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List of works by Barbara Prainsack

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

article by Anna Middleton et al published 1 July 2018 in Personalized Medicine

A look into the future of the COVID-19 pandemic in Europe: an expert consultation ⬇️

scientific article

A response to the forensic genetics policy initiative’s report “Establishing Best Practice for Forensic DNA Databases”

article

A solidarity-based approach to the governance of research biobanks

scientific article

A survey of UK public interest in internet-based personal genome testing

scientific article

APPLaUD: access for patients and participants to individual level uninterpreted genomic data

scientific article published on 17 February 2018

An Austrian Perspective

An action plan for pan-European defence against new SARS-CoV-2 variants

Approaching ethical, legal and social issues of emerging forensic DNA phenotyping (FDP) technologies comprehensively: Reply to 'Forensic DNA phenotyping: Predicting human appearance from crime scene material for investigative purposes' by Manfred Ka

scientific article published on 19 January 2016

Attitudes of publics who are unwilling to donate DNA data for research.

scientific article

Attitudes of social science students in Israel and Austria towards the belated twins scenario--an exploratory study

scientific article published in July 2010

Attitudes towards human reproductive cloning, assisted reproduction and gene selection: a survey of 4600 British twins

article

Being a member of the club: the transnational (self-)governance of networks of biobanks

scholarly article by Michaela Th. Mayrhofer & Barbara Prainsack published 2009 in International Journal of Risk Assessment and Management

Beyond clinical utility: The multiple values of DTC genetics

scientific article published on February 2016

Beyond individualism: Is there a place for relational autonomy in clinical practice and research?

scientific article published on 13 April 2017

Beyond the clinic: 'direct-to-consumer' genomic profiling services and pharmacogenomics

scientific article published on March 2013

Big Data Governance Needs More Collective Responsibility: The Role of Harm Mitigation in the Governance of Data Use in Medicine and Beyond

scientific article published on 01 February 2020

Biobanks

Bracketing off population does not advance ethical reflection on EVCs: a reply to Kayser and Schneider

scientific article

Bridging genomics research between developed and developing countries: the Genomic Medicine Alliance

COVID-19 and Contact Tracing Apps: Ethical Challenges for a Social Experiment on a Global Scale

scientific article published on 25 August 2020

Caring for data: Value creation in a data-intensive research laboratory

scientific article published on 13 February 2020

Citizen Science in Health Domain

article

Civil society stakeholder views on forensic DNA phenotyping: Balancing risks and benefits

scientific article published on 28 August 2019

Consent insufficient for data release

scientific article published on 01 May 2019

Crowdsourcing the Human Gut. Is crowdsourcing also 'citizen science'?

scientific article published on 20 April 2016

DNA behind bars: other ways of knowing forensic DNA technologies

scientific article published in February 2009

Data Work: Meaning-Making in the Era of Data-Rich Medicine

scientific article published on 09 July 2019

Direct-to-consumer genome testing: opportunities for pharmacogenomics research?

scientific article published on May 2010

Elias G. Carayannis and David F. J. Campbell, Mode 3 Knowledge Production in Quadruple Helix Innovation Systems: 21st-Century Democracy, Innovation, and Entrepreneurship for Development

article

Embryonic Hopes: Controversy, Alliance, and Reproductive Entities in Law and the Social Sciences

Emerging ethical issues regarding digital health data. On the World Medical Association Draft Declaration on Ethical Considerations Regarding Health Databases and Biobanks

scientific article

Emotion in political discourse: contrasting approaches to stem cell governance in the USA, UK, Israel and Germany

article

Enterprising or altruistic selves? Making up research subjects in genetics research

scientific article

Ethical issues in genomic research: Proposing guiding principles co-produced with stakeholders

Ethical standards for research biobank donation

scientific article published in April 2015

Ethics of Healthcare Policy and the Concept of Solidarity

article

Evaluating the consent preferences of UK research volunteers for genetic and clinical studies

scientific article

Every participant is a PI. Citizen science and participatory governance in population studies

scientific article published on 17 January 2017

Experiences of early users of direct-to-consumer genomics in Switzerland: an exploratory study

scientific article

Genetically modified survival: red and green biotechnology in Israel

scientific article published in December 2005

Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe

scientific article published on 06 May 2020

Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

scientific article published on 14 September 2020

Health Information Counselors

article

How do we collaborate? Social science researchers’ experience of multidisciplinarity in biomedical settings

In Reply to Kringos et al

scientific article published on 01 June 2019

Information access. Raw personal data: providing access

scientific article

Integrating artificial intelligence into the clinical practice of radiology: challenges and recommendations

scientific article published on 17 February 2020

Is personalized medicine different? (Reinscription: the sequel). A response to Troy Duster

scientific article published in March 2015

Is there a duty to participate in digital epidemiology?

scientific article

James F. Drane: A Liberal Catholic Bioethics. Muenster, DE: Lit Verlag. 2010, 290 Pages

scholarly article by Andrew Papanikitas & Barbara Prainsack published 3 June 2011 in Philosophia

Knowledge, Technology and Law

Let's get real about virtual: online health is here to stay

article

Lifestyle-related diseases and individual responsibility through the prism of solidarity

