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List of works by Wylie Burke

'That's like chopping off a finger because you're afraid it might get broken': disease and illness in women's views of prophylactic mastectomy

scientific article published on 5 March 2005

A call for accurate pharmacogenetic labeling: telling it like it is

scientific article

A formal risk-benefit framework for genomic tests: Facilitating the appropriate translation of genomics into clinical practice ⬇️

scientific article published on November 1, 2010

A reality check for personalized medicine

scientific article published in Nature

ASHG Presidential Address: Who is under the umbrella--and why are we here?

scientific article published in May 2008

ASHG Statement* on Direct-to-Consumer Genetic Testing in the United States

scholarly article by Kathy Hudson et al published December 2007 in Obstetrics and Gynecology

Achieving utility with family history: colorectal cancer risk

scientific article

Actionable exomic incidental findings in 6503 participants: challenges of variant classification

scientific article

Actionable, pathogenic incidental findings in 1,000 participants' exomes

scientific article published on 19 September 2013

Adding pharmacogenetics information to drug labels: lessons learned

scientific article

All in the family? Communication of cancer survivors with their families

scientific article

American Cancer Society guidelines for breast cancer screening: update 2003.

scientific article

American Cancer Society guidelines for breast screening with MRI as an adjunct to mammography

scientific article

An economic viewpoint on alternative strategies for identifying persons with hereditary nonpolyposis colorectal cancer ⬇️

scientific article published on September 1, 2003

An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons

scientific article published on December 2008

Anticipating dissemination of cancer genomics in public health: a theoretical approach to psychosocial and behavioral challenges

scientific article

Banning Pens and Pads Misses the Main Point

journal article; published in The American Journal of Bioethics in 2003

Beneficence, clinical urgency, and the return of individual research results to relatives

scientific article published on January 2012

Breast cancer risk communication: assessment of primary care physicians by standardized patients

scientific article

Building partnerships in community-based participatory research: budgetary and other cost considerations

scientific article published on 30 April 2013

Carnitine palmitoyltransferase 1A P479L and infant death: policy implications of emerging data

scientific article

Changing the clinical management of hereditary hemochromatosis: translating screening and early case detection strategies into clinical practice

scientific article published on May 2004

Clinical Genetic Testing for APOL1: Are we There Yet?

scientific article published in November 2017

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

scientific article

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

article

Clinical and public health implications of emerging genetic technologies

scientific article

Clinician-Stakeholders' Perspectives on Using Patient Portals to Return Lynch Syndrome Screening Results

scientific article

Closing the gap between knowledge and clinical application: challenges for genomic translation

scientific article

Commentary to "My Identical Twin Sequenced Our Genome": Cautionary Genomics

scientific article

Communication Among Melanoma Family Members

scientific article

Community crystal gazing

scientific article

Community dissemination and genetic research: moving beyond results reporting.

scientific article published on 21 April 2015

Comparative effectiveness of next generation genomic sequencing for disease diagnosis: design of a randomized controlled trial in patients with colorectal cancer/polyposis syndromes

journal article published in 2014

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

scientific article

Current Priorities for Public Health Practice in Addressing the Role of Human Genomics in Improving Population Health ⬇️

scientific article published on April 1, 2011

Cytochrome p450 enzyme polymorphism frequency in indigenous and native american populations: a systematic review

scientific article published on 26 March 2008

Debating clinical utility

scientific article

Design, implementation, and first-year outcomes of a value-based drug formulary

scientific article published on April 2015

Diabetes and HFE mutations: cause or coincidence?

scientific article

Dietary and genetic influences on hemostasis in a Yup'ik Alaska Native population

scientific article

Differential use of available genetic tests among primary care physicians in the United States: results of a national survey

scientific article published on June 2008

Discordance in selected designee for return of genomic findings in the event of participant death and estate executor

scientific article published on 16 January 2017

Diverse Perceptions of the Informed Consent Process: Implications for the Recruitment and Participation of Diverse Communities in the National Children's Study ⬇️

scientific article published on March 1, 2012

Does genomic risk information motivate people to change their behavior?

scientific article published on 02 April 2009

Duty to Warn At-Risk Family Members of Genetic Disease ⬇️

scientific article published on September 1, 2009

Educational needs in genetic medicine: primary care perspectives

scientific article

Effects of individual and family functioning on interest in genetic testing

scientific article published in January 2004

Effects of web-based intervention on risk reduction behaviors in melanoma survivors

scientific article published on 26 November 2014

Erratum: Community crystal gazing

scholarly article published in Nature Biotechnology

Essential elements of personalized medicine

scientific article published on 08 December 2013

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

scientific article

Ethical issues arising from the participation of children in genetic research

scientific article published on July 2006

Ethical issues in identifying and recruiting participants for familial genetic research

scientific article published in November 2004

Ethical obligations and counseling challenges in cancer genetics

scientific article

Ethics Rounds: Death After Pediatric Dental Anesthesia: An Avoidable Tragedy?

