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List of works by Bregje Onwuteaka-Philipsen

"Being a burden to others" and wishes to die: An ethically complicated relation

scientific article published on 01 May 2019

"Keep All Thee 'Til the End": Reclaiming the Lifeworld for Patients in the Hospice Setting

scientific article

A "suicide pill" for older people: attitudes of physicians, the general population, and relatives of patients who died after euthanasia or physician-assisted suicide in The Netherlands

scientific article published on 01 July 2005

A Study of the First Year of the End-of-Life Clinic for Physician-Assisted Dying in the Netherlands

scientific article published on 10 August 2015

A comparison of attitudes towards end-of-life decisions: survey among the Dutch general public and physicians

scientific article published on 01 October 2005

A comparison of drugs and procedures of care in the Italian hospice and hospital settings: the final three days of life for cancer patients

scientific article

A comparison of physicians' end-of-life decision making for non-western migrants and Dutch natives in the Netherlands

scientific article published on 27 September 2008

A dignified last phase of life for patients with a migration background: A qualitative study

scientific article published on 11 September 2020

A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme

scientific article published on 24 October 2019

A post-mortem survey on end-of-life decisions using a representative sample of death certificates in Flanders, Belgium: research protocol

scientific article

A protocol for consultation of another physician in cases of euthanasia and assisted suicide

scientific article

A public health approach to improving palliative care for older people

article

A public health perspective on palliative care for older people: an introduction

article

Active Voluntary Euthanasia or Physician‐Assisted Suicide? ⬇️

scientific article published on 01 October 1997

Actual and preferred place of death of home-dwelling patients in four European countries: making sense of quality indicators

scientific article

Advance Care Planning in Nursing Home Patients With Dementia: A Qualitative Interview Study Among Family and Professional Caregivers

scientific article published on 5 August 2015

Advance care planning in Belgium and The Netherlands: a nationwide retrospective study via sentinel networks of general practitioners

scientific article

Advance directives in European long-term care facilities: a cross-sectional survey

scientific article published on 21 May 2019

Advance directives in the Netherlands: an empirical contribution to the exploration of a cross-cultural perspective on advance directives

scientific article published in March 2010

Analysis of the construct of dignity and content validity of the patient dignity inventory

scientific article

Appraisal of cooperation with a palliative care case manager by general practitioners and community nurses: a cross-sectional questionnaire study

scientific article

Appropriate care in the last phase of life

scientific article published in January 2017

Are care staff equipped for end-of-life communication? A cross-sectional study in long-term care facilities to identify determinants of self-efficacy

scientific article published on 08 January 2019

Are older long term care residents accurately prognosticated and consequently informed about their prognosis? Results from SHELTER study data in 5 European countries

scientific article published in PLoS ONE

Assessing the validity and intra-observer agreement of the MIDAM-LTC; an instrument measuring factors that influence personal dignity in long-term care facilities

scientific article published on 11 February 2014

Associations between Length of Stay in Long Term Care Facilities and End of Life Care. Analysis of the PACE Cross-Sectional Study

scientific article published on 16 April 2020

Attitudes and Practices of Euthanasia and Physician-Assisted Suicide in the United States, Canada, and Europe

scientific article

Attitudes of Dutch general practitioners and nursing home physicians to active voluntary euthanasia and physician-assisted suicide.

scientific article published in November 1995

Attitudes of nursing staff towards involvement in medical end-of-life decisions: a national survey study

scientific article published on 05 October 2013

Attitudes of physicians, nurses and relatives towards end-of-life decisions concerning nursing home patients with dementia.

scientific article published on 21 June 2005

Awareness and use of practice guidelines on medical end-of-life decisions in Dutch hospitals

scientific article published on 11 September 2009

Awareness of general practitioners concerning cancer patients' preferences for place of death: evidence from four European countries

scientific article published on 15 February 2013

Burden for family carers at the end of life; a mixed-method study of the perspectives of family carers and GPs.

scientific article

Burden on family carers and care-related financial strain at the end of life: a cross-national population-based study

scientific article

Can personal dignity be assessed by others? A survey study comparing nursing home residents' with family members', nurses' and physicians' answers on the MIDAM-LTC.

scientific article published on 19 June 2014

Can physicians conceive of performing euthanasia in case of psychiatric disease, dementia or being tired of living?

scientific article

Care and Decision-Making at the End of Life for Patients With a Non-Western Migration Background Living in The Netherlands: A Nationwide Mortality Follow-Back Study

scientific article published on 16 December 2019

Care avoidance among homeless people and access to care: an interview study among spiritual caregivers, street pastors, homeless outreach workers and formerly homeless people

article published in 2018

Care provided and care setting transitions in the last three months of life of cancer patients: a nationwide monitoring study in four European countries

scientific article

Care staff's self-efficacy regarding end-of-life communication in the long-term care setting: Results of the PACE cross-sectional study in six European countries

scientific article published on 30 January 2019

Caregivers' understanding of dementia predicts patients' comfort at death: a prospective observational study

scientific article

Case management in primary palliative care is associated more strongly with organisational than with patient characteristics: results from a cross-sectional prospective study

