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List of works by Margaret Otlowski

A Scenario-Based Methodology for Analyzing the Ethical, Legal, and Social Issues in Genomic Data Sharing

scientific article published on 19 May 2020

A review of the key issues associated with the commercialization of biobanks

scientific article (publication date: March 2014)

A right to die? Euthanasia and the law in Australia.

scientific article

Active voluntary euthanasia: options for reform

scientific article published on 01 January 1994

An exploration of the legal and socio-ethical implications of predictive genetic testing of children.

scientific article published in July 2004

Angels of Death: Exploring the Euthanasia Underground

Attitudes of the general public towards the disclosure of individual research results and incidental findings from biobank genomic research in Australia

scientific article published on 21 September 2015

Australia: regulating genomic data sharing to promote public trust

article

Australian Perspectives on the Ethical and Regulatory Considerations for Responsible Data Sharing in Response to the COVID-19 Pandemic

scientific article published on 01 August 2020

Australian empirical study into genetic discrimination

scientific article

Australian reforms enabling disclosure of genetic information to genetic relatives by health practitioners

scientific article

Community engagement for big epidemiology: deliberative democracy as a tool

scientific article

Correction to: Australia: regulating genomic data sharing to promote public trust

article

Correction to: Genetic discrimination by Australian insurance companies: a survey of consumer experiences

scientific article published on 01 January 2020

Disclosing genetic information to at-risk relatives: new Australian privacy principles, but uniformity still elusive.

scientific article published on April 2015

Disclosing genetic information to family members without consent: Five Australian case studies

scientific article published on 14 August 2020

Disclosure of Individual Research Results and Incidental Findings in Biobank Research: Why We Need an Evidence-based Approach

article

Disclosure of genetic information to at-risk relatives: recent amendments to the Privacy Act 1988 (Cwlth)

scientific article published on 01 October 2007

Don Chalmers: His Contributions to Legal Research and Education, Health Law, and Research Ethics, Locally and Globally

scientific article published on 01 December 2020

Donor Perspectives on Issues Associated with Donation of Genetic Samples and Information: An Australian Viewpoint

article

Essentially yours: the protection of human genetic information in Australia.

scientific article

Establishing the International Genetic Discrimination Observatory

scientific article published on 23 March 2020

Establishing the offense of non-consensual genetic testing in Australia: a call for action.

scientific article

Ethical Considerations for the Return of Incidental Findings in Ophthalmic Genomic Research

scientific article published on 9 February 2016

Ethical and legal issues and the "new genetics"

article

Exploring the concept of genetic discrimination.

scientific article

Genetic Testing and Protection of Genetic Privacy

Genetic discrimination by Australian insurance companies: a survey of consumer experiences

scientific article published on 08 July 2019

Genetic discrimination: international perspectives

scientific article published on 15 May 2012

Genetic discrimination: meeting the challenges of an emerging issue.

scientific article

Genetic discrimination: too few data

scientific article

Genetic testing and insurance in Australia

scientific article published on 01 March 2019

Genetics and Insurance in Australia: Concerns around a Self-Regulated Industry

scientific article published on 26 October 2017

Genetics, Insurance and Professional Practice: Survey of the Australasian Clinical Genetics Workforce

article

Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era

scientific article

How are genetic test results being used by Australian life insurers?

scientific article published on 11 June 2018

Human genetic databanks in Australia: indications of inconsistency and confusion

article

Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients

scientific article published on 19 May 2008

Investigating genetic discrimination in Australia: opportunities and challenges in the early stages.

scientific article

Investigating genetic discrimination in the Australian life insurance sector: the use of genetic test results in underwriting, 1999-2003.

scientific article

Key Themes in the Policy Debate on Human Genetic Research and Genetic Databanks: An Evaluation

scientific article published on 01 December 2008

Key challenges in bringing CRISPR-mediated somatic cell therapy into the clinic.

scientific article published on 25 September 2017

Life insurance and genetic test results: a mutation carrier's fight to achieve full cover.

scientific article published in September 2013

Major study commencing into genetic discrimination in Australia

scientific article published on August 2002

Mercy killing cases in the Australian criminal justice system

scientific article published on 01 February 1993

Methodological considerations in the study of genetic discrimination

scientific article

New avenues within community engagement: addressing the ingenuity gap in our approach to health research and future provision of health care

article

Personalised medicine in the genome era.

scientific article published in March 2013

Physician-assisted death: dying with dignity?

scientific article published in October 2003

Predicting intention to biobank: a national survey.

scientific article

Public reaction to direct-to-consumer online genetic tests: Comparing attitudes, trust and intentions across commercial and conventional providers

scientific article

Public trust and global biobank networks

scientific article published on 15 August 2020

Re Evelyn -- reflections on Australia's first litigated surrogacy case

scientific article published on 01 January 1999

Regulation of Non-consensual Genetic Testing in Australia: Use of Samples from Deceased Persons

scientific article published on 01 January 2016

Research ethics recommendations for whole-genome research: consensus statement

scientific article

Should Australia Ban the Use of Genetic Test Results in Life Insurance?

scientific article published on 13 December 2017

Strategies to Guide the Return of Genomic Research Findings: An Australian Perspective

scientific article published on 16 May 2018

Tackling legal challenges posed by population biobanks: reconceptualising consent requirements ⬇️

scientific article published on January 29, 2012

The Nancy Crick case

scientific article published on 01 July 2002

The impact of commercialisation and genetic data sharing arrangements on public trust and the intention to participate in biobank research

scientific article published on 13 March 2015

To know or not to know: an update of the literature on the psychological and behavioral impact of genetic testing for Alzheimer disease risk

scientific article published on 25 June 2012

To share or not to share is the question

scientific article

Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing

scientific article published in March 2009

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