scientific article published on 7 November 2017

Exploring pathways to trust: a tribal perspective on data sharing

scientific article

Extending the reach of public health genomics: what should be the agenda for public health in an era of genome-based and “personalized” medicine?

scientific article published in December 2010

Family history as a predictor of asthma risk

scientific article

Family history assessment to detect increased risk for colorectal cancer: conceptual considerations and a preliminary economic analysis

scientific article

From Leaky Pipeline to Irrigation System: Minority Education Through the Lens of Community-Based Participatory Research ⬇️

scientific article published on January 1, 2012

Gene expression profiling and breast cancer care: what are the potential benefits and policy implications?

scientific article published in July 2005

Genetic assessment of breast cancer risk in primary care practice

scientific article published in March 2009

Genetic counseling and testing for Alzheimer disease: joint practice guidelines of the American College of Medical Genetics and the National Society of Genetic Counselors

scientific article published in June 2011

Genetic screening

scientific article

Genetic test evaluation: information needs of clinicians, policy makers, and the public

scientific article

Genetic testing in primary care

scientific article published in January 2004

Genetic tests: clinical validity and clinical utility

scientific article

Genetics as a tool to improve cancer outcomes: ethics and policy

scholarly article by Wylie Burke & Nancy Press published June 2006 in Nature Reviews Cancer

Genetics education for primary-care providers

scientific article

Genetics researchers' and IRB professionals' attitudes toward genetic research review: a comparative analysis ⬇️

scientific article

Genomic profiling to promote a healthy lifestyle: not ready for prime time

scientific article

Genomic research and wide data sharing: views of prospective participants

scientific article (publication date: August 2010)

Genomics as a probe for disease biology

scientific article

Genomics, Health Disparities, and Missed Opportunities for the Nation's Research Agenda

scientific article published on 27 March 2017

Glad you asked: participants' opinions of re-consent for dbGap data submission

scientific article

Health System Implications of Direct-to-Consumer Personal Genome Testing ⬇️

scientific article published on November 13, 2010

Hereditary diffuse gastric cancer: association with lobular breast cancer

scientific article

Hereditary haemochromatosis: a realistic approach to prevention of iron overload disease in the population

scientific article

Hereditary hemochromatosis: perspectives of public health, medical genetics, and primary care

scientific article

Identifying "ownership" through role descriptions to support implementing universal colorectal cancer tumor screening for Lynch syndrome

scientific article published on 4 May 2017

If you build it, they will come: unintended future uses of organised health data collections

scientific article

Implementation outcomes of a multiinstitutional web-based ethical, legal, and social implications genetics curriculum for primary care residents in three specialties.

scientific article published in June 2011

Implementing Precision Medicine: The Ethical Challenges

scientific article published on 7 December 2016

Improving recommendations for genomic medicine: building an evolutionary process from clinical practice advisory documents to guidelines

scientific article published on 04 June 2019

Incorporating principles and practical wisdom in research ethics education: a preliminary study

scientific article published on 01 January 2007

Industry, ethics, and general medicine: workshop no. 5

article

Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?

scientific article (publication date: July 2012)

Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance

scholarly article by Wylie Burke et al published March 2018 in Journal of Law, Medicine, and Ethics

Initiation of universal tumor screening for Lynch syndrome in colorectal cancer patients as a model for the implementation of genetic information into clinical oncology practice

scientific article

International network of cancer genome projects

scientific article

Is "incidental finding" the best term?: a study of patients' preferences

scientific article published on 04 August 2016

Jewish identity and intentions to obtain breast cancer screening

scientific article published in February 2003

Looking for Trouble and Finding It.

scientific article published in January 2015

Managing incidental genomic findings: legal obligations of clinicians

scientific article published on 28 February 2013

Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide

scientific article

Maternal perspectives on the return of genetic results: Context matters ⬇️

scientific article published on December 13, 2012

Motivating factors for physician ordering of factor V Leiden genetic tests

scientific article published on January 2009

NIH State-of-the-Science Conference Statement: Role of active surveillance in the management of men with localized prostate cancer

scientific article published on December 5, 2011

National Institutes of Health State-of-the-Science Conference: role of active surveillance in the management of men with localized prostate cancer

scientific article

Native Hawaiian views on biobanking

scientific article

Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium

scientific article published on 31 August 2017

Newborn screening technology: proceed with caution

scientific article

Next-Generation Sequencing Panels for the Diagnosis of Colorectal Cancer and Polyposis Syndromes: A Cost-Effectiveness Analysis

scientific article published on 4 May 2015

Next-generation sequencing in the clinic: are we ready?

scientific article

Offering aggregate results to participants in genomic research: opportunities and challenges

scientific article (publication date: April 2012)

