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List of works by Paul Wicks

A Modular Health-Related Quality of Life Instrument for Electronic Assessment and Treatment Monitoring: Web-Based Development and Psychometric Validation of Core Thrive Items

scientific article published on 25 January 2019

A rapid screening battery to identify frontal dysfunction in patients with ALS.

scientific article published in July 2007

ALS Untangled No. 20: the Deanna protocol

scientific article published on 02 May 2013

ALS patients request more information about cognitive symptoms

scientific article

Absence of cognitive, behavioral, or emotional dysfunction in progressive muscular atrophy

scientific article

Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm

scientific article

Changes in memory for emotional material in amyotrophic lateral sclerosis (ALS).

scientific article published on 26 January 2005

Concordance between site of onset and limb dominance in amyotrophic lateral sclerosis

scientific article published on 18 June 2010

Correction of: Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level.

scientific article published on 27 October 2016

Correction: The multiple sclerosis rating scale, revised (MSRS-R): development, refinement, and psychometric validation using an online community.

scientific article published on 12 April 2013

Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community

scientific article published on 21 February 2019

Digital Trespass: User Agreement Violations by Researchers Accessing an Online Community (Preprint)

E-mental health: A medium reaches maturity ⬇️

scientific article published on June 19, 2012

Evaluation of an online platform for multiple sclerosis research: patient description, validation of severity scale, and exploration of BMI effects on disease course

scientific article

Excessive yawning is common in the bulbar-onset form of ALS

Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level

scientific article

Feasibility of a web-based survey of hallucinations and assessment of visual function in patients with Parkinson's disease

scientific article published on 06 January 2014

Getting stem cell patients 'on the grid'.

scientific article

Hypothesis: Higher prenatal testosterone predisposes ALS patients to improved athletic performance and manual professions ⬇️

scientific article published on December 20, 2011

Improving clinical trial outcomes in amyotrophic lateral sclerosis

scientific article published on 18 December 2020

Information wants to be free, but when it comes to clinical trials can we afford to let it be?

Innovations in e-health

scientific article published on 14 July 2013

LETTER TO THE EDITOR

Letter to the editor: quality of mental health information on Wikipedia

scientific article

Lunasin does not slow ALS progression: results of an open-label, single-center, hybrid-virtual 12-month trial

scientific article published on 21 January 2019

Measuring function in advanced ALS: validation of ALSFRS-EX extension items

scientific article published in March 2009

Mining online social network data for biomedical research: a comparison of clinicians' and patients' perceptions about amyotrophic lateral sclerosis treatments

scientific article

Modifiable barriers to enrollment in American ALS research studies.

scientific article published on 7 May 2010

Neuronal loss associated with cognitive performance in amyotrophic lateral sclerosis: an (11C)-flumazenil PET study

scientific article

Online assessment of ALS functional rating scale compares well to in-clinic evaluation: a prospective trial

scientific article published in February 2012

Pathological gambling amongst Parkinson's disease and ALS patients in an online community (PatientsLikeMe.com).

scientific article

Patient assessment of physician performance of epilepsy quality-of-care measures

scientific article

Patient-Reported Outcome Measures in Safety Event Reporting: PROSPER Consortium guidance

scientific article published on December 2013

Patient-reported outcomes as a source of evidence in off-label prescribing: analysis of data from PatientsLikeMe

scientific article

PatientsLikeMe: Consumer health vocabulary as a folksonomy

scientific article

Perceived benefits of sharing health data between people with epilepsy on an online platform

scientific article

Preferred features of oral treatments and predictors of non-adherence: two web-based choice experiments in multiple sclerosis patients

scientific article

Prevalence of depression in a 12-month consecutive sample of patients with ALS.

scientific article published in September 2007

Prevalence of depression in amyotrophic lateral sclerosis and other motor disorders

scientific article

Quality of life in organ transplant recipients participating in an online transplant community

scientific article (publication date: 2014)

Quantifying short-term dynamics of Parkinson's disease using self-reported symptom data from an Internet social network

scientific article

Reassessing received wisdom in ALS – pain is common when studied systematically ⬇️

scientific article published on October 4, 2011

Rethinking the locked-in state for people with ALS

scientific article published on 07 August 2019

SOD1 and cognitive dysfunction in familial amyotrophic lateral sclerosis

scientific article published in February 2009

Scaling PatientsLikeMe via a "Generalized Platform" for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising.

scientific article published on 7 May 2018

Scaling PatientsLikeMe via a �Generalized Platform� for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising (Preprint)

Scaling PatientsLikeMe: Web-based Survey of Benefits Arising for Members with Chronic Illness Using a �Generalized� Platform

Severe loss of appetite in amyotrophic lateral sclerosis patients: online self-assessment study

scientific article

Sharing access might increase engagement ⬇️

scientific article published in the British Medical Journal

Sharing health data for better outcomes on PatientsLikeMe

scientific article (publication date: 14 June 2010)

Subjects no more: what happens when trial participants realize they hold the power?

scientific article (publication date: 28 January 2014)

The Virtuous Circle of the Quantified Self: A Human Computational Approach to Improved Health Outcomes

article

The multiple sclerosis rating scale, revised (MSRS-R): development, refinement, and psychometric validation using an online community

scientific article

The potential research impact of patient reported outcomes on osteogenesis imperfecta

scientific article

The power of social networking in medicine.

scientific article

The real-world patient experience of fingolimod and dimethyl fumarate for multiple sclerosis

scientific article

Three soccer playing friends with simultaneous amyotrophic lateral sclerosis

article published in 2007

Thrive Core Items - A Modular Health-Related Quality of Life Instrument for Electronic Assessment and Treatment Monitoring: Online Development and Psychometric Validation (Preprint)

Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ).

scientific article

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