Search filters

Authors whose works are in public domain in at least one jurisdiction

List of works by Stephanie M Fullerton

"Getting off the Bus Closer to Your Destination": Patients' Views about Pharmacogenetic Testing

scientific article published in June 2015

A high-resolution HLA reference panel capturing global population diversity enables multi-ancestry fine-mapping in HIV host response

scientific article

A review of the key issues associated with the commercialization of biobanks

scientific article (publication date: March 2014)

Actionable exomic incidental findings in 6503 participants: challenges of variant classification

scientific article

Allocation of Resources to Communication of Research Result Summaries

scientific article published on 8 September 2016

Awareness of Federal Regulatory Mechanisms Relevant to Community-Engaged Research: Survey of Health Disparities-Oriented NIH-Funded Investigators

scientific article published on 10 December 2014

Beneficence, clinical urgency, and the return of individual research results to relatives

scientific article published on January 2012

Broad Consent for Research With Biological Samples: Workshop Conclusions

scientific article

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

scientific article

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine

article

Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions

scientific article

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

scientific article

Discordance in selected designee for return of genomic findings in the event of participant death and estate executor

scientific article published on 16 January 2017

Dissecting complex disease: the quest for the Philosopher's Stone?

scientific article

Engaging Study Participants in Research Dissemination at a Center for Population Health and Health Disparities

scientific article

Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

scientific article (publication date: July 2011)

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

scientific article

Familial identification: population structure and relationship distinguishability

scientific article

Forensic familial searching: scientific and social implications

scientific article published on July 2013

From patients to partners: participant-centric initiatives in biomedical research

scientific article

Genes, Environment, and Cancer Disparities

article

Genomic research and wide data sharing: views of prospective participants

scientific article (publication date: August 2010)

Genomics is failing on diversity

scientific article published on 12 October 2016

Geographic and haplotype structure of candidate type 2 diabetes susceptibility variants at the calpain-10 locus

scientific article

Glad you asked: participants' opinions of re-consent for dbGap data submission

scientific article

Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era

scientific article

Inferring genetic ancestry: opportunities, challenges, and implications

scientific article

Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?

scientific article (publication date: July 2012)

Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance

scholarly article by Wylie Burke et al published March 2018 in Journal of Law, Medicine, and Ethics

Looking for Trouble and Finding It.

scientific article published in January 2015

Meeting the governance challenges of next-generation biorepository research

scientific article

No Panacea: Next-Gen Sequencing Will Not Mitigate Adoptees' Lack of Genetic Family Health History

scientific article

Offering aggregate results to participants in genomic research: opportunities and challenges

scientific article (publication date: April 2012)

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment

scientific article

Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey

scientific article published on 01 July 2018

Patient safety in genomic medicine: an exploratory study

scientific article published on 24 March 2016

Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death

scientific article

Population description and its role in the interpretation of genetic association

scientific article

Practice Implications of Expanded Genetic Testing in Oncology

scientific article published on 24 January 2019

Prospective participant selection and ranking to maximize actionable pharmacogenetic variants and discovery in the eMERGE Network ⬇️

scientific article published on 3 July 2015

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

scientific article

Race and ancestry in biomedical research: exploring the challenges

scientific article

Race-based medicine and justice as recognition: exploring the phenomenon of BiDil

scientific article

Racialized genetics and the study of complex diseases: the thrifty genotype revisited

scientific article published on January 2007

Racing around, getting nowhere

Recommendations for ethical approaches to genotype-driven research recruitment

scientific article

Refining the structure and content of clinical genomic reports

scientific article

Relationships with Test-Tubes: Where's the Reciprocity?

Research guidelines in the era of large-scale collaborations: an analysis of Genome-wide Association Study Consortia

scientific article

Return of genomic results to research participants: the floor, the ceiling, and the choices in between

scientific article

Return of incidental findings in genomic medicine: measuring what patients value--development of an instrument to measure preferences for information from next-generation testing (IMPRINT).

scientific article

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

scientific article (publication date: April 2012)

Returning pleiotropic results from genetic testing to patients and research participants

scientific article

Rural Mexican-Americans' perceptions of family health history, genetics, and disease risk: implications for disparities-focused research dissemination

scientific article

Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel

scientific article

Sequencing of 53,831 diverse genomes from the NHLBI TOPMed Program

scientific article published on 6 March 2019

Sharing data and experience: using the Clinical and Translational Science Award (CTSA) "moral community" to improve research ethics consultation

scientific article

Stakeholder engagement: a key component of integrating genomic information into electronic health records

scientific article

Strategies and stakeholders: minority recruitment in cancer genetics research

scientific article published on 14 April 2008

The effects of scale: variation in the APOA1/C3/A4/A5 gene cluster

scientific article

Toward better governance of human genomic data

scientific article published on 01 January 2021

Transdisciplinary approaches to understanding and eliminating ethnic health disparities: are we on the right track? ⬇️

scientific article published on January 1, 2012

Using Genetic Technologies To Reduce, Rather Than Widen, Health Disparities

scientific article published on August 2016

Using genetically informed, randomized prevention trials to test etiological hypotheses about child and adolescent drug use and psychopathology

scientific article published on 8 August 2013

Values in translation: how asking the right questions can move translational science toward greater health impact

scientific article published on 7 August 2012

What are our AIMs? Interdisciplinary Perspectives on the Use of Ancestry Estimation in Disease Research

scientific article

dbGaP data access requests: a call for greater transparency

scientific article (publication date: 14 December 2011)

Paulina is supported by:

About Paulina

Help