Search filters

List of works by Effy Vayena

A Harm-Reduction Framework for Algorithmic Fairness

scholarly article by Micah Altman published in May 2018

A code of ethics for ethicists: what would Pierre Bourdieu say? "Do not misuse social capital in the age of consortia ethics".

scientific article published in January 2015

A research agenda for digital proximity tracing apps

scientific article published on 16 July 2020

AI4People—An Ethical Framework for a Good AI Society: Opportunities, Risks, Principles, and Recommendations

scientific article published on 26 November 2018

Adapting standards: ethical oversight of participant-led health research

scientific article

An Appeal to the Global Health Community for a Tripartite Innovation: An "Essential Diagnostics List," "Health in All Policies," and "See-Through 21(st) Century Science and Ethics".

scientific article

Assessing Public Opinion on CRISPR-Cas9: Combining Crowdsourcing and Deep Learning

scientific article published on 31 August 2020

Assisted reproductive technologies in developing countries: are we caring yet?

scientific article

Assisted reproductive technology in developing countries: why should we care?

scientific article published on 01 July 2002

Attitudes towards personal genomics among older Swiss adults: An exploratory study

scientific article published on February 2016

Balancing risks and benefits of artificial intelligence in the health sector

scientific article published on 01 April 2020

Becoming partners, retaining autonomy: ethical considerations on the development of precision medicine

scientific article

Bernard Lerer: recipient of the 2014 inaugural Werner Kalow Responsible Innovation Prize in Global Omics and Personalized Medicine (Pacific Rim Association for Clinical Pharmacogenetics).

scientific article published on 20 March 2014

Between Openness and Privacy in Genomics

scientific article

Beyond the clinic: 'direct-to-consumer' genomic profiling services and pharmacogenomics

scientific article published on March 2013

Big Data and Dementia: Charting the Route Ahead for Research, Ethics, and Policy

scientific article published on 6 February 2018

Big Data, Biomedical Research, and Ethics Review: New Challenges for IRBs

scientific article published on 01 September 2020

Biomedical Big Data: New Models of Control Over Access, Use and Governance.

scientific article published on 5 October 2017

Bridging genomics research between developed and developing countries: the Genomic Medicine Alliance

Caught in the Web: Informed Consent for Online Health Research ⬇️

scientific article published on February 20, 2013

Children's rights in pediatrics

scientific article published on 12 May 2010

Considerations for ethics review of big data health research: A scoping review

scientific article published in PLoS ONE

Data Sharing For Precision Medicine: Policy Lessons And Future Directions

Data protection and ethics requirements for multisite research with health data: a comparative examination of legislative governance frameworks and the role of data protection technologies

scientific article published on 01 January 2020

Development of the mHealth App Trustworthiness checklist

scientific article published on 01 January 2019

Digital Medicine and Ethics: Rooting for Evidence

journal article; published in The American Journal of Bioethics in 2018

Digital bioethics: introducing new methods for the study of bioethical issues

scientific article published in 2021

Digital health: meeting the ethical and policy challenges

scientific article published on 29 January 2018

Digital tools against COVID-19: taxonomy, ethical challenges, and navigation aid

scientific article published on 29 June 2020

Direct-to-Consumer Neurotechnology: What Is It and What Is It for?

scientific article published on 01 October 2019

Direct-to-consumer genomics on the scales of autonomy

scientific article

Dual use in the 21st century: emerging risks and global governance

scientific article published on 01 November 2018

Early Evidence of Effectiveness of Digital Contact Tracing for SARS-CoV-2 in Switzerland ⬇️

scholarly article published in 2020

Early evidence of effectiveness of digital contact tracing for SARS-CoV-2 in Switzerland

scientific article published on 16 December 2020

Elements of Trust in Digital Health Systems: Scoping Review

article

Ethical Challenges of Big Data in Public Health

scientific article (publication date: February 2015)

Ethical Issues in Health Research With Novel Online Sources ⬇️

scientific article (publication date: December 2012)

Ethical Issues with Using Internet of Things Devices in Citizen Science Research: A Scoping Review

scientific article published on 16 February 2021

Ethical Issues with Using Internet of Things Devices in Citizen Science Research: A Scoping Review.

scientific article published on 15 August 2020

Ethical requirements for responsible research with hacked data

scientific article

Ethics review of big data research: What should stay and what should be reformed?

scientific article

Experiences of early users of direct-to-consumer genomics in Switzerland: an exploratory study

scientific article

Explainability for artificial intelligence in healthcare: a multidisciplinary perspective

scientific article published on 30 November 2020

Feasibility and safety study of a new device (Odón device) for assisted vaginal deliveries: study protocol

scientific article published on 02 July 2013

From principles to practice: benchmarking government guidance on health apps

scientific article published on 23 May 2019

Future-proofing biobanks' governance

scientific article published on 18 May 2020

Genes wide open: Data sharing and the social gradient of genomic privacy

article

Genetic incidental findings: autonomy regained?

