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List of works by Jeanette Wilburn

A qualitative study of the impact of Crohn's disease from a patient's perspective.

scientific article published on 12 May 2016

Adaptation and Validation of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for Use in Spain.

scientific article published on 15 December 2016

Adaptation and validation of the Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire for use in Serbia.

scientific article

Adaptation of the osteoarthritis-specific quality of life scale (the OAQoL) for use in Germany, Hungary, Italy, Spain and Turkey

scientific article published on 15 February 2017

Assessing quality of life in Crohn's disease: development and validation of the Crohn's Life Impact Questionnaire (CLIQ).

scientific article

Composite outcome measurement in clinical research: The triumph of illusion over reality?

scientific article published on 16 July 2020

Cross-cultural adaptation of the Cambridge Pulmonary Hypertension Outcome Review for use in patients with pulmonary hypertension in Colombia

scientific article published on 29 July 2019

Development and validation of the Bowel Cleansing Impact Review (BOCLIR).

scientific article published on 15 January 2013

Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition.

scientific article published on 12 April 2017

Further international adaptation and validation of the Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire

scientific article published in October 2014

Measurement of patient-reported outcomes. 1: The search for the Holy Grail

scientific article published on 05 January 2019

Measurement of patient-reported outcomes. 2: Are current measures failing us?

scientific article published on 08 January 2019

Patient value: its nature, measurement, and role in real world evidence studies and outcomes-based reimbursement

article

Psoriatic Arthritis Quality of Life questionnaire: translation, cultural adaptation and validation into Portuguese language.

scientific article

The development of the PlexiQoL: A patient-reported outcome measure for adults with neurofibromatosis type 1-associated plexiform neurofibromas

scientific article published on 21 October 2020

The impact of Dupuytren disease on patient activity and quality of life.

scientific article published in June 2013

The patient-reported impact of scars measure: development and validation.

scientific article

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