Markers as mediators: A review and synthesis of epigenetics literature

article

Meeting the needs of underserved populations: setting the agenda for more inclusive citizen science of medicine

scientific article published on 12 July 2019

Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

scientific article published on 29 November 2019

Misdirected precaution

scientific article published in Nature

Moral entrepreneurship, the power-knowledge nexus, and the Cochrane "crisis"

scientific article published on 18 March 2019

Motivations of participants in the citizen science of microbiomics: data from the British Gut Project

scientific article

Nachhaltige Strategien gegen die COVID-19-Pandemie in Deutschland im Winter 2021/2022

New Genetics, New Social Formations

article

Obituary for Herbert Gottweis, Professor of Political Science, University of Vienna: Born 8 February 1958 in Vienna, died 31 March 2014 in Vienna.

scientific article

Open science, data sharing and solidarity: who benefits?

scientific article published in 2021

Opening Pandora's box in the UK: a hypothetical pharmacogenetic test for clozapine

scientific article

Overcoming embryonic exceptionalism? Lessons from analyzing human stem cell research regulation in Israel

scholarly article by Barbara Prainsack published September 2011 in New Genetics and Society

Performing the Union: the Prüm Decision and the European dream

scientific article

Personalized medicine in Austria: expectations and limitations

scientific article published on 07 October 2020

Personhood and solidarity: what kind of personalized medicine do we want?

article

Pills for the poorest: an exploration of TRIPS and access to medication in sub-Saharan Africa

article

Public involvement in the governance of population-level biomedical research: unresolved questions and future directions

scientific article published on 06 October 2020

Quadruple Decision Making for Parkinson's Disease Patients: Combining Expert Opinion, Patient Preferences, Scientific Evidence, and Big Data Approaches to Reach Precision Medicine

scientific article published on 01 January 2020

Raw data: access to inaccuracy--response

scientific article published in February 2014

Ready to put metadata on the post-2015 development agenda? Linking data publications to responsible innovation and science diplomacy

scientific article published in January 2014

Regulating genomics: time for a broader vision

scientific article published in August 2013

Relocating health governance: personalized medicine in times of 'global genes

scholarly article by Barbara Prainsack & Ursula Naue published August 2006 in Personalized Medicine

Reply: Attitudes towards human reproductive cloning, ART and gene selection

article

Research populations: biobanks in Israel

scholarly article by Barbara Prainsack published April 2007 in New Genetics and Society

Response to Dr Ulucanlar

scientific article published on 21 May 2019

Responsibility

Risiko Gesundheit

Risky profiles: societal dimensions of forensic uses of DNA profiling technologies

Separating The Social From the Natural

Situated bio-regulation: Ethnographic sensibility at the interface of STS, policy studies and the social studies of medicine

scholarly article by Barbara Prainsack & Ayo Wahlberg published 24 June 2013 in BioSocieties

Solidarity can make a difference: Addressing transformations in healthcare, demographics and technological replacement

scientific article published on 01 November 2018

Solidarity in Biomedicine and Beyond

article

Solidarity in contemporary bioethics--towards a new approach

scientific article published in September 2012

Stem Cell Stories 1998–2008

article published in 2008

Stem Cell Technologies 1998–2008: Controversies and Silences

Sticks AND Carrots: Encouraging Open Science at its source

scientific article

Test Pricing and Reimbursement in Genomic Medicine: Towards a General Strategy

scientific article published on 28 September 2016

The Handbook of Genetics & Society

article

The Politics of Life Itself: Biomedicine, Power and Subjectivity in the Twenty-First Century - By N. Rose

The Prum Regime: Situated Dis/Empowerment in Transnational DNA Profile Exchange

The Use of Forensic DNA Phenotyping in Predicting Appearance and Biogeographic Ancestry

scientific article published on 01 December 2019

The challenge of personal genomics in Germany

scientific article published in January 2013

The double-edged sword of digital self-care: Physician perspectives from Northern Germany

scientific article published on 07 July 2020

The future of technologies for personalised medicine

scientific article published on September 2012

The lifestylisation of healthcare? 'Consumer genomics' and mobile health as technologies for healthy lifestyle

scientific article published on 7 February 2015

The powers of participatory medicine

scientific article (publication date: April 2014)

The value of work: Addressing the future of work through the lens of solidarity

scientific article

The “We” in the “Me”

Thinking ethical and regulatory frameworks in medicine from the perspective of solidarity on both sides of the Atlantic

scientific article published on 08 December 2016

Toward better governance of human genomic data

scientific article published on 01 January 2021

Transparency, consent and trust in the use of customers' data by an online genetic testing company: an Exploratory survey among 23andMe users

scientific article published on 15 May 2020

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

scientific article published on 17 September 2019

Twins: A cloning experience

scientific article published on 31 July 2006

Understanding Solidarity (With a Little Help from Your Friends): Response to Dawson and Verweij

article

Valediction for Herbert Gottweis

Value-creation in the health data domain: a typology of what health data help us do

scientific article published in 2022

Voting with their Mice: Personal Genome Testing and the “Participatory Turn” in Disease Research ⬇️

scientific article published on May 1, 2011

What are the stakes? Genetic nondiscrimination legislation and personal genomics

article

Willingness to donate genomic and other medical data: results from Germany

scientific article published on 01 April 2020

Working towards personalization of Medicine: Genomics in 2014

article

‘Negotiating Life’

‘Private fears in public places?’ Ethical and regulatory concerns regarding human genomic databases

article

‘Science for survival’: biotechnology regulation in Israel

scholarly article by Barbara Prainsack & Ofer Firestine published 1 February 2006 in Science and Public Policy

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