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List of works by Scott D. Grosse

A Cost-Effectiveness Analysis of a Pilot Neonatal Screening Program for Sickle Cell Anemia in the Republic of Angola.

scientific article

A National Profile of Health Care and Family Impacts of Children With Muscular Dystrophy and Special Health Care Needs in the United States

scientific article published on September 27, 2011

A Public Health Framework for Rare Blood Disorders

scientific article published on December 1, 2011

A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability

scientific article published on 20 April 2014

A public health economic assessment of hospitals' cost to screen newborns for critical congenital heart disease.

scientific article published on January 2014

Accounting for differences in healthcare utilization and expenditures among US males with haemophilia by type of health insurance.

scientific article published on 2 February 2017

Adherence to Recommended Care Guidelines in the Treatment of Preschool-Age Medicaid-Enrolled Children With a Diagnosis of ADHD

scientific article published on 30 October 2018

Adjusting Health Expenditures for Inflation: A Review of Measures for Health Services Research in the United States.

scientific article published on 21 November 2016

Administrative data identify sickle cell disease: A critical review of approaches in U.S. health services research

scientific article published on 17 September 2020

Administrative data sets and health services research on hemoglobinopathies: a review of the literature.

scientific article

Are lower TSH cutoffs in neonatal screening for congenital hypothyroidism warranted? A debate.

scientific article

Assessing the Hereditary Hemorrhagic Telangiectasia Algorithms in a Community-Based Patient Population

scientific article published on 01 January 2019

Assisting states in assessing newborn screening options

scientific article

Association of US State Implementation of Newborn Screening Policies for Critical Congenital Heart Disease With Early Infant Cardiac Deaths

scientific article published in December 2017

Attention-deficit/hyperactivity disorder symptoms and child maltreatment: a population-based study.

scientific article published on 10 July 2008

Attitudes toward newborn screening for cytomegalovirus infection.

scientific article published on 14 November 2011

Autism spectrum disorders and health care expenditures: the effects of co-occurring conditions

scientific article published in January 2012

Challenges in Assessing the Cost-Effectiveness of Newborn Screening: The Example of Congenital Adrenal Hyperplasia

scientific article published on 25 October 2020

Characteristics of users of intrauterine devices and other reversible contraceptive methods in the United States.

scientific article published on 13 September 2011

Clinical penetrance in hereditary hemochromatosis: estimates of the cumulative incidence of severe liver disease among HFE C282Y homozygotes

scientific article

Cognitive outcomes and age of detection of severe mucopolysaccharidosis type 1.

scientific article published on 26 January 2017

Conducting Research on the Economics of Hypertension to Improve Cardiovascular Health.

scientific article published in December 2017

Congenital cytomegalovirus (CMV) infection as a cause of permanent bilateral hearing loss: a quantitative assessment.

scientific article published on 24 October 2007

Contribution of Sickle Cell Disease to the Pediatric Stroke Burden Among Hospital Discharges of African-Americans-United States, 1997-2012.

scientific article

Correction

Correction: Emergency Department Visits and Inpatient Admissions Associated with Priapism among Males with Sickle Cell Disease in the United States, 2006-2010

scientific article published on 24 August 2016

Correlates of In-Hospital Deaths among Hospitalizations with Pulmonary Embolism: Findings from the 2001−2008 National Hospital Discharge Survey

scientific article published on July 6, 2012

Cost and Cost-Effectiveness Assessments of Newborn Screening for Critical Congenital Heart Disease Using Pulse Oximetry: A Review.

scientific article published on 14 December 2017

Cost-Effectiveness/Cost-Benefit Analysis of Newborn Screening for Severe Combined Immune Deficiency in Washington State

scientific article published on 11 February 2016

Cost-effectiveness of Increasing Access to Contraception during the Zika Virus Outbreak, Puerto Rico, 2016

scientific article (publication date: 2017)

Cost-effectiveness of routine screening for critical congenital heart disease in US newborns

scientific article published on 5 August 2013

Cost-of-illness models for venous thromboembolism: One size does not fit all.

scientific article published on 30 July 2016

Criteria for fairly allocating scarce health-care resources to genetic tests: which matter most?

scientific article published on 07 August 2013

Cystic Fibrosis And Ivacaftor Use: The Authors Reply

scientific article published on 01 February 2019

Determinants of venous thromboembolism among hospitalizations of US adults: a multilevel analysis

scientific article

Developing Public Health Surveillance for Deep Vein Thrombosis and Pulmonary Embolism

scientific article published on December 1, 2011

Disability among individuals with sickle cell disease: literature review from a public health perspective.

