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Authors whose works are in public domain in at least one jurisdiction

List of works by Stuart G Nicholls

A Parent-Targeted and Mediated Video Intervention to Improve Uptake of Pain Treatment for Infants During Newborn Screening: A Pilot Randomized Controlled Trial

scientific article published on 01 January 2019

A Scoping Review of Empirical Research Relating to Quality and Effectiveness of Research Ethics Review.

scientific article published on 30 July 2015

Antenatal Consultations at Extreme Prematurity: A Systematic Review of Parent Communication Needs

scientific article

Attitudes to incorporating genomic risk assessments into population screening programs: the importance of purpose, context and deliberation

scientific article

Benefits and burdens of newborn screening: public understanding and decision-making

scientific article published on 01 August 2014

Call for a pan-Canadian approach to ethics review in Canada

article

Cluster over individual randomization: are study design choices appropriately justified? Review of a random sample of trials

scientific article published on 05 May 2020

Commentary on "Regulatory Support Improves Subsequent IRB/REC Approval Rates in Studies Initially Deemed Not Ready for Review: A CTSA Institution's Experience".

scientific article published in January 2018

Consent for newborn screening: parents' and health-care professionals' experiences of consent in practice

scientific article published on 15 June 2016

Considering consent: a structural equation modelling analysis of factors influencing decisional quality when accepting newborn screening

scientific article

Developing a framework for the ethical design and conduct of pragmatic trials in healthcare: a mixed methods research protocol

article

Development of a robotic walker for individuals with cerebral palsy

scientific article published on 23 April 2019

Education and parental involvement in decision-making about newborn screening: understanding goals to clarify content.

scientific article published on 18 November 2014

Establishing core outcome sets for phenylketonuria (PKU) and medium-chain Acyl-CoA dehydrogenase (MCAD) deficiency in children: study protocol for systematic reviews and Delphi surveys.

scientific article published on 19 December 2017

Ethical Issues in the Design and Conduct of Pragmatic Cluster Randomized Trials in Hemodialysis Care: An Interview Study With Key Stakeholders

scientific article published on 26 October 2020

Fiscal food policy: Equity and practice

scientific article published on 01 July 2011

Genetic discrimination legislation in Canada: moving from rhetoric to real debate.

scientific article published on 8 February 2016

Hospital Staff's Perceptions with Regards to the Baby-Friendly Initiative.

scientific article published on 26 August 2016

Identification of translational dermatology research priorities in the U.K.: results of an electronic Delphi exercise

scientific article published on 06 July 2015

Impact of stated barriers on proposed warfarin prescription for atrial fibrillation: a survey of Canadian physicians.

scientific article

Improving Service Evaluation in Clinical Genetics: Identifying Effects of Genetic Diseases on Individuals and Families

article

Informed choice for newborn blood spot screening in the United Kingdom: a survey of parental perceptions.

scientific article published on 12 November 2012

Informed consent in pragmatic trials: results from a survey of trials published 2014–2019

scientific article published on 15 November 2021

Intraoperative pharmacologic opioid minimisation strategies and patient-centred outcomes after surgery: a scoping review protocol

scientific article published in 2023

La déclaration RECORD-PE (Reporting of Studies Conducted Using Observational Routinely Collected Health Data Statement for Pharmacoepdemiology) : directives pour la communication des études realisées à partir de données de santé observationelles col

scientific article published on 01 June 2019

Neuroprotective Core Measure 5: Minimizing Stress and Pain—Neonatal Pain Management Practices During Heel Lance and Venipuncture in Ontario, Canada

article

Of Parachutes and Participant Protection: Moving Beyond Quality to Advance Effective Research Ethics Oversight

scientific article published on 12 December 2018

Outcome measurement in clinical genetics services: a systematic review of validated measures.

scientific article published on May 2008

Outcome measures for clinical genetics services: A comparison of genetics healthcare professionals and patients’ views

article

Outcomes in pediatric studies of medium-chain acyl-coA dehydrogenase (MCAD) deficiency and phenylketonuria (PKU): a review

scientific article published on 14 January 2020

Pain Management During Newborn Screening: Using YouTube to Disseminate Effective Pain Management Strategies.

scientific article published in April 2017

Parental decision-making and acceptance of newborn bloodspot screening: an exploratory study

scientific article

Parental information use in the context of newborn bloodspot screening. An exploratory mixed methods study.

scientific article

Parents' evaluation of the IDEFICS intervention: an analysis focussing on socio-economic factors, child's weight status and intervention exposure

scientific article published on December 2015

Patient empowerment in clinical genetics services.

scientific article published on October 2008

Proceduralisation, choice and parental reflections on decisions to accept newborn bloodspot screening

scientific article published on December 20, 2011

Public attitudes towards genomic risk profiling as a component of routine population screening

scientific article published on 31 August 2013

Reporting of consent rates in critical care studies: room for improvement

scientific article published on 08 December 2015

Reporting of key methodological and ethical aspects of cluster trials in hemodialysis require improvement: a systematic review

scientific article published on 28 August 2020

Reporting transparency: making the ethical mandate explicit

scientific article

Review of pragmatic trials found that multiple primary outcomes are common but so too are discrepancies between protocols and final reports

scientific article published on 08 December 2021

Routinely collected data: the importance of high-quality diagnostic coding to research

scientific article

Screening for depression in women during pregnancy or the first year postpartum and in the general adult population: a protocol for two systematic reviews to update a guideline of the Canadian Task Force on Preventive Health Care

article

Stakeholder attitudes towards the role and application of informed consent for newborn bloodspot screening: a study protocol

scientific article

Stakeholder views regarding ethical issues in the design and conduct of pragmatic trials: study protocol

scientific article published on 20 November 2018

Standards and classification: A perspective on the ‘obesity epidemic’

scientific article published on 18 March 2013

The Human Genome Project, and recent advances in personalized genomics

scientific article

The Importance of Describing as Well as Defining Usual Care

scientific article published on 01 January 2020

The RECORD reporting guidelines: meeting the methodological and ethical demands of transparency in research using routinely-collected health data

scientific article

The REporting of Studies Conducted Using Observational Routinely-Collected Health Data (RECORD) Statement: Methods for Arriving at Consensus and Developing Reporting Guidelines

scientific article published in 2015

The emotional effects of genetic diseases: Implications for clinical genetics

article

The ethical challenges raised in the design and conduct of pragmatic trials: an interview study with key stakeholders

scientific article published on 23 December 2019

The need for ethics as well as evidence in evidence-based medicine

scientific article published on 31 May 2016

The reporting of studies conducted using observational routinely collected health data statement for pharmacoepidemiology (RECORD-PE)

scientific article published in the British Medical Journal

Too many crying babies: a systematic review of pain management practices during immunizations on YouTube.

scientific article

Using YouTube to Disseminate Effective Vaccination Pain Treatment for Babies

scientific article

What is in a Name? Parent, Professional and Policy-Maker Conceptions of Consent-Related Language in the Context of Newborn Screening

scientific article published on 04 May 2019

What outcomes are important in the recovery from acromio-clavicular (AC) joint pathology? A focus group study with patients and surgeons

scientific article published on 17 August 2020

What process attributes of clinical genetics services could maximise patient benefits?

scientific article