Study of Ageing.

scientific article

Breathlessness despite optimal pathophysiological treatment: on the relevance of being chronic

scientific article

Breathlessness in Elderly Adults During the Last Year of Life Sufficient to Restrict Activity: Prevalence, Pattern, and Associated Factors

scientific article

Breathlessness in the emergency care setting

scientific article published on 01 September 2018

Breathlessness--current and emerging mechanisms, measurement and management: a discussion from an European Association of Palliative Care workshop.

scientific article published on 09 July 2013

CAMERA - complete assessment of elderly patients with cancer: A non-randomised feasibility study

scientific article published on 21 July 2018

Cancer patients' experiences of living with venous thromboembolism: A systematic review and qualitative thematic synthesis

scientific article published on 27 February 2018

Care of the dying: a qualitative exploration of Foundation Year doctors' experiences.

scientific article

Challenging Previously Held Beliefs About Clinical Practice: Evidence or Experience?

scientific article published on 01 May 2015

Change in physiological variables in the last 2 weeks of life: An observational study of hospitalized adults with heart failure

scientific article published on 20 January 2018

Change in physiological variables in the last 2 weeks of life: an observational study of hospital in-patients with cancer

scientific article published on 18 December 2014

Chronic breathlessness

scientific article published on 01 September 2016

Chronic breathlessness associated with poorer physical and mental health-related quality of life (SF-12) across all adult age groups

scientific article

Chronic breathlessness: re-thinking the symptom

scientific article published on 12 April 2018

Chronic breathlessness: re-thinking the symptom.

scientific article

Chronic refractory breathlessness is a distinct clinical syndrome

scientific article published on 01 September 2015

Clinical decision making in the recognition of dying: a qualitative interview study

scientific article

Clinical decision-making at the end of life: a mixed-methods study

Clinically important differences in the intensity of chronic refractory breathlessness.

scientific article

Community palliative care clinical nurse specialists: a descriptive study of nurse-patient interactions.

scientific article published in May 2014

Conference presentation in palliative medicine: predictors of subsequent publication.

scientific article

Content and quality of websites supporting self-management of chronic breathlessness in advanced illness: a systematic review

scientific article

Contributions of a hand-held fan to self-management of chronic breathlessness

scientific article

Coping with Terminal Illness: The Experience of Attending Specialist Palliative Day Care ⬇️

scientific article published on October 1, 2010

Delirium management by palliative medicine specialists: a survey from the association for palliative medicine of Great Britain and Ireland

scientific article published on 04 March 2019

Delirium screening practice in specialist palliative care units: a survey

scientific article published on 15 May 2020

Determinants of hospital death in haematological cancers: findings from a qualitative study.

scientific article

Developing a complex intervention for the outpatient management of incidentally diagnosed pulmonary embolism in cancer patients.

scientific article

Diagnosis and management of people with venous thromboembolism and advanced cancer: how do doctors decide? A qualitative study ⬇️

scientific article

Distilling the essence of breathlessness: the first vital symptom

scientific article published on 01 June 2015

Does advance care planning in addition to usual care reduce hospitalisation for patients with advanced heart failure: A systematic review and narrative synthesis

scientific article published on 20 September 2018

Does clinical method mask significant VTE-related mortality and morbidity in malignant disease?

scientific article published on 02 June 2009

Does home oxygen benefit people with chronic heart failure?

scientific article published on 04 February 2011

Does home oxygen therapy (HOT) in addition to standard care reduce disease severity and improve symptoms in people with chronic heart failure? A randomised trial of home oxygen therapy for patients with chronic heart failure

scientific article published on September 2015

Does the use of specialist palliative care services modify the effect of socioeconomic status on place of death? A systematic review

scientific article (publication date: May 2016)

Effect of Opioids and Benzodiazepines on Clinical Outcomes in Patients Receiving Palliative Care: An Exploratory Analysis

scientific article published in June 2017

Effects of low-dose morphine on perceived sleep quality in patients with refractory breathlessness: A hypothesis generating study

scientific article published on 12 November 2015

Emergency admissions and subsequent inpatient care through an emergency oncology service at a tertiary cancer centre: service users' experiences and views

scientific article published on 30 June 2018

End-of-life care for non-cancer patients.