scientific article published on 2 July 2015

Cases of euthanasia and assisted suicide reported to the public prosecutor in North Holland over 10 years

scientific article published on March 1996

Cases of euthanasia and physician assisted suicide among AIDS patients reported to the Public Prosecutor in North Holland ⬇️

scientific article published on January 1, 1998

Challenges in shared decision making in advanced cancer care: a qualitative longitudinal observational and interview study

scientific article published on 16 December 2015

Changes in the personal dignity of nursing home residents: a longitudinal qualitative interview study

scientific article

Changes over a decade in end-of-life care and transfers during the last 3 months of life: A repeated survey among proxies of deceased older people ⬇️

scientific article published on September 17, 2012

Chemotherapy and Tyrosine Kinase Inhibitors in the last month of life in patients with metastatic lung cancer: A patient file study in the Netherlands

scientific article published on 21 December 2019

Classification of end-of-life decisions by Dutch physicians: findings from a cross-sectional survey

scientific article published on 21 July 2020

Clinical Usefulness of Tools to Support Decision-making for Palliative Treatment of Metastatic Colorectal Cancer: A Systematic Review

scientific article

Clinical problems with the performance of euthanasia and physician-assisted suicide in The Netherlands

scientific article (publication date: 24 February 2000)

Comfort goal of care and end-of-life outcomes in dementia: A prospective study

scientific article published on 17 February 2015

Commonalities and differences in legal euthanasia and physician-assisted suicide in three countries: a population-level comparison

scientific article published on 11 July 2019

Community Education for a Dignified Last Phase of Life for Migrants: A Community Engagement, Mixed Methods Study among Moroccan, Surinamese and Turkish Migrants

scientific article published on 24 October 2020

Comparing Palliative Care in Care Homes Across Europe (PACE): Protocol of a Cross-sectional Study of Deceased Residents in 6 EU Countries

scientific article published on 6 May 2016

Comparing symptom ratings by staff and family carers in residents dying in long-term care facilities in three European countries, results from a PACE-survey

scientific article published on 10 March 2020

Comparison of Site of Death, Health Care Utilization, and Hospital Expenditures for Patients Dying With Cancer in 7 Developed Countries

scientific article published on January 2016

Comparison of end-of-life care for older people living at home and in residential homes: a mortality follow-back study among GPs in the Netherlands

scientific article

Complexities in consultations in case of euthanasia or physician-assisted suicide: a survey among SCEN physicians

scientific article published on 09 January 2020

Complexities in euthanasia or physician-assisted suicide as perceived by Dutch physicians and patients' relatives

scientific article published on 12 June 2014

Concept of unbearable suffering in context of ungranted requests for euthanasia: qualitative interviews with patients and physicians

scientific article

Congruence between patients' preferred and perceived participation in medical decision-making: a review of the literature

scientific article

Consensus on treatment for residents in long-term care facilities: perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

scientific article published on 29 August 2019

Consultants in cases of intended euthanasia or assisted suicide in The Netherlands

scientific article published in April 1999

Consultation and discussion with other physicians in cases of requests for euthanasia and assisted suicide refused by family physicians

scientific article published on 01 January 2000

Consulting a Trained Physician When Considering a Request for Euthanasia: An Evaluation of the Process in Flanders and The Netherlands

Content and spiritual items of quality-of-life instruments appropriate for use in palliative care: a review

scientific article published on 11 June 2010

Continuing or forgoing treatment at the end of life? Preferences of the general public and people with an advance directive

scientific article published on 02 September 2014

Continuity of GP care after the last hospitalization for patients who died from cancer, chronic obstructive pulmonary disease or heart failure: a retrospective cohort study using administrative data

scientific article published on 01 May 2019

Continuous Deep Sedation Until Death in Belgium: A Nationwide Survey

article

Continuous deep sedation for patients nearing death in the Netherlands: descriptive study

scientific article

Correction: Technical-efficiency analysis of end-of-life care in long-term care facilities within Europe: A cross-sectional study of deceased residents in 6 EU countries (PACE)

scientific article published in PLoS ONE

Cross-Sectional Research Into People Passing Away Through Self-Ingesting Self-Collected Lethal Medication After Receiving Demedicalized Assistance in Suicide

scientific article published on 02 June 2020

Cross-sectional research into counselling for non-physician assisted suicide: who asks for it and what happens?

scientific article

Dealing with requests for euthanasia: a qualitative study investigating the experience of general practitioners

scientific article

Death with dignity from the perspective of the surviving family: a survey study among family caregivers of deceased older adults

scientific article published on 11 April 2013

Deaths of children occurring at home in six European countries

scientific article published on 25 November 2009

Decision support systems for incurable non-small cell lung cancer: a systematic review

scientific article published on 2 October 2017

Decision-making capacity and communication about care of older people during their last three months of life

scientific article

Decreased costs and retained QoL due to the 'PACE Steps to Success' intervention in LTCFs: cost-effectiveness analysis of a randomized controlled trial

scientific article published on 22 September 2020

Depression and explicit requests for euthanasia in end-of-life cancer patients in primary care in the Netherlands: a longitudinal, prospective study ⬇️

scientific article published on March 18, 2011

Depressive symptoms in the last days of life of patients with cancer: a nationwide retrospective mortality study

scientific article published on 9 February 2015

Design of the Advance Directives Cohort: a study of end-of-life decision-making focusing on Advance Directives

scientific article

Development and dissemination of institutional practice guidelines on medical end-of-life decisions in Dutch health care institutions

scientific article published on 03 November 2009

Development and validation of a frailty index in the Longitudinal Aging Study Amsterdam.