scientific article published on December 2011

Disability and disability-adjusted life years: not the same.

scientific article published on March 2009

Discontinuation of thyroid hormone treatment among children in the United States with congenital hypothyroidism: findings from health insurance claims data

scientific article

Disease-related conditions in relatives of patients with hemochromatosis

scientific article published on 01 May 2001

Does newborn screening have 100% sensitivity to detect salt-wasting congenital adrenal hyperplasia?: A word of caution.

scientific article published in October 2014

Does newborn screening save money? The difference between cost-effective and cost-saving interventions.

scientific article published in February 2005

Early diagnosis of cystic fibrosis

scientific article published on 01 June 2001

Economic analyses of genetic tests in personalized medicine: clinical utility first, then cost utility.

scientific article published on 10 October 2013

Economic evaluation of a neural tube defect recurrence-prevention program.

scientific article published on 8 October 2008

Economic gains resulting from the reduction in children's exposure to lead in the United States.

scientific article

Emergency Department Visits and Inpatient Admissions Associated with Priapism among Males with Sickle Cell Disease in the United States, 2006-2010.

scientific article

Emergency department visits made by patients with sickle cell disease: a descriptive study, 1999-2007.

scientific article published in April 2010

Employment impact and financial burden for families of children with fragile X syndrome: findings from the National Fragile X Survey.

scientific article published on 26 August 2010

Estimated annual and lifetime labor productivity in the United States, 2016: implications for economic evaluations

article

Estimates of utility weights in hemophilia: implications for cost-utility analysis of clotting factor prophylaxis

scientific article

Evaluating Harms in the Assessment of Net Benefit: A Framework for Newborn Screening Condition Review

scientific article published on February 2016

Evaluation of the Validity and Utility of Genetic Testing for Rare Diseases

scientific article published on January 1, 2010

Exome sequencing: value is in the eye of the beholder

scientific article published on 14 October 2019

Exploring options for expanded newborn screening

article

Factors associated with high hospital resource use in a population-based study of children with orofacial clefts.

scientific article

Factors associated with the timeliness of postnatal surgical repair of spina bifida

scientific article published on 14 May 2016

Folic acid supplementation and neural tube defect recurrence prevention.

scientific article published in November 2007

Friction Cost Estimates of Productivity Costs in Cost-of-Illness Studies in Comparison with Human Capital Estimates: A Review

article

Genomic sequencing in acutely ill infants: what will it take to demonstrate clinical value?

scientific article published on 13 August 2018

Health care expenditures associated with venous thromboembolism among children.

scientific article

Health care expenditures for Medicaid‐covered males with haemophilia in the United States, 2008

scientific article published on December 21, 2011

Health care expenditures of children and adults with spina bifida in a privately insured U.S. population.

scientific article published in July 2007

Health policy for sickle cell disease in Africa: experience from Tanzania on interventions to reduce under-five mortality

scientific article published on 17 November 2014

Health services use among children diagnosed with medium-chain acyl-CoA dehydrogenase deficiency through newborn screening: a cohort study in Ontario, Canada

article

Health state preference scores for children with permanent childhood hearing loss: a comparative analysis of the QWB and HUI3.

scientific article published on 17 May 2008

Health state preference scores of children with spina bifida and their caregivers.

scientific article published in May 2005

Health utility elicitation: is there still a role for direct methods?

scientific article

Healthcare Costs of Pediatric Autism Spectrum Disorder in the United States, 2003-2015

scientific article published on 28 October 2020

Healthcare expenditures for males with haemophilia and employer‐sponsored insurance in the United States, 2008

scientific article published on December 12, 2011

Healthcare expenditures for privately insured US patients with cystic fibrosis, 2010-2016

article

Hearing Loss in Children With Asymptomatic Congenital Cytomegalovirus Infection.

scientific article published on 16 February 2017

Hospital use, associated costs, and payer status for infants born with spina bifida

scientific article published in November 2012

Hospitalization for urinary tract infections and the quality of preventive health care received by people with spina bifida.

scientific article published in July 2009

Hospitalizations and associated costs in a population-based study of children with Down syndrome born in Florida.

scientific article

How Economic Findings Can Inform Prevention Research in Cardiovascular Disease.

scientific article published in December 2017

How many deaths can be prevented by newborn screening for congenital adrenal hyperplasia?

