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List of works by Sue Ziebland

"It can't be very important because it comes and goes"--patients' accounts of intermittent symptoms preceding a pancreatic cancer diagnosis: a qualitative study

scientific article

"Not that sort of practice": the views and behaviour of primary care practitioners in a study of advance provision of emergency contraception

scientific article published on 15 March 2005

"People sometimes react funny if they're not told enough": women's views about the risks of diagnostic laparoscopy

scientific article published on December 2002

"Why me? I don't fit the mould … I am a freak of nature": a qualitative study of women's experience of gout

scientific article published on 28 December 2015

'I knew before I was told': Breaches, cues and clues in the diagnostic assemblage

scientific article published on 26 February 2016

'My brain couldn't move from planning a birth to planning a funeral': a qualitative study of parents' experiences of decisions after ending a pregnancy for fetal abnormality

scientific article published on 14 January 2009

A core outcome set for pre-eclampsia research: An international consensus development study

scientific article published on 16 May 2020

A generic health status instrument in the assessment of rheumatoid arthritis ⬇️

scientific article published on February 1, 1992

A joint effort over a period of time: factors affecting use of urate-lowering therapy for long-term treatment of gout

scientific article

A novel experience-based internet intervention for smoking cessation: feasibility randomised controlled trial

scientific article

A proper, fitting explanation? : suicide bereavement and perceptions of the coroner's verdict

scientific article published on January 2012

A protocol for developing, disseminating, and implementing a core outcome set for pre-eclampsia

scientific article published on 4 May 2016

A systematic review of primary outcomes and outcome measure reporting in randomized trials evaluating treatments for pre-eclampsia

scientific article published on 13 August 2017

A systematic review of reasons for and against asking patients about their socioeconomic contexts

scientific article published on 23 July 2019

Advanced provision of emergency contraception does not reduce abortion rates

scientific article

Advancing gender equality through the Athena SWAN Charter for Women in Science: an exploratory study of women's and men's perceptions

scientific article

Alternatives to the face-to-face consultation in general practice: focused ethnographic case study

scientific article published on 29 January 2018

An overview of self-administered health literacy instruments

scientific article

Barriers to shared decisions in the most serious of cancers: a qualitative study of patients with pancreatic cancer treated in the UK.

scientific article published on 11 December 2014

Biographical disruption, abruption and repair in the context of motor neurone disease

scientific article

Breast cancer in the family--children's perceptions of their mother's cancer and its initial treatment: qualitative study

scientific article

Breast cancer in young families: a qualitative interview study of fathers and their role and communication with their children following the diagnosis of maternal breast cancer.

scientific article published in January 2009

Carers, ethics and dementia: a survey and review of the literature

scientific article

Collecting data on patient experience is not enough: they must be used to improve care

scientific article

Communication practices for delivering health behaviour change conversations in primary care: a systematic review and thematic synthesis

scientific article published on 03 August 2019

Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent

scientific article published on 14 March 2019

Communication with children and adolescents about the diagnosis of their own life-threatening condition

scientific article published on 14 March 2019

Conducting a team-based multi-sited focused ethnography in primary care.

scientific article published on 12 September 2017

Core outcome sets in women's and newborn health: a systematic review

scientific article

Depression at work, authenticity in question: Experiencing, concealing and revealing

scientific article published in October 2017

Do we all agree what "good health care" looks like? Views from those who are "seldom heard" in health research, policy and service improvement.

scientific article

Drawing on Accounts of Long-Term Urinary Catheter Use: Design for the "Seemingly Mundane".

scientific article published on 2 February 2015

Emergency contraception: why can't you give it away? Qualitative findings from an evaluation of advance provision of emergency contraception

scientific article published on 01 July 2004

Emotions and chronic illness

scientific article published in September 2012

Ethics and dementia: mapping the literature by bibliometric analysis

scientific article

Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health

scientific article

Exceptionally good? Positive experiences of NHS care and treatment surprises lymphoma patients: a qualitative interview study

scientific article published on March 2011

Exploring men's and women's experiences of depression and engagement with health professionals: more similarities than differences? A qualitative interview study

scientific article

Expressions of loss of adulthood in the narratives of people with colorectal cancer

scientific article published in February 2004

Fertility issues: the perceptions and experiences of young men recently diagnosed and treated for cancer

scientific article published on 5 October 2006

GP-delivered brief weight loss interventions: a cohort study of patient responses and subsequent actions, using conversation analysis in UK primary care

article

GPs' understanding and practice of safety netting for potential cancer presentations: a qualitative study in primary care

scientific article published on 08 May 2018

Gender, cancer experience and internet use: a comparative keyword analysis of interviews and online cancer support groups.