scientific article published on 28 November 2016

Developments in the practice of physician-assisted dying: perceptions of physicians who had experience with complex cases

scientific article published on 5 August 2016

Differences between terminally ill cancer patients who died after euthanasia had been performed and terminally ill cancer patients who did not request euthanasia

scientific article published in December 2005

Differences in place of death between lung cancer and COPD patients: a 14-country study using death certificate data

scientific article

Differences in primary palliative care between people with organ failure and people with cancer: An international mortality follow-back study using quality indicators

scientific article published on 30 July 2018

Dignity and the factors that influence it according to nursing home residents: a qualitative interview study

scientific article published on 26 May 2013

Discomfort in dementia patients dying from pneumonia and its relief by antibiotics

scientific article

Discomfort in nursing home patients with severe dementia in whom artificial nutrition and hydration is forgone

scientific article published in August 2005

Discussing End-of-Life Issues in the Last Months of Life: A Nationwide Study among General Practitioners

Discussing prognosis with terminally ill cancer patients and relatives: A survey of physicians’ intentions in seven countries

Do guidelines on euthanasia and physician-assisted suicide in Dutch hospitals and nursing homes reflect the law? A content analysis

scientific article published on June 27, 2011

Does health status affect perceptions of factors influencing dignity at the end of life?

scientific article published on 8 November 2012

Dutch criteria of due care for physician-assisted dying in medical practice: a physician perspective

scientific article published in September 2008

Dutch experience of monitoring active ending of life for newborns

scientific article published on April 2010

Dutch experience of monitoring euthanasia

scientific article published in September 2005

Dying in long-term care facilities in Europe: the PACE epidemiological study of deceased residents in six countries

scientific article published on 30 August 2019

Dynamics in the sense of dignity over the course of illness: A longitudinal study into the perspectives of seriously ill patients

scientific article

EORTC QLQ-C15-PAL: the new standard in the assessment of health-related quality of life in advanced cancer?

article

Education on end-of-life care in the medical curriculum: students' opinions and knowledge

scientific article published in April 2010

End-of-Life Care and Circumstances of Death in Patients Dying As a Result of Cancer in Belgium and the Netherlands: A Retrospective Comparative Study

article

End-of-Life Decision Making in Europe and Australia

article

End-of-Life Decisions in the Netherlands over 25 Years

scientific article published in August 2017

End-of-life care for homeless people in shelter-based nursing care settings: A retrospective record study

scientific article published on 30 July 2020

End-of-life care in general practice: A cross-sectional, retrospective survey of 'cancer', 'organ failure' and 'old-age/dementia' patients

scientific article published on 18 March 2014

End-of-life communication in advanced cancer: international trends (2009-2014)

scientific article published on 27 April 2020

End-of-life communication: a retrospective survey of representative general practitioner networks in four countries

scientific article published on 7 August 2013

End-of-life decisions for children under 1 year of age in the Netherlands: decreased frequency of administration of drugs to deliberately hasten death

scientific article published on 13 August 2015

End-of-life decisions in the United Kingdom

scholarly article by Agnes van der Heide published in May 2009

End-of-life decisions: a cross-national study of treatment preference discussions and surrogate decision-maker appointments

scientific article

End-of-life hospital referrals by out-of-hours general practitioners: a retrospective chart study

scientific article

End-of-life practices in the Netherlands under the Euthanasia Act

scientific article published on 01 May 2007

End-of-life treatment decisions in nursing home residents dying with dementia in the Netherlands

scientific article published on 29 December 2016

Ervaringen van familie met de besluitvorming rond kunstmatige toediening van vocht en voedsel (ktvv) bij mensen met dementie in het verpleeghuis

scientific article published in April 2006

Establishing specialized health services for professional consultation in euthanasia: experiences in the Netherlands and Belgium

scientific article

Euthanasia and Physician-Assisted Suicide-In Reply

scientific article published in October 2016

Euthanasia and old age

scientific article published on 01 November 1997

Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001.

scientific article published in August 2003

Euthanasia and physician-assisted suicide in amyotrophic lateral sclerosis: a prospective study

scientific article

Euthanasia and physician-assisted suicide in patients suffering from psychiatric disorders: a cross-sectional study exploring the experiences of Dutch psychiatrists

scientific article published on 19 February 2019

Euthanasia requests and cancer types in the Netherlands: is there a relationship?

scientific article published on 07 July 2008

Euthanasia, physician-assisted suicide, and other medical practices involving the end of life in the Netherlands, 1990-1995.

scientific article published in November 1996

Euthanatics: implementation of a protocol to standardise euthanatics among pharmacists and GPs ⬇️

scientific article published on June 1, 1997

Evaluating the implementation of the PACE Steps to Success Programme in long-term care facilities in seven countries according to the RE-AIM framework

scientific article published on 19 December 2019

Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial.