scientific article published on 3 January 2007

In Reference to: "Cost and Utility of Thrombophilia Testing".

scientific article published in September 2017

Incidence-based cost estimates require population-based incidence data. A critique of Mahan et al.

scientific article

Iron overload: what is the role of public health?

scientific article published in December 2011

Is universal tumor testing for Lynch syndrome cost-effective? It depends!

scientific article published on 15 May 2018

Labor market productivity costs for caregivers of children with spina bifida: a population-based analysis.

scientific article published on 25 August 2008

Laboratory testing and diagnostic coding for cytomegalovirus among privately insured infants in the United States: a retrospective study using administrative claims data.

scientific article

Late-treated phenylketonuria and partial reversibility of intellectual impairment

scientific article

Lessons from cost-effectiveness research for United States public health policy.

scientific article published on January 2007

Leveraging birth defects surveillance data for health services research.

scientific article

Long-term economic effect of early childhood nutrition

scientific article published in February 2008

Measuring health and well-being effects in family caregivers of children with craniofacial malformations.

scientific article

Medical expenditures attributable to cerebral palsy and intellectual disability among Medicaid-enrolled children

scientific article published on January 11, 2012

Medical expenditures of children in the United States with fetal alcohol syndrome.

scientific article published on 10 November 2010

Modeling uncertain outcomes of genetic testing: factor V Leiden mutation and pregnant women.

scientific article published on 28 February 2013

Models of comprehensive multidisciplinary care for individuals in the United States with genetic disorders.

scientific article published on January 2009

Mortality of New York children with sickle cell disease identified through newborn screening

scientific article published on 25 September 2014

New estimates of the prevalence of neurological and sensory sequelae and mortality associated with congenital cytomegalovirus infection

scientific article

Newborn screening for X-linked adrenoleukodystrophy: evidence summary and advisory committee recommendation.

scientific article published on 23 June 2016

Newborn screening for inherited metabolic disease.

scientific article published in January 2007

Observed and expected frequencies of structural hemoglobin variants in newborn screening surveys in Africa and the Middle East: deviations from Hardy-Weinberg equilibrium

scientific article

Outpatient medical conditions among children and adults with spina bifida in the United States: Frequency and expenditures.

scientific article published on January 2010

Personalized medicine and genomics: challenges and opportunities in assessing effectiveness, cost-effectiveness, and future research priorities.

scientific article

Population-based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources

scientific article published on 29 March 2019

Prevalence of Venous Thromboembolism Among Privately Insured US Adults

scientific article published on October 25, 2010

Prevalence of congenital hypothyroidism--current trends and future directions: workshop summary.

scientific article published in May 2010

Preventable health and cost burden of adverse birth outcomes associated with pregestational diabetes in the United States

scientific article published on 28 October 2014

Prevention of intellectual disability through screening for congenital hypothyroidism: how much and at what level?

scientific article published on 17 January 2011

Prevention of venous thromboembolism in pregnancy: a review of guidelines, 2000-2011

scientific article published on 3 May 2012

Professional Fee Ratios for US Hospital Discharge Data

scientific article

Prophylaxis use among males with haemophilia B in the United States.

scientific article published on 06 August 2017

QALY weights for neurosensory impairments in pediatric economic evaluations: case studies and a critique.

scientific article published on June 2010

Quantifying Family Spillover Effects in Economic Evaluations: Measurement and Valuation of Informal Care Time

scientific article published on 01 April 2019

Racial/ethnic differences in hospital use and cost among a statewide population of children with Down syndrome

scientific article published on July 26, 2013

Reevaluating the benefits of folic acid fortification in the United States: economic analysis, regulation, and public health.

scientific article published on 29 September 2005

Retrospective Assessment of Cost Savings From Prevention: Folic Acid Fortification and Spina Bifida in the U.S.

scientific article published on 22 December 2015

Revival of the intrauterine device: increased insertions among US women with employer-sponsored insurance, 2002-2008.

scientific article published on 29 July 2011

Risk of venous thromboembolism occurrence among adults with selected autoimmune diseases: a study among a U.S. cohort of commercial insurance enrollees

scientific article

Role of pulse oximetry in examining newborns for congenital heart disease: a scientific statement from the AHA and AAP.

scientific article

Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease

scientific article

Screening for Congenital Cytomegalovirus After Newborn Hearing Screening: What Comes Next?

scientific article published on 24 January 2017

Second-hand smoke exposure and blood lead levels in U.S. children.