scientific article published on August 2013

Genetic testing, insurance discrimination and medical research: what the United States can learn from peer countries

scientific article published on 06 August 2019

Getting human rights right in global health policy

scientific article published on 09 October 2014

Harris, James Arthur (1880-1930), botanist and biometrician

encyclopedia article

Health Research with Big Data: Time for Systemic Oversight

scientific article published on 27 March 2018

Heritable Human Genome Editing: The Public Engagement Imperative

scientific article published on 01 December 2020

Improving the Measurement of Scientific Success by Reporting a Self-Citation Index

scientific article published on August 2017

Informed Consent and the Disclosure of Clinical Results to Research Participants.

scientific article

Is there a duty to participate in digital epidemiology?

scientific article

Key Ethical Challenges in the European Medical Information Framework

scholarly article by Luciano Floridi et al published 9 July 2018 in Minds and Machines

Key challenges for next-generation pharmacogenomics: Science & Society series on Science and Drugs

scientific article

Machine learning in medicine: Addressing ethical challenges

scholarly article by Effy Vayena et al published 6 November 2018 in PLOS MEDICINE

Mobile apps for travel medicine and ethical considerations: A systematic review

scientific article published on 10 July 2021

New ethical challenges of digital technologies, machine learning and artificial intelligence in public health: a call for papers

article

Odon device for instrumental vaginal deliveries: results of a medical device pilot clinical study

scientific article published on 12 March 2018

On the responsible use of digital data to tackle the COVID-19 pandemic

scientific article published on 01 April 2020

Open sharing of genomic data: Who does it and why?

scientific article (publication date: 9 May 2017)

Opinion: Learning as we go: lessons from the publication of Facebook's social-computing research

scientific article

Personal genomics in Greece: an overview of available direct-to-consumer genomic services and the relevant legal framework

scientific article published on October 2014

Philanthropy on trial: can the rich rescue shelved compounds?

scientific article published on 03 August 2017

Playing a part in research? University students' attitudes to direct-to-consumer genomics

scientific article published on 25 April 2014

Policy implications of big data in the health sector

scientific article published on 23 November 2017

Potential for diagnosis of infectious disease from the 100,000 Genomes Project Metagenomic Dataset: Recommendations for reporting results

scientific article published on 14 October 2019

Project Categories to Guide Institutional Oversight of Responsible Conduct of Scientists Leading Citizen Science in the United States

scientific article published on 8 March 2019

Public Health and Human Rights

scientific article published on 01 July 2016

Public involvement in the governance of population-level biomedical research: unresolved questions and future directions

scientific article published on 06 October 2020

Public preferences towards data management and governance in Swiss biobanks: results from a nationwide survey

scientific article published in 2022

Ready to put metadata on the post-2015 development agenda? Linking data publications to responsible innovation and science diplomacy

scientific article published in January 2014

Regulating genomics: time for a broader vision

scientific article published in August 2013

Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network

scientific article published on 11 December 2020

Research led by participants: a new social contract for a new kind of research

scientific article

Revolutionizing Medical Data Sharing Using Advanced Privacy-Enhancing Technologies: Technical, Legal, and Ethical Synthesis

scientific article published in 2021

Shaping parents: impact of contrasting professional counseling on parents' decision making for children with disorders of sex development

scientific article published on 6 June 2013

Sharing benefits in international health research. Research-capacity building as an example of an indirect collective benefit

scientific article published on January 2007

Test Pricing and Reimbursement in Genomic Medicine: Towards a General Strategy

scientific article published on 28 September 2016

The Challenges of Big Data for Research Ethics Committees: A Qualitative Swiss Study

scientific article published on 15 November 2021

The Mobile Health App Trustworthiness Checklist: Usability Assessment

scientific article published on 21 July 2020

The challenge of personal genomics in Germany

scientific article published in January 2013

The dynamics of big data and human rights: the case of scientific research

scientific article

The ethics of participant-led biomedical research

scientific article

The global landscape of AI ethics guidelines ⬇️

journal article from 'Nature Machine Intelligence' published in 2019

The next step in the patient revolution: patients initiating and leading research

scientific article published on 01 July 2014

The place of human rights and the common good in global health policy.

scientific article

Towards a Governance Framework for Brain Data

scientific article published in 2022

Use of modern contraception by the poor is falling behind

scientific article (publication date: February 2007)

User Perspectives of a Web-Based Data-Sharing Platform (Open Humans) on Ethical Oversight in Participant-Led Research: Protocol for a Quantitative Study

scientific article

User Perspectives of a Web-Based Data-Sharing Platform (Open Humans) on Ethical Oversight in Participant-Led Research: Protocol for a Quantitative Study (Preprint)

preprint of scientific article

Visualizing an Ethics Framework: A Method to Create Interactive Knowledge Visualizations From Health Policy Documents

scientific article published on 14 January 2020

What Is Trust? Ethics and Risk Governance in Precision Medicine and Predictive Analytics

scientific article published in December 2017

What's next for COVID-19 apps? Governance and oversight

scientific article

“Tailored-to-You”: Public Engagement and the Political Legitimation of Precision Medicine

“We the Scientists”: a Human Right to Citizen Science ⬇️

scientific article (publication date: 20 June 2015)

Paulina is supported by:

About Paulina

Help