List of works - Annmarie Nelson

"I didn't really understand it, I just thought it'd help": exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial

scientific article

"It still haunts me whether we did the right thing": a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers

scientific article

"It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life

scientific article

'Don't blame the middle man': an exploratory qualitative study to explore the experiences of translators breaking bad news

'Oh God, not a palliative': out-of-hours general practitioners within the domain of palliative care

scientific article

A feasibility study examining the effect on lung cancer diagnosis of offering a chest X-ray to higher-risk patients with chest symptoms: protocol for a randomized controlled trial.

scientific article

A feasibility study testing four hypotheses with phase II outcomes in advanced colorectal cancer (MRC FOCUS3): a model for randomised controlled trials in the era of personalised medicine? ⬇️

scientific article

A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALIC

scientific article

A feasibility study to inform the design of a randomized controlled trial to identify the most clinically and cost effective anticoagulation length with low molecular weight heparin in the treatment of cancer associated thrombosis (ALICAT): study pr

scientific article published on 12 April 2014

A mixed-methods study of the Care Needs of individuals with idiopathic Pulmonary fibrosis and their carers--CaNoPy: a study protocol

scientific article

Acceptability of low molecular weight heparin thromboprophylaxis for inpatients receiving palliative care: qualitative study

scientific article

CARer-ADministration of as-needed subcutaneous medication for breakthrough symptoms in homebased dying patients (CARiAD): study protocol for a UK-based open randomised pilot trial

scientific article published on 07 February 2019

Cancer-associated thrombosis, low-molecular-weight heparin, and the patient experience: a qualitative study

scientific article published on 08 April 2014

Carer administration of as-needed subcutaneous medication for breakthrough symptoms in people dying at home: the CARiAD feasibility RCT

scientific article published on 01 May 2020

Challenges faced by palliative care physicians when caring for doctors with advanced cancer.

scientific article published on January 2008

Defining the palliative care patient: its challenges and implications for service delivery

scientific article

Defining the palliative care patient: its challenges and implications for service delivery

scientific article published on 01 December 2015

Developing an intervention to support lung cancer patients and their clinicians when considering systemic anti-cancer therapy: pact study.

scientific article published on 29 November 2013

Developing meaningful public involvement in a cancer clinical trials unit.

scientific article published on 29 May 2015

Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study.

scientific article published on 12 July 2017

ELCID: early lung cancer identification and diagnosis - an embedded interview study to explore patient participation and recruitment

scientific article published on 29 November 2013

Factors influencing hospice thromboprophylaxis policy: a qualitative study

scientific article published on 04 September 2008

Gaining an accurate reflection of the reality of palliative care through the use of free-text feedback in questionnaires: the AFTER study.

scientific article published on 17 February 2016

Heartsink encounters: a qualitative study of end-of-life care in out-of-hours general practice

scientific article

Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study

scientific article

Immediate chest X-ray for patients at risk of lung cancer presenting in primary care: randomised controlled feasibility trial ⬇️

scientific article published on 10 January 2017

Impact of a dedicated cancer-associated thrombosis service on clinical outcomes: a mixed-methods evaluation of a clinical improvement exercise

scientific article

Improving the well-being of men by Evaluating and Addressing the Gastrointestinal Late Effects (EAGLE) of radical treatment for prostate cancer: study protocol for a mixed-method implementation project

scientific article published on 03 October 2016

Making randomised trials more efficient: report of the first meeting to discuss the Trial Forge platform

scientific article published on 5 June 2015

Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer.

scientific article published on 16 October 2017

Methods of assessing late radiotherapy effects on bowel function

scientific article published on 01 June 2019

Neuromuscular electrical stimulation of the quadriceps in patients with non-small cell lung cancer receiving palliative chemotherapy: a randomized phase II study

scientific article

Out-of-hours GPs and palliative care-a qualitative study exploring information exchange and communication issues

scientific article

Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper

scientific article published on 28 January 2016

Palliative radiotherapy in addition to self-expanding metal stent for improving dysphagia and survival in advanced oesophageal cancer (ROCS: Radiotherapy after Oesophageal Cancer Stenting): study protocol for a randomized controlled trial

scientific article

Patients with established cancer cachexia lack the motivation and self-efficacy to undertake regular structured exercise.