scientific article

Ensuring caregivers are part of palliative care service delivery

scientific article

Evidence-based intervention for chronic refractory breathlessness: practical therapies that make a difference

scientific article published on November 2013

Family Caregivers Who Would Be Unwilling to Provide Care at the End of Life Again: Findings from the Health Survey for England Population Survey.

scientific article published on 25 January 2016

Finding the evidence for thromboprophylaxis in palliative care: first let us agree on the question

scientific article published on 01 June 2010

Gaps in the Evidence Base of Opioids for Refractory Breathlessness. A Future Work Plan? ⬇️

scientific article published on January 30, 2012

Haematology nurses' perspectives of their patients' places of care and death: A UK qualitative interview study

scientific article published on 07 February 2019

Heart failure and palliative care: Time for action

scientific article published on 01 October 2018

Heart failure specialist nurses' use of palliative care services: a comparison of surveys across England in 2005 and 2010.

scientific article published on 5 March 2012

How can training in care of the dying be improved?

scientific article published on 12 February 2019

How do palliative physicians manage venous thromboembolism? ⬇️

scientific article published on November 1, 1997

How much evidence isn't in evidence-based guidelines?

scientific article published on 21 October 2015

Identification of patients with potential palliative care needs: A systematic review of screening tools in primary care

scientific article published on 07 June 2020

Impact of specialist palliative care on coping with Parkinson's disease: patients and carers

scientific article published on 9 January 2018

Implementation of the Needs Assessment Tool for patients with interstitial lung disease (NAT:ILD): facilitators and barriers.

scientific article published on 20 February 2017

Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context

scientific article published on 29 November 2020

In response to C Walshe, 'The state of play'.

scientific article published on 15 May 2017

In silico (computed) modelling of doses and dosing regimens associated with morphine levels above international legal driving limits.

scientific article published in May 2018

Incident opioid drug use and adverse respiratory outcomes among older adults with COPD.

scientific article

Inclusion, characteristics and outcomes of people requiring palliative care in studies of non-pharmacological interventions for delirium: A systematic review

scientific article published on 28 June 2019

Insights from Australians with respiratory disease living in the community with experience of self-managing through an emergency department 'near miss' for breathlessness: a strengths-based qualitative study

scientific article

Interstitial lung disease and specialist palliative care access: a healthcare professionals survey

scientific article published on 19 June 2020

Interventions to support a palliative care approach in patients with chronic obstructive pulmonary disease: an integrative review.

scientific article published on 08 March 2012

Invisible suffering: breathlessness in and beyond the clinic--a reply.

scientific article published in August 2015

Is there a role for subcutaneous furosemide in the community and hospice management of end-stage heart failure? ⬇️

scientific article published on March 11, 2011

Just good care? The palliative care of those with non-malignant disease

scientific article

Knowledge of attitudes to opioids in palliative care patients

scientific article published on 01 December 2007

Learning 30 years behind…

scientific article published on 01 September 2018

Left ventricular systolic dysfunction is where the robust evidence base for heart failure therapy has evolved

scientific article published on 01 June 2012

Living well with breathlessness: how clinicians can help

scientific article published on 01 January 2019

Living with breathlessness: a systematic literature review and qualitative synthesis

scientific article published on 21 February 2018

Magnetoencephalography to investigate central perception of exercise-induced breathlessness in people with chronic lung disease: a feasibility pilot

scientific article

Management of cancer-associated thrombosis in people with advanced disease.

scientific article

Management of end stage cardiac failure.

scientific article published on June 2007

Management of venous thromboembolism in patients with advanced cancer: a systematic review and meta-analysis.

scientific article published on June 2008

Measuring improvement in dyspnoea: should absolute or relative values be used?

