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List of works by Jo Wray

"I was so worried about every drop of milk" - feeding problems at home are a significant concern for parents after major heart surgery in infancy

scientific article

'Death is not the answer': the challenge of measuring the impact of early warning systems

scientific article published on 14 September 2018

'It's hard but you've just gotta get on with it'--The experiences of growing-up with a liver transplant

scientific article published on 25 March 2015

'The Score Matters': wide variations in predictive performance of 18 paediatric track and trigger systems.

scientific article

A qualitative study of the psychological experience of patients during and after mechanical cardiac support.

scientific article published in January 2009

A referral pathway for potentially abnormal neurodevelopment in children with heart disease in the United Kingdom: a Delphi consensus

scientific article published on 21 April 2020

A survey of professionals delivering secondary care regarding their requirements for paediatric cardiac services as provided by specialists

scientific article published on 01 October 2005

Acceptability of a parental early warning tool for parents of infants with complex congenital heart disease: a qualitative feasibility study

scientific article published on 22 March 2018

Adherence in adolescents and young adults following heart or heart-lung transplantation.

scientific article published on September 2006

Adverse Family Social Circumstances and Outcome in Pediatric Cardiac Transplant Recipients at a UK Center

scientific article published on 26 September 2009

Assessing the generalisability of the pediatric cardiac quality of life inventory in the United Kingdom

scientific article

Best practices in the pediatric pretransplant psychosocial evaluation

scientific article published on June 2014

Beyond the first year after pediatric heart or heart-lung transplantation: Changes in cognitive function and behaviour.

scientific article published in April 2005

Biopsychosocial Predictors of Quality of Life Outcomes in Pediatric Congenital Heart Disease

scientific article

CHILDSPLA: a collaboration between children and researchers to design and animate health states

scientific article

Childhood Extracorporeal Membrane Oxygenation Survivors: Parents Highlight Need for Structured Follow-Up and Support After Hospital Discharge

scientific article published on 25 February 2020

Cognitive and behavioral functioning of children listed for heart and/or lung transplantation

scientific article published on 01 November 2010

Combining qualitative and quantitative operational research methods to inform quality improvement in pathways that span multiple settings

scientific article published on 6 January 2017

Cost utility evaluation of extracorporeal membrane oxygenation as a bridge to transplant for children with end-stage heart failure due to dilated cardiomyopathy.

scientific article

Costs of postoperative morbidity following paediatric cardiac surgery: observational study

scientific article published on 07 May 2020

Death and Emergency Readmission of Infants Discharged After Interventions for Congenital Heart Disease: A National Study of 7643 Infants to Inform Service Improvement ⬇️

scientific article published on 20 May 2016

Definition of important early morbidities related to paediatric cardiac surgery.

scientific article published on 29 September 2016

Depression and perceptions about heart failure predict quality of life in patients with advanced heart failure

scientific article published on 8 April 2010

Depression in pediatric patients before and 1 year after heart or heart-lung transplantation

scientific article published on 01 September 2004

Development and preliminary testing of the Brief Developmental Assessment: an early recognition tool for children with heart disease.

scientific article published on 13 February 2018

Developmental and behavioral status of infants and young children awaiting heart or heart-lung transplantation.

scientific article published in March 2004

Differences in access to Emergency Paediatric Intensive Care and care during Transport (DEPICT): study protocol for a mixed methods study

scientific article published on 16 July 2019

Does time taken by paediatric critical care transport teams to reach the bedside of critically ill children affect survival? A retrospective cohort study from England and Wales

scientific article published on 19 June 2020

ECLS for children with late (post-discharge) rejection after heart transplantation

scientific article published on 14 April 2013

Economic evaluation of coronary artery bypass grafting surgery with and without cardiopulmonary bypass: cost-effectiveness and quality-adjusted life years in a randomized controlled trial

scientific article published on 01 November 2008

Effect of cardiac or heart-lung transplantation on the quality of life of the paediatric patient

scientific article published in February 1992

Effect of off-pump coronary artery bypass surgery on clinical, angiographic, neurocognitive, and quality of life outcomes: randomised controlled trial

scientific article

Eliciting the experiences of the adolescent-parent dyad following critical care admission: a pilot study.

scientific article published on 21 February 2018

Equal access to hospital care for children with learning disabilities and their families: a mixed-methods study

scientific article published in 2022

Ethnic and socioeconomic variation in incidence of congenital heart defects ⬇️

scientific article

Ethnic-specific mortality of infants undergoing congenital heart surgery in England and Wales

scientific article published on 01 March 2019

Exercise capacity, quality of life, and resilience after repair of tetralogy of Fallot: a cross-sectional study of patients operated between 1964 and 2009.

