List of works - Fiona Ulph

Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice

scientific article

Personality functioning: the influence of stature

scientific article

Cognitive-behavioural suicide prevention for male prisoners: a pilot randomized controlled trial.

scientific article

Parents' responses to receiving sickle cell or cystic fibrosis carrier results for their child following newborn screening

scientific article

Developing an intervention to facilitate family communication about inherited genetic conditions, and training genetic counsellors in its delivery

scientific article published on 7 October 2015

Imparting carrier status results detected by universal newborn screening for sickle cell and cystic fibrosis in England: a qualitative study of current practice and policy challenges

scientific article

How should risk be communicated to children: a cross-sectional study comparing different formats of probability information.

scientific article

Familial influences on antenatal and newborn haemoglobinopathy screening

article

The moderating effects of coping and self-esteem on the relationship between defeat, entrapment and suicidality in a sample of prisoners at high risk of suicide.

scientific article

A qualitative study exploring genetic counsellors' experiences of counselling children

scientific article published on 9 June 2010

Eliciting Preferences for Information Provision in Newborn Bloodspot Screening Programs

scientific article published on 03 January 2017

Training Genetic Counsellors to Deliver an Innovative Therapeutic Intervention: their Views and Experience of Facilitating Multi-Family Discussion Groups

scientific article published on 10 October 2016

A qualitative study to explore how professionals in the United Kingdom make decisions to test children for a sickle cell carrier status

scientific article

Exploration of Mechanisms behind Changes after Participation in a Parenting Intervention: A Qualitative Study in a Low-Resource Setting

scientific article published on 30 March 2016

Informing children of their newborn screening carrier result for sickle cell or cystic fibrosis: qualitative study of parents' intentions, views and support needs

scientific article

An exploration of parents' perceptions and beliefs about changes following participation in a family skill training program: a qualitative study in a developing country

scientific article published in July 2015

Provision of information about newborn screening antenatally: a sequential exploratory mixed-methods project

scientific article

Risks and benefits of nanotechnology: How young adults perceive possible advances in nanomedicine compared with conventional treatments

scholarly article by Brigitte Nerlich et al published June 2007 in Health Risk & Society

Receiving results of uncertain clinical relevance from population genetic screening: systematic review & meta-synthesis of qualitative research

publication published on 08 March 2022

Young adults' pre-existing knowledge of cystic fibrosis and sickle cell diseases: implications for newborn screening

scientific article

Effect of hopelessness on the links between psychiatric symptoms and suicidality in a vulnerable population at risk of suicide

scientific article published on 25 September 2015

The Role of Information Provision in Economic Evaluations of Newborn Bloodspot Screening: A Systematic Review

scientific article published on 21 May 2015

Ethical issues in research into conflict and displacement

scientific article

Disparities in current and future childhood and newborn carrier identification

scientific article published on 11 July 2014

Communication with children about sickle cell disease: A qualitative study of parent experience

article by Joanne Middleton et al published 9 June 2018 in British Journal of Health Psychology

Young children's experiences of living with a parent with bipolar disorder: Understanding the child's perspective

scientific article published on 19 July 2016

Preventing interpersonal violence in Panama: is a parenting intervention developed in Australia culturally appropriate?

scientific article

The prioritization of symptom beliefs over illness beliefs: The development and validation of the Pain Perception Questionnaire for Young People

scientific article

Improving the quality of prison research: A qualitative study of ex-offender service user involvement in prison suicide prevention research

scientific article published on 22 June 2017

PINSA (Provision of Information about Newborn Screening Antenatally): The Provision of antenatal Information for the NHS Newborn Bloodspot Screening Programme (NBSP)

The introduction of risk stratified screening into the NHS breast screening Programme: views from British-Pakistani women

scientific article published on 20 May 2020

Communicating Carrier Status Information to Children: Their Ability to Understand Concepts Related to Genetic Testing

Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis

scientific article published on 26 May 2020

Correction To: Quantifying the effects of risk-stratified breast cancer screening when delivered in real time as routine practice versus usual screening: the BC-Predict non-randomised controlled study (NCT04359420)

scientific article published on 24 April 2023

Psychological Impact on Parents of an Inconclusive Diagnosis Following Newborn Bloodspot Screening for Cystic Fibrosis: A Qualitative Study

scientific article published on 11 June 2019

What do women think about having received their breast cancer risk as part of a risk-stratified NHS Breast Screening Programme? A qualitative study

scientific article published on 24 May 2023

Quantifying the effects of risk-stratified breast cancer screening when delivered in real time as routine practice versus usual screening: the BC-Predict non-randomised controlled study (NCT04359420)

scientific article published in April 2023

Consent for newborn screening: screening professionals' and parents' views

scientific article published on 04 November 2019

List of works by Fiona Ulph

Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice

Personality functioning: the influence of stature

Cognitive-behavioural suicide prevention for male prisoners: a pilot randomized controlled trial.

Parents' responses to receiving sickle cell or cystic fibrosis carrier results for their child following newborn screening

Developing an intervention to facilitate family communication about inherited genetic conditions, and training genetic counsellors in its delivery

Imparting carrier status results detected by universal newborn screening for sickle cell and cystic fibrosis in England: a qualitative study of current practice and policy challenges

How should risk be communicated to children: a cross-sectional study comparing different formats of probability information.

Familial influences on antenatal and newborn haemoglobinopathy screening

The moderating effects of coping and self-esteem on the relationship between defeat, entrapment and suicidality in a sample of prisoners at high risk of suicide.

A qualitative study exploring genetic counsellors' experiences of counselling children

Eliciting Preferences for Information Provision in Newborn Bloodspot Screening Programs

Training Genetic Counsellors to Deliver an Innovative Therapeutic Intervention: their Views and Experience of Facilitating Multi-Family Discussion Groups

A qualitative study to explore how professionals in the United Kingdom make decisions to test children for a sickle cell carrier status

Exploration of Mechanisms behind Changes after Participation in a Parenting Intervention: A Qualitative Study in a Low-Resource Setting

Informing children of their newborn screening carrier result for sickle cell or cystic fibrosis: qualitative study of parents' intentions, views and support needs

An exploration of parents' perceptions and beliefs about changes following participation in a family skill training program: a qualitative study in a developing country

Provision of information about newborn screening antenatally: a sequential exploratory mixed-methods project

Risks and benefits of nanotechnology: How young adults perceive possible advances in nanomedicine compared with conventional treatments

Receiving results of uncertain clinical relevance from population genetic screening: systematic review & meta-synthesis of qualitative research

Young adults' pre-existing knowledge of cystic fibrosis and sickle cell diseases: implications for newborn screening

Effect of hopelessness on the links between psychiatric symptoms and suicidality in a vulnerable population at risk of suicide

The Role of Information Provision in Economic Evaluations of Newborn Bloodspot Screening: A Systematic Review

Ethical issues in research into conflict and displacement

Disparities in current and future childhood and newborn carrier identification

Communication with children about sickle cell disease: A qualitative study of parent experience

Young children's experiences of living with a parent with bipolar disorder: Understanding the child's perspective

Preventing interpersonal violence in Panama: is a parenting intervention developed in Australia culturally appropriate?

The prioritization of symptom beliefs over illness beliefs: The development and validation of the Pain Perception Questionnaire for Young People

Improving the quality of prison research: A qualitative study of ex-offender service user involvement in prison suicide prevention research

PINSA (Provision of Information about Newborn Screening Antenatally): The Provision of antenatal Information for the NHS Newborn Bloodspot Screening Programme (NBSP)

The introduction of risk stratified screening into the NHS breast screening Programme: views from British-Pakistani women

Communicating Carrier Status Information to Children: Their Ability to Understand Concepts Related to Genetic Testing

Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis

Correction To: Quantifying the effects of risk-stratified breast cancer screening when delivered in real time as routine practice versus usual screening: the BC-Predict non-randomised controlled study (NCT04359420)

Psychological Impact on Parents of an Inconclusive Diagnosis Following Newborn Bloodspot Screening for Cystic Fibrosis: A Qualitative Study

What do women think about having received their breast cancer risk as part of a risk-stratified NHS Breast Screening Programme? A qualitative study

Quantifying the effects of risk-stratified breast cancer screening when delivered in real time as routine practice versus usual screening: the BC-Predict non-randomised controlled study (NCT04359420)

Consent for newborn screening: screening professionals' and parents' views