scientific article published on 26 September 2014

Measuring the Net Benefits of Hospice and Palliative Care: A Composite Measure for Multiple Audiences—Palliative Net Benefit

scientific article published in March 2011

Medical students talking to hospice patients ⬇️

scientific article published on February 1, 2012

Mental wellbeing in bereaved carers: A Health Survey for England population study

scientific article published on 06 September 2019

Minimal clinically important difference and Edmonton Symptom Assessment Scale

scientific article published on 18 September 2015

Missed opportunity? Worsening breathlessness as a harbinger of death: a cohort study

scientific article published on 06 September 2018

Missing Data From Missing Participants

scientific article published on 26 October 2012

Missing data in randomized controlled trials testing palliative interventions pose a significant risk of bias and loss of power: a systematic review and meta-analyses

scientific article

Morphine for the relief of breathlessness in patients with chronic heart failure--a pilot study.

scientific article published on December 2002

Neoplastic fever.

scientific article published on July 1996

Neuroimaging of central breathlessness mechanisms.

scientific article

No excess harms from sustained-release morphine: a randomised placebo-controlled trial in chronic breathlessness

scientific article published on 12 November 2019

Once-daily opioids for chronic dyspnea: a dose increment and pharmacovigilance study.

scientific article published on 31 March 2011

One evidence base; three stories: do opioids relieve chronic breathlessness?

scientific article published on 4 April 2017

Opioids for breathlessness: a narrative review

scientific article published on 03 July 2020

Opioids for chronic refractory breathlessness: patient predictors of beneficial response.

scientific article published on 20 December 2012

Opioids in chronic obstructive pulmonary disease: the whole picture using all available evidence.

scientific article published on 26 November 2015

Opioids, Exertion, and Dyspnea: A Review of the Evidence.

scientific article

Optimised clinical study recruitment in palliative care: success strategies and lessons learned

scientific article published on 13 July 2019

Oral anticoagulation is preferable to injected, but only if it is safe and effective: An interview study of patient and carer experience of oral and injected anticoagulant therapy for cancer-associated thrombosis in the select-d trial.

scientific article published on 29 November 2018

Oral modified release morphine for breathlessness in chronic heart failure: a randomized placebo-controlled trial

scientific article published on 06 August 2019

Outcome measurement of refractory breathlessness: endpoints and important differences

scientific article published on 22 July 2015

Painful bone metastases: a prospective observational cohort study.

scientific article published in October 2005

Palliative Care for people living with heart failure - European Association for Palliative Care Task Force expert position statement

scientific article published on 06 August 2019

Palliative Radiotherapy in the Presence of Well-Controlled Metastatic Disease after Initial Chemotherapy May Prolong Survival in Patients with Metastatic Esophageal and Gastric Cancer.

scientific article

Palliative and end-of-life care for patients with chronic heart failure and chronic lung disease

scientific article published on 01 June 2010

Palliative care among heart failure patients in primary care: a comparison to cancer patients using English family practice data

scientific article

Palliative care and Parkinson's disease: Meeting summary and recommendations for clinical research

scientific article published on 11 January 2017

Palliative care for non-cancer conditions in primary care: a time trend analysis in the UK (2009-2014)

scientific article published on 13 January 2020

Palliative care for patients with heart failure: description of a service

scientific article published on 01 April 2006

Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis

scientific article published on 20 July 2018

Palliative care needs assessment in chronic heart failure.

scientific article published on 27 November 2017

Palliative care needs in patients hospitalized with heart failure (PCHF) study: rationale and design

scientific article published on 19 March 2015

Palliative care specialists' perceptions concerning referral of haematology patients to their services: findings from a qualitative study

scientific article published on 21 February 2018

Palliative physicians persuade procurators fiscal

scientific article published on 01 November 2002

Palliative treatment of chronic breathlessness syndrome: the need for P5 medicine

scientific article published on 29 October 2019

Patient and health care professional decision-making to commence and withdraw from renal dialysis: a systematic review of qualitative research

scientific article

Patients’ psychosocial experiences of attending Specialist Palliative Day Care: A systematic review ⬇️

scientific article published on January 12, 2011

Perceptions and experiences of laws and regulations governing access to opioids in South, Southeast, East and Central Asia: A systematic review, critical interpretative synthesis and development of a conceptual framework