scientific article

Exploring communication between parents and clinical teams following children's heart surgery: a survey in the UK

scientific article published on 22 March 2019

Exploring perceptions of psychological services in a children's hospice in the United Kingdom.

scientific article

External validity of the pediatric cardiac quality of life inventory

scientific article

Feasibility and Acceptability of Methods to Collect Follow-Up Information From Parents 12 Months After Their Child's Emergency Admission to Pediatric Intensive Care

scientific article published on 01 April 2019

Going home after infant cardiac surgery: a UK qualitative study

scientific article published on 29 January 2016

Healthcare professional and interpreter perspectives on working with and caring for non-English speaking families in a tertiary paediatric healthcare setting

scientific article

Healthcare transition in pediatric liver transplantation: The perspectives of pediatric and adult healthcare professionals

scientific article published on 26 June 2019

How should health service researchers respect children's personal data under GDPR?

scientific article published on 01 October 2018

Identifying improvements to complex pathways: evidence synthesis and stakeholder engagement in infant congenital heart disease

scientific article published on 06 June 2016

Impact of Surgical Complexity on Health-Related Quality of Life in Congenital Heart Disease Surgical Survivors

scientific article published on 22 July 2016

Incidence and risk factors for important early morbidities associated with pediatric cardiac surgery in a UK population

scientific article published on 12 June 2019

Intellectual development of infants, children and adolescents with congenital heart disease.

scientific article published on July 2006

Issues facing families of infants discharged after cardiac surgery: the perceptions of charity helpline staff

scientific article published on 30 March 2018

Lack of uniformity in the clinical assessment of children with lipomyelomeningocele: a review of the literature and recommendations for the future ⬇️

scientific article published on March 20, 2013

Learning disability nurse provision in children's hospitals: hospital staff perceptions of whether it makes a difference.

scientific article published on 11 June 2019

Linguistic validation of a disease-specific quality of life measure for children and teenagers with cardiac disease

scientific article published on 21 June 2011

Living with congenital or acquired cardiac disease in childhood: maternal perceptions of the impact on the child and family

scientific article published on 01 April 2005

Longitudinal assessment of psychological functioning in children after heart or heart-lung transplantation

scientific article published on 18 January 2006

Loss to specialist follow-up in congenital heart disease; out of sight, out of mind.

scientific article published on 20 December 2012

Mapping staff perspectives towards the delivery of hospital care for children and young people with and without learning disabilities in England: a mixed methods national study.

scientific article

Measuring quality of life in children and young people after transplantation: methodological considerations

scientific article published on 19 March 2010

Medical test results do not tell the whole story: health-related quality of life offers a patient perspective on outcomes

scientific article

Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice

scientific article published on 24 August 2019

Missed opportunities: incomplete and inaccurate recording of paediatric early warning scores

scientific article published on 03 July 2019

Morbidities following cardiac surgery: impact on children's quality of life and parent mental health

scientific article published on 27 November 2020

Multidisciplinary insights into optimizing adherence after solid organ transplantation.

scientific article

Negative beliefs about breathlessness increases panic for patients with chronic respiratory disease.

scientific article

Neurodevelopmental status and follow-up in preschool children with heart disease in London, UK

scientific article published on 09 September 2020

Nonadherence consensus conference summary report.

scientific article published on January 2009

Parent stress levels during children's hospital recovery after congenital heart surgery

scientific article published on 22 May 2010

Parental anxiety and stress during children's hospitalisation: the StayClose study

scientific article published in September 2011

Parental symptoms of posttraumatic stress after pediatric extracorporeal membrane oxygenation*.

scientific article published in February 2014

Parental understanding of our communication of morbidity associated with paediatric cardiac surgery: a qualitative study

scientific article published on 26 February 2020

Parents' Experiences of Caring for Their Child at the Time of Discharge After Cardiac Surgery and During the Postdischarge Period: Qualitative Study Using an Online Forum.

scientific article

Parents' Experiences of Transition From Hospital to Home After Their Infant's First-Stage Cardiac Surgery: Psychological, Physical, Physiological, and Financial Survival

scientific article published on 24 August 2020

Parents' attitudes toward the use of complementary therapy by their children with moderate or severe cerebral palsy

scientific article published on 9 November 2013

Parents� Experiences of Caring for Their Child at the Time of Discharge After Cardiac Surgery and During the Postdischarge Period: Qualitative Study Using an Online Forum (Preprint)

Pay More Attention: a national mixed methods study to identify the barriers and facilitators to ensuring equal access to high-quality hospital care and services for children and young people with and without learning disabilities and their families.

scientific article published on 09 December 2016

Pediatric cardiothoracic domino transplantation: the psychological costs and benefits

scientific article published on 01 October 2004

Pediatric transplantation: ten years on

scientific article published on 01 May 2009

Perceived quality of life of children after successful bridging to heart transplantation

scientific article published on 10 January 2012

Post-transplant adjustment--the later years

scientific article

Prediction by clinicians of quality of life for children and adolescents with cardiac disease.