scientific article published in November 2003

Self-selection and evaluation of influenza vaccination effectiveness among elderly

scientific article published on 30 June 2006

Sickle cell disease incidence among newborns in New York State by maternal race/ethnicity and nativity

scientific article published on 27 September 2012

Sickle cell disease-related pediatric medical expenditures in the U.S.

scientific article published in April 2010

Strategies for Implementing Screening for Critical Congenital Heart Disease

scientific article published on October 10, 2011

Systematic review of the birth prevalence of congenital cytomegalovirus infection in developing countries.

scientific article published on 12 March 2014

The Skinny on COI Analysis

scholarly article by Phaedra Corso et al published July 2004 in Obesity

The Use of Economic Evaluation to Inform Newborn Screening Policy Decisions: The Washington State Experience.

scientific article published on June 2016

The continuing health burden of congenital hypothyroidism in the era of neonatal screening

scientific article published on 01 June 2011

The cost effectiveness of screening newborns for congenital adrenal hyperplasia

scientific article published on 14 September 2008

The cost effectiveness of universal versus selective newborn screening for sickle cell disease in the US and the UK: a critique.

scientific article

The cost-effectiveness of genetic testing strategies for Lynch syndrome among newly diagnosed patients with colorectal cancer

scientific article published on 01 February 2010

The cost-effectiveness of routine testing for Lynch syndrome in newly diagnosed patients with colorectal cancer in the United States: corrected estimates

scientific article published on June 2015

The economic burden of incident venous thromboembolism in the United States: A review of estimated attributable healthcare costs

scientific article

The effects of joint disease, inhibitors and other complications on health-related quality of life among males with severe haemophilia A in the United States.

scientific article published on 2 June 2017

The epidemiology of medium chain acyl-CoA dehydrogenase deficiency: an update.

scientific article

The impact of transient hypothyroidism on the increasing rate of congenital hypothyroidism in the United States.

scientific article published in May 2010

The need for a next-generation public health response to rare diseases

scientific article published on 27 October 2016

The politics of family planning in the Maghrib.

scientific article published on January 1982

The role of health technology assessment in coverage decisions on newborn screening

scientific article published on October 1, 2011

The use of US health insurance data for surveillance of rare disorders: hereditary hemorrhagic telangiectasia.

scientific article

Treated Prevalence of Attention-Deficit/Hyperactivity Disorder Increased from 2009 to 2015 Among School-Aged Children and Adolescents in the United States.

scientific article published on 22 March 2017

Trends in Venous Thromboembolism-Related Hospitalizations, 1994–2009

scientific article published on September 17, 2012

Trends in pediatric sickle cell disease-related mortality in the United States, 1983-2002.

scientific article published on 22 November 2008

U.S. trends in computed tomography use and diagnoses in emergency department visits by patients with symptoms suggestive of pulmonary embolism, 2001-2009.

scientific article published on October 2013

US State-Level Infertility Insurance Mandates and Health Plan Expenditures on Infertility Treatments

article

Understanding and improving health education among first-time parents of infants with sickle cell anemia in Alabama: a mixed methods approach

scientific article

Universal state newborn screening programs can reduce health disparities.

scientific article published in January 2015

Using multiple sources of data for surveillance of postoperative venous thromboembolism among surgical patients treated in Department of Veterans Affairs hospitals, 2005-2010.

scientific article

Utilization of a Medicaid-funded intervention for children with autism

scientific article published in April 2009

Valganciclovir Use Among Commercially and Medicaid-insured Infants With Congenital CMV Infection in the United States, 2009-2015.

scientific article published on 31 January 2018

Variation in immunoreactive trypsinogen concentrations among michigan newborns and implications for cystic fibrosis newborn screening

scientific article published on 16 September 2010

Venous thromboembolism and subsequent permanent work-related disability

scientific article published on 13 July 2016

Vital Signs: National and State-Specific Patterns of Attention Deficit/Hyperactivity Disorder Treatment Among Insured Children Aged 2-5 Years - United States, 2008-2014.

scientific article published on 6 May 2016

What Contribution Did Economic Evidence Make to the Adoption of Universal Newborn Hearing Screening Policies in the United States?

article

What is the value for money of prenatal carrier screening for spinal muscular atrophy? Too soon to say

scientific article published on 01 March 2010

What we don't know can hurt us: Nonresponse bias assessment in birth defects research

scientific article published on 14 July 2015

[Using value of information analysis in decision making about applied research. The case of genetic screening for hemochromatosis in Germany]

scientific article published on 01 May 2012