scientific article

Evaluation of quality-of-life measures for use in palliative care: a systematic review

scientific article published on 20 October 2009

Evaluation of the notification procedure for physician-assisted death in the Netherlands

scientific article published on November 1996

Experiences of Dutch general practitioners and district nurses with involving care services and facilities in palliative care: a mixed methods study

scientific article published on 08 November 2018

Experiences with counselling to people who wish to be able to self-determine the timing and manner of one's own end of life: a qualitative in-depth interview study

scientific article published on 23 December 2019

Factors associated with fulfilling the preference for dying at home among cancer patients: the role of general practitioners

scientific article

Factors associated with initiation of advance care planning in dementia: a systematic review

scientific article published on January 2014

Factors associated with requesting and receiving euthanasia: a nationwide mortality follow-back study with a focus on patients with psychiatric disorders, dementia, or an accumulation of health problems related to old age

article

Factors related to establishing a comfort care goal in nursing home patients with dementia: a cohort study among family and professional caregivers

scientific article

Feeding nursing home patients with severe dementia: a qualitative study

scientific article published on 01 May 2003

Final transitions to place of death: patients and families wishes

scientific article

Forgoing artificial nutrition and hydration in nursing home patients with dementia: patients, decision making, and participants.

scientific article

Forgoing artificial nutrition or hydration in patients nearing death in six European countries

scientific article published on 2 July 2007

Frequency and determinants of advance directives concerning end-of-life care in The Netherlands.

scientific article published on 12 September 2005

From Advance Euthanasia Directive to Euthanasia: Stable Preference in Older People?

scientific article published on 15 June 2016

General Practitioner Awareness of Preferred Place of Death and Correlates of Dying in a Preferred Place: A Nationwide Mortality Follow-Back Study in The Netherlands

article by Ebun Abarshi et al published October 2009 in Journal of Pain and Symptom Management

General practitioners' perspectives on the avoidability of hospitalizations at the end of life: A mixed-method study

scientific article published on 2 April 2014

Granted, undecided, withdrawn, and refused requests for euthanasia and physician-assisted suicide

scientific article published in August 2005

Guidelines on euthanasia and pain alleviation: compliance and opinions of physicians

scientific article

Home care for terminally ill patients: the experiences of family caregivers with and without paid work

scientific article published on 20 November 2019

Hospice care in the Netherlands: who applies and who is admitted to inpatient care?

scientific article published on 28 January 2016

Hospitalisations at the end of life in four European countries: a population-based study via epidemiological surveillance networks

scientific article published on 19 November 2015

Hospitalizations of cancer patients in the last month of life: quality indicator scores reveal large variation between four European countries in a mortality follow-back study

scientific article

How Dementia Affects Personal Dignity: A Qualitative Study on the Perspective of Individuals With Mild to Moderate Dementia

scientific article published on 30 September 2014

How could hospitalisations at the end of life have been avoided? A qualitative retrospective study of the perspectives of general practitioners, nurses and family carers

scientific article

How do Dutch primary care providers overcome barriers to advance care planning with older people? A qualitative study

scientific article published on 01 March 2019

How do general end-of-life treatment goals and values relate to specific treatment preferences? A population-based study

How do general practitioners assess the criteria for due care for euthanasia in concrete cases?

scientific article

How do treatment aims in the last phase of life relate to hospitalizations and hospital mortality? A mortality follow-back study of Dutch patients with five types of cancer

scientific article published on 22 September 2017

How patients and relatives experience a visit from a consulting physician in the euthanasia procedure: a study among relatives and physicians

scientific article

How should realism and hope be combined in physician-patient communication at the end of life? An online focus-group study among participants with and without a Muslim background

scientific article

How to help researchers in palliative care improve responsiveness to migrants and other underrepresented populations: developing and testing a self-assessment instrument

scientific article published on 21 October 2019

Identifying patients who could benefit from palliative care by making use of the general practice information system: the Surprise Question versus the SPICT

scientific article published on 19 May 2020

Implementation of a service for physicians' consultation and information in euthanasia requests in Belgium

scientific article published on 5 January 2012

Improved end-of-life care for patients with dementia: greater family satisfaction and possibly greater end-of-life comfort

scientific article published in January 2013

Improving palliative care provision in primary care: a pre- and post-survey evaluation among PaTz groups

scientific article published on 26 March 2018

Influence of physicians' life stances on attitudes to end-of-life decisions and actual end-of-life decision-making in six countries

scientific article published in April 2008

International study of the place of death of people with cancer: a population-level comparison of 14 countries across 4 continents using death certificate data.

scientific article

International variation in place of death of older people who died from dementia in 14 European and non-European countries

scientific article published on 18 December 2014

Interprofessional communication between oncologic specialists and general practitioners on end-of-life issues needs improvement

scientific article published in September 2016

Interviews on end-of-life care with older people: reflections on six european studies.

scientific article published on 06 July 2011

Inventory of oncologists' unmet needs for tools to support decision-making about palliative treatment for metastatic colorectal cancer

