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List of works by Isabelle Budin-Ljøsne

A human rights approach to an international code of conduct for genomic and clinical data sharing

scientific article (publication date: July 2014)

A review of ethical frameworks for the disclosure of individual research results in population-based genetic and genomic research

article

Bridging consent: from toll bridges to lift bridges?

scientific article

Data sharing in large research consortia: experiences and recommendations from ENGAGE ⬇️

scientific article (publication date: March 2014)

DataSHIELD: an ethically robust solution to multiple-site individual-level data analysis

scientific article

DataSHIELD: taking the analysis to the data, not the data to the analysis

scientific article

Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?

scientific article

Genotype-driven recruitment: a strategy whose time has come? ⬇️

scientific article published on May 23, 2013

Including all voices in international data-sharing governance

scientific article published on 7 March 2018

Patient and interest organizations' views on personalized medicine: a qualitative study

scientific article

Retrospective access to data: the ENGAGE consent experience

scientific article

The challenges of the expanded availability of genomic information: an agenda-setting paper

scientific article published on 26 September 2017

Toward a roadmap in global biobanking for health

scientific article (publication date: November 2012)

Towards a data sharing Code of Conduct for international genomic research

scientific article

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