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List of works by Kingsley Wong

An investigation of the determinants of quality of life in adolescents and young adults with Down syndrome.

scientific article published on 13 June 2018

Are preterm birth and intra-uterine growth restriction more common in Western Australian children of immigrant backgrounds? A population based data linkage study

scientific article published on 09 August 2019

Association of Genetic and Environmental Factors With Autism in a 5-Country Cohort

scientific article published on 17 July 2019

Autonomic breathing abnormalities in Rett syndrome: caregiver perspectives in an international database study.

scientific article

Comparing Parental Well-Being and Its Determinants Across Three Different Genetic Disorders Causing Intellectual Disability.

scientific article published on 30 November 2017

Cyclin-dependent-like kinase 5 is required for pain signaling in human sensory neurons and mouse models

scientific article published on 01 July 2020

Data Linkage: Canadian and Australian Perspectives on a Valuable Methodology for Intellectual and Developmental Disability Research

scientific article published on 01 October 2019

Determinants of quality of life in Rett syndrome: new findings on associations with genotype

scientific article published on 25 August 2020

Determinants of sleep disturbances in Rett syndrome: Novel findings in relation to genotype.

scientific article

Diagnosis of Autism Spectrum Disorder According to Maternal-Race Ethnicity and Country of Birth: A Register-Based Study

scientific article published on 01 September 2019

Environmental enrichment intervention for Rett syndrome: an individually randomised stepped wedge trial

scientific article published on 10 January 2018

Epidemiology of gastrostomy insertion for children and adolescents with intellectual disability

scientific article published on 15 December 2018

Evolving Trends of Gastrostomy Insertion Within a Pediatric Population

scientific article published on 01 November 2018

Experience of gastrostomy using a quality care framework: the example of rett syndrome

scientific article

Exploring genotype-phenotype relationships in the CDKL5 deficiency disorder using an international dataset

scientific article published on 12 October 2020

Exploring quality of life in individuals with a severe developmental and epileptic encephalopathy, CDKL5 Deficiency Disorder

scientific article published on 01 December 2020

Family satisfaction following spinal fusion in Rett syndrome.

scientific article

Feasibility and Effectiveness of an Individualized 12-Week "Uptime" Participation (U-PART) Intervention in Girls and Women With Rett Syndrome

scientific article published on 01 January 2020

Gastrointestinal dysmotility in Rett syndrome.

scientific article published on February 2014

Gastrostomy and quality of life in children with intellectual disability: a qualitative study

scientific article published on 08 April 2020

Hospital admissions in children with developmental disabilities from ethnic minority backgrounds

scientific article published on 09 September 2019

Impact of Gastrostomy Placement on Nutritional Status, Physical Health, and Parental Well-Being of Females with Rett Syndrome: A Longitudinal Study of an Australian Population

scientific article published on 23 June 2018

Impacts of caring for a child with the CDKL5 disorder on parental wellbeing and family quality of life

scientific article published on 19 January 2017

Implementing telehealth support to increase physical activity in girls and women with Rett syndrome<i>-</i>ActivRett: protocol for a waitlist randomised controlled trial

scientific article published on 29 December 2020

Improved Survival in Down Syndrome over the Last 60 Years and the Impact of Perinatal Factors in Recent Decades

scientific article published on December 2015

Longitudinal effects of caregiving on parental well-being: the example of Rett syndrome, a severe neurological disorder

scientific article published on 27 August 2018

Predicting Long-Term Survival Without Major Disability for Infants Born Preterm

scientific article published on 04 September 2019

Pregnancy and birth outcomes of mothers with intellectual disability and their infants: Advocacy needed to improve well-being

scientific article published on 19 November 2019

Prevalence and onset of comorbidities in the CDKL5 disorder differ from Rett syndrome

scientific article

Prevalence, clinical investigation, and management of gallbladder disease in Rett syndrome

scientific article published on 15 February 2014

Quantification of walking-based physical activity and sedentary time in individuals with Rett syndrome.

scientific article published on 6 February 2017

Recurrence Risk of Autism in Siblings and Cousins: A Multinational, Population-Based Study

scientific article published on 06 March 2019

Resourceful and creative methods are necessary to research rare disorders.

scientific article published on 18 April 2013

Respiratory morbidity in Rett syndrome: an observational study.

scientific article

Risk of Developmental Disorders in Children of Immigrant Mothers: A Population-Based Data Linkage Evaluation

scientific article published on 04 October 2018

Risk of Hospitalizations Following Gastrostomy in Children with Intellectual Disability

scientific article published on 04 December 2019

Risk of Mortality into Adulthood According to Gestational Age at Birth

scientific article

Seizure variables and their relationship to genotype and functional abilities in the CDKL5 disorder

scientific article published on 21 October 2016

Sleep disturbances in Rett syndrome: Impact and management including use of sleep hygiene practices

scientific article published on 28 April 2018

Surgical fusion of early onset severe scoliosis increases survival in Rett syndrome: a cohort study

scientific article published on 11 December 2015

The Natural History of Scoliosis in Females With Rett Syndrome.

scientific article published on 14 December 2015

The contributions of fetal growth restriction and gestational age to developmental outcomes at 12 months of age: A cohort study

scientific article published on 13 January 2020

The incidence, prevalence and clinical features of MECP2 duplication syndrome in Australian children

scientific article published on 12 February 2019

The trajectories of sleep disturbances in Rett syndrome.

scientific article

Transition to adulthood for young people with intellectual disability: the experiences of their families

scientific article published on 11 May 2016

Twenty years of surveillance in Rett syndrome: what does this tell us?

scientific article

Twenty-Five Year Survival of Children with Intellectual Disability in Western Australia

scientific article published on 10 July 2017

Use of the ketogenic diet to manage refractory epilepsy in CDKL5 disorder: Experience of >100 patients.

scientific article published on 12 June 2017

Using a large international sample to investigate epilepsy in Rett syndrome.

scientific article published on 19 February 2013

Vagus nerve stimulation for the treatment of refractory epilepsy in the CDKL5 Deficiency Disorder

scientific article published on 23 July 2018

Validating the Rett Syndrome Gross Motor Scale

scientific article published on 22 January 2016

Validation of intellectual disability coding through hospital morbidity records using an intellectual disability population-based database in Western Australia

scientific article published on 23 January 2018

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