scientific article

Predictors of parent post-traumatic stress symptoms after child hospitalization on general pediatric wards: a prospective cohort study.

scientific article published on 5 July 2014

Predictors of poor mid-term health related quality of life after primary isolated coronary artery bypass grafting surgery

scientific article published on December 2005

Prospective psychological evaluation of pediatric heart and heart-lung recipients

scientific article published on 26 April 2006

Psychological benefits for children and adolescents who have undergone transplantation of the heart from participation in the British Transplant Games

scientific article published on 13 February 2008

Psychological functioning in parents of children undergoing elective cardiac surgery

scientific article published on 01 April 2004

Psychosocial functioning of parents of children with heart disease-describing the landscape

scientific article published on 19 September 2018

Quality of Life of Pediatric Patients With Long QT Syndrome.

scientific article published on 7 December 2015

Quality of life and coping following minimally invasive direct coronary artery bypass (MIDCAB) surgery.

scientific article published in June 2004

Quality of life and psychological well-being during and after left ventricular assist device support.

scientific article published in September 2007

Quality of life can be good after slide tracheoplasty for long-segment tracheal stenosis

scientific article published on 01 December 2019

Quality of life in pediatric patients affected by electrophysiologic disease

scientific article published on 17 January 2015

Selection by a panel of clinicians and family representatives of important early morbidities associated with paediatric cardiac surgery suitable for routine monitoring using the nominal group technique and a robust voting process

scientific article

Signs of deterioration in infants discharged home following congenital heart surgery in the first year of life: a qualitative study

scientific article published on 28 January 2016

Specialist cardiac services: what do young people want?

scientific article published on 22 October 2008

Supporting families of children with an undiagnosed genetic condition: using co-design to ensure the right person is in the right post doing the right job

scientific article published on 10 December 2020

Systematic review of paediatric track and trigger systems for hospitalised children.

scientific article

Ten year survival after paediatric heart transplantation: a single centre experience.

scientific article published in May 2005

Testing the pediatric cardiac quality of life inventory in the United kingdom

scientific article published on 27 November 2012

The 1-Year Follow-Up Clinic for Neonates and Children After Respiratory Extracorporeal Membrane Oxygenation Support: A 10-Year Single Institution Experience.

scientific article

The Challenges of Caring for Long-Stay Patients in the PICU.

scientific article

The Experience of Long-Stay Parents in the ICU: A Qualitative Study of Parent and Staff Perspectives.

scientific article published on 19 September 2016

The Impact of Neurodevelopmental and Psychosocial Outcomes on Health-Related Quality of Life in Survivors of Congenital Heart Disease

scientific article published on 14 May 2016

The adolescent liver transplant patient.

scientific article published on August 2014

The clinical outcome and quality of life following minimally invasive direct coronary artery bypass surgery.

scientific article published in January 2004

The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease

article

The impact of socio-economic status on health related quality of life for children and adolescents with heart disease

scientific article published on 18 June 2013

The needs of families of children with heart disease

scientific article published on 01 February 2006

The relationship between illness perceptions and panic in chronic obstructive pulmonary disease

scientific article published on 17 October 2008

The start of the transplant journey: referral for pediatric solid organ transplantation.

scientific article

The transplant journey: psychosocial aspects of the different stages of the transplantation process

scientific article published on 01 March 2014

The waiting game: bridging to paediatric heart transplantation

scientific article published on December 2003

To flag or not to flag: Identification of children and young people with learning disabilities in English hospitals

scientific article published on 16 May 2019

Understanding panic disorder in chronic respiratory disease

scientific article published on May 2009

Unexpected deaths and unplanned re-admissions in infants discharged home after cardiac surgery: a systematic review of potential risk factors

scientific article published on 30 December 2014

Using Animation to Self-Report Health: A Randomized Experiment with Children

scientific article published on 01 April 2020

Validation of the Brief Developmental Assessment in pre-school children with heart disease.

scientific article published in April 2018

Validation of the pediatric cardiac quality of life inventory

scientific article

Waiting for transplant: physical, psychosocial, and nutritional status considerations for pediatric candidates and implications for care.

scientific article published on August 2014

What are the important morbidities associated with paediatric cardiac surgery? A mixed methods study

scientific article published on 09 September 2019

Where Should Critically Ill Adolescents Receive Care? A Qualitative Interview-Based Study of Perspectives of Staff Working in Adult and Pediatric Intensive Care Units

scientific article published on 12 June 2019

Where do parents sleep best when children are hospitalized? A pilot comparison study

scientific article

‘Wanting no regrets’: Parental decision making around selective dorsal rhizotomy

scientific article published in 2022

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