Involvement of a Case Manager in Palliative Care Reduces Hospitalisations at the End of Life in Cancer Patients; A Mortality Follow-Back Study in Primary Care

scientific article published on 24 July 2015

Involvement of supportive care professionals in patient care in the last month of life

scientific article

Is In-Hospital Mortality Higher in Patients With Metastatic Lung Cancer Who Received Treatment in the Last Month of Life? A Retrospective Cohort Study

scientific article published on 05 July 2019

Legal physician-assisted dying in Oregon and the Netherlands: evidence concerning the impact on patients in "vulnerable" groups

scientific article published on October 2007

Mechanisms that contribute to the tendency to continue chemotherapy in patients with advanced cancer. Qualitative observations in the clinical setting

scientific article published on 2 September 2015

Medical End-of-Life Practices under the Euthanasia Law in Belgium

article

Medical end-of-life decisions for children in the Netherlands

scientific article published in September 2005

Medical end-of-life decisions made for neonates and infants in the Netherlands, 1995-2001

scientific article published on 01 April 2005

Motivations, aims and communication around advance directives: a mixed-methods study into the perspective of their owners and the influence of a current illness

scientific article published on 19 March 2014

Nationwide continuous monitoring of end-of-life care via representative networks of general practitioners in Europe

scientific article

Nationwide survey to evaluate the decision-making process in euthanasia requests in Belgium: do specifically trained 2nd physicians improve quality of consultation?

scientific article

Needs with Regard to Decision Support Systems for Treating Patients with Incurable Non-small Cell Lung Cancer

scientific article published on 01 April 2020

No increase in demand for euthanasia following implementation of the Euthanasia Act in The Netherlands; pain as a reason for euthanasia request was increasing before implementation but declined subsequently

scientific article published on 28 July 2010

Nursing home staff's views on residents' dignity: a qualitative interview study

scientific article

Nursing staff and euthanasia in the Netherlands. A nation-wide survey on attitudes and involvement in decision making and the performance of euthanasia

scientific article published on 21 November 2015

Obligatory consultation of an independent physician on euthanasia requests in the Netherlands: what influences the SCEN physicians judgment of the legal requirements of due care?

scientific article published on 15 December 2013

Old age and forgoing treatment: a nationwide mortality follow-back study in the Netherlands

scientific article published on 20 April 2015

Older Dutch People's Self-Reported Advance Euthanasia Directive Completion Before and After the Enactment of the Euthanasia Law: A Time Trend Study (1998-2011).

scientific article

Older patients' attitudes towards and experiences of patient-physician end-of-life communication: a secondary analysis of interviews from British, Dutch and Belgian patients

scientific article

Older people who are 'weary of life': their expectations for the future and perceived hopelessness ⬇️

scientific article published on 01 September 2011

Older peoples' attitudes towards euthanasia and an end-of-life pill in The Netherlands: 2001–2009 ⬇️

scientific article published on January 12, 2012

Opioid underuse in terminal care of long-term care facility residents with pain and/or dyspnoea: A cross-sectional PACE-survey in six European countries

scientific article published on 14 April 2020

Opioid, antipsychotic and hypnotic use in end of life in long-term care facilities in six European countries: results of PACE

scientific article published on 01 February 2019

PaTz groups for primary palliative care: reinventing cooperation between general practitioners and district nurses in palliative care: an evaluation study combining data from focus groups and a questionnaire

scientific article

Palliative care case management in primary care settings: A nationwide survey

scientific article published on 29 March 2013

Palliative care case managers in primary care: a descriptive study of referrals in relation to treatment aims

scientific article published on 11 December 2014

Palliative care for homeless people: a systematic review of the concerns, care needs and preferences, and the barriers and facilitators for providing palliative care

scientific article published on 24 April 2018

Palliative care in mental health facilities from the perspective of nurses: a mixed-methods study

scientific article

Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

scientific article published on 01 July 2019

Palliative care service use in four European countries: a cross-national retrospective study via representative networks of general practitioners

scientific article

Palliative care training: a survey of physicians in Australia and Europe

article

Palliative treatment alternatives and euthanasia consultations: a qualitative interview study

scientific article published on 07 April 2011

Patients' preferences for participation in treatment decision-making at the end of life: qualitative interviews with advanced cancer patients

scientific article

Personal Dignity in the Terminally Ill from the Perspective of Caregivers: A Survey among Trained Volunteers and Physicians

Perspectives of Medical Specialists on Sharing Decisions in Cancer Care: A Qualitative Study Concerning Chemotherapy Decisions With Patients With Recurrent Glioblastoma

scientific article published on 5 August 2015

Physical and Psychological Distress Are Related to Dying Peacefully in Residents With Dementia in Long-Term Care Facilities

scientific article published on 4 April 2015

Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries

scientific article published on 23 October 2018

Physician discussions with terminally ill patients: a cross-national comparison.

