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List of works by Johannes van Delden

"The good life" for demented persons living in nursing homes

scientific article published on 01 December 2004

A Health Professions Education Research-Specific Ethical Review Board

scientific article published in December 2016

A Qualitative Study into Dependent Relationships and Voluntary Informed Consent for Research in Pediatric Oncology

scientific article published on 11 January 2016

A comparison of physicians' end-of-life decision making for non-western migrants and Dutch natives in the Netherlands

scientific article published on 27 September 2008

A framework for the ethics review of education research.

scientific article published on August 2012

A qualitative study on acceptable levels of risk for pregnant women in clinical research

scientific article

A qualitative study on stakeholders' views on the participation of pregnant women in the APOSTEL VI study: a low-risk obstetrical RCT

A thick opt-out is often sufficient

scientific article published in January 2013

Accuracy of the Wells clinical prediction rule for pulmonary embolism in older ambulatory adults

scientific article published on 3 November 2014

Adaptive trials in clinical research: scientific and ethical issues to consider

scientific article published in June 2012

Advance care planning in patients with advanced cancer: A 6-country, cluster-randomised clinical trial

scientific article published on 13 November 2020

Advance care planning--a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study

scientific article

Aims and tasks in parental caregiving for children receiving palliative care at home: a qualitative study

scientific article

Am I My Family's Keeper? Disclosure Dilemmas in Next-Generation Sequencing

scientific article published on 20 September 2016

Assistance in dying for older people without a serious medical condition who have a wish to die: a national cross-sectional survey

scientific article

Balancing research interests and patient interests: a qualitative study into the intertwinement of care and research in paediatric oncology

scientific article published in March 2015

Barriers and facilitators to the implementation of a paediatric palliative care team

scientific article published on 12 February 2018

Being a parent of a child with cancer throughout the end-of-life course

scientific article published on 01 July 2011

Being there: parenting the child with acute lymphoblastic leukaemia

scientific article published on 01 June 2008

Beliefs on mandatory influenza vaccination of health care workers in nursing homes: a questionnaire study from the Netherlands

scientific article published on 01 December 2009

Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach

scientific article

Broad Consent Is Consent for Governance

scientific article published on 01 January 2015

Challenges of informed consent for pragmatic trials

scientific article published on 11 May 2017

Clarifying assent in pediatric research

scientific article published on 12 June 2013

Classification of end-of-life decisions by Dutch physicians: findings from a cross-sectional survey

scientific article published on 21 July 2020

Comorbidity and favorable neurologic outcome after out-of-hospital cardiac arrest in patients of 70 years and older

scientific article published on 25 June 2015

Comparative Survival among Older Adults with Advanced Kidney Disease Managed Conservatively Versus with Dialysis.

scientific article published on 17 March 2016

Comparatively low attendance during Human Papillomavirus catch-up vaccination among teenage girls in the Netherlands: Insights from a behavioral survey among parents

scientific article

Conflating scientific with clinical considerations

scientific article published in September 2009

Consent procedures in pediatric biobanks

scientific article

Considerations of physicians about the depth of palliative sedation at the end of life

scientific article published on 13 February 2012

Continuous deep sedation for patients nearing death in the Netherlands: descriptive study

scientific article

Continuous palliative sedation for cancer and noncancer patients

scientific article published on 17 September 2011

Dances with data

scientific article

Decision theory and the evaluation of risks and benefits of clinical trials

scientific article published on 20 July 2012

Decisions to withhold diagnostic investigations in nursing home patients with a clinical suspicion of venous thromboembolism

scientific article

Determinants of successful implementation of population-based cancer screening programmes

scientific article published on 23 July 2011

Developments in euthanasia practice in the Netherlands: Balancing professional responsibility and the patient's autonomy

scientific article published on 01 November 2018

Diagnostic accuracy of conventional or age adjusted D-dimer cut-off values in older patients with suspected venous thromboembolism: systematic review and meta-analysis

scientific article

Disclosure of individual genetic data to research participants: the debate reconsidered

scientific article

Do-not-resuscitate decisions in six European countries*

Doctor-assisted dying: what difference does legalisation make?

