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List of works by Nadine Kasparian

"Congenital heart health": how psychological care can make a difference

scientific article

"Getting ready for the adult world": how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being

article

"It's not just the wheelchair, it's everything else": Australian parents' perspectives of wheelchair prescription for children with neuromuscular disorders

scientific article published on 21 April 2019

"Melanoma: Questions and Answers." Development and evaluation of a psycho-educational resource for people with a history of melanoma

scientific article published on 27 July 2016

"The Whole Game is Changing and You've Got Hope": Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy

scientific article published on 08 April 2020

A qualitative study on decision-making about BRCA1/2 testing in Italian women

scientific article published on 05 May 2019

Advanced cancer patients' attitudes towards, and experiences with, screening for somatic mutations in tumours: a qualitative study.

scientific article published on 11 October 2016

Anticipated uptake of genetic testing for familial melanoma in an Australian sample: An exploratory study

scientific article published in January 2007

Assessment of Psychosocial Outcomes in Genetic Counseling Research: An Overview of Available Measurement Scales

scientific article published on 13 August 2007

Attitudes to genetic testing in families with multiple cases of bipolar disorder

scientific article published in June 2008

Attitudes toward genetic testing for cancer risk after genetic counseling and decision support: a qualitative comparison between hereditary cancer types

scientific article

Attitudes towards childbearing, causal attributions for bipolar disorder and psychological distress: a study of families with multiple cases of bipolar disorder

scientific article published on 31 May 2007

Better the Devil You Know? High-Risk Individuals’ Anticipated Psychological Responses to Genetic Testing for Melanoma Susceptibility

article

Caring for infants with posterior urethral valves: A qualitative study of parents' experiences

scientific article published in January 2017

Children's experiences of congenital heart disease: a systematic review of qualitative studies

scientific article published on 11 January 2018

Communication and Information Needs of Women Diagnosed With Ovarian Cancer Regarding Treatment-Focused Genetic Testing

article by Margaret Gleeson et al published 7 March 2013 in Oncology Nursing Forum

Congenital Heart Disease Requires a Lifetime Continuum of Care: A Call for a Regional Registry

article

Development and pilot testing of a decision aid for men considering genetic testing for breast and/or ovarian cancer-related mutations (BRCA1/2).

scientific article published in December 2008

Does motivation predict outcome of pelvic floor muscle retraining?

scientific article

Economic evaluations of psychosocial interventions in cancer: a systematic review

scientific article

Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study

scientific article published on 01 November 2019

Feeding difficulties in neonates following cardiac surgery: determinants of prolonged feeding-tube use.

scientific article published on 23 January 2017

Fetal and post-natal diagnosis of major congenital heart disease: implications for medical and psychological care in the current era.

scientific article published on 30 March 2011

Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.

scientific article published on 24 May 2018

Genetic counselling in parents of children with congenital heart disease significantly improves knowledge about causation and enhances psychosocial functioning

scientific article

Genetic testing for melanoma risk: a prospective cohort study of uptake and outcomes among Australian families

scientific article

Health, wellbeing and lived experiences of adults with SMA: a scoping systematic review

scientific article published on 12 March 2020

Health-Related Quality of Life in Children, Adolescents, and Adults With a Fontan Circulation: A Meta-Analysis

scientific article published on 16 March 2020

High- and average-risk individuals' beliefs about, and perceptions of, malignant melanoma: an Australian perspective

scientific article published in March 2008

How well do women understand and remember information in labour versus in late pregnancy? A pilot randomised study

scientific article published on 08 May 2019

Hypoplastic left heart syndrome in context

scientific article published on 29 April 2011

Improving subjective perception of personal cancer risk: systematic review and meta-analysis of educational interventions for people with cancer or at high risk of cancer

scientific article published on 14 January 2014

Interdisciplinary psychosocial care for families with inherited cardiovascular diseases

scientific article published on 28 April 2016

Management of People With a Fontan Circulation: a Cardiac Society of Australia and New Zealand Position statement

scientific article published on 14 November 2019

Melanoma risk factors, perceived threat and intentional tanning: an international online survey

scientific article published on May 2010

Melanoma survivors at high risk of developing new primary disease: a qualitative examination of the factors that contribute to patient satisfaction with clinical care

scientific article published on 05 February 2013

Men at Increased Risk of Developing Breast Cancer: Language Preferences for Naming a Cancer-Related Mutation

scientific article published on 01 June 2009

Mindfulness and the Experience of Psychological Distress: the Mediating Effects of Emotion Regulation and Attachment Anxiety