scientific article

Physician reports of terminal sedation without hydration or nutrition for patients nearing death in the Netherlands

scientific article

Physician-assisted deaths under the euthanasia law in Belgium: a population-based survey

scientific article

Physicians' and Public Attitudes Toward Euthanasia in People with Advanced Dementia

scientific article published on 11 July 2020

Physicians' attitudes towards end-of-life decisions: a comparison between seven countries

scientific article

Physicians' experiences with demented patients with advance euthanasia directives in the Netherlands

scientific article published in July 2005

Physicians' experiences with end-of-life decision-making: survey in 6 European countries and Australia

scientific article

Physicians' experiences with euthanasia: a cross-sectional survey amongst a random sample of Dutch physicians to explore their concerns, feelings and pressure

scientific article published on 17 December 2019

Physicians' labelling of end-of-life practices: a hypothetical case study

scientific article published in January 2010

Physicians' opinions on palliative care and euthanasia in the Netherlands

scientific article published on October 2006

Physicians' perceptions of suffering in people with dementia at the end of life

scientific article published on 23 January 2017

Physicians' willingness to grant requests for assistance in dying for children: a study of hypothetical cases

scientific article published in May 2005

Place of death for people with HIV: a population-level comparison of eleven countries across three continents using death certificate data

scientific article published on 25 January 2018

Place of death in metropolitan regions: metropolitan versus non-metropolitan variation in place of death in Belgium, The Netherlands and England

scientific article

Place of death in the population dying from diseases indicative of palliative care need: a cross-national population-level study in 14 countries

scientific article published on 22 July 2015

Place of death of older persons with dementia. A study in five European countries

scientific article published in April 2010

Policy statements and practice guidelines for medical end-of-life decisions in Dutch health care institutions: developments in the past decade

scientific article published on 01 April 2009

Population-based study of dying in hospital in six European countries

scientific article

Potentially inappropriate treatments at the end of life in nursing home residents: Findings from the PACE cross-sectional study in 6 European countries

scientific article published on 08 September 2020

Predictors of survival in nursing home patients with severe dementia in whom artificial nutrition and hydration are [corrected] forgone

scientific article published on 18 January 2006

Preferences and actual treatment of older adults at the end of life. A mortality follow-back study

scientific article published on 01 October 2013

Preferences in end-of-life care of older persons: after-death interviews with proxy respondents

scientific article published on 01 December 2004

Preferences of the Dutch general public for a good death and associations with attitudes towards end-of-life decision-making.

scientific article published in October 2006

Preferences on forgoing end-of-life treatment are stable over time with people owning an advance directive; A cohort study

scientific article published on 29 May 2020

Pressure in dealing with requests for euthanasia or assisted suicide. Experiences of general practitioners

scientific article published on 15 May 2019

Preventing unwanted situations and gaining trust: a qualitative study of older people and families' experiences with advance care planning in the daily practice of primary care

scientific article published on 09 December 2019

Primary care patients hastening death by voluntarily stopping eating and drinking

scientific article

Process and outcomes of euthanasia requests under the belgian act on euthanasia: a nationwide survey

scientific article

Proxy reporting in after-death interviews: the use of proxy respondents in retrospective assessment of chronic diseases and symptom burden in the terminal phase of life ⬇️

scientific article published on March 1, 2003

Psychiatric consultation with regard to requests for euthanasia or physician-assisted suicide

scientific article published in July 2004

Psychotropic drug prescription rates in primary care for people with dementia from recorded diagnosis onwards

scientific article published on 06 October 2020

Public and physicians' support for euthanasia in people suffering from psychiatric disorders: a cross-sectional survey study

scientific article published on 11 September 2019

Quality of dying and quality of end-of-life care of nursing home residents in six countries: An epidemiological study

scientific article published on 01 October 2018

Quality of dying of nursing home residents with dementia as judged by relatives

scientific article published on 5 June 2013

Reasons for hospitalisation at the end of life: differences between cancer and non-cancer patients

article by Maria C. De Korte-Verhoef et al published 22 October 2013 in Supportive Care in Cancer

Recognising patients who will die in the near future: a nationwide study via the Dutch Sentinel Network of GPs.

scientific article

Recruiting end-of-life cancer patients in the Netherlands for a study on suffering and euthanasia requests ⬇️

scientific article published on June 15, 2011

Reducing questionnaire length did not improve physician response rate: a randomized trial

scientific article published on 28 November 2013

Refused and granted requests for euthanasia and assisted suicide in the Netherlands: interview study with structured questionnaire

scientific article published on October 2000

Regional variation in hospital care at the end-of-life of Dutch patients with lung cancer exists and is not correlated with primary and long-term care

scientific article published on 18 March 2020

Regulating physician-assisted dying for minors in the Netherlands: views of paediatricians and other physicians

scientific article published on January 2007

Regulating voluntary assisted dying in Australia: some insights from the Netherlands

scientific article published on 08 September 2019

Relating cause of death with place of care and healthcare costs in the last year of life for patients who died from cancer, chronic obstructive pulmonary disease, heart failure and dementia: A descriptive study using registry data

scientific article

Relatives of deceased patients with metastatic lung cancer's views on the achievement of treatment goals and the choice to start treatment: a structured telephone interview study

scientific article published on 19 June 2020

Relatives' perspective on the terminally ill patients who died after euthanasia or physician-assisted suicide: a retrospective cross-sectional interview study in the Netherlands

scientific article published in January 2007

Relieving pain and suffering does not hasten death

scientific article published on 01 August 2008

Requests for euthanasia and physician-assisted suicide and the availability and application of palliative options.