Offering individual genetic research results: context matters

scientific article

P450 Pharmacogenetics in Indigenous North American Populations

scientific article published in February 2018

Partnership with the Confederated Salish and Kootenai Tribes: Establishing an Advisory Committee for Pharmacogenetic Research

scientific article published on January 2016

Partnership with the Confederated Salish and Kootenai Tribes: Establishing an Advisory Committee for Pharmacogenetic Research

scientific article

Pathways from autism spectrum disorder diagnosis to genetic testing

scientific article published on 19 October 2017

Patient safety in genomic medicine: an exploratory study

scientific article published on 24 March 2016

Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death

scientific article

Personalized Medicine and Tobacco-Related Health Disparities: Is There a Role for Genetics? ⬇️

scientific article published on July 1, 2011

Pharmacogenetic research in partnership with American Indian and Alaska Native communities

scientific article

Pharmacogenetic testing: not as simple as it seems

article by Susanne B Haga & Wylie Burke published June 2008 in Genetics in Medicine

Pharmacogenomic testing to prevent aminoglycoside-induced hearing loss in cystic fibrosis patients: potential impact on clinical, patient, and economic outcomes

scientific article published on October 2007

Pharmacogenomics in diverse practice settings: implementation beyond major metropolitan areas

scientific article

Population description and its role in the interpretation of genetic association

scientific article

Practicing moral medicine: patient care to public health

scientific article published in March 2006

Predictors of recruited melanoma families into a behavioral intervention project

journal article published in 2012

Primary-care physicians’ access to genetic specialists: an impediment to the routine use of genomic medicine? ⬇️

scientific article published on January 10, 2013

Processes and preliminary outputs for identification of actionable genes as incidental findings in genomic sequence data in the Clinical Sequencing Exploratory Research Consortium

scientific article

Recommendations for returning genomic incidental findings? We need to talk!

scientific article

Recommendations for the care of individuals with an inherited predisposition to Lynch syndrome: a systematic review

scientific article published on September 2006

Reconsidering the family history in primary care

scientific article

Regulatory changes raise troubling questions for genomic testing

scientific article

Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research ⬇️

scientific article published on September 1, 2010

Response to Koeller et al.

scientific article published on 10 August 2017

Response to Phillips et al.

scientific article published in April 2015

Response to Strong

scientific article published in August 2015

Responsible Research With Urban American Indians and Alaska Natives

scientific article published on 25 October 2018

Return of genomic results to research participants: the floor, the ceiling, and the choices in between

scientific article

Return of incidental findings in genomic medicine: measuring what patients value--development of an instrument to measure preferences for information from next-generation testing (IMPRINT).

scientific article

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

scientific article (publication date: April 2012)

Return of results: ethical and legal distinctions between research and clinical care

scientific article

Risk, reward, and the double-edged sword: perspectives on pharmacogenetic research and clinical testing among Alaska Native people

scientific article published on 17 October 2013

Seeking Genomic Knowledge: The Case for Clinical Restraint

scientific article published on August 2013

Stakeholder perspectives on a risk-benefit framework for genetic testing

scientific article published on 20 April 2010

Systems medicine and the public's health

scientific article published on 27 July 2011

Teaching with single nucleotide polymorphisms: Learning the right lessons ⬇️

scientific article published on January 1, 2011

Testing Minors for Breast Cancer ⬇️

scientific article published on January 1, 2007

The FDA and genomic tests--getting regulation right

scientific article published on 27 May 2015

The OHRP and SUPPORT

scientific article

The asthma consultative process: a collaborative approach to integrating genomics into public health practice

scientific article

The cost-effectiveness of returning incidental findings from next-generation genomic sequencing

scientific article published on 13 November 2014

The genomic applications in practice and prevention network

scientific article published on July 2009

The path from genome-based research to population health: development of an international public health genomics network

scientific article

The rules remain the same for genomic medicine: the case against "reverse genetic exceptionalism".

scientific article

The translational potential of research on the ethical, legal, and social implications of genomics

scientific article

Translational genomics: seeking a shared vision of benefit

scientific article published on March 2008

Trends in death associated with pediatric dental sedation and general anesthesia

scientific article published on 14 June 2013

Uninformed consent in nutrigenomic research

scientific article published on 10 May 2017

Use of Factor V Leiden genetic testing in practice and impact on management

scientific article

Using pharmacogenetics to improve drug safety and efficacy

scientific article

Values in translation: how asking the right questions can move translational science toward greater health impact

scientific article published on 7 August 2012

WHAT DNA CAN AND CANNOT SAY: PERSPECTIVES OF IMMIGRANT FAMILIES ABOUT THE USE OF GENETIC TESTING IN IMMIGRATION.

scientific article published on January 2015

Waiving informed consent in newborn screening research: balancing social value and respect

Whole-Genome Sequencing in Healthy People

scientific article published on January 2017

Will genomics widen or help heal the schism between medicine and public health?

scientific article published in October 2007

Will knowledge of gene-based colorectal cancer disease risk influence quality of life and screening behavior? Findings from a population-based study

scientific article published on 02 March 2009

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