Need for Routine Screening of Health-Related Quality of Life in Families of Young Children with Complex Congenital Heart Disease

article

Oral contraceptive use in women at increased risk of breast/ovarian cancer: knowledge and attitudes

scientific article published on 9 September 2011

Parents' perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study.

scientific article published on 29 September 2016

Parents' perceptions of genetics services for congenital heart disease: the role of demographic, clinical, and psychological factors in determining service attendance

scientific article published on 7 November 2013

Parents' perceptions of power wheelchair prescription for children with a neuromuscular disorder: a scoping review

scientific article published on 18 June 2018

Patient-reported outcomes in melanoma survivors at 1, 3 and 5 years post-diagnosis: a population-based cross-sectional study

scientific article published on 05 March 2020

Perceptions of genetic research and testing among members of families with an increased risk of malignant melanoma

scientific article published on 21 June 2012

Perceptions of melanoma risk among Australian adolescents: barriers to sun protection and recommendations for improvement

scientific article published on 24 June 2014

Posttraumatic Stress and Prolonged Grief After the Sudden Cardiac Death of a Young Relative

scientific article published on 25 January 2016

Predictors of psychological distress among individuals with a strong family history of malignant melanoma

scientific article published on 28 December 2007

Predictors of sun protection behaviors and severe sunburn in an international online study

scientific article published on 19 July 2010

Prenatal counselling for congenital anomalies: a systematic review

scientific article published on 6 May 2016

Protocol for a within-trial economic evaluation of a psychoeducational intervention tailored to people at high risk of developing a second or subsequent melanoma.

scientific article published on 06 October 2016

Psycho-educational interventions for melanoma survivors: a systematic review

scientific article published on 30 August 2012

Psychoeducational Intervention to Reduce Fear of Cancer Recurrence in People at High Risk of Developing Another Primary Melanoma: Results of a Randomized Controlled Trial

scientific article

Psychological Responses and Coping Strategies in Skin Cancer Patients

article

Psychological adjustment among male partners in response to women's breast/ovarian cancer risk: a theoretical review of the literature

scientific article published on January 2010

Psychological care for people with melanoma: what, when, why and how?

scientific article

Psychological interventions for people affected by childhood-onset heart disease: A systematic review

scientific article published on 01 February 2019

Psychological responses and coping strategies among patients with malignant melanoma: a systematic review of the literature

scientific article published on December 2009

Psychological stress and melanoma: Are we meeting our patients' psychological needs? ⬇️

scientific article published on January 1, 2013

Psychological wellbeing and posttraumatic stress associated with implantable cardioverter defibrillator therapy in young adults with genetic heart disease

scientific article published on 5 July 2013

Psychometric properties of the Fear of Cancer Recurrence Inventory: an item response theory approach

scientific article published on 22 October 2015

Psychosocial, clinical and demographic features related to worry in patients with melanoma ⬇️

scientific article published on 18 May 2016

School students with chronic illness have unmet academic, social, and emotional school needs

scientific article published on 01 November 2019

Sensitivity of Preference-Based Quality-of-Life Measures for Economic Evaluations in Early-Stage Melanoma.

scientific article published on 29 November 2017

Skin cancer screening behaviours among individuals with a strong family history of malignant melanoma

scientific article

Skin cancer-related prevention and screening behaviors: a review of the literature

scientific article published on 12 June 2009

Skin examination behavior: the role of melanoma history, skin type, psychosocial factors, and region of residence in determining clinical and self-conducted skin examination

scientific article published on October 2012

Tell me once, tell me soon: parents' preferences for clinical genetics services for congenital heart disease

scientific article published in March 2018

The Melanoma care study: protocol of a randomised controlled trial of a psycho-educational intervention for melanoma survivors at high risk of developing new primary disease

scientific article published on 11 July 2015

The nature and structure of psychological distress in people at high risk for melanoma: a factor analytic study

scientific article

There is no decision to make: experiences and attitudes toward treatment-focused genetic testing among women diagnosed with ovarian cancer

scientific article published on 26 October 2011

Through the looking glass: an exploratory study of the lived experiences and unmet needs of families affected by Von Hippel-Lindau disease

scientific article

What can the gut microbiome teach us about the connections between child physical and mental health? A systematic review

scientific article published on 08 January 2019

When the Risks Are High

Women's knowledge, beliefs, and information needs in relation to the risks and benefits associated with use of the oral contraceptive pill

scientific article

eHealth literacy and preferences for eHealth resources in parents of children with complex CHD.

scientific article published on 19 September 2016

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