scientific article published on 19 December 2005

General Practitioner's use of online resources during medical visits: managing the boundary between inside and outside the clinic

scientific article published on 01 October 2019

Have men been overlooked? A comparison of young men and women's experiences of chemotherapy-induced alopecia

scientific article

Health and illness in a connected world: how might sharing experiences on the internet affect people's health?

scientific article

How do GPs and patients share the responsibility for cancer safety netting follow-up actions? A qualitative interview study of GPs and patients in Oxfordshire, UK

scientific article published on 12 September 2019

How do frontline staff use patient experience data for service improvement? Findings from an ethnographic case study evaluation

scientific article published on 14 February 2020

How patients' experiences contribute to decision making: illustrations from DIPEx (personal experiences of health and illness).

scientific article

How people bereaved by suicide perceive newspaper reporting: qualitative study

scientific article published on 07 February 2013

How the Internet is changing the experience of bereavement by suicide: a qualitative study in the UK.

scientific article published on 22 December 2010

How the internet affects patients' experience of cancer: a qualitative study

scientific article published on March 2004

How wide is the Goldilocks Zone in your health system?

article

Imagined futures: how experiential knowledge of disability affects parents' decision making about fetal abnormality

scientific article published on 30 May 2011

Inadequate safety reporting in pre-eclampsia trials: a systematic evaluation.

scientific article

Incurable, invisible and inconclusive: watchful waiting for chronic lymphocytic leukaemia and implications for doctor-patient communication ⬇️

scientific article published on August 31, 2011

Infertility; isolation and the Internet: a qualitative interview study

scientific article published on October 30, 2010

Informing the development of NICE (National Institute for Health and Care Excellence) quality standards through secondary analysis of qualitative narrative interviews on patients’ experiences

scientific article

Lung cancer patients' perceptions of access to financial benefits: a qualitative study

scientific article

Making sense of qualitative data analysis: an introduction with illustrations from DIPEx (personal experiences of health and illness).

scientific article

Mapping patients' experiences from initial symptoms to gout diagnosis: a qualitative exploration

scientific article

Measuring the effects of online health information for patients: item generation for an e-health impact questionnaire

scientific article published on 15 April 2013

Measuring the effects of online health information: Scale validation for the e-Health Impact Questionnaire

scientific article published on 22 June 2015

Men's accounts of depression: reconstructing or resisting hegemonic masculinity?

scientific article published on 14 November 2005

Methodological and Practical Issues in Cross-National Qualitative Research: Lessons From the Literature and a Comparative Study of the Experiences of People Receiving a Diagnosis of Cancer

scientific article

Methodological decisions influence the identification of potential core outcomes in studies related to pre-eclampsia: an analysis informing the development of  recommendations for future core outcome set developers

scientific article published on 05 September 2019

Minimizing delays in ovarian cancer diagnosis: an expansion of Andersen's model of 'total patient delay'.

scientific article published on 7 December 2006

Narratives of experience of mental health and illness on healthtalk.org

scientific article published on October 2016

Nurses should be encouraged and helped to monitor patients’ medicines ⬇️

scientific article published on 01 April 2011

On interviewing people with pets: reflections from qualitative research on people with long-term conditions

scientific article published in January 2015

Outcome reporting across randomised controlled trials evaluating therapeutic interventions for pre-eclampsia: a systematic review

scientific article

Patients' initial steps to cancer diagnosis in Denmark, England and Sweden: what can a qualitative, cross-country comparison of narrative interviews tell us about potentially modifiable factors? ⬇️

scientific article published on 19 November 2017

Patients' needs following colorectal cancer diagnosis: where does primary care fit in?