scientific article published on 01 December 2004

Do‐Not‐Resuscitate, the Next Generation: VF‐Only ⬇️

scientific article published on February 1, 2013

Drug regulators and ethics: which GCP issues are also ethical issues?

scientific article

Dutch experience of monitoring active ending of life for newborns

scientific article published on April 2010

End-of-Life Decisions in the Netherlands over 25 Years

scientific article published in August 2017

End-of-life decision-making in Canada: the report by the Royal Society of Canada expert panel on end-of-life decision-making

scientific article published on November 2011

End-of-life practices in the Netherlands under the Euthanasia Act

scientific article published on 01 May 2007

Equipoise should be amended, not abandoned ⬇️

scientific article published on July 11, 2011

Estimating the potential life-shortening effect of continuous sedation until death: a comparison between two approaches

scientific article

Ethical challenges for pediatric liver organoid transplantation

scientific article published on 01 July 2020

Ethical implications of regenerative medicine in orthopedics: an empirical study with surgeons and scientists in the field

scientific article

Ethics of Informed Consent for Pragmatic Trials with New Interventions

scientific article published on 16 May 2017

Euthanasia or physician-assisted suicide? A survey from the Netherlands

scientific article

Evaluation of lexical clarification by patients reading their clinical notes: a quasi-experimental interview study

scientific article published on 15 December 2020

Facilitators and barriers to pregnant women's participation in research: A systematic review

scientific article published on 17 January 2018

Factors influencing parental readiness to let their child with cancer die.

scientific article

Fair inclusion of pregnant women in clinical trials: an integrated scientific and ethical approach

scientific article published on 29 January 2018

Forgoing artificial nutrition or hydration in patients nearing death in six European countries

scientific article published on 2 July 2007

Forgoing treatment at the end of life in 6 European countries

scientific article published on 01 February 2005

Ideals regarding a good life for nursing home residents with dementia: views of professional caregivers

scientific article published on 01 January 2005

Inclusion of Residual Tissue in Biobanks: Opt-In or Opt-Out? ⬇️

scientific article published on August 7, 2012

Informed consent and phase IV non-interventional drug research.

scientific article published on 6 January 2011

Introducing PALETTE: an iterative method for conducting a literature search for a review in palliative care.

scientific article published on 2 June 2018

Intuitions in Moral Reasoning – Normative Empirical Reflective Equilibrium as a Model for Substantial Justification of Moral Claims

Involvement of the Dutch general population in advance care planning: a cross-sectional survey

scientific article published on 14 June 2013

Is It Our Duty To Hunt for Pathogenic Mutations?

scientific article published on 12 December 2017

Is a New Protocol for Acute Lymphoblastic Leukemia Research or Standard Therapy?

scientific article published on 17 August 2015

Is informed consent necessary for randomized Phase IV 'observational' drug studies?

scientific article published on 29 June 2011

Is physician-assisted death only for developed countries? Latin America as a case study.

scientific article

Justification of exclusion criteria was underreported in a review of cardiovascular trials

scientific article published on 05 March 2014

Medical decision-making for seriously ill non-elderly and elderly patients

scientific article published on 01 December 2005

Mini-guts in a dish: Perspectives of adult Cystic Fibrosis (CF) patients and parents of young CF patients on organoid technology

scientific article published on 6 March 2018

Modified informed consent procedure: consent to postponed information

scientific article published on August 2003

Moral Duties of Genomics Researchers: Why Personalized Medicine Requires a Collective Approach

scientific article published on 22 December 2016

Moral intuitions as a source for empirical ethics.

scientific article published in January 2002

Need for tailored strategies to diagnose venous thrombo-embolism in older primary care patients. Extension of a keynote presentation at the 2012 Wonca Europe conference ⬇️

scientific article published on January 22, 2013

News media coverage of euthanasia: a content analysis of Dutch national newspapers

scientific article

Next-generation sequencing: does the next generation still have a right to an open future?

