List of works - Mahsa Shabani

"You want the right amount of oversight": interviews with data access committee members and experts on genomic data access

scientific article

A review of the key issues associated with the commercialization of biobanks

scientific article (publication date: March 2014)

Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review

scientific article (publication date: November 2014)

Challenges of web-based personal genomic data sharing

scientific article

Controlled Access under Review: Improving the Governance of Genomic Data Access

scientific article

Credit and Recognition for Contributions to Data-Sharing Platforms Among Cohort Holders and Platform Developers in Europe: Interview Study

scientific article published on 13 January 2022

Data sharing platforms and the academic evaluation system

scientific article published on 12 July 2020

Data sharing platforms: instruments to inform and shape science policy on data sharing?

scientific article published in 2022

From the principles of genomic data sharing to the practices of data access committees

scientific article

Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

scientific article

RESEARCH ETHICS. Ethics review for international data-intensive research

scientific article

Raw Genomic Data: Storage, Access, and Sharing.

scientific article published on 10 November 2017

Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory

Registered access: a 'Triple-A' approach

scientific article

Research ethics review for the use of anonymized samples and data: A systematic review of normative documents.

scientific article published in January 2017

Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation.

scientific article published on 29 November 2017

The challenges of the expanded availability of genomic information: an agenda-setting paper

scientific article published on 26 September 2017

Toward better governance of human genomic data

scientific article published on 01 January 2021

Transparency and objectivity in governance of clinical trials data sharing: Current practices and approaches

scientific article published on 26 July 2019

List of works by Mahsa Shabani

"You want the right amount of oversight": interviews with data access committee members and experts on genomic data access

A review of the key issues associated with the commercialization of biobanks

Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review

Challenges of web-based personal genomic data sharing

Controlled Access under Review: Improving the Governance of Genomic Data Access

Credit and Recognition for Contributions to Data-Sharing Platforms Among Cohort Holders and Platform Developers in Europe: Interview Study

Data sharing platforms and the academic evaluation system

Data sharing platforms: instruments to inform and shape science policy on data sharing?

From the principles of genomic data sharing to the practices of data access committees

Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

RESEARCH ETHICS. Ethics review for international data-intensive research

Raw Genomic Data: Storage, Access, and Sharing.

Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory

Registered access: a 'Triple-A' approach

Research ethics review for the use of anonymized samples and data: A systematic review of normative documents.

Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation.

The challenges of the expanded availability of genomic information: an agenda-setting paper

Toward better governance of human genomic data

Transparency and objectivity in governance of clinical trials data sharing: Current practices and approaches