scientific article published on 31 July 2017

Patients' Experience of Living with Cancer-associated thrombosis in Spain (PELICANOS).

scientific article published on 7 April 2018

Patients' Experiences of LIving with CANcer-associated thrombosis: the PELICAN study

scientific article

Prevalence, symptom burden, and natural history of deep vein thrombosis in people with advanced cancer in specialist palliative care units (HIDDen): a prospective longitudinal observational study

scientific article published on 01 February 2019

QUALZICE: a QUALitative exploration of the experiences of the participants from the ZICE clinical trial (metastatic breast cancer) receiving intravenous or oral bisphosphonates.

scientific article published on 09 October 2013

Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions.

scientific article

TACT: Research Partner involvement in a cancer clinical trials unit and academic research centre; evaluating its impact.

scientific article published on 29 May 2015

The Three-item ALERT-B Questionnaire Provides a Validated Screening Tool to Detect Chronic Gastrointestinal Symptoms after Pelvic Radiotherapy in Cancer Survivors.

scientific article

The Trigger Project: The Challenge of Introducing Electronic Patient-Reported Outcome Measures Into a Radiotherapy Service

scientific article published on 28 September 2019

The acceptability of an information leaflet explaining cardiopulmonary resuscitation policy in the hospice setting: a qualitative study exploring patients’ views

scientific article published on 01 July 2008

The care needs of patients with idiopathic pulmonary fibrosis and their carers (CaNoPy): results of a qualitative study

scientific article published on 4 December 2015

The challenge pathway: A mixed methods evaluation of an innovative care model for the palliative and end-of-life care of people with dementia (Innovative practice).

scientific article published in January 2017

The impacts and effectiveness of support for people bereaved through advanced illness: A systematic review and thematic synthesis

scientific article published on 18 May 2020

The practice of palliative care from the perspective of patients and carers

scientific article

The role of the public in developing interventions: a reflection and critique of a cancer clinical trials unit's model

scientific article

What challenges good palliative care provision out-of-hours? A qualitative interview study of out-of-hours general practitioners

scientific article published on 21 April 2011

Why do patients decline surgical trials? Findings from a qualitative interview study embedded in the Cancer Research UK BOLERO trial (Bladder cancer: Open versus Lapararoscopic or RObotic cystectomy)

scientific article

‘Once I knew there was a choice, I wanted to exercise that choice': using qualitative methods to understand why patients decline surgical trials

scientific article published on 29 November 2013

List of works by Annmarie Nelson

"I didn't really understand it, I just thought it'd help": exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial

"It still haunts me whether we did the right thing": a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers

"It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life

'Don't blame the middle man': an exploratory qualitative study to explore the experiences of translators breaking bad news

'Oh God, not a palliative': out-of-hours general practitioners within the domain of palliative care

A feasibility study examining the effect on lung cancer diagnosis of offering a chest X-ray to higher-risk patients with chest symptoms: protocol for a randomized controlled trial.

A feasibility study testing four hypotheses with phase II outcomes in advanced colorectal cancer (MRC FOCUS3): a model for randomised controlled trials in the era of personalised medicine? ⬇️

A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALIC

A feasibility study to inform the design of a randomized controlled trial to identify the most clinically and cost effective anticoagulation length with low molecular weight heparin in the treatment of cancer associated thrombosis (ALICAT): study pr

A mixed-methods study of the Care Needs of individuals with idiopathic Pulmonary fibrosis and their carers--CaNoPy: a study protocol

Acceptability of low molecular weight heparin thromboprophylaxis for inpatients receiving palliative care: qualitative study

CARer-ADministration of as-needed subcutaneous medication for breakthrough symptoms in homebased dying patients (CARiAD): study protocol for a UK-based open randomised pilot trial

Cancer-associated thrombosis, low-molecular-weight heparin, and the patient experience: a qualitative study

Carer administration of as-needed subcutaneous medication for breakthrough symptoms in people dying at home: the CARiAD feasibility RCT

Challenges faced by palliative care physicians when caring for doctors with advanced cancer.