scientific article published in December 2006

Requests for euthanasia or physician-assisted suicide from older persons who do not have a severe disease: an interview study

scientific article published on 01 May 2005

Requests for euthanasia: origin of suffering in ALS, heart failure, and cancer patients

scientific article published on 11 February 2010

Requests to forgo potentially life-prolonging treatment and to hasten death in terminally ill cancer patients: a prospective study

scientific article published on 01 February 2006

Responders and non-responders in a study on medical end-of-life decisions in Denmark, the Netherlands, Sweden and Switzerland

scientific article published in January 2006

Retrospective and prospective data collection compared in the Dutch End Of Life in Dementia (DEOLD) study

scientific article

Role and involvement of life end information forum physicians in euthanasia and other end-of-life care decisions in Flanders, Belgium

scientific article published on 24 September 2009

STRUCTURES, ORGANIZATION, AND CHALLENGES OF LONG TERM CARE FACILITIES IN EUROPE BASED ON PACE PROJECT

scholarly article in Innovation in Aging, vol. 1, Suppl 1, June 2017

Selection bias in family reports on end of life with dementia in nursing homes

scientific article

Self-reported health, healthcare service use and health-related needs: A comparison of older and younger homeless people

scientific article published on 25 April 2019

Self-reported knowledge, attitudes, and behaviour towards hospice care and how are these related to training in palliative care: An online survey among oncologists in the Czech Republic and Slovakia

scholarly article by Martin Loucka et al published 26 November 2013 in Progress in palliative care

Sex differences in healthy life expectancy among nonagenarians: A multistate survival model using data from the Vitality 90+ study

scientific article published on 24 December 2018

Should palliative care patients' hope be truthful, helpful or valuable? An interpretative synthesis of literature describing healthcare professionals' perspectives on hope of palliative care patients

scientific article published on 15 April 2013

Spiritual care at the end of life in the primary care setting: experiences from spiritual caregivers - a mixed methods study

scientific article published on 09 November 2019

Stability of end-of-life preferences in relation to health status and life-events: A cohort study with a 6-year follow-up among holders of an advance directive

scientific article published in PLoS ONE

Starting artificial nutrition and hydration in patients with dementia in The Netherlands: frequencies, patient characteristics and decision-making process

scientific article published in February 2007

Strengthening the spiritual domain in palliative care through a listening consultation service by spiritual caregivers in Dutch PaTz-groups: an evaluation study

scientific article published on 29 June 2020

Striving for quality or length at the end-of-life: attitudes of the Dutch general public.

scientific article published on 8 December 2004

Support and consultation for general practitioners concerning euthanasia: the SCEA project. Support and Consultation in Euthanasia in Amsterdam

scientific article published on 01 April 2001

Symptoms, treatment and "dying peacefully" in terminally ill cancer patients: a prospective study

scientific article published on 2 December 2004

Symptoms, unbearability and the nature of suffering in terminal cancer patients dying at home: a prospective primary care study

scientific article

Technical-efficiency analysis of end-of-life care in long-term care facilities within Europe: A cross-sectional study of deceased residents in 6 EU countries (PACE)

scientific article published in PLoS ONE

Terminal sedation and euthanasia: a comparison of clinical practices

scientific article published on 01 April 2006

The Intensity of Hospital Care Utilization by Dutch Patients With Lung or Colorectal Cancer in their Final Months of Life

scientific article published on 01 January 2019

The Rising Frequency of Continuous Deep Sedation in the Netherlands, a Repeated Cross-Sectional Survey in 2005, 2010, and 2015

scientific article published on 01 August 2019

The Views of Homeless People and Health Care Professionals on Palliative Care and the Desirability of Setting Up a Consultation Service: A Focus Group Study

scientific article published on 08 June 2018

The association between PaTz and improved palliative care in the primary care setting: a cross-sectional survey

scientific article published on 03 August 2019

The broad spectrum of unbearable suffering in end-of-life cancer studied in dutch primary care ⬇️

scientific article published on August 1, 2012

The development of a model of dignity in illness based on qualitative interviews with seriously ill patients ⬇️

scientific article published on January 8, 2013

The development of an instrument to measure factors that influence self-perceived dignity

scientific article published on 3 February 2011

The emotional impact on physicians of hastening the death of a patient

scientific article published on November 2001

The first five years of euthanasia legislation in Belgium and the Netherlands: description and comparison of cases

scientific article published on 20 July 2011

The last phase of life: who requests and who receives euthanasia or physician-assisted suicide?