scientific article published on May 2013

Old age and forgoing treatment: a nationwide mortality follow-back study in the Netherlands

scientific article published on 20 April 2015

On using people merely as a means in clinical research

scientific article

Opinions about euthanasia and advanced dementia: a qualitative study among Dutch physicians and members of the general public

scientific article

Opinions of health care professionals and the public after eight years of euthanasia legislation in the Netherlands: a mixed methods approach.

scientific article published on 13 June 2012

Opinions of the Dutch public on palliative sedation: a mixed-methods approach

scientific article published on October 2013

Organoid biobanking: identifying the ethics: Organoids revive old and raise new ethical challenges for basic research and therapeutic use.

scientific article published on 13 June 2016

Organoids as hybrids: ethical implications for the exchange of human tissues

scientific article published on 26 October 2018

Palliative sedation: not just normal medical practice. Ethical reflections on the Royal Dutch Medical Association's guideline on palliative sedation

scientific article published on 18 July 2012

Parental experience at the end-of-life in children with cancer: 'preservation' and 'letting go' in relation to loss

scientific article published on 3 December 2009

Participant selection for preventive Regenerative Medicine trials: ethical challenges of selecting individuals at risk

scientific article published on 4 September 2015

Patient representatives' contributions to the benefit-risk assessment tasks of the European Medicines Agency scientific committees

scientific article

Patients' evaluation of informed consent to postponed information: cohort study

scientific article

Pediatric oncology as a Learning Health System: Ethical implications for best available treatment protocols

scientific article published on 16 April 2018

Personalized assent for pediatric biobanks

scientific article

Phase IV non-inferiority trials and additional claims of benefit

scientific article

Phase IV research: innovation in need of ethics

article

Physicians' and Public Attitudes Toward Euthanasia in People with Advanced Dementia

scientific article published on 11 July 2020

Physicians' experiences with euthanasia: a cross-sectional survey amongst a random sample of Dutch physicians to explore their concerns, feelings and pressure

scientific article published on 17 December 2019

Physicians' willingness to grant requests for assistance in dying for children: a study of hypothetical cases

scientific article published in May 2005

Postmortem disclosure of genetic information to family members: active or passive?

scientific article

Pragmatic clinical trials: ethical imperatives and opportunities

scientific article published on 12 June 2018

Pragmatic randomized trials in drug development pose new ethical questions: a systematic review

scientific article published on 17 March 2015

Pre-arrest predictors of survival after resuscitation from out-of-hospital cardiac arrest in the elderly a systematic review

scientific article

Preemptive use of palliative sedation and amyotrophic lateral sclerosis

scientific article published on 01 September 2012

Prevention comes of age?

scientific article published on 01 January 2003

Professional opinion on oral cleft during pregnancy: a comparison between Israel and The Netherlands

scientific article published on 01 March 2015

Public and physicians' support for euthanasia in people suffering from psychiatric disorders: a cross-sectional survey study

scientific article published on 11 September 2019

Real-Time Access to Electronic Health Record via a Patient Portal: Is it Harmful? A Retrospective Observational Study

scientific article published on 06 February 2020

Reconsidering the ethics of sham interventions in an era of emerging technologies

scientific article

Reply to Waligora

scientific article published on 6 November 2013

Reporting of euthanasia and physician-assisted suicide in the Netherlands: descriptive study

scientific article

Response to open peer commentaries on "What is the best standard for the standard of care in clinical research?".

scientific article published in January 2009

Responsible data sharing in international health research: a systematic review of principles and norms

article

Revised CIOMS International Ethical Guidelines for Health-Related Research Involving Humans

scientific article

Should we deny ICU admission to the elderly? Ethical considerations in times of COVID-19

scientific article published on 09 June 2020

Societal impacts of regenerative medicine: reflections on the views of orthopedic professionals

scientific article

Stakeholders' views on the ethical challenges of pragmatic trials investigating pharmaceutical drugs

scientific article

Stem cell trials for cardiovascular medicine: ethical rationale

scientific article

Strengths and weaknesses of guideline approaches to safeguard voluntary informed consent of patients within a dependent relationship

scientific article

Studying the lay of the land: views and experiences of professionals in the translational pluripotent stem cell field

scientific article published on 18 December 2015

Survival after Perioperative Cardiopulmonary Resuscitation: Providing an Evidence Base for Ethical Management of Do-not-resuscitate Orders

scientific article published on 23 September 2015

Tailor-made pharmacotherapy: future developments and ethical challenges in the field of pharmacogenomics.