Defining the palliative care patient: its challenges and implications for service delivery

Defining the palliative care patient: its challenges and implications for service delivery

Developing an intervention to support lung cancer patients and their clinicians when considering systemic anti-cancer therapy: pact study.

Developing meaningful public involvement in a cancer clinical trials unit.

Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study.

ELCID: early lung cancer identification and diagnosis - an embedded interview study to explore patient participation and recruitment

Factors influencing hospice thromboprophylaxis policy: a qualitative study

Gaining an accurate reflection of the reality of palliative care through the use of free-text feedback in questionnaires: the AFTER study.

Heartsink encounters: a qualitative study of end-of-life care in out-of-hours general practice

Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study

Immediate chest X-ray for patients at risk of lung cancer presenting in primary care: randomised controlled feasibility trial ⬇️

Impact of a dedicated cancer-associated thrombosis service on clinical outcomes: a mixed-methods evaluation of a clinical improvement exercise

Improving the well-being of men by Evaluating and Addressing the Gastrointestinal Late Effects (EAGLE) of radical treatment for prostate cancer: study protocol for a mixed-method implementation project

Making randomised trials more efficient: report of the first meeting to discuss the Trial Forge platform

Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer.

Methods of assessing late radiotherapy effects on bowel function

Neuromuscular electrical stimulation of the quadriceps in patients with non-small cell lung cancer receiving palliative chemotherapy: a randomized phase II study

Out-of-hours GPs and palliative care-a qualitative study exploring information exchange and communication issues

Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper

Palliative radiotherapy in addition to self-expanding metal stent for improving dysphagia and survival in advanced oesophageal cancer (ROCS: Radiotherapy after Oesophageal Cancer Stenting): study protocol for a randomized controlled trial

Patients with established cancer cachexia lack the motivation and self-efficacy to undertake regular structured exercise.

Patients' Experience of Living with Cancer-associated thrombosis in Spain (PELICANOS).

Patients' Experiences of LIving with CANcer-associated thrombosis: the PELICAN study

Prevalence, symptom burden, and natural history of deep vein thrombosis in people with advanced cancer in specialist palliative care units (HIDDen): a prospective longitudinal observational study

QUALZICE: a QUALitative exploration of the experiences of the participants from the ZICE clinical trial (metastatic breast cancer) receiving intravenous or oral bisphosphonates.

Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions.

TACT: Research Partner involvement in a cancer clinical trials unit and academic research centre; evaluating its impact.

The Three-item ALERT-B Questionnaire Provides a Validated Screening Tool to Detect Chronic Gastrointestinal Symptoms after Pelvic Radiotherapy in Cancer Survivors.

The Trigger Project: The Challenge of Introducing Electronic Patient-Reported Outcome Measures Into a Radiotherapy Service

The acceptability of an information leaflet explaining cardiopulmonary resuscitation policy in the hospice setting: a qualitative study exploring patients’ views

The care needs of patients with idiopathic pulmonary fibrosis and their carers (CaNoPy): results of a qualitative study

The challenge pathway: A mixed methods evaluation of an innovative care model for the palliative and end-of-life care of people with dementia (Innovative practice).

The impacts and effectiveness of support for people bereaved through advanced illness: A systematic review and thematic synthesis

The practice of palliative care from the perspective of patients and carers

The role of the public in developing interventions: a reflection and critique of a cancer clinical trials unit's model

What challenges good palliative care provision out-of-hours? A qualitative interview study of out-of-hours general practitioners

Why do patients decline surgical trials? Findings from a qualitative interview study embedded in the Cancer Research UK BOLERO trial (Bladder cancer: Open versus Lapararoscopic or RObotic cystectomy)

‘Once I knew there was a choice, I wanted to exercise that choice': using qualitative methods to understand why patients decline surgical trials