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List of works by Svenja Litzkendorf

Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

scientific article published on 25 August 2016

Central information portal on rare diseases : Implementation of quality- and needs-oriented information management

scientific article published on 7 March 2017

Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study.

scientific article

Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

scientific article published on 19 September 2018

Rare Diseases on the Internet: An Assessment of the Quality of Online Information

scientific article published on 18 January 2017

Shaping an Effective Health Information Website on Rare Diseases Using a Group Decision-Making Tool: Inclusion of the Perspectives of Patients, Their Family Members, and Physicians.

scientific article published on 20 November 2017

The Burden of Spinal Muscular Atrophy on Informal Caregivers

scientific article published on 02 December 2020

The Economic Impact and Health-Related Quality of Life of Spinal Muscular Atrophy. An Analysis across Europe

scientific article published on 05 August 2020

Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

scientific article published on 05 June 2020

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