scientific article

Terminal sedation and euthanasia: a comparison of clinical practices

scientific article published on 01 April 2006

Terminal sedation: source of a restless ethical debate

scientific article published in April 2007

The Rising Frequency of Continuous Deep Sedation in the Netherlands, a Repeated Cross-Sectional Survey in 2005, 2010, and 2015

scientific article published on 01 August 2019

The Social Value of Pragmatic Trials

scientific article published on February 2017

The ethics of cluster-randomized trials requires further evaluation: a refinement of the Ottawa Statement

scientific article published on 27 March 2015

The fiduciary obligation of the physician-researcher in phase IV trials

scientific article published on 07 February 2014

The inherent ethical challenge of first-in-human pluripotent stem cell trials

scientific article

The need to balance merits and limitations from different disciplines when considering the stepped wedge cluster randomized trial design

scientific article published on 30 October 2015

The need to explicate the ethical evaluation tools to avoid ethical inflation

scientific article published in November 2009

The parents' ability to attend to the "voice of their child" with incurable cancer during the palliative phase

scientific article published in April 2015

The predictive value of early acute kidney injury for long-term survival and quality of life of critically ill patients

scientific article published on 03 August 2016

The risk-benefit task of research ethics committees: an evaluation of current approaches and the need to incorporate decision studies methods

scientific article

The social value of clinical research

scientific article

The unfortunate research inertia on studying VTE in nursing homes

scientific article published on 01 January 2015

The unique status of first-in-human studies: strengthening the social value requirement

scientific article

Toward a "post-posthuman dignity area" in evaluating emerging enhancement technologies

scientific article published in July 2010

Trends in end-of-life practices before and after the enactment of the euthanasia law in the Netherlands from 1990 to 2010: a repeated cross-sectional survey

scientific article published on 11 July 2012

Two Decades of Research on Euthanasia from the Netherlands. What Have We Learnt and What Questions Remain?

scientific article

Two decades of do-not-resuscitate decisions in the Netherlands

scientific article published on 17 July 2015

Une mort tres douce: end-of-life decisions in France; reflections from a Dutch perspective

scientific article published on 21 July 2006

Unraveling patients' readiness in advance care planning conversations: a qualitative study as part of the ACTION Study

scientific article published on 01 October 2020

Uptake of influenza vaccination in Dutch nursing home personnel following national recommendations

scientific article published on 01 September 2007

Use and the Users of a Patient Portal: Cross-Sectional Study

scientific article published on 17 September 2018

Validation of the Oudega diagnostic decision rule for diagnosing deep vein thrombosis in frail older out-of-hospital patients

scientific article published on 27 October 2014

Validation of two age dependent D-dimer cut-off values for exclusion of deep vein thrombosis in suspected elderly patients in primary care: retrospective, cross sectional, diagnostic analysis ⬇️

scientific article published on June 6, 2012

Value-based evaluation of dialysis versus conservative care in older patients with advanced chronic kidney disease: a cohort study

scholarly article by Wouter R Verberne et al published 16 August 2018 in BMC Nephrology

What do international ethics guidelines say in terms of the scope of medical research ethics?

scientific article

What is the best standard for the standard of care in clinical research?

scientific article published on March 2009

When Children Become Adults: Should Biobanks Re-Contact?

scientific article

[Frequency and characteristics of use of morphine at the end of life: a cross-sectional study]

[Hip fracture in patients with dementia: surgery is not always the best alternative]

scientific article published on 01 January 2012

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