scientific article published on November 2011

Patients' views of a multimedia resource featuring experiences of rheumatoid arthritis: pilot evaluation of www.healthtalkonline.org

scientific article

Personal identity and the role of 'carer' among relatives and friends of people with multiple sclerosis ⬇️

scientific article published on 06 August 2013

Polyphonic perspectives on health and care: Reflections from two decades of the DIPEx project

scientific article published on 24 September 2020

Positive prevention: contemporary issues facing HIV positive people negotiating sex in the UK.

scientific article published on 7 May 2007

Prescribing antibiotics to 'at-risk' children with influenza-like illness in primary care: qualitative study

scientific article published on 10 June 2016

Proliferation of private online healthcare companies

scientific article published on 23 February 2016

Protocol paper for the 'Harnessing resources from the internet to maximise outcomes from GP consultations (HaRI)' study: a mixed qualitative methods study

article

Qualitative cross-country comparison of whether, when and how people diagnosed with lung cancer talk about cigarette smoking in narrative interviews

scientific article published on 12 November 2018

Qualitative study of men's perceptions of why treatment delays occur in the UK for those with testicular cancer.

scientific article

Quality improvements of safety-netting guidelines for cancer in UK primary care: insights from a qualitative interview study of GPs

scientific article published on 28 November 2019

Randomised feasibility study of a novel experience-based internet intervention to support self-management in chronic asthma

scientific article

Reassured or fobbed off? Perspectives on infertility consultations in primary care: a qualitative study

scientific article

Receptionists' role in new approaches to consultations in primary care: a focused ethnographic study.

scientific article published on 4 June 2018

Reported barriers to eating more fruit and vegetables before and after participation in a randomized controlled trial: a qualitative study

scientific article published in April 2004

Smoking cessation interventions for dental patients--attitudes and reported practices of dentists in the Oxford region ⬇️

scientific article published on November 22, 1997

Taboo and the different death? Perceptions of those bereaved by suicide or other traumatic death

scientific article

Talk of frustration in the narratives of people with chronic pain

scientific article published on 2 April 2012

Testing accelerated experience-based co-design: a qualitative study of using a national archive of patient experience narrative interviews to promote rapid patient-centred service improvement

scientific article

The choice is yours? How women with ovarian cancer make sense of treatment choices

scientific article published on 28 July 2006

The role of humor for men with testicular cancer

scientific article published on October 2004

The role of the Internet for people with chronic pain: examples from the DIPEx International Project

scientific article

The social dimension of health status measures in rheumatoid arthritis ⬇️

scientific article published on April 1, 1991

The use of patients' stories by self-help groups: a survey of voluntary organizations in the UK on the register of the College of Health

scientific article published on September 2000

Understanding depression through a 'coming out' framework

scientific article published on 21 October 2011

User-generated online health content: a survey of Internet users in the United Kingdom

scientific article

Using a national archive of patient experience narratives to promote local patient-centered quality improvement: an ethnographic process evaluation of 'accelerated' experience-based co-design

scientific article

Using alternatives to face-to-face consultations: a survey of prevalence and attitudes in general practice

scientific article published on 23 May 2016

Using online patient feedback to improve NHS services: the INQUIRE multimethod study

Using secondary analysis of qualitative data of patient experiences of health care to inform health services research and policy

scientific article

What do we need to consider when planning, implementing and researching the use of alternatives to face-to-face consultations in primary healthcare?

scientific article published in January 2016

What happened when Scottish women were given advance supplies of emergency contraception? A survey and qualitative study of women's views and experiences

scientific article published in April 2005

What outcomes should researchers select, collect and report in pre-eclampsia research? A qualitative study exploring the views of women with lived experience of pre-eclampsia

scientific article published on 24 February 2019

What parents say about disclosing the end of their pregnancy due to fetal abnormality

scientific article

What patients do and their impact on implementation

scientific article published in April 2016

Why Listening to Health Care Users Really Matters ⬇️

scientific article published on 01 April 2012

Why men with prostate cancer want wider access to prostate specific antigen testing: qualitative study

scientific article

‘A Mastectomy for Something That Wasn't Even Truly Invasive Cancer.’ Women's Understandings of Having a Mastectomy for Screen-detected Dcis: A Qualitative Study ⬇️

scientific article published on January 1, 2011

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