scientific article published on 29 October 2020

Perspectives of bereaved relatives of patients with haematological malignancies concerning preferred place of care and death: A qualitative study

scientific article published on 30 January 2019

Pharmacovigilance in Hospice/Palliative Care: Net Effect of Haloperidol for Nausea or Vomiting

scientific article

Post-mortem ICD interrogation in mode of death classification

scientific article published on 8 January 2018

Predictors and trajectory of performance status in patients with advanced cancer: A secondary data analysis of the international European Palliative Care Cancer Symptom study

scientific article published on 08 November 2018

Preferred and actual place of death in haematological malignancy.

scientific article

Prevalence and Outcomes of Breathlessness in Older Adults: A National Population Study

scientific article published on 7 September 2016

Prevalence and assessment of breathlessness in the clinical setting

scientific article published on 22 January 2014

Prevalence, symptom burden, and natural history of deep vein thrombosis in people with advanced cancer in specialist palliative care units (HIDDen): a prospective longitudinal observational study

scientific article published on 01 February 2019

Primary thromboprophylaxis for hospice inpatients: who needs it?

scientific article published on 10 February 2011

Primary thromboprophylaxis in hospices: the association between risk of venous thromboembolism and development of symptoms

scientific article published on 10 December 2013

Problems of anticoagulation within a palliative care setting: an audit of hospice patients taking warfarin ⬇️

scientific article published on 01 July 1997

Prospectively collected characteristics of adult patients, their consultations and outcomes as they report breathlessness when presenting to general practice in Australia

scientific article

Psychological concerns of Indian women with breast cancer in different national contexts: a systematic review and mixed-methods synthesis

scientific article published on 11 May 2020

Psychometric Properties of the Needs Assessment Tool—Progressive Disease Cancer in U.K. Primary Care

scientific article published on 07 August 2018

Psychometric validation of the needs assessment tool: progressive disease in interstitial lung disease

scientific article

Pulmonary rehabilitation, physical activity, respiratory failure and palliative respiratory care

scientific article published on 14 March 2019

Quality of missing data reporting and handling in palliative care trials demonstrates that further development of the CONSORT statement is required: a systematic review.

scientific article

Randomised, double-blind, multicentre, mixed-methods, dose-escalation feasibility trial of mirtazapine for better treatment of severe breathlessness in advanced lung disease (BETTER-B feasibility)

scientific article published on 08 January 2020

Re: Asia, Australia and New Zealand Dyspnoea in Emergency Departments (AANZDEM) study: Rationale, design and analysis.

scientific article published on 24 June 2015

Re: Hui et al., which treatment is better?

scientific article published on 24 January 2015

Recognizing advanced disease

scientific article published on 01 August 2011

Recognizing dying in terminal illness.

scientific article published on August 2011

Repeat dose opioids may be effective for breathlessness in chronic heart failure if given for long enough.

scientific article published on 31 January 2013

Reply to: MASCC/ESMO consensus recommendations for the management of nausea and vomiting in advanced cancer

scientific article published on 06 June 2017

Researching breathlessness in palliative care: consensus statement of the National Cancer Research Institute Palliative Care Breathlessness Subgroup

scientific article published on 27 February 2009

Respiratory adverse effects of opioids for breathlessness: a systematic review and meta-analysis.

scientific article published on 22 November 2017

Response to "Hyoscine Butylbromide for the Management of Death Rattle: Sooner Rather Than Later"

scientific article published on 26 November 2018

Response: what tools are available to identify patients with palliative care needs in primary care: a systematic literature review and survey of European practice?

scientific article published in June 2014

Review of phenobarbitone use for deep terminal sedation in a UK hospice

scientific article published on 19 November 2009

Review of the evidence for the management of dyspnoea in people with chronic heart failure.

scientific article published on June 2008

Somatostatin Analogues Compared With Placebo and Other Pharmacologic Agents in the Management of Symptoms of Inoperable Malignant Bowel Obstruction: A Systematic Review.