scientific article published on 01 July 2010

The reporting rate of euthanasia and physician-assisted suicide: a study of the trends

scientific article published on December 2008

The role of research in improving responsiveness of palliative care to migrants and other underserved populations in the Netherlands: a qualitative interview study

scientific article published on 06 January 2021

The role of the nurse in active euthanasia and physician‐assisted suicide ⬇️

scientific article published on 01 August 1997

The role of the social network in active euthanasia and physician-assisted suicide

scientific article published on 01 September 1996

The use of opioids at the end of life: knowledge level of pharmacists and cooperation with physicians

scientific article

The use of opioids at the end of life: the knowledge level of Dutch physicians as a potential barrier to effective pain management ⬇️

scientific article published on November 12, 2010

There is more to end-of-life practices than euthanasia - Authors' reply

scientific article published in January 2013

Tracking changes in frailty throughout later life: results from a 17-year longitudinal study in the Netherlands

scientific article published on 01 September 2018

Training needs of nurses and social workers in the end-of-life care for people with intellectual disabilities: a national survey

scientific article published on 25 July 2013

Trajectories to seeking demedicalised assistance in suicide: a qualitative in-depth interview study

scientific article published on 30 November 2016

Transitions between care settings at the end of life in the Netherlands: results from a nationwide study

scientific article published on 10 December 2009

Transitions between health care settings in the final three months of life in four EU countries

scientific article published on 30 March 2015

Trends and determinants of end-of-life practices in ALS in the Netherlands

scientific article published in September 2009

Trends in end-of-life practices before and after the enactment of the euthanasia law in the Netherlands from 1990 to 2010: a repeated cross-sectional survey

scientific article published on 11 July 2012

Trends in medical end-of-life decision making in Flanders, Belgium 1998-2001-2007.

scientific article published on 29 December 2010

Trends in the use of opioids at the end of life and the expected effects on hastening death

scientific article published on 9 August 2008

Two Decades of Research on Euthanasia from the Netherlands. What Have We Learnt and What Questions Remain?

scientific article

Two decades of do-not-resuscitate decisions in the Netherlands

scientific article published on 17 July 2015

Unbearability of suffering at the end of life: the development of a new measuring device, the SOS-V.

scientific article

Unbearable suffering and requests for euthanasia prospectively studied in end-of-life cancer patients in primary care

scientific article

Understanding why older people develop a wish to die: a qualitative interview study

scientific article published in January 2011

Use of palliative care services and general practitioner visits at the end of life in The Netherlands and Belgium

scientific article published on 15 September 2010

Using drugs to end life without an explicit request of the patient

scientific article published in March 2007

Variation in the implementation of PaTz: a method to improve palliative care in general practice - a prospective observational study

scientific article published on 16 January 2020

Voluntary active euthanasia and doctor-assisted suicide: knowledge and attitudes of Dutch medical students ⬇️

scientific article published on November 1, 1996

What Goals Do Patients and Oncologists Have When Starting Medical Treatment for Metastatic Lung Cancer?

scientific article published on 21 June 2020

What happens after a request for euthanasia is refused? Qualitative interviews with patients, relatives and physicians

scientific article

What is case management in palliative care? An expert panel study

scientific article

What is the methodological rigour of palliative care research in long-term care facilities in Europe? A systematic review

scientific article published on 22 June 2011

When being 'tired of living' plays an important role in a request for euthanasia or physician-assisted suicide: patient characteristics and the physician's decision

scientific article published on 5 February 2005

When do people with dementia die peacefully? An analysis of data collected prospectively in long-term care settings

scientific article

Which characteristics of nursing home residents relate to factors influencing their dignity?

scientific article published on 31 May 2016

Which patients with cancer die at home? A study of six European countries using death certificate data

scientific article

Wishes to die in older people: a quantitative study of prevalence and associated factors

scientific article published in January 2011

Withdrawing an explicit request for euthanasia or physician-assisted suicide: a retrospective study on the influence of mental health status and other patient characteristics

scientific article

Withholding or withdrawing artificial administration of food and fluids in nursing-home patients

scientific article published on 01 November 2001

Withholding the artificial administration of fluids and food from elderly patients with dementia: ethnographic study

scientific article

[Advance euthanasia directives in dementia rarely carried out. Qualitative study in physicians and patients]

scientific article published on 01 January 2010

[Degree of discomfort following the decision to discontinue artificial nutrition and hydration in institutionalised psychogeriatric patients with severe dementia who no longer or scarcely eat or drink]

scientific article published in February 2006

[Experience of family members with the decision concerning artificial nutrition and hydration in people with dementia in nursing homes]

scientific article published on 01 April 2006

[Fourth evaluation of the law on the review of termination of life on request and assisted suicide (Euthanasia Act)]

scientific article published on 01 September 2005

[Frequency and characteristics of use of morphine at the end of life: a cross-sectional study]

[Granted, undecided, withdrawn and refused requests for euthanasia and physician-assisted suicide in the Netherlands; 2000-2002]

scientific article published on 01 February 2006

[New research on the practice, reporting and reviewing of euthanasia and other medical end-of-life decisions, 2001/2002]

scientific article published on 01 September 2001

[No conspicuous changes in the practice of medical end-of-life decision-making for neonates and infants in the Netherlands in 2001 as compared to 1995]

scientific article published in September 2005

[Perspectives of medical specialists on sharing decisions in cancer care: a qualitative study concerning chemotherapy decisions with patients with recurrent glioblastoma]

[Primary care patients hastening death by voluntarily stopping eating and drinking].

scientific article published in January 2015

[The End-of-life Clinic: results from the first year]

[Trends in the agents used for euthanasia and the relationship with the number of notifications]

scientific article published on 01 March 2006

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