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List of works by Barbara Prainsack

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A survey of UK public interest in internet-based personal genome testing

scientific article
Misdirected precaution

scientific article published in Nature
Information access. Raw personal data: providing access

scientific article
Experiences of early users of direct-to-consumer genomics in Switzerland: an exploratory study

scientific article
A solidarity-based approach to the governance of research biobanks

scientific article
The future of technologies for personalised medicine

scientific article published on September 2012
Evaluating the consent preferences of UK research volunteers for genetic and clinical studies

scientific article
Solidarity in contemporary bioethics--towards a new approach

scientific article published in September 2012
Beyond individualism: Is there a place for relational autonomy in clinical practice and research?

scientific article published on 13 April 2017
The Powers of Participatory Medicine

scientific article (publication date: April 2014)
Voting with their Mice: Personal Genome Testing and the “Participatory Turn” in Disease Research

scientific article published on May 1, 2011
Ready to put metadata on the post-2015 development agenda? Linking data publications to responsible innovation and science diplomacy

scientific article published in January 2014
APPLaUD: access for patients and participants to individual level uninterpreted genomic data

scientific article published on 17 February 2018
Direct-to-consumer genome testing: opportunities for pharmacogenomics research?

scientific article published on May 2010
Enterprising or altruistic selves? Making up research subjects in genetics research

scientific article
‘Negotiating Life’

Beyond the clinic: 'direct-to-consumer' genomic profiling services and pharmacogenomics

scientific article published on March 2013
Beyond clinical utility: The multiple values of DTC genetics

scientific article published on February 1, 2016
Bridging genomics research between developed and developing countries: the Genomic Medicine Alliance

DNA behind bars: other ways of knowing forensic DNA technologies

scientific article published in February 2009
Solidarity in Biomedicine and Beyond

article
The lifestylisation of healthcare? 'Consumer genomics' and mobile health as technologies for healthy lifestyle

scientific article published on 7 February 2015
Test Pricing and Reimbursement in Genomic Medicine: Towards a General Strategy

scientific article published on 28 September 2016
Personhood and solidarity: what kind of personalized medicine do we want?

article
Emotion in political discourse: contrasting approaches to stem cell governance in the USA, UK, Israel and Germany

article
Health Information Counselors

article
Bracketing off population does not advance ethical reflection on EVCs: a reply to Kayser and Schneider

scientific article
Emerging ethical issues regarding digital health data. On the World Medical Association Draft Declaration on Ethical Considerations Regarding Health Databases and Biobanks

scientific article
‘Science for survival’: biotechnology regulation in Israel

scholarly article by Barbara Prainsack & Ofer Firestine published 1 February 2006 in Science and Public Policy
Attitudes of publics who are unwilling to donate DNA data for research.

scientific article
Regulating genomics: time for a broader vision

scientific article published in August 2013
Approaching ethical, legal and social issues of emerging forensic DNA phenotyping (FDP) technologies comprehensively: Reply to 'Forensic DNA phenotyping: Predicting human appearance from crime scene material for investigative purposes' by Manfred Ka

scientific article published on 19 January 2016
Motivations of participants in the citizen science of microbiomics: data from the British Gut Project

scientific article
Lifestyle-related diseases and individual responsibility through the prism of solidarity

Research populations: biobanks in Israel

scholarly article by Barbara Prainsack published April 2007 in New Genetics and Society
'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

article by Anna Middleton et al published 1 July 2018 in Personalized Medicine
The challenge of personal genomics in Germany

scientific article published in January 2013
Biobanks

Every participant is a PI. Citizen science and participatory governance in population studies

scientific article published on 17 January 2017
Opening Pandora's box in the UK: a hypothetical pharmacogenetic test for clozapine

scientific article
Stem Cell Stories 1998–2008

article published in 2008
Understanding Solidarity (With a Little Help from Your Friends): Response to Dawson and Verweij

article
The Prum Regime: Situated Dis/Empowerment in Transnational DNA Profile Exchange

Thinking ethical and regulatory frameworks in medicine from the perspective of solidarity on both sides of the Atlantic

scientific article published on 08 December 2016
Sticks AND Carrots: Encouraging Open Science at its source

scientific article
Genetically modified survival: red and green biotechnology in Israel

scientific article published in December 2005
What are the stakes? Genetic nondiscrimination legislation and personal genomics

article
Twins: A cloning experience

scientific article published on 31 July 2006
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

scientific article published on 17 September 2019
Being a member of the club: the transnational (self-)governance of networks of biobanks

scholarly article by Michaela Th. Mayrhofer & Barbara Prainsack published 2009 in International Journal of Risk Assessment and Management

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