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List of works by Sabina Gainotti

'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research

scientific article

A model for the European platform for rare disease registries.

scientific article published in January 2013

A personalist approach to public-health ethics.

scientific article published on August 2008

A study of the Healthy Growth Charter in socially disadvantaged children.

scientific article published in January 2011

Antipsychotics in individuals with intellectual disability

scientific article published in The Lancet

Characterization and classification of Rare Disease Registries by using exploratory data analyses

scientific article published on 11 November 2014

EPIRARE survey on activities and needs of rare disease registries in the European Union

Ethical Issues in Uterine Transplantation: Psychological Implications and Informed Consent

scientific article published on 01 May 2017

Ethical models underpinning responses to threats to public health: a comparison of approaches to communicable disease control in Europe.

scientific article

Evaluation of medical practices in France: who is the best teacher?

scientific article published on 01 January 2008

From Experimental Technique to Clinical Practice: Which Pathway in Transplant Surgery?

scientific article published on 30 June 2018

How are the interests of incapacitated research participants protected through legislation? An Italian study on legal agency for dementia patients

scientific article

How legislation on decisional capacity can negatively affect the feasibility of clinical trials in patients with dementia

scientific article published in August 2012

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research

scientific article

Informed consent in clinical research in France: assessment and factors associated with therapeutic misconception.

scientific article published in September 2008

Meeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues

scholarly article by Sabina Gainotti et al published 21 September 2018 in International Journal of Environmental Research and Public Health

Nonurgent patients in the emergency department? A French formula to prevent misuse

scientific article

Organ Transplantation From Nonstandard Risk Donors: Midway Between Rigid and Flexible Rules

scientific article published on 09 October 2019

Personalism for public health ethics

scientific article published in January 2010

Rare disease registries classification and characterization: a data mining approach

scientific article

Recommendations for Improving the Quality of Rare Disease Registries

The EPIRARE proposal of a set of indicators and common data elements for the European platform for rare disease registration

scientific article

The Italian National Centre for Rare Diseases: where research and public health translate into action

scientific article

The Quality of Rare Disease Registries: Evaluation and Characterization.

scientific article

The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers

scientific article

The Role of Solidarity(-ies) in Rare Diseases Research.

scientific article published in January 2017

The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia

scientific article published on 26 August 2013

The current situation and needs of rare disease registries in Europe.

scientific article published in January 2013

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