List of works - Heidi Carmen Howard

"I prefer a child with …": designer babies, another controversial patent in the arena of direct-to-consumer genomics

scientific article published on 3 October 2013

"It's our DNA, we deserve the right to test!" A content analysis of a petition for the right to access direct-to-consumer genetic testing

scientific article published on 01 September 2013

"Trust is not something you can reclaim easily": patenting in the field of direct-to-consumer genetic testing

scientific article published on 22 November 2012

'It's much more grey than black and white': clinical geneticists' views on the oversight of consumer genomics in Europe

scientific article published on 10 March 2020

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

article by Anna Middleton et al published 1 July 2018 in Personalized Medicine

A response to the forensic genetics policy initiative’s report “Establishing Best Practice for Forensic DNA Databases”

article

A review of the barriers to sharing in biobanking

scientific article published on December 2013

Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms

scientific article published on 24 August 2018

Anonymity 2.0: direct-to-consumer genetic testing and donor conception

scientific article published on 02 January 2014

Anxiety delivered direct-to-consumer: are we asking the right questions about the impacts of DTC genetic testing?

scientific article published on 19 September 2016

Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms?

scientific article

Attitudes of publics who are unwilling to donate DNA data for research.

scientific article

Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects

scientific article published on 16 July 2010

Closure of population biobanks and direct-to-consumer genetic testing companies

scientific article published on 26 June 2011

Communicating genetic information to family members: analysis of consent forms for diagnostic genomic sequencing

scientific article published on 27 April 2020

Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies.

scientific article

Current ethical and legal issues in health-related direct-to-consumer genetic testing

article

DTC Genetic Services: A Look Across the Pond

Direct-to-consumer genetic testing: driving choice? ⬇️

scientific article published on 01 November 2010

Direct-to-consumer genetic testing: more questions than benefits?

scientific article published on 01 July 2008

Direct-to-consumer genetic testing: where and how does genetic counseling fit?

article by Anna Middleton et al published May 2017 in Personalized Medicine

Direct-to-consumer genome scanning services. Also for children?

Direct-to-consumer pharmacogenomic testing

Ethical issues in consumer genome sequencing: Use of consumers' samples and data

scientific article

Ethical issues raised by whole genome sequencing

scientific article published on 12 March 2014

Ethical issues related to research on genome editing in human embryos

scientific article published on 21 March 2020

Europe and direct-to-consumer genetic tests

European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death

article published in 2019

Fine mapping the candidate region for peripheral neuropathy with or without agenesis of the corpus callosum in the French Canadian population

scientific article

Genetic testing: anonymity of sperm donors under threat

scientific article published in April 2013

Germline Genome Editing Research: What Are Gamete Donors (Not) Informed About in Consent Forms?

scientific article published on 01 February 2020

Health-related direct-to-consumer genetic testing: a review of companies' policies with regard to genetic testing in minors

scientific article published on 02 June 2009

Hereditary motor and sensory neuropathy with agenesis of the corpus callosum

scientific article

How to responsibly acknowledge research work in the era of big data and biobanks: ethical aspects of the Bioresource Research Impact Factor (BRIF).

scientific article published on 25 September 2017

Human germline gene editing. Recommendations of ESHG and ESHRE

scientific article published on 12 January 2018

Human germline gene editing: Recommendations of ESHG and ESHRE.

scientific article published on 12 January 2018

Include egg donors in CRISPR gene-editing debate

scientific article published on 01 November 2019

Is There a Right Time to Know? The Right Not to Know and Genetic Testing in Children

scientific article published in March 2014

Is there a doctor in the house? : The presence of physicians in the direct-to-consumer genetic testing context

scientific article published on 6 September 2011

Legislation on direct-to-consumer genetic testing in seven European countries

scientific article

Letter to the Editor

scientific article published on 01 September 2008

Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

scientific article published on 29 November 2019

Moving towards a cure in genetics: what is needed to bring somatic gene therapy to the clinic?

scientific article published on 19 December 2018

Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening

scientific article

Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening

article

Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening. Summary and recommendations

Nonpropositional content in direct-to-consumer genetic testing advertisements

scientific article published in January 2013

One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans

scientific article published on 30 November 2017

Personal Genome Testing: Do You Know What You Are Buying?

Points to consider for prioritizing clinical genetic testing services: a European consensus process oriented at accountability for reasonableness

scientific article

Preconceptional genetic carrier testing and the commercial offer directly-to-consumers

scientific article

Readability of informed consent forms for whole-exome and whole-genome sequencing

scientific article published on 31 August 2017

Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics

Regulating the advertising of genetic tests in Europe: a balancing act.

scientific article

Reply to Bombard and Mighton

scientific article published on 18 January 2019

Responsible implementation of expanded carrier screening

scientific article published on 16 March 2016

Responsible implementation of expanded carrier screening

scientific article published on November 2017

Responsible innovation in human germline gene editing. Background document to the recommendations of ESHG and ESHRE

scientific article published on 12 January 2018

Responsible innovation in human germline gene editing: Background document to the recommendations of ESHG and ESHRE.

scientific article

Science and Regulation. Changes on the horizon for consumer genomics in the EU

scientific article

Survey of European clinical geneticists on awareness, experiences and attitudes towards direct-to-consumer genetic testing

scientific article published on 22 May 2013

The K-Cl cotransporter KCC3 is mutant in a severe peripheral neuropathy associated with agenesis of the corpus callosum

scientific article (publication date: November 2002)

