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List of works by Paul Wicks

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Sharing health data for better outcomes on PatientsLikeMe

scientific article (publication date: 14 June 2010)
Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm

scientific article
Patient-reported outcomes as a source of evidence in off-label prescribing: analysis of data from PatientsLikeMe

scientific article
Prevalence of depression in a 12-month consecutive sample of patients with ALS.

scientific article published in September 2007
Concordance between site of onset and limb dominance in amyotrophic lateral sclerosis

scientific article published on 18 June 2010
The power of social networking in medicine

scientific article
Perceived benefits of sharing health data between people with epilepsy on an online platform

scientific article
SOD1 and cognitive dysfunction in familial amyotrophic lateral sclerosis

scientific article published in February 2009
Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ).

scientific article
Measuring function in advanced ALS: validation of ALSFRS-EX extension items

scientific article published in March 2009
Innovations in e-health

scientific article published on 14 July 2013
Online assessment of ALS functional rating scale compares well to in-clinic evaluation: a prospective trial

scientific article published in February 2012
Subjects no more: what happens when trial participants realize they hold the power?

scientific article (publication date: 28 January 2014)
Patient-Reported Outcome Measures in Safety Event Reporting: PROSPER Consortium guidance

scientific article published on December 2013
Evaluation of an online platform for multiple sclerosis research: patient description, validation of severity scale, and exploration of BMI effects on disease course

scientific article
Prevalence of depression in amyotrophic lateral sclerosis and other motor disorders

scientific article
Neuronal loss associated with cognitive performance in amyotrophic lateral sclerosis: an (11C)-flumazenil PET study

scientific article
Changes in memory for emotional material in amyotrophic lateral sclerosis (ALS).

scientific article published on 26 January 2005
PatientsLikeMe: Consumer health vocabulary as a folksonomy

scientific article
Three soccer playing friends with simultaneous amyotrophic lateral sclerosis

article published in 2007
The multiple sclerosis rating scale, revised (MSRS-R): development, refinement, and psychometric validation using an online community

scientific article
ALS patients request more information about cognitive symptoms

scientific article
Preferred features of oral treatments and predictors of non-adherence: two web-based choice experiments in multiple sclerosis patients

scientific article
Quantifying short-term dynamics of Parkinson's disease using self-reported symptom data from an Internet social network

scientific article
Pathological gambling amongst Parkinson's disease and ALS patients in an online community (PatientsLikeMe.com).

scientific article
Patient assessment of physician performance of epilepsy quality-of-care measures

scientific article
Mining online social network data for biomedical research: a comparison of clinicians' and patients' perceptions about amyotrophic lateral sclerosis treatments

scientific article
Severe loss of appetite in amyotrophic lateral sclerosis patients: online self-assessment study

scientific article
Hypothesis: Higher prenatal testosterone predisposes ALS patients to improved athletic performance and manual professions

scientific article published on December 20, 2011
The real-world patient experience of fingolimod and dimethyl fumarate for multiple sclerosis

scientific article
Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level

scientific article
Quality of life in organ transplant recipients participating in an online transplant community

scientific article (publication date: 2014)
Scaling PatientsLikeMe via a "Generalized Platform" for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising

scientific article published on 7 May 2018
ALS Untangled No. 20: the Deanna protocol

scientific article published on 02 May 2013
Reassessing received wisdom in ALS – pain is common when studied systematically

scientific article published on October 4, 2011
Modifiable barriers to enrollment in American ALS research studies

scientific article published on 7 May 2010
Excessive yawning is common in the bulbar-onset form of ALS

Feasibility of a web-based survey of hallucinations and assessment of visual function in patients with Parkinson's disease

scientific article published on 06 January 2014
Absence of cognitive, behavioral, or emotional dysfunction in progressive muscular atrophy

scientific article
The potential research impact of patient reported outcomes on osteogenesis imperfecta

scientific article
Letter to the editor: quality of mental health information on Wikipedia

scientific article
Lunasin does not slow ALS progression: results of an open-label, single-center, hybrid-virtual 12-month trial

scientific article published on 21 January 2019
A rapid screening battery to identify frontal dysfunction in patients with ALS.

scientific article published in July 2007
Getting stem cell patients 'on the grid'.

scientific article
Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community

scientific article published on 21 February 2019
E-mental health: A medium reaches maturity

scientific article published on June 19, 2012
The Virtuous Circle of the Quantified Self: A Human Computational Approach to Improved Health Outcomes

article
Improving clinical trial outcomes in amyotrophic lateral sclerosis

scientific article published on 18 December 2020
Digital Trespass: User Agreement Violations by Researchers Accessing an Online Community (Preprint)

Information wants to be free, but when it comes to clinical trials can we afford to let it be?

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