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List of works by Jantina de Vries

"I passed the test!" Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa

scientific article

"It's for a good cause, isn't it?" - Exploring views of South African TB research participants on sample storage and re-use

scientific article

Accessing Biospecimens from the H3Africa Consortium.

scientific article published in April 2017

Broad Consent for Genomic Research and Biobanking: Perspectives from Low- and Middle-Income Countries

scientific article

Community engagement in global health research that advances health equity

article

Community engagement strategies for genomic studies in Africa: a review of the literature

scientific article published on 12 April 2015

Consent insufficient for data release

scientific article published on 01 May 2019

Deliberation to Promote Shared Sovereignty in Health Research: Four Questions to Clarify Goals, Methods, and Scope.

scientific article published on October 2016

Editorial (An Idea Whose Time Has Come? An African Foresight Observatory on Genomics Medicine and Data-Intensive Global Science)

Equity in international health research collaborations in Africa: Perceptions and expectations of African researchers

scientific article published on 16 October 2017

Ethical Challenges in Contemporary FASD Research and Practice

scientific article

Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting report

scientific article published on 22 May 2019

Ethical challenges in community engagement practices in research during the COVID-19 pandemic in Africa

scientific article published in 2020

Ethical considerations in forensic genetics research on tissue samples collected post-mortem in Cape Town, South Africa.

scientific article published on 29 November 2017

Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committees

scientific article published on 21 August 2014

Ethical, legal and social issues in the context of the planning stages of the Southern African Human Genome Programme.

scientific article published on March 2012

Exploring researchers' experiences of working with a researcher-driven, population-specific community advisory board in a South African schizophrenia genomics study

scientific article published on 2 July 2015

Genomic sovereignty and the African promise: mining the African genome for the benefit of Africa ⬇️

scientific article published on April 6, 2012

Global citizen deliberation on genome editing

scientific article published on 01 September 2020

H3Africa: current perspectives

scientific article

Implications of direct-to-consumer whole-exome sequencing in South Africa.

scientific article published on 12 January 2016

Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?

scientific article published on 16 June 2012

Model framework for governance of genomic research and biobanking in Africa – a content description

scientific article published on 18 April 2018

Model framework for governance of genomic research and biobanking in Africa – a content description

scholarly article published 12 December 2018

Policy makers, regulators and researchers’ perspectives on genomics research and the capacity of the National Health Research Act of 2013 to regulate genomics research in Zambia

scientific article published on 24 July 2020

Potential use of clinical polygenic risk scores in psychiatry – ethical implications and communicating high polygenic risk

scholarly article published 28 November 2018

Potential use of clinical polygenic risk scores in psychiatry – ethical implications and communicating high polygenic risk

scholarly article published 28 November 2018

Predictors of consent to cell line creation and immortalisation in a South African schizophrenia genomics study.

scientific article published on 11 July 2018

Providing a policy framework for responsible gene drive research: an analysis of the existing governance landscape and priority areas for further research

scientific article published on 20 July 2020

Psychiatric Genomics: Ethical Implications for Public Health in Lower- and Middle-Income Countries.

scientific article

Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries

scientific article

Research capacity. Enabling the genomic revolution in Africa

scientific article published in June 2014

Research priorities. ELSI 2.0 for genomics and society

scientific article

Returning incidental findings in African genomics research

scientific article published on 01 January 2020

Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience.

scientific article (publication date: 2 July 2012)

The NeuroDev Study: Phenotypic and Genetic Characterization of Neurodevelopmental Disorders in Kenya and South Africa

scholarly article by Victoria de Menil et al published 2 January 2019 in Neuron

The Path Forward for DNA Data

scientific article

The obesity epidemic: medical and ethical considerations

scientific article published in March 2007

Toward better governance of human genomic data

scientific article published on 01 January 2021

Would you terminate a pregnancy affected by sickle cell disease? Analysis of views of patients in Cameroon

scientific article

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