scientific article

Statistical compared to clinical significance and the risk of misattribution

scientific article published on 29 November 2018

Subcutaneous furosemide in advanced heart failure: has clinical practice run ahead of the evidence base?

scientific article published on 29 November 2011

Symptom prevalence of patients with fibrotic interstitial lung disease: a systematic literature review.

scientific article

Symptomatic hypocalcemia with oral clodronate.

scientific article published in February 1998

The Adaptation, Face, and Content Validation of a Needs Assessment Tool: Progressive Disease for People with Interstitial Lung Disease.

scientific article

The Evidence Base for Oxygen for Chronic Refractory Breathlessness: Issues, Gaps, and a Future Work Plan ⬇️

scientific article published on September 25, 2012

The complex relationship between household income of family caregivers, access to palliative care services and place of death: A national household population survey

scientific article published on 07 June 2017

The ethical decisions UK doctors make regarding advanced cancer patients at the end of life--the perceived (in) appropriateness of anticoagulation for venous thromboembolism: a qualitative study ⬇️

scientific article

The experience of delirium in palliative care settings for patients, family, clinicians and volunteers: A qualitative systematic review and thematic synthesis

scientific article published in 2021

The feasibility of a randomised controlled trial to compare the cost-effectiveness of palliative cardiology or usual care in people with advanced heart failure: Two exploratory prospective cohorts.

scientific article published on 24 April 2018

The importance of the feasibility study: Lessons from a study of the hand-held fan used to relieve dyspnea in people who are breathless at rest

scientific article published on 22 October 2015

The independent association of overweight and obesity with breathlessness in adults: a cross-sectional, population-based study

scientific article

The longitudinal pattern of response when morphine is used to treat chronic refractory dyspnea

scientific article published on 08 June 2013

The mechanisms of breathlessness in heart failure as the basis of therapy

scientific article published on 29 December 2015

The need to research refractory breathlessness.

scientific article published in January 2016

The prevalence and associated variables of deep venous thrombosis in patients with advanced cancer

scientific article published on 01 January 1999

The principles of symptom control.

scientific article published in April 2009

The relationship between two performance scales: New York Heart Association Classification and Karnofsky Performance Status Scale

scientific article

The strength of evidence: low dose morphine for chronic breathlessness.

scientific article

Time intervals from first symptom to diagnosis for head and neck cancers: An analysis of linked patient reports and medical records from the UK

scientific article published on 19 January 2019

Timely recognition of palliative care needs of patients with advanced chronic heart failure: a pilot study of a Dutch translation of the Needs Assessment Tool: Progressive Disease - Heart Failure (NAT:PD-HF)

scientific article published on 13 February 2019

To What Causes Do People Attribute Their Chronic Breathlessness? A Population Survey ⬇️

scientific article published on June 11, 2012

Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.

scientific article published on 25 May 2017

Treating breathlessness in lung cancer patients: the potential of breathing training.

scientific article

Update on the role of palliative oxygen.

scientific article published on June 2011

Use of the modified Borg scale and numerical rating scale to measure chronic breathlessness: a pooled data analysis

scientific article published on 17 March 2016

Validated screening tools for the assessment of cachexia, sarcopenia, and malnutrition: a systematic review

scientific article published on 01 December 2018

Validation of the Dyspnea Exertion Scale of Breathlessness in People With Life-Limiting Illness

scientific article published on 10 May 2018

Variations in specialist palliative care referrals: findings from a population-based patient cohort of acute myeloid leukaemia, diffuse large B-cell lymphoma and myeloma

scientific article

Venous thromboembolism: not as easy as it looks.

scientific article published in July 2009

Vicarious breathlessness: an inferential perceptual learned transposition process that may not be inconsequential to either patient or caregiver

scientific article published on 04 April 2018

What are the patterns of compliance with Early Warning Track and Trigger Tools: A narrative review

article

Which patients with heart failure should receive specialist palliative care?

scientific article published on 28 June 2018

Why Do Health Professionals Refer Individual Patients to Specialist Day Hospice Care? ⬇️

scientific article published on January 16, 2011

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