The challenges of the expanded availability of genomic information: an agenda-setting paper

scientific article published on 26 September 2017

The changing landscape of genetic testing and its impact on clinical and laboratory services and research in Europe

scientific article published on 28 March 2012

The clinical application of gene editing: ethical and social issues

scientific article published on 23 July 2019

To ban or not to ban? Clinical geneticists' views on the regulation of direct-to-consumer genetic testing

scientific article

To ban or not to ban?: Clinical geneticists' views on the regulation of direct-to-consumer genetic testing.

scientific article published on 18 September 2012

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

scientific article published on 17 September 2019

Users' motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories

scientific article

Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market

scientific article

Whole-genome sequencing in health care. Recommendations of the European Society of Human Genetics

scientific article

Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics

scientific article

Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes

scientific article published on 28 January 2015

Willingness to donate genomic and other medical data: results from Germany

scientific article published on 01 April 2020

[Severe neuropathy with agenesis of the corpus callosum]

scientific article published on 01 April 2003

List of works by Heidi Carmen Howard

"I prefer a child with …": designer babies, another controversial patent in the arena of direct-to-consumer genomics

"It's our DNA, we deserve the right to test!" A content analysis of a petition for the right to access direct-to-consumer genetic testing

"Trust is not something you can reclaim easily": patenting in the field of direct-to-consumer genetic testing

'It's much more grey than black and white': clinical geneticists' views on the oversight of consumer genomics in Europe

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

A response to the forensic genetics policy initiative’s report “Establishing Best Practice for Forensic DNA Databases”

A review of the barriers to sharing in biobanking

Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms

Anonymity 2.0: direct-to-consumer genetic testing and donor conception

Anxiety delivered direct-to-consumer: are we asking the right questions about the impacts of DTC genetic testing?

Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms?

Attitudes of publics who are unwilling to donate DNA data for research.

Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects

Closure of population biobanks and direct-to-consumer genetic testing companies

Communicating genetic information to family members: analysis of consent forms for diagnostic genomic sequencing

Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies.

Current ethical and legal issues in health-related direct-to-consumer genetic testing

DTC Genetic Services: A Look Across the Pond

Direct-to-consumer genetic testing: driving choice? ⬇️

Direct-to-consumer genetic testing: more questions than benefits?

Direct-to-consumer genetic testing: where and how does genetic counseling fit?

Direct-to-consumer genome scanning services. Also for children?

Direct-to-consumer pharmacogenomic testing

Ethical issues in consumer genome sequencing: Use of consumers' samples and data

Ethical issues raised by whole genome sequencing

Ethical issues related to research on genome editing in human embryos

Europe and direct-to-consumer genetic tests

European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death

Fine mapping the candidate region for peripheral neuropathy with or without agenesis of the corpus callosum in the French Canadian population

Genetic testing: anonymity of sperm donors under threat

Germline Genome Editing Research: What Are Gamete Donors (Not) Informed About in Consent Forms?

Health-related direct-to-consumer genetic testing: a review of companies' policies with regard to genetic testing in minors

Hereditary motor and sensory neuropathy with agenesis of the corpus callosum

How to responsibly acknowledge research work in the era of big data and biobanks: ethical aspects of the Bioresource Research Impact Factor (BRIF).

Human germline gene editing. Recommendations of ESHG and ESHRE

Human germline gene editing: Recommendations of ESHG and ESHRE.

Include egg donors in CRISPR gene-editing debate

Is There a Right Time to Know? The Right Not to Know and Genetic Testing in Children

Is there a doctor in the house? : The presence of physicians in the direct-to-consumer genetic testing context

Legislation on direct-to-consumer genetic testing in seven European countries

Letter to the Editor

Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

Moving towards a cure in genetics: what is needed to bring somatic gene therapy to the clinic?

Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening

Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening

Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening. Summary and recommendations

Nonpropositional content in direct-to-consumer genetic testing advertisements

One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans

Personal Genome Testing: Do You Know What You Are Buying?

Points to consider for prioritizing clinical genetic testing services: a European consensus process oriented at accountability for reasonableness

Preconceptional genetic carrier testing and the commercial offer directly-to-consumers

Readability of informed consent forms for whole-exome and whole-genome sequencing

Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics

Regulating the advertising of genetic tests in Europe: a balancing act.

Reply to Bombard and Mighton

Responsible implementation of expanded carrier screening

Responsible implementation of expanded carrier screening

Responsible innovation in human germline gene editing. Background document to the recommendations of ESHG and ESHRE

Responsible innovation in human germline gene editing: Background document to the recommendations of ESHG and ESHRE.

Science and Regulation. Changes on the horizon for consumer genomics in the EU

Survey of European clinical geneticists on awareness, experiences and attitudes towards direct-to-consumer genetic testing

The K-Cl cotransporter KCC3 is mutant in a severe peripheral neuropathy associated with agenesis of the corpus callosum

The challenges of the expanded availability of genomic information: an agenda-setting paper

The changing landscape of genetic testing and its impact on clinical and laboratory services and research in Europe

The clinical application of gene editing: ethical and social issues

To ban or not to ban? Clinical geneticists' views on the regulation of direct-to-consumer genetic testing

To ban or not to ban?: Clinical geneticists' views on the regulation of direct-to-consumer genetic testing.

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

Users' motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories

Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market

Whole-genome sequencing in health care. Recommendations of the European Society of Human Genetics

Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics

Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes

Willingness to donate genomic and other medical data: results from Germany

[Severe neuropathy